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World Cerebral Palsy Day
WHAT IS CEREBRAL PALSY?
www.worldcpday.org
Today…
• Quick facts about cerebral palsy (CP)
• Definition
• Causes of CP
• Risk factors
• Diagnosis
• Motor types
• Parts of the body affected by CP
• Gross motor skills
• Manual ability
• Associated impairments
• Evidence-based treatments
• Future
• References
Content in this presentation is provided for general information only. It is not intended as professional advice, and should not be relied upon as a substitute
for consultations with qualified professionals who can determine your individual needs.
All content is copyright to World Cerebral Palsy Day. You may utilise any of the content in this presentation for private or non-commercial use only.
www.worldcpday.org
• CP is the most common physical disability in childhood
• CP occurs in approximately 1 in 700 live births, in high
income countries
• It is caused by an injury to the developing brain, which
mostly happens before birth
• There is no single cause but researchers can identify a
number of factors that may lead to the brain injury
• Babies can now be diagnosed as at ‘high risk of CP’ at three
months of age
• There are many evidence-based interventions for CP and
new international clinical guidelines will soon be available.
Quick facts
www.worldcpday.org
Cerebral palsy (CP) is a physical disability that affects movement and posture
• CP is an umbrella term for a group of disorders that affects a person’s ability to move
• CP is due to damage to the developing brain before, during or after birth
• CP affects people in different ways. It can affect body movement, muscle control, muscle
coordination, muscle tone, reflex, posture and balance.
• Although CP is a permanent life-long condition, some of these signs of cerebral palsy can
improve or worsen over time
• People who have CP may also have visual, learning, hearing, speech, epilepsy and
intellectual impairments.
Cerebral palsy
www.worldcpday.org
Cerebral palsy (CP) is the result of a combination of events
either before, during, or after birth that can lead to an injury in a
baby’s developing brain
• There are multiple causes of CP – but a series of ‘causal
pathways’, i.e. a sequence of events that combine to cause or
accelerate injury to the developing brain.
• About 45% of children diagnosed with CP are born prematurely
• For most babies born at term with CP, the cause remains
unknown
• Only a small percentage of CP is due to complications at birth
(e.g. asphyxia or lack of oxygen).
Causes of cerebral palsy
www.worldcpday.org
Risk factors do not cause CP. However, the presence of some risk factors
may lead to an increased chance of a child being born with CP.
Some risk factors for cerebral palsy have been identified. These include:
• premature birth (less than 37 weeks)
• low birth weight (small for gestational age)
• blood clotting problems (thrombophilia)
• an inability of the placenta to provide the developing foetus with oxygen and nutrients
• bacterial or viral infection of the mother, foetus or baby that directly or indirectly attacks the infant’s
central nervous system
• prolonged loss of oxygen during the pregnancy or birthing process, or severe jaundice shortly after birth.
Risk factors
www.worldcpday.org
CP can sometimes now be diagnosed early, so interventions can start
as soon as possible
Babies can now be assessed as being at ‘high risk of cerebral palsy’ as early as 3-5 months of age.
The most sensitive tools are:
• General Movements Assessment in babies <20 weeks (corrected) - 95% predictive
• Neuroimaging
• Hammersmith Infant Neurological Assessment (HINE) - 90% predictive
See CP: Diagnosis and Treatment poster at www.worldcpday.org
Diagnosis
www.worldcpday.org
Diagnosis (cont)
Risks for Cerebral Palsy
Assessing Motor Development
Neuroimaging
www.worldcpday.org
Motor types
SPASTIC: 80-90%
Most common form of CP.
Muscles appear stiff and tight.
Arises from damage to the
Motor Cortex.
DYSKINETIC: 6%
Characterised by involuntary
movements such as dystonia, athetosis
and/or chorea. Arises from damage to
the Basal Ganglia.
MIXED TYPES
A number of children with CP will have
two motor types present, e.g. spasticity
and dystonia.
ATAXIC: 5%
Characterised by shaky
movements. Affects balance
and sense of positioning in
space. Arises from damage to
the Cerebellum.
www.worldcpday.org
Parts of the body
Cerebral palsy can affect different parts of the body.
For example, for people with spasticity:
Quadriplegia/Bilateral
Spasticity
Both arms and legs are affected.
The muscles of the trunk, face and
mouth are often also affected.
Diplegia/Bilateral
Spasticity
Both legs are affected. The arms may
be affected to a lesser extent.
Hemiplegia/Unilateral
Spasticity
One side of the body (one arm and one
leg) is affected.
www.worldcpday.org
Gross motor skills
The gross motor skills of children and young people with cerebral palsy can be categorised
into 5 different levels using a tool called the Gross Motor Function Classification System
(GMFCS) Expanded and Revised, available from CanChild in Canada.
GMFCS Level I GMFCS Level II GMFCS Level III
GMFCS Level IV GMFCS Level V
GMFCS Illustrations 6-12:
© Bill Reid, Kate
Willoughby, Adrienne
Harvey and Kerr Graham,
The Royal Children’s
Hospital Melbourne.
www.worldcpday.org
Manual ability
At least two thirds of children with cerebral palsy will have movement difficulties
affecting one or both arms. Almost every daily activity can be impacted.
Eating Dressing Writing Catching a ball
The ability of children from 4–18 years old with cerebral palsy to handle objects
in everyday activities can be categorised into 5 levels using the Manual Ability
Classification System (MACS). More details at www.macs.nu/index.php
www.worldcpday.org
Associated impairments
Children with CP may also have a range of physical and cognitive impairments
1 in 4
is unable to walk
1 in 4
is unable to talk
3 in 4
experience pain
1 in 4
has epilepsy
1 in 4
has a behaviour problem
1 in 2
has an intellectual
disability
1 in 10
has a severe vision
impairment
1 in 4
has bladder control
problems
1 in 5
has a sleep disorder
1 in 5
has saliva control
problems
www.worldcpday.org
Focus for child development
The 'F-words' focus on six key areas of child development
that are vital to all children with CP.
More details at https://www.canchild.ca/en/research-in-practice/f-words-in-childhood-disability
www.worldcpday.org
Treatment considerations
PAIN
3 in 4: Treat to prevent sleep and
behavioural disorders
INTELLECTUAL DISABILITY
1 in 2: Poorer prognosis for
ambulation, continence, academics
NON-AMBULANT
1 in 4: Independent sitting at 2 years
predicts ambulation
HIP DISPLACEMENT
1 in 3: 6-12 months hip surveillance
using x-ray
NON-VERBAL
1 in 4: Augment speech early
EPILEPSY
1 in 4: Seizures will resolve for 10-
20% of children
www.worldcpday.org
Treatment considerations (cont.)
BEHAVIOUR DISORDER
1 in 4: Treat early and ensure that
pain is managed
BLADDER INCONTINENCE
1 in 4: Conduct investigations and
allow more time
SLEEP DISORDER
1 in 5: Conduct investigations and
ensure pain is managed
BLINDNESS
1 in 10: Assess early and
accommodate
NON-ORAL FEEDING
1 in 15: Assess swallow safety and
monitor growth
DEAFNESS
1 in 25: Assess early and
accommodate
www.worldcpday.org
Future
• With the support of parents, families, communities,
governments and health professionals, children with
cerebral palsy will lead healthy and contributing lives
• The future is bright, with international efforts to
collaborate in research, practice, education, technology
and social action by, and for, people with CP
• Join World Cerebral Palsy Day and become part of this
global community to improve the lives of people with CP
around the world.
WORLD CEREBRAL PALSY DAY ON OCTOBER 6
www.worldcpday.org
• Australian Cerebral Palsy Register Report 2013 www.cpregister.com
• Eliasson, A.-C., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Öhrvall, A.-M., & Rosenbaum, P. (2007). The
manual ability classification system (MACS) for children with cerebral palsy: Scale development and evidence of validity and
reliability. Developmental Medicine & Child Neurology, 48(7), 549–554. doi:10.1111/j.1469-8749.2006.tb01313.x
• Novak, I. (2014). Evidence-based diagnosis, health care, and rehabilitation for children with cerebral palsy. Journal of Child
Neurology, 29(8), 1141–1156. doi:10.1177/0883073814535503
• Novak, I., Hines, M., Goldsmith, S., & Barclay, R. (2012). Clinical Prognostic messages from a systematic review on cerebral
palsy. PEDIATRICS, 130(5), e1285–e1312. doi:10.1542/peds.2012-0924
• McIntyre, S., Morgan, C., Walker, K., & Novak, I. (2011). Cerebral palsy-don’t delay. Developmental Disabilities Research
Reviews, 17(2), 114–129. doi:10.1002/ddrr.1106
• Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (2008). Development and reliability of a system to
classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39(4), 214–223.
doi:10.1111/j.1469-8749.1997.tb07414.x www.canchild.ca.
• Report of the Australian Cerebral Palsy Register, Birth Years 1993-2009, September 2016.
References

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world CP day

  • 1. World Cerebral Palsy Day WHAT IS CEREBRAL PALSY?
  • 2. www.worldcpday.org Today… • Quick facts about cerebral palsy (CP) • Definition • Causes of CP • Risk factors • Diagnosis • Motor types • Parts of the body affected by CP • Gross motor skills • Manual ability • Associated impairments • Evidence-based treatments • Future • References Content in this presentation is provided for general information only. It is not intended as professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who can determine your individual needs. All content is copyright to World Cerebral Palsy Day. You may utilise any of the content in this presentation for private or non-commercial use only.
  • 3. www.worldcpday.org • CP is the most common physical disability in childhood • CP occurs in approximately 1 in 700 live births, in high income countries • It is caused by an injury to the developing brain, which mostly happens before birth • There is no single cause but researchers can identify a number of factors that may lead to the brain injury • Babies can now be diagnosed as at ‘high risk of CP’ at three months of age • There are many evidence-based interventions for CP and new international clinical guidelines will soon be available. Quick facts
  • 4. www.worldcpday.org Cerebral palsy (CP) is a physical disability that affects movement and posture • CP is an umbrella term for a group of disorders that affects a person’s ability to move • CP is due to damage to the developing brain before, during or after birth • CP affects people in different ways. It can affect body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. • Although CP is a permanent life-long condition, some of these signs of cerebral palsy can improve or worsen over time • People who have CP may also have visual, learning, hearing, speech, epilepsy and intellectual impairments. Cerebral palsy
  • 5. www.worldcpday.org Cerebral palsy (CP) is the result of a combination of events either before, during, or after birth that can lead to an injury in a baby’s developing brain • There are multiple causes of CP – but a series of ‘causal pathways’, i.e. a sequence of events that combine to cause or accelerate injury to the developing brain. • About 45% of children diagnosed with CP are born prematurely • For most babies born at term with CP, the cause remains unknown • Only a small percentage of CP is due to complications at birth (e.g. asphyxia or lack of oxygen). Causes of cerebral palsy
  • 6. www.worldcpday.org Risk factors do not cause CP. However, the presence of some risk factors may lead to an increased chance of a child being born with CP. Some risk factors for cerebral palsy have been identified. These include: • premature birth (less than 37 weeks) • low birth weight (small for gestational age) • blood clotting problems (thrombophilia) • an inability of the placenta to provide the developing foetus with oxygen and nutrients • bacterial or viral infection of the mother, foetus or baby that directly or indirectly attacks the infant’s central nervous system • prolonged loss of oxygen during the pregnancy or birthing process, or severe jaundice shortly after birth. Risk factors
  • 7. www.worldcpday.org CP can sometimes now be diagnosed early, so interventions can start as soon as possible Babies can now be assessed as being at ‘high risk of cerebral palsy’ as early as 3-5 months of age. The most sensitive tools are: • General Movements Assessment in babies <20 weeks (corrected) - 95% predictive • Neuroimaging • Hammersmith Infant Neurological Assessment (HINE) - 90% predictive See CP: Diagnosis and Treatment poster at www.worldcpday.org Diagnosis
  • 8. www.worldcpday.org Diagnosis (cont) Risks for Cerebral Palsy Assessing Motor Development Neuroimaging
  • 9. www.worldcpday.org Motor types SPASTIC: 80-90% Most common form of CP. Muscles appear stiff and tight. Arises from damage to the Motor Cortex. DYSKINETIC: 6% Characterised by involuntary movements such as dystonia, athetosis and/or chorea. Arises from damage to the Basal Ganglia. MIXED TYPES A number of children with CP will have two motor types present, e.g. spasticity and dystonia. ATAXIC: 5% Characterised by shaky movements. Affects balance and sense of positioning in space. Arises from damage to the Cerebellum.
  • 10. www.worldcpday.org Parts of the body Cerebral palsy can affect different parts of the body. For example, for people with spasticity: Quadriplegia/Bilateral Spasticity Both arms and legs are affected. The muscles of the trunk, face and mouth are often also affected. Diplegia/Bilateral Spasticity Both legs are affected. The arms may be affected to a lesser extent. Hemiplegia/Unilateral Spasticity One side of the body (one arm and one leg) is affected.
  • 11. www.worldcpday.org Gross motor skills The gross motor skills of children and young people with cerebral palsy can be categorised into 5 different levels using a tool called the Gross Motor Function Classification System (GMFCS) Expanded and Revised, available from CanChild in Canada. GMFCS Level I GMFCS Level II GMFCS Level III GMFCS Level IV GMFCS Level V GMFCS Illustrations 6-12: © Bill Reid, Kate Willoughby, Adrienne Harvey and Kerr Graham, The Royal Children’s Hospital Melbourne.
  • 12. www.worldcpday.org Manual ability At least two thirds of children with cerebral palsy will have movement difficulties affecting one or both arms. Almost every daily activity can be impacted. Eating Dressing Writing Catching a ball The ability of children from 4–18 years old with cerebral palsy to handle objects in everyday activities can be categorised into 5 levels using the Manual Ability Classification System (MACS). More details at www.macs.nu/index.php
  • 13. www.worldcpday.org Associated impairments Children with CP may also have a range of physical and cognitive impairments 1 in 4 is unable to walk 1 in 4 is unable to talk 3 in 4 experience pain 1 in 4 has epilepsy 1 in 4 has a behaviour problem 1 in 2 has an intellectual disability 1 in 10 has a severe vision impairment 1 in 4 has bladder control problems 1 in 5 has a sleep disorder 1 in 5 has saliva control problems
  • 14. www.worldcpday.org Focus for child development The 'F-words' focus on six key areas of child development that are vital to all children with CP. More details at https://www.canchild.ca/en/research-in-practice/f-words-in-childhood-disability
  • 15. www.worldcpday.org Treatment considerations PAIN 3 in 4: Treat to prevent sleep and behavioural disorders INTELLECTUAL DISABILITY 1 in 2: Poorer prognosis for ambulation, continence, academics NON-AMBULANT 1 in 4: Independent sitting at 2 years predicts ambulation HIP DISPLACEMENT 1 in 3: 6-12 months hip surveillance using x-ray NON-VERBAL 1 in 4: Augment speech early EPILEPSY 1 in 4: Seizures will resolve for 10- 20% of children
  • 16. www.worldcpday.org Treatment considerations (cont.) BEHAVIOUR DISORDER 1 in 4: Treat early and ensure that pain is managed BLADDER INCONTINENCE 1 in 4: Conduct investigations and allow more time SLEEP DISORDER 1 in 5: Conduct investigations and ensure pain is managed BLINDNESS 1 in 10: Assess early and accommodate NON-ORAL FEEDING 1 in 15: Assess swallow safety and monitor growth DEAFNESS 1 in 25: Assess early and accommodate
  • 17. www.worldcpday.org Future • With the support of parents, families, communities, governments and health professionals, children with cerebral palsy will lead healthy and contributing lives • The future is bright, with international efforts to collaborate in research, practice, education, technology and social action by, and for, people with CP • Join World Cerebral Palsy Day and become part of this global community to improve the lives of people with CP around the world. WORLD CEREBRAL PALSY DAY ON OCTOBER 6
  • 18. www.worldcpday.org • Australian Cerebral Palsy Register Report 2013 www.cpregister.com • Eliasson, A.-C., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Öhrvall, A.-M., & Rosenbaum, P. (2007). The manual ability classification system (MACS) for children with cerebral palsy: Scale development and evidence of validity and reliability. Developmental Medicine & Child Neurology, 48(7), 549–554. doi:10.1111/j.1469-8749.2006.tb01313.x • Novak, I. (2014). Evidence-based diagnosis, health care, and rehabilitation for children with cerebral palsy. Journal of Child Neurology, 29(8), 1141–1156. doi:10.1177/0883073814535503 • Novak, I., Hines, M., Goldsmith, S., & Barclay, R. (2012). Clinical Prognostic messages from a systematic review on cerebral palsy. PEDIATRICS, 130(5), e1285–e1312. doi:10.1542/peds.2012-0924 • McIntyre, S., Morgan, C., Walker, K., & Novak, I. (2011). Cerebral palsy-don’t delay. Developmental Disabilities Research Reviews, 17(2), 114–129. doi:10.1002/ddrr.1106 • Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (2008). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39(4), 214–223. doi:10.1111/j.1469-8749.1997.tb07414.x www.canchild.ca. • Report of the Australian Cerebral Palsy Register, Birth Years 1993-2009, September 2016. References