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Clubfoot – A crippling birth defect
that can be fixed with simple casts




      Program Overview for Potential Donors – July 2012
Untreated Clubfoot Cripples Life




•   1/1000 births have clubfoot. ~Equal distribution in race, gender
•   ~200,000 annual births with clubfoot
•   Unfortunately only ~20% get correction
•   Millions live crippled lives because lack of simple knowledge
Treating Clubfoot is Simple




       8-12 weeks of treatment can change a life forever



• 8-12 weekly casts
   – Casts should start within 1 month of birth
• Simple heal-cord release                                 club foot
                                                                       normal foot



• 5-8 months of braces
Ponseti Method
• Dr. Ponseti developed the simple casting technique to
  correct clubfoot in the 1960s at U of Iowa.
   – The simple casting technique is now called the Ponseti
     method




• Ponseti method is being promoted worldwide by the
  Ponseti International Association (PIA)

                                           http://www.ponseti.info
Introduction
        Pehla Qadam
            (translation: first step)




Mission: Eliminate untreated clubfoot

Method: Promote Ponseti method to
        developing countries
Goals
1. Develop a local sustainable model for
   club foot care in resource constrained
   settings

2. Create public awareness about club
   foot and its optimal management

3. Establish clubfoot treatment in
   current hospitals
Initial Project
• Initial focus on Pakistan then expand into region
• Funding team in Indus Hospital, Karachi, Pakistan
Training for Doctors
• Trained Dr. from Pakistan in Iowa. Started clinic in
  Pakistan Nov 2011



• Started creating Toolkit for expansion in Pakistan
   – Marketing materials to increase awareness
   – Training manuals for clinics
   – Ecosystem development (braces, education)
Current Status
• Total 100+ feet have been corrected since Sept 2011
• New pictures from Clinic are uploaded weekly on Facebook

• Website has more info
             http://www.pehlaqadam.org
Road Map – Next Steps
• Present results from pilot program and costing study at
  International Clubfoot Conf. in Iowa, October 2012



• Expansion of the program in Pakistan
   – City, National
   – Enable Nationwide sustainable model
       • Scalability, Capacity, Personnel, Financial, M&E,
         Reduce Costs
   – Work with Ponseti Institute Association to help Regional/Global
     outreach
Pehla Qadam Background
• US based family with personal experience
  provided initial funding in mid 2011

• Indus Hospital in Karachi, Pakistan manages Pehla
  Qadam programs



• Working closely with University of Iowa
How Can You Help
• Like us on Facebook, spread the word

• Donate Generously
   – $250 treats one child
   – Zakat, Sadaaqa, Charity are applicable
   – You can donate online, via check, wire transfer or payment
     in Karachi. For more info visit the website

  Web: http://www.pehlaqadam.org or fixclubfoot.org

  Contact: Muzaffer Haider. mhh5@hotmail.com
           Amer Haider. amerhhh@gmail.com

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Pehla Qadam Oerview July 2012

  • 1. Clubfoot – A crippling birth defect that can be fixed with simple casts Program Overview for Potential Donors – July 2012
  • 2. Untreated Clubfoot Cripples Life • 1/1000 births have clubfoot. ~Equal distribution in race, gender • ~200,000 annual births with clubfoot • Unfortunately only ~20% get correction • Millions live crippled lives because lack of simple knowledge
  • 3. Treating Clubfoot is Simple 8-12 weeks of treatment can change a life forever • 8-12 weekly casts – Casts should start within 1 month of birth • Simple heal-cord release club foot normal foot • 5-8 months of braces
  • 4. Ponseti Method • Dr. Ponseti developed the simple casting technique to correct clubfoot in the 1960s at U of Iowa. – The simple casting technique is now called the Ponseti method • Ponseti method is being promoted worldwide by the Ponseti International Association (PIA) http://www.ponseti.info
  • 5. Introduction Pehla Qadam (translation: first step) Mission: Eliminate untreated clubfoot Method: Promote Ponseti method to developing countries
  • 6. Goals 1. Develop a local sustainable model for club foot care in resource constrained settings 2. Create public awareness about club foot and its optimal management 3. Establish clubfoot treatment in current hospitals
  • 7. Initial Project • Initial focus on Pakistan then expand into region • Funding team in Indus Hospital, Karachi, Pakistan
  • 8. Training for Doctors • Trained Dr. from Pakistan in Iowa. Started clinic in Pakistan Nov 2011 • Started creating Toolkit for expansion in Pakistan – Marketing materials to increase awareness – Training manuals for clinics – Ecosystem development (braces, education)
  • 9. Current Status • Total 100+ feet have been corrected since Sept 2011 • New pictures from Clinic are uploaded weekly on Facebook • Website has more info http://www.pehlaqadam.org
  • 10. Road Map – Next Steps • Present results from pilot program and costing study at International Clubfoot Conf. in Iowa, October 2012 • Expansion of the program in Pakistan – City, National – Enable Nationwide sustainable model • Scalability, Capacity, Personnel, Financial, M&E, Reduce Costs – Work with Ponseti Institute Association to help Regional/Global outreach
  • 11. Pehla Qadam Background • US based family with personal experience provided initial funding in mid 2011 • Indus Hospital in Karachi, Pakistan manages Pehla Qadam programs • Working closely with University of Iowa
  • 12. How Can You Help • Like us on Facebook, spread the word • Donate Generously – $250 treats one child – Zakat, Sadaaqa, Charity are applicable – You can donate online, via check, wire transfer or payment in Karachi. For more info visit the website Web: http://www.pehlaqadam.org or fixclubfoot.org Contact: Muzaffer Haider. mhh5@hotmail.com Amer Haider. amerhhh@gmail.com