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Patient portals & 
personal health apps
An ecosystem for 
personal health apps 
HL7 New Zealand workshop 
10 November 2014 
Alastair Kenworthy, Ministry of Health
3
Personal health information 
across the ecosystem
5
Almost 100 general practices 
were offering a patient portal in 
September 2014 
37,000 patients had been 
provisioned a portal account
Ngaio uses a smartphone app to help manage her diabetes 
She performs blood glucose and cholesterol tests at home and 
uploads the results to her patient portal 
She graphs these results alongside lab test results, blood 
pressure, weight and exercise data 
She consults her doctor online with any concerns
Repository delegates request 
and receives authorisation to 
permit access to the app 
Clinical data 
repository 
App web 
service 
The app (a) authenticates itself to 
the repository and requests access 
to (b) save and retrieve data 
Performs home blood 
test, uploads results 
and views alongside 
other data 
Access control 
service 
Logs in and 
authorises access 
to the app
Repository delegates request 
and receives authorisation to 
permit access to the app 
Clinical data 
repository 
App web 
service 
The app (a) authenticates itself to 
the repository and requests access 
to (b) save and retrieve data 
Performs home blood 
test, uploads results 
and views alongside 
other data 
Access control 
service 
Logs in and 
authorises access 
to the app 
Record locator 
service 
X.509 
client 
cert. 
JSON 
web 
token 
Auth. 
scopes
An ecosystem that supports 
many users, apps, 
publishers, patient portals, 
repositories and access 
control services
Sharing portal and 
repository data with an app 
will be under explicit 
patient control
Blue Button provides a 
model for our own personal 
health app ecosystem
Blue Button is about apps 
having access to repository 
documents and shared 
health summaries via a 
standard API
Blue Button solutions pair 
a data service with 
an access control service
In our ecosystem, data 
services will be provided by 
patient portals, clinical data 
repositories and a record 
locator service
Each patient portal will be 
coupled with an access 
control server
Patient portals will be the 
docking points where 
personal health apps 
connect to the ecosystem
Portal systems will expose 
patient information and 
communication functions 
via a standard API
OAuth2 is the chosen 
protocol for authentication 
and authorisation
Digital certificates for 
mutual authentication will 
enable patient portals, 
repositories and access 
control services to operate 
within a circle of trust
Patient portal accounts 
will be linked to 
National Health Index 
(NHI) number
Patient portals and apps 
will allow the user to login 
with Real Me, which must 
add OAuth2 support
Support people who use 
portals and apps on behalf 
of others will have their 
own user accounts
NHI number will become 
another federated identity 
attribute under Real Me, 
which must add support for 
OpenID Connect
Health Provider Index 
(HPI) identities will be used 
and there will be an open 
electronic addressing 
scheme and directory of 
health practitioners, 
facilities and organisations
Patient portals and 
repositories will have 
RESTful APIs, based where 
practical on HL7 FHIR
Rich apps will support 
SNOMED CT and LOINC for 
clinical terminology
31 
SNOMED for ambulance 
clinical impressions
A record locator service 
will enable document 
search across all 
repositories
Apps will need to support 
the clinical document 
metadata standard and a 
common repository API
Record locator service 
Clinical data 
repository 
CDR 
CDR 
Record locator service 
one index across n sources, serving clinical 
workstations, patient portals and apps 
Storing, locating and retrieving clinical 
documents (XDS model)
Authorisation scopes will 
include: 
search:[<NHI number>] 
summary:[<NHI number>] 
send-email-to:<address>
Patient portals and apps 
will support defined CDA 
document types, FHIR 
resources and common 
media types
10041 Medications, Allergies and Adverse 
Reactions 
10043 CDA Common Templates 
10047 Comprehensive Clinical 
Assessments for Older People 
10050.2 Maternity Care Summary 
10052 Ambulance Care Summary 
GP2GP and NZePS
Xero has an API that 
enables account owners to 
grant access to apps 
Public apps are registered 
at api.xero.com and 
certification is not needed 
Access tokens are issued for 
a limited time
Certified apps may connect 
to portals and repositories 
Publishers will be asked to 
register new apps 
Accredited agents will test 
and certify apps against 
published standards
A directory of repository, 
patient portal and 
authorisation server 
endpoints will be published
Patient portals and personal health apps in New Zealand

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Patient portals and personal health apps in New Zealand

  • 1. Patient portals & personal health apps
  • 2. An ecosystem for personal health apps HL7 New Zealand workshop 10 November 2014 Alastair Kenworthy, Ministry of Health
  • 3. 3
  • 4. Personal health information across the ecosystem
  • 5. 5
  • 6. Almost 100 general practices were offering a patient portal in September 2014 37,000 patients had been provisioned a portal account
  • 7. Ngaio uses a smartphone app to help manage her diabetes She performs blood glucose and cholesterol tests at home and uploads the results to her patient portal She graphs these results alongside lab test results, blood pressure, weight and exercise data She consults her doctor online with any concerns
  • 8. Repository delegates request and receives authorisation to permit access to the app Clinical data repository App web service The app (a) authenticates itself to the repository and requests access to (b) save and retrieve data Performs home blood test, uploads results and views alongside other data Access control service Logs in and authorises access to the app
  • 9. Repository delegates request and receives authorisation to permit access to the app Clinical data repository App web service The app (a) authenticates itself to the repository and requests access to (b) save and retrieve data Performs home blood test, uploads results and views alongside other data Access control service Logs in and authorises access to the app Record locator service X.509 client cert. JSON web token Auth. scopes
  • 10.
  • 11. An ecosystem that supports many users, apps, publishers, patient portals, repositories and access control services
  • 12. Sharing portal and repository data with an app will be under explicit patient control
  • 13. Blue Button provides a model for our own personal health app ecosystem
  • 14. Blue Button is about apps having access to repository documents and shared health summaries via a standard API
  • 15. Blue Button solutions pair a data service with an access control service
  • 16.
  • 17. In our ecosystem, data services will be provided by patient portals, clinical data repositories and a record locator service
  • 18. Each patient portal will be coupled with an access control server
  • 19. Patient portals will be the docking points where personal health apps connect to the ecosystem
  • 20. Portal systems will expose patient information and communication functions via a standard API
  • 21. OAuth2 is the chosen protocol for authentication and authorisation
  • 22. Digital certificates for mutual authentication will enable patient portals, repositories and access control services to operate within a circle of trust
  • 23. Patient portal accounts will be linked to National Health Index (NHI) number
  • 24. Patient portals and apps will allow the user to login with Real Me, which must add OAuth2 support
  • 25.
  • 26. Support people who use portals and apps on behalf of others will have their own user accounts
  • 27. NHI number will become another federated identity attribute under Real Me, which must add support for OpenID Connect
  • 28. Health Provider Index (HPI) identities will be used and there will be an open electronic addressing scheme and directory of health practitioners, facilities and organisations
  • 29. Patient portals and repositories will have RESTful APIs, based where practical on HL7 FHIR
  • 30. Rich apps will support SNOMED CT and LOINC for clinical terminology
  • 31. 31 SNOMED for ambulance clinical impressions
  • 32. A record locator service will enable document search across all repositories
  • 33. Apps will need to support the clinical document metadata standard and a common repository API
  • 34. Record locator service Clinical data repository CDR CDR Record locator service one index across n sources, serving clinical workstations, patient portals and apps Storing, locating and retrieving clinical documents (XDS model)
  • 35. Authorisation scopes will include: search:[<NHI number>] summary:[<NHI number>] send-email-to:<address>
  • 36. Patient portals and apps will support defined CDA document types, FHIR resources and common media types
  • 37. 10041 Medications, Allergies and Adverse Reactions 10043 CDA Common Templates 10047 Comprehensive Clinical Assessments for Older People 10050.2 Maternity Care Summary 10052 Ambulance Care Summary GP2GP and NZePS
  • 38. Xero has an API that enables account owners to grant access to apps Public apps are registered at api.xero.com and certification is not needed Access tokens are issued for a limited time
  • 39. Certified apps may connect to portals and repositories Publishers will be asked to register new apps Accredited agents will test and certify apps against published standards
  • 40. A directory of repository, patient portal and authorisation server endpoints will be published

Editor's Notes

  1. People are involved in their own care and share a core set of personal health information with providers. People trust and understand how their information is used and recorded.
  2. Patient portal interfaces with GP systems, shared care systems, clinical data repositories, My List of Medicines, clinical assessment and shared care planning tools, telehealth services
  3. Naturally, we also want to support multiple mobile device types, brands and operating systems
  4. We also want to support multiple mobile device types, brands and operating systems
  5. We also want to support multiple mobile device types, brands and operating systems
  6. Blue Button was developed in 2010 by USA Veterans Affairs to allow users to download a health summary from a patient portal ONC for Health IT took over Blue Button in 2012 Blue Button+ added structured data and support for web services in 2013
  7. Each BB+ provider is the pairing of an OAuth2 authorisation service with a data service that implements the BB+ interface
  8. Each BB+ provider is the pairing of an OAuth2 authorisation service with a data service that implements the BB+ interface
  9. Patient portals are secure web apps featuring cross browser support and an accessible user interface Patient portals are in rollout around the country There is a robust face-to-face provisioning process, based on the patient-practitioner relationship Portals provide the ability to order a repeat prescription, make an appointment or send a note to the GP, as well as view personal health information Providers will be obliged to operate certified patient portal systems that have such an API
  10. Patient portals are secure web apps featuring cross browser support and an accessible user interface Patient portals are in rollout around the country There is a robust face-to-face provisioning process, based on the patient-practitioner relationship Portals provide the ability to order a repeat prescription, make an appointment or send a note to the GP, as well as view personal health information Providers will be obliged to operate certified patient portal systems that have such an API
  11. OpenID Connect is an identity layer on OAuth2 In general, the authorisation server will be separate from the resource server The resource server can trust the access token because it is signed by the authorisation server HTTPS secure connections over the internet
  12. Identity, authentication and authorisation services will be provided by the NHI system, Real Me and patient portals
  13. We need stronger evidence of identity than social media provides
  14. The NHI system is probably not suitable as an OAuth2 identity and authorisation server
  15. Real Me is a federated identity system, offering an identity verification service and a login service Systems such as the NHI system can become identity attribute providers under this federated model, storing a Federated Identity Tag (FIT) per person as a link to the Real Me identity A Federated Login Tag (FLT) per person is used in a similar way to support single sign-on In order to support Real Me, patient portals will need to store FITs and FLTs, but will these need to be the same across different portals? Having NHI number as a federated identity attribute under Real Me would support uses such as GP enrolment and patient portal provisioning Real Me is a product and registered trademark of the New Zealand Government and New Zealand Post
  16. 1500 clinical impressions among about 3000 finding and diagnosis concepts
  17. Matched content is listed in an Atom feed The app issues an authenticated HTTPS GET request to retrieve any document from its repository location
  18. 10040.4 Clinical Document Metadata Standard defines twenty metadata elements for clinical data repository content It is a standard for repository, record locator, clinical workstation, shared care and portal solutions
  19. CDA and other payload types are supported. CDA for discharge summary and med rec content, clinical assessments, care summaries.
  20. Xero public apps use the standard three-legged OAuth process that allows the user to authorise access to their Xero account by a third party app: User presses a โ€˜Connect to Xeroโ€™ button in the app and is redirected to a Xero authorisation service to login User selects which Xero account they want to grant the app access to User is redirected back to the app, which can then interact with the selected account via the API Access tokens last for 30 minutes (partner apps are more privileged but need to be centrally hosted) Xero also supports partner apps, which are more privileged Partners are issued an 99 client certificate for their apps Partner apps present an X.509 client certificate issued by Xero Partner apps access the Xero API at a different URL from public apps Partner apps also use a different signature method to public apps - requests are signed using the RSA-SHA1 method Partner apps use the same three-legged authorisation process as public apps, but the 30 minute access tokens are automatically renewed
  21. Some apps will be classed as medical devices