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Medical Self-care Education for Elders:
A Controlled Trial to Evaluate Impact
EUGENE C. NELSON, DSc, GREGORY MCHUGO, PHD, PAULA SCHNURR, BA, CAROLEE DEVITO, PHD,
ELLEN ROBERTS, MPH, JEANNETTE SIMMONS, DSC, AND WILLIAM ZUBKOFF, PHD
Abstract: We conducted a trial to evaluate the impact ofmedical
self-care education on 330 elders whose average age was 71. The test
group participated in a 13-session educational intervention with
training in clinical medicine, life-style, and use of health services.
The comparison group received a two-hour lecture-demonstration.
Both groups were assessed pre-intervention, post-intervention, and
one year after entry. The results indicate medical self-care instruc-
Introduction
One of the greatest challenges facing our nation is how
best to maintain the health and functional independence of
older adults at a reasonable cost. 12 Solutions proposed most
often emphasize an extension of the formal health and
welfare system. Somers, for example, argues for a new long-
term care policy based on an extension of Medicare benefits
and coordination of services at the community level.3 The
federal government and the Robert Wood Johnson Founda-
tion have launched major demonstrations to test the benefit
of changing the system.45
The emphasis on system change is logical, but fails to
recognize the potential for improving the capacity of individ-
uals for self-care. The role of self-care has gained wide
public recognition.-8 Self-care has been defined by profes-
sionals9"'0 and has received scrutiny in non-experimental
studies.' '-'3 This recognition has been accompanied by a
booming market in medical self-help books and a working
definition of self-care as "part of a matrix in the health care
process whereby lay persons can actively function for them-
selves and/or others to: 1) prevent, detect, or treat disease;
and 2) promote health so as to supplement or substitute for
other resources."'4 In addition, non-experimental studies
indicate that self-care, rather than physician consultation, is
the most common response to symptoms, accounting for 50
per cent to 90 per cent of actions taken to manage illness.'5
During the past decade, self-care also generated contro-
versy. Linn and Lewis surveyed 165 physicians and found
that a majority expressed negative attitudes toward self-
care.'6 Silver warns that promoting self-care may divert
attention away from the need to deliver essential services. '7
Few experimental studies have been conducted on
comprehensive self-care interventions. Exceptions include
studies by Kemper'8; Moore, LoGerfo, and Innui'9; Morell,
Avery, and Watkins20; Vickery, Kalmer, Lowry, Constan-
tine, et al2'; and Zapka and Averill.22 Three studies'8-20
indicate no substantial reduction in the total number of
physician visits, although rates for certain types of problems
From the Dartmouth Institute for Better Health, Department of Commu-
nity and Family Medicine and Department of Psychiatry, Dartmouth Medical
School; Department of Family Medicine, University of Miami School of
Medicine; and South Shore Hospital, Miami Beach, Florida. Address reprint
requests to Eugene C. Nelson, DSc, Vice Chairman, Community Medicine,
and Executive Director, Dartmouth Institute for Better Health, Dartmouth
Medical School, NH 03756. This paper, submitted to the Journal September 2,
1983, was revised and accepted for publication May 24, 1984.
C 1984 American Journal of Public Health 0090-0036/84$1.50
tion: produces substantial improvements, that were sustained for
one year, in health knowledge, skills performance, and skills confi-
dence; stimulates many attempts to improve life-style; and gener-
ates improvements in life quality. The program had little influence
on utilization of medical care or health status. (Am J Public Health
1984; 74:1357-1362.)
(e.g., upper respiratory infections, fever, and minor trauma)
do decline. One study2' showed a drop in total ambulatory
visits of 17 per cent in one of two health maintenance
organizations studied, but no decrease in the other. A study
of college students demonstrated that self-care education
can reduce visits for upper respiratory infections.22
Little information is available on the impact of self-care
programs designed specifically for the elderly. A small study
by Sehnert (n = 20) indicates that self-care education for
Medicare patients can improve the appropriateness of utili-
zation, boost knowledge, and increase skills, although self-
care subjects also increased their physician visits.23
Methods
Two communities in New Hampshire (Manchester and
Nashua) were selected as test and control communities,
respectively, to evaluate the Self-Care for Senior Citizens
(SCSC) program. These two communities are similar with
respect to cultural, social, and economic characteristics. The
full intervention and brieflecture-demonstration were adver-
tised to potential participants using identical techniques to
ensure that participants in both communities were similar
with respect to level of interest in self-care training. Pretest
interviews were conducted by trained research assistants
using a structured questionnaire. Posttest and follow-up data
were gathered three months and 12 months, respectively,
after the intervention.
Subjects
To be entered into the study, participants needed to be
60 years of age or older, consent to be interviewed three
times during a 12-month period, and indicate their intent to
participate in an educational experience.
The study group comprised 341 individuals who had
interviews available for analysis from either pretest, post-
test, or follow-up. Eleven of the 341 study group members
took the intervention but did not take the pretest. Posttest
interviews (at three months) were completed on 251 persons.
Follow-up interviews (at one year) were obtained for 241
individuals, producing a response rate of 71 per cent be-
tween intake and one-year follow-up.
Forty-three persons did not complete the full interven-
tion or lecture-demonstration: 24 participants in the test
community, and 19 persons from the control community.
Dropouts were compared to completers to assess biased
attrition on major pretest measures such as demographic
factors, health status, and medical and human service needs.
In expressing the results, we give the 95 per cent confidence
AJPH December 1984, Vol. 74, No. 12 1 357
NELSON, ET AL.
limits of the difference between group means in parentheses;
the difference itself is at the midpoint. The results of this
comparison indicate that, among both test and comparison
group subjects, the income of completers ($6,540) was
$1,744 higher than that of dropouts ($186-3302), and within
the comparison group dropouts were less likely to be living
with their spouse (24 per cent-46 per cent).
Intervention
The Self-Care for Senior Citizens (SCSC) program is a
self-care education program that consists of 13 two-hour
classes plus reinforcement learning activities. The sessions
are designed to promote active learning through group
discussion, skills training, role playing, and self-contracting.
The SCSC program is taught to groups of 15 to 25 persons by
an educational team. The team is trained during a three-day
workshop that emphasizes self-care philosophy, knowledge,
skills, and teaching techniques based on the fundamentals of
the learning process for older adults.
An integrated package of educational materials for both
the educators and the participants is used throughout the
program to ensure that the educational experience is com-
prehensive and consistent. The course is divided into three
content blocks: 1) Clinical Medicine focuses on acute illness-
es, chronic conditions, medications, and emergencies; 2)
Life-style addresses physical fitness, nutrition, and emotion-
al well-being; and 3) Independent Living concentrates on
appropriate use of health and human resources in the com-
munity and coordination of one's own health and welfare
needs. Reinforcement activities continue for one year after
the course is finished.
A lecture-demonstration was given in the control com-
munity, addressing two topics: foot care and hypertension.
It was taught by local health professionals who received no
special instruction on philosophy or content of self-care or
on teaching methods that tend to be effective when educating
older persons. No follow-up education activities were sched-
uled. Participants in the control community did not know
that they were serving as a comparison group, but they were
informed that they would be eligible to enroll in a self-care
course to be conducted one year later.
No tuition was charged, although most persons in the
test community did purchase the educational materials: The
Family Medical Handbook24 and the Dartmouth Self-Care
Planner.25
Data Collection and Analysis
Interviews were conducted by trained interviewers and
averaged one and one-quarter hours. The list of variables
measured is shown in the Appendix. A brief skills perform-
ance test was conducted at time of posttest and follow-up.
The analysis addressed three questions:
* Prior Status: Are there pretreatment differences be-
tween the test and comparison groups?
* Direct Program Impact: Does the self-care interven-
tion cause immediate changes in self-care knowledge,
skills, attitudes, and life-style? If so, do they persist
over time?
* Longer-Term Outcomes: Are there important, longer-
term differences between the test and comparison
groups on indirect outcomes-utilization, health sta-
tus, and life quality-after adjusting for pre-program
differences?
The first question was answered using variables from
three domains-demographic characteristics, health
status, and medical and social service needs-collect-
ed at intake. Direct program impact was evaluated
using analysis ofcovariance on posttest and follow-up
levels to detect immediate change and durability of
effects. The answer to the third question was obtained
by using analysis of covariance to compare test and
comparison groups at the one-year follow-up on a set
of variables that were hypothesized to have been
affected indirectly by the program.
The statistical methods used to assess differences be-
tween the groups were standard parametric techniques for
continuous variables. In general, univariate analysis of vari-
ance and analysis ofcovariance were used. In the latter case,
pretest status on the dependent variable served as the
covariate. The discrete variables were analyzed using con-
tingency table analysis.
Methodological Limitations
Subjects were not randomly assigned to groups. A
randomized trial design was discussed initially with the
health and social service professionals who were needed to
cosponsor the intervention. They indicated that their organi-
zations would not be willing to support a program in their
community if random assignment were used, and that it
would be impossible to avoid contamination since many
persons assigned to the test group would be closely associat-
ed with friends and relatives in the comparison group.
Because self-report data were gathered, a second limitation
is the possibility that some of the differences observed
(except for self-care skills and knowledge) were produced by
the demand characteristics of the interview situation.
Results
Prior Status: Test versus Comparison Group
Table 1 shows that the test group (n = 204) and
comparison groups (n = 126) were similar before the inter-
vention with respect to most demographic, health status, and
formal support need variables. About four-fifths of both
groups were females with lower incomes and some high
school education. The test group was somewhat younger
(0.99 to 3.95 years) than the comparison group and less likely
to be widowed (4 per cent to 26 per cent). Both groups had
few functional health limitations and low rates of social
dependence, perceived their health as "good," and had few
concerns about health care. Although test and comparison
groups were functioning well and independently, they re-
ported a substantial number of chronic conditions, e.g.,
hypertension (46 per cent), hearing impairments (33 per
cent), permanent stiffness (33 per cent), angina (24 per cent);
diabetes (15 per cent), myocardial infarction (8 per cent),
stroke (7 per cent).
These analyses suggest that the two groups were com-
parable. Furthermore, since age was weakly correlated with
measures of program impact, including age as a covariate in
the analysis of program impact would have little effect.
Skills and Knowledge (Table 2)
Participants in the SCSC program registered greater
gains on a direct test of skills performance at posttest (0.69-
1.51), and were more confident that they could execute self-
care tasks (0.3-0.5). The favorable gains achieved by the test
group did not deteriorate substantially as time passed. The
test group performed substantially better than the compari-
son group on two (of six) individual skills performance tests
at posttest (pulse and Heimlich maneuver), and on four of six
at follow-up (pulse, Heimlich maneuver, swollen glands
AJPH December 1984, Vol. 74, No. 12
1358
MEDICAL SELF-CARE EDUCATION FOR ELDERS
TABLE 1-Demographic Characteristics, Health Status, and Formal Support Needs at Pretest by Test and
Comparison Groups
Pretest
Descriptive Variables Test Comparison
Group (N = 204) Group (N = 126)
Demographics
Sex (% Female) 83 77
Age (Mean Years) 69.7 72.4
Income (Mean Family) $6190 $6470
Education (Mean Years) 10.4 10.6
Marital Status (% Widowed) 39 54
Household (Number of Persons) 1.75 1.74
Health Status
Functional Health (Mean Score)
(6 = Excellent Function) 4.5 4.5
Health Rating (Mean Score)
(4 = Excellent Health) 3.0 3.1
Bothersome Health Problems (Mean Number) 1.1 1.2
Personal Support Needs
Daily Activities Dependence (Mean Score)
(3 = High Dependency) .11 .15
Get Enough Health Care: % "Yes" 96 94
Worry about Getting Health Care: % "No" 81 81
check, and throat examination). The level of mastery at-
tained by cases on individual skills was highly variable,
ranging from 71 per cent able to read a clinical thermometer
within one degree to 9 per cent able to completely check for
swollen glands.
Life-style Change (Table 3)
The average number of change attempts per person
among those individuals making an attempt was 2.3 for the
test group compared to only 1.3 for the comparison group
(0.57-1.43). The facets of life-style that were most often the
subject of short-run change attempts were, in rank order,
weight loss (12-36 per cent), nutrition (21-45 per cent),
physical fitness (8-32 per cent), and tension reduction (12-36
per cent). There was no substantial difference in self-report-
ed success between groups; a substantial proportion of both
groups rated their life-style change attempts as "very suc-
cessful."
The overall difference between groups on life-style
change attempts diminished over the longer run. Among
those who had rated their success at life-style change
attempts to be low at the posttest, however, test subjects
reported a greater number of attempts at the follow-up than
did comparison persons (0.52-1.56); there was little differ-
ence between groups among individuals who had rated their
success high at posttest. Also, at the follow-up, program
participants reported more attempts to improve nutrition (8-
34 per cent). There was also a difference between groups in
attempts to lose weight (0-26 per cent) and stay physically fit
(1-27 per cent).
Problem-Solving Behavior (Table 4)
The self-care intervention changed problem-solving be-
havior by promoting use of a reputable self-care book.* At
one year follow-up, program graduates were much more
likely to own a self-care book (45-63 per cent) and use it.
When asked, "How do you initially solve a medical prob-
lem?", 35 per cent ofthe test group, in contrast to only 8 per
*Ownership and use of reference materials to aid effective decision-
making can be beneficial. The SCSC program encouraged the purchase and
use of a reputable self-care book. These results, shown in Table 4, should not
be viewed as pure outcomes, since they were promoted by the intervention.
They are, nevertheless, important findings.
TABLE 2-Impact of Program on Self-Care Skills and Health Knowledge at Three-Month Posttest and One-
Year Follow-up by Test and Comparison Groups
Three-month Posttest One-year Follow-up
Test Comparison Test Comparison
Skill and Knowledge Variables Group (N = 147) Group (N = 104) Group (N = 150) Group (N = 91)
Skills Indices
Skills Performance Index (Mean Score)
(10 = Excellent Performance)1 5.7 4.6 4.9 4.3
Skills Confidence Index (Mean Score)
(10 = Very Confident)2 9.3 8.9 9.3 9.1
Knowledge Index
Health Knowledge Index (Mean Score)
(10 = Excellent Knowledge)3 6.4 5.8 7.1 5.8
'Range on Skills Performance Index is 0-10.
2Range on Skills Confidence Index is 8-10.
3Range on Health Knowledge Index is 1-10.
AJPH December 1984, Vol. 74, No. 12 1 359
NELSON, ET AL.
TABLE 3-Impact of Program on Life-style Change Attempts and Perceived Success at Three-Month Posttest and One-Year Follow-up by Test and
Comparison Groups
Three-month Posttest One-year Follow-up
Test Comparison Test Comparison
Life-style Variables Group (N = 147) Group (N = 104) Group (N = 150) Group (N = 91)
Overall Attempts
Life-style Change Attempts (% of Persons At-
tempting Change) 86 58 52 46
Ufe-style Change Attempts (Average Number
per Person) 2.3 1.3 1.7 1.4
Individual Type of Attempts and Success (%)
Physical Fitness % % % %
Attempts 51 31 47 37
Success 43 47 39 50
Weight Loss
Attempts 56 32 50 37
Success 28 36 27 39
Nutrition
Attempts 55 22 48 27
Success 53 59 49 65
Tension Reduction
Attempts 45 21 35 25
Success 37 26 38 40
cent of the comparison group, responded that they first refer
to their self-care book (16-38 per cent).
Attitudes
One important shift in attitudes, i.e., self-rated ability to
communicate with physicians, was observed. At follow-up,
84 per cent of the test group, compared to 41 per cent of the
comparison group, believed they could communicate more
effectively with their physician (30-56 per cent). The pro-
gram did not stimulate attitudinal change in other dimensions
measured.
Utilization
There were no differences between groups on physician
visits or hospital stays at follow-up (Table 5). The interven-
tion group tended to use formal health and social agencies
more intensively (0.43-1.77 episodes per year), but both
groups had relationships with a comparable number of
agencies (2.0 vs 1.6 agency relationships).
Health Status and Life Quality
Table 6 indicates that the program had no measurable
influence on four standard health status indicators-func-
tional health, general health, emotional health, or disability
days. Both groups started out at high levels of health and
maintained them over the year of observation.
The self-care intervention did seem to have a favorable
effect on two measures of life quality. First, quality and
quantity of social activities was better for test subjects at
follow-up (social interaction scale: 1.5 vs 1.6 (0-0.2). This
was mostly due to gains registered among persons who had
lower levels at pretest (0.07-0.93). There was little overall
difference between groups on the second measure of life
quality; when we controlled for pretest level, however, test
group participants who had lower baseline values scored
better one year later than their counterparts in the compari-
son group (0-2.4 on life quality ratings).
Discussion
The intervention produced substantial improvement
that was sustained for one year in health knowledge, the
performance of self-care skills, use of a home treatment
book, confidence in skills performance, and the belief that
communication with one's personal physician had improved.
It stimulated a great number of attempts to change health
habits related to physical fitness, nutrition, weight control,
TABLE 4-Impact of Program on Medical Problem-solving at One-year Follow-up by Test and Comparison
Groups
One-year Follow-up
Test Comparison
Problem Solving Variables Group (N = 150) Group (N = 91)
Self-care Book (% Possessing) 93 39
Self-Care Book (Average Number of Uses
Past Four Weeks) 5.0 2.9
Self-Care Book (Median Number Uses Past
Four Weeks) 2.0 1.0
Problem-solving Approach'
How Solve Medical Problem (% Using Self-
Care Book Initially) 35 8
1) "Problem-Solving Approach" was assessed by response to this question: "How do you initially prefer to solve a minor medical
problem?" The response categories were: a) contact a doctor; b) use a self-care medical book; or c) other, e.g., discuss it with family or
friends.
AJPH December 1984, Vol. 74, No. 12
1360
MEDICAL SELF-CARE EDUCATION FOR ELDERS
TABLE 5-Utilization Differences after One Year by Test and Comparison Groups
One-year Follow-up
Test Comparison
Utilization Variables Group (N = 150) Group (N = 91)
Physician Visits (Average No. Past Year) 5.6 5.1
Hospital Stays (% One Or More Past Year) 21 20
Health and Social Agency Use Episodes2
(Average Number Past Year) 2.8 1.7
Health and Social Agency Relationships
(Total Number of Different Agencies Contacted
Past Year) 2.0 1.6
1) "Physician Visits" estimated based on self-report of total number of encounters with physician during past four weeks.
2) "Health and Social Agency" refers to community-based programs such as health departments, visiting nurse associations, health
promotion centers, housing authority, nutrition centers, etc. It excludes facilities such as physicians' offices, hospitals, pharmacies, and
nursing homes.
and stress management. The program also provided a boost
in the quality of life among persons who were in need of
enhanced social support.
These are all favorable outcomes. Nevertheless, there
were no changes in two "bottom line" measures of impact-
medical care utilization and health status. The net level of
physician visits was not influenced by the program-both
test and comparison groups averaged slightly over five visits
per person per year. All the health status measures had high
values at pretest and did not improve or decline.
We did not anticipate a major change in health status
during only one year of observation. Most study subjects
enjoyed good health and, since participation was voluntary,
were likely to be more health-oriented than the general
population. These factors diminish the likelihood of observ-
ing gains in health status.
The results on number of physician visits are discourag-
ing but not altogether surprising. First, other studies have
generated mixed findings.1'823 Second, a utilization effect
might be expected to be greatest for acute problem visits that
are patient-initiated and more common among younger per-
sons in contrast to chronic problem visits that are primarily
physician-directed and predominate among older persons.
Third, the intervention only involved self-care education
directed at the. patient and was not fortified with further
incentives involving either the source of care or payment
mechanisms. Fourth, the absence of change in volume of
physicians visits does not rule out the possibility that medi-
cal self-management and the appropriateness of utilization
(i.e., rate of visits for conditions that cannot be safely and
effectively managed by self-care) improved.**
The subjects in this study all volunteered for the pro-
gram and, therefore, are not necessarily similar to the
population of elderly living independently in the community.
We compared the study population with a national sample of
non-institutionalized persons age 65 years of age and older
**For example, persons in need of physician-directed chronic disease
care could have increased utilization; this would drive visits per person up. On
the other hand, rates of visits for self-limited conditions or for reassurance
purposes could have decreased, which would decrease visit rates. These
changes could offset one another and result in no net change in physician
visits. Appropriateness of utilization cannot be assessed adequately using
patient-reported information as the sole source of data. Further research
incorporating the physician's ratings on need for care is required to gauge
appropriateness of utilization.
TABLE 6-Health Status and Life Quality after One Year by Test and Comparison Groups
One-year Follow-up
Test Comparison
Health Status and Life Quality Variables Group (N = 150) Group (N = 91)
HEALTH STATUS
Functional Health (Mean Score)
(6 = Excellent Function) 4.4 4.4
Health Rating (Mean Score)
(4 = Excellent Health) 3.0 3.1
Emotional Health Rating (Mean Score)
(4 = Excellent Health) 3.4 3.5
Bed Disability Days (Mean Number Past
Four Weeks) 1.2 1.5
LIFE QUALITY
Social Interaction Scale (Mean Score)
(1.1 = High Interaction)' 1.5 1.6
Pretest Score = Low Interaction 1.7 2.2
= Moderate Interaction 1.5 1.5
= High Interaction 1.4 1.4
Life Quality Rating (Mean Score)
(10 = High Quality) 8.4 8.4
Pretest Rating = Low Quality 7.6 6.4
= Average Quality 8.4 8.5
= High Quality 9.0 9.2
'Range on Social Interaction Scale is 1.1-4.2 with low values indicating higher levels of social interaction.
AJPH December 1984, Vol. 74, No. 12 1361
NELSON, ET AL.
(from the National Health Interview Survey)26,27 on selected
health status and utilization variables and found that the
study group is similar to the nation's elderly on utilization
measures (5.6 vs 6.3 physician visits per person per year)
and on persons with one or more hospital stays in the past
year (21 per cent vs 18 per cent). The respective values for
health status measures were 3.0 vs 2.9 for mean score on
self-assessed health status (excellent = 4), and 1.4 vs 1.2 bed
disability days per person per month. Thus, although the
study group may have been more motivated to learn about
self-care because they volunteered for the program, their
health status patterns seem similar to those of the general
population.
It was easy to attract persons to register for the SCSC
program and 87 per cent completed the entire program.
Many graduates subsequently entered spin-off educational
or self-help pfograms on various topics such as fitness,
weight loss, cardiopulmonary resuscitation, and spiritual
self-help.
We have shown that it is possible to educate older
persons about self-care, and that the skills and knowledge
thereby acquired do not deteriorate substantially within the
year following training. More importantly, we have also
shown that elders trained in self-care are likely to attempt
changing behaviors, such as eating and exercise patterns,
that have long-run implications for improving health status.
In addition, the data also suggest that individuals who
interact less frequently with others, and those who tend to
rate the quality of their life as somewhat low, are likely to
improve on these dimensions as a consequence of a self-care
education program with active participant involvement.
Many older people are eager to learn ways to maintain
their independence and self-esteem. Medical self-care repre-
sents one strategy that merits further study to determine its
potential for enabling elders to feel better and live longer,
and to conserve health and social service resources.
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1966; 21:556-559.
29. Branch LG: Understanding the health and social service needs of people
over 65. Boston, MA: Center for Health Survey Research, University of
Massachusetts, 1977.
ACKNOWLEDGMENT
This study was funded by a grant from the Department of Health and
Human Services, Administration on Aging, Grant #90-AR-1949.
APPENDIX
Major Study Variables
Demographics Personal Support Needs Life-style
Sex (1)* Personal Care (2) Life-style Change Attempts: Type and Number
Age (1) Mobility (2) (7)
Family Income Home Management (4) Success at Life-Style Change: Perceived Level
Education (1) Transportation (6) of Success (7)
Marital Status (1) Skills and Knowledge Smoking Practices (2)
Number of Persons in Household (1) Self-care Skills Performance Index (6) Alcohol Use (1)
Health Status Self-care Confidence Index (1 1) Utilization of Health and Social Services
Elderly Functional Health Scale (6) Medical Problem Solving (10) Physician Visits (1)
Health Rating: Perceived Physical Health (1) Health Knowledge Index (10) Medical Provider Visits (1)
Emotional Health Rating: Perceived Mental Attitudes and Beliefs Hospital Stays (1)
Health (1) Satisfaction with Personal Physician (6) Nursing Home Stays (1)
Bothersome Health Problems: Type and Num- Control over Health (6) Health and Social Agency Use (24)
ber (2) Unmet Medical Care and Social Service Needs Life Quality
Bed Disability Days Past Four Weeks (1) (6) Social Interaction Scale for the Elderly: Number
Chronic Conditions (13) and Quality (8)f
Life Quality Rating (2)
Numbers in parentheses indicate the number of items used to measure variable or to construct scale.
tSOURCE: See reference 28. tSOURCE: See reference 29.

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  • 1. Medical Self-care Education for Elders: A Controlled Trial to Evaluate Impact EUGENE C. NELSON, DSc, GREGORY MCHUGO, PHD, PAULA SCHNURR, BA, CAROLEE DEVITO, PHD, ELLEN ROBERTS, MPH, JEANNETTE SIMMONS, DSC, AND WILLIAM ZUBKOFF, PHD Abstract: We conducted a trial to evaluate the impact ofmedical self-care education on 330 elders whose average age was 71. The test group participated in a 13-session educational intervention with training in clinical medicine, life-style, and use of health services. The comparison group received a two-hour lecture-demonstration. Both groups were assessed pre-intervention, post-intervention, and one year after entry. The results indicate medical self-care instruc- Introduction One of the greatest challenges facing our nation is how best to maintain the health and functional independence of older adults at a reasonable cost. 12 Solutions proposed most often emphasize an extension of the formal health and welfare system. Somers, for example, argues for a new long- term care policy based on an extension of Medicare benefits and coordination of services at the community level.3 The federal government and the Robert Wood Johnson Founda- tion have launched major demonstrations to test the benefit of changing the system.45 The emphasis on system change is logical, but fails to recognize the potential for improving the capacity of individ- uals for self-care. The role of self-care has gained wide public recognition.-8 Self-care has been defined by profes- sionals9"'0 and has received scrutiny in non-experimental studies.' '-'3 This recognition has been accompanied by a booming market in medical self-help books and a working definition of self-care as "part of a matrix in the health care process whereby lay persons can actively function for them- selves and/or others to: 1) prevent, detect, or treat disease; and 2) promote health so as to supplement or substitute for other resources."'4 In addition, non-experimental studies indicate that self-care, rather than physician consultation, is the most common response to symptoms, accounting for 50 per cent to 90 per cent of actions taken to manage illness.'5 During the past decade, self-care also generated contro- versy. Linn and Lewis surveyed 165 physicians and found that a majority expressed negative attitudes toward self- care.'6 Silver warns that promoting self-care may divert attention away from the need to deliver essential services. '7 Few experimental studies have been conducted on comprehensive self-care interventions. Exceptions include studies by Kemper'8; Moore, LoGerfo, and Innui'9; Morell, Avery, and Watkins20; Vickery, Kalmer, Lowry, Constan- tine, et al2'; and Zapka and Averill.22 Three studies'8-20 indicate no substantial reduction in the total number of physician visits, although rates for certain types of problems From the Dartmouth Institute for Better Health, Department of Commu- nity and Family Medicine and Department of Psychiatry, Dartmouth Medical School; Department of Family Medicine, University of Miami School of Medicine; and South Shore Hospital, Miami Beach, Florida. Address reprint requests to Eugene C. Nelson, DSc, Vice Chairman, Community Medicine, and Executive Director, Dartmouth Institute for Better Health, Dartmouth Medical School, NH 03756. This paper, submitted to the Journal September 2, 1983, was revised and accepted for publication May 24, 1984. C 1984 American Journal of Public Health 0090-0036/84$1.50 tion: produces substantial improvements, that were sustained for one year, in health knowledge, skills performance, and skills confi- dence; stimulates many attempts to improve life-style; and gener- ates improvements in life quality. The program had little influence on utilization of medical care or health status. (Am J Public Health 1984; 74:1357-1362.) (e.g., upper respiratory infections, fever, and minor trauma) do decline. One study2' showed a drop in total ambulatory visits of 17 per cent in one of two health maintenance organizations studied, but no decrease in the other. A study of college students demonstrated that self-care education can reduce visits for upper respiratory infections.22 Little information is available on the impact of self-care programs designed specifically for the elderly. A small study by Sehnert (n = 20) indicates that self-care education for Medicare patients can improve the appropriateness of utili- zation, boost knowledge, and increase skills, although self- care subjects also increased their physician visits.23 Methods Two communities in New Hampshire (Manchester and Nashua) were selected as test and control communities, respectively, to evaluate the Self-Care for Senior Citizens (SCSC) program. These two communities are similar with respect to cultural, social, and economic characteristics. The full intervention and brieflecture-demonstration were adver- tised to potential participants using identical techniques to ensure that participants in both communities were similar with respect to level of interest in self-care training. Pretest interviews were conducted by trained research assistants using a structured questionnaire. Posttest and follow-up data were gathered three months and 12 months, respectively, after the intervention. Subjects To be entered into the study, participants needed to be 60 years of age or older, consent to be interviewed three times during a 12-month period, and indicate their intent to participate in an educational experience. The study group comprised 341 individuals who had interviews available for analysis from either pretest, post- test, or follow-up. Eleven of the 341 study group members took the intervention but did not take the pretest. Posttest interviews (at three months) were completed on 251 persons. Follow-up interviews (at one year) were obtained for 241 individuals, producing a response rate of 71 per cent be- tween intake and one-year follow-up. Forty-three persons did not complete the full interven- tion or lecture-demonstration: 24 participants in the test community, and 19 persons from the control community. Dropouts were compared to completers to assess biased attrition on major pretest measures such as demographic factors, health status, and medical and human service needs. In expressing the results, we give the 95 per cent confidence AJPH December 1984, Vol. 74, No. 12 1 357
  • 2. NELSON, ET AL. limits of the difference between group means in parentheses; the difference itself is at the midpoint. The results of this comparison indicate that, among both test and comparison group subjects, the income of completers ($6,540) was $1,744 higher than that of dropouts ($186-3302), and within the comparison group dropouts were less likely to be living with their spouse (24 per cent-46 per cent). Intervention The Self-Care for Senior Citizens (SCSC) program is a self-care education program that consists of 13 two-hour classes plus reinforcement learning activities. The sessions are designed to promote active learning through group discussion, skills training, role playing, and self-contracting. The SCSC program is taught to groups of 15 to 25 persons by an educational team. The team is trained during a three-day workshop that emphasizes self-care philosophy, knowledge, skills, and teaching techniques based on the fundamentals of the learning process for older adults. An integrated package of educational materials for both the educators and the participants is used throughout the program to ensure that the educational experience is com- prehensive and consistent. The course is divided into three content blocks: 1) Clinical Medicine focuses on acute illness- es, chronic conditions, medications, and emergencies; 2) Life-style addresses physical fitness, nutrition, and emotion- al well-being; and 3) Independent Living concentrates on appropriate use of health and human resources in the com- munity and coordination of one's own health and welfare needs. Reinforcement activities continue for one year after the course is finished. A lecture-demonstration was given in the control com- munity, addressing two topics: foot care and hypertension. It was taught by local health professionals who received no special instruction on philosophy or content of self-care or on teaching methods that tend to be effective when educating older persons. No follow-up education activities were sched- uled. Participants in the control community did not know that they were serving as a comparison group, but they were informed that they would be eligible to enroll in a self-care course to be conducted one year later. No tuition was charged, although most persons in the test community did purchase the educational materials: The Family Medical Handbook24 and the Dartmouth Self-Care Planner.25 Data Collection and Analysis Interviews were conducted by trained interviewers and averaged one and one-quarter hours. The list of variables measured is shown in the Appendix. A brief skills perform- ance test was conducted at time of posttest and follow-up. The analysis addressed three questions: * Prior Status: Are there pretreatment differences be- tween the test and comparison groups? * Direct Program Impact: Does the self-care interven- tion cause immediate changes in self-care knowledge, skills, attitudes, and life-style? If so, do they persist over time? * Longer-Term Outcomes: Are there important, longer- term differences between the test and comparison groups on indirect outcomes-utilization, health sta- tus, and life quality-after adjusting for pre-program differences? The first question was answered using variables from three domains-demographic characteristics, health status, and medical and social service needs-collect- ed at intake. Direct program impact was evaluated using analysis ofcovariance on posttest and follow-up levels to detect immediate change and durability of effects. The answer to the third question was obtained by using analysis of covariance to compare test and comparison groups at the one-year follow-up on a set of variables that were hypothesized to have been affected indirectly by the program. The statistical methods used to assess differences be- tween the groups were standard parametric techniques for continuous variables. In general, univariate analysis of vari- ance and analysis ofcovariance were used. In the latter case, pretest status on the dependent variable served as the covariate. The discrete variables were analyzed using con- tingency table analysis. Methodological Limitations Subjects were not randomly assigned to groups. A randomized trial design was discussed initially with the health and social service professionals who were needed to cosponsor the intervention. They indicated that their organi- zations would not be willing to support a program in their community if random assignment were used, and that it would be impossible to avoid contamination since many persons assigned to the test group would be closely associat- ed with friends and relatives in the comparison group. Because self-report data were gathered, a second limitation is the possibility that some of the differences observed (except for self-care skills and knowledge) were produced by the demand characteristics of the interview situation. Results Prior Status: Test versus Comparison Group Table 1 shows that the test group (n = 204) and comparison groups (n = 126) were similar before the inter- vention with respect to most demographic, health status, and formal support need variables. About four-fifths of both groups were females with lower incomes and some high school education. The test group was somewhat younger (0.99 to 3.95 years) than the comparison group and less likely to be widowed (4 per cent to 26 per cent). Both groups had few functional health limitations and low rates of social dependence, perceived their health as "good," and had few concerns about health care. Although test and comparison groups were functioning well and independently, they re- ported a substantial number of chronic conditions, e.g., hypertension (46 per cent), hearing impairments (33 per cent), permanent stiffness (33 per cent), angina (24 per cent); diabetes (15 per cent), myocardial infarction (8 per cent), stroke (7 per cent). These analyses suggest that the two groups were com- parable. Furthermore, since age was weakly correlated with measures of program impact, including age as a covariate in the analysis of program impact would have little effect. Skills and Knowledge (Table 2) Participants in the SCSC program registered greater gains on a direct test of skills performance at posttest (0.69- 1.51), and were more confident that they could execute self- care tasks (0.3-0.5). The favorable gains achieved by the test group did not deteriorate substantially as time passed. The test group performed substantially better than the compari- son group on two (of six) individual skills performance tests at posttest (pulse and Heimlich maneuver), and on four of six at follow-up (pulse, Heimlich maneuver, swollen glands AJPH December 1984, Vol. 74, No. 12 1358
  • 3. MEDICAL SELF-CARE EDUCATION FOR ELDERS TABLE 1-Demographic Characteristics, Health Status, and Formal Support Needs at Pretest by Test and Comparison Groups Pretest Descriptive Variables Test Comparison Group (N = 204) Group (N = 126) Demographics Sex (% Female) 83 77 Age (Mean Years) 69.7 72.4 Income (Mean Family) $6190 $6470 Education (Mean Years) 10.4 10.6 Marital Status (% Widowed) 39 54 Household (Number of Persons) 1.75 1.74 Health Status Functional Health (Mean Score) (6 = Excellent Function) 4.5 4.5 Health Rating (Mean Score) (4 = Excellent Health) 3.0 3.1 Bothersome Health Problems (Mean Number) 1.1 1.2 Personal Support Needs Daily Activities Dependence (Mean Score) (3 = High Dependency) .11 .15 Get Enough Health Care: % "Yes" 96 94 Worry about Getting Health Care: % "No" 81 81 check, and throat examination). The level of mastery at- tained by cases on individual skills was highly variable, ranging from 71 per cent able to read a clinical thermometer within one degree to 9 per cent able to completely check for swollen glands. Life-style Change (Table 3) The average number of change attempts per person among those individuals making an attempt was 2.3 for the test group compared to only 1.3 for the comparison group (0.57-1.43). The facets of life-style that were most often the subject of short-run change attempts were, in rank order, weight loss (12-36 per cent), nutrition (21-45 per cent), physical fitness (8-32 per cent), and tension reduction (12-36 per cent). There was no substantial difference in self-report- ed success between groups; a substantial proportion of both groups rated their life-style change attempts as "very suc- cessful." The overall difference between groups on life-style change attempts diminished over the longer run. Among those who had rated their success at life-style change attempts to be low at the posttest, however, test subjects reported a greater number of attempts at the follow-up than did comparison persons (0.52-1.56); there was little differ- ence between groups among individuals who had rated their success high at posttest. Also, at the follow-up, program participants reported more attempts to improve nutrition (8- 34 per cent). There was also a difference between groups in attempts to lose weight (0-26 per cent) and stay physically fit (1-27 per cent). Problem-Solving Behavior (Table 4) The self-care intervention changed problem-solving be- havior by promoting use of a reputable self-care book.* At one year follow-up, program graduates were much more likely to own a self-care book (45-63 per cent) and use it. When asked, "How do you initially solve a medical prob- lem?", 35 per cent ofthe test group, in contrast to only 8 per *Ownership and use of reference materials to aid effective decision- making can be beneficial. The SCSC program encouraged the purchase and use of a reputable self-care book. These results, shown in Table 4, should not be viewed as pure outcomes, since they were promoted by the intervention. They are, nevertheless, important findings. TABLE 2-Impact of Program on Self-Care Skills and Health Knowledge at Three-Month Posttest and One- Year Follow-up by Test and Comparison Groups Three-month Posttest One-year Follow-up Test Comparison Test Comparison Skill and Knowledge Variables Group (N = 147) Group (N = 104) Group (N = 150) Group (N = 91) Skills Indices Skills Performance Index (Mean Score) (10 = Excellent Performance)1 5.7 4.6 4.9 4.3 Skills Confidence Index (Mean Score) (10 = Very Confident)2 9.3 8.9 9.3 9.1 Knowledge Index Health Knowledge Index (Mean Score) (10 = Excellent Knowledge)3 6.4 5.8 7.1 5.8 'Range on Skills Performance Index is 0-10. 2Range on Skills Confidence Index is 8-10. 3Range on Health Knowledge Index is 1-10. AJPH December 1984, Vol. 74, No. 12 1 359
  • 4. NELSON, ET AL. TABLE 3-Impact of Program on Life-style Change Attempts and Perceived Success at Three-Month Posttest and One-Year Follow-up by Test and Comparison Groups Three-month Posttest One-year Follow-up Test Comparison Test Comparison Life-style Variables Group (N = 147) Group (N = 104) Group (N = 150) Group (N = 91) Overall Attempts Life-style Change Attempts (% of Persons At- tempting Change) 86 58 52 46 Ufe-style Change Attempts (Average Number per Person) 2.3 1.3 1.7 1.4 Individual Type of Attempts and Success (%) Physical Fitness % % % % Attempts 51 31 47 37 Success 43 47 39 50 Weight Loss Attempts 56 32 50 37 Success 28 36 27 39 Nutrition Attempts 55 22 48 27 Success 53 59 49 65 Tension Reduction Attempts 45 21 35 25 Success 37 26 38 40 cent of the comparison group, responded that they first refer to their self-care book (16-38 per cent). Attitudes One important shift in attitudes, i.e., self-rated ability to communicate with physicians, was observed. At follow-up, 84 per cent of the test group, compared to 41 per cent of the comparison group, believed they could communicate more effectively with their physician (30-56 per cent). The pro- gram did not stimulate attitudinal change in other dimensions measured. Utilization There were no differences between groups on physician visits or hospital stays at follow-up (Table 5). The interven- tion group tended to use formal health and social agencies more intensively (0.43-1.77 episodes per year), but both groups had relationships with a comparable number of agencies (2.0 vs 1.6 agency relationships). Health Status and Life Quality Table 6 indicates that the program had no measurable influence on four standard health status indicators-func- tional health, general health, emotional health, or disability days. Both groups started out at high levels of health and maintained them over the year of observation. The self-care intervention did seem to have a favorable effect on two measures of life quality. First, quality and quantity of social activities was better for test subjects at follow-up (social interaction scale: 1.5 vs 1.6 (0-0.2). This was mostly due to gains registered among persons who had lower levels at pretest (0.07-0.93). There was little overall difference between groups on the second measure of life quality; when we controlled for pretest level, however, test group participants who had lower baseline values scored better one year later than their counterparts in the compari- son group (0-2.4 on life quality ratings). Discussion The intervention produced substantial improvement that was sustained for one year in health knowledge, the performance of self-care skills, use of a home treatment book, confidence in skills performance, and the belief that communication with one's personal physician had improved. It stimulated a great number of attempts to change health habits related to physical fitness, nutrition, weight control, TABLE 4-Impact of Program on Medical Problem-solving at One-year Follow-up by Test and Comparison Groups One-year Follow-up Test Comparison Problem Solving Variables Group (N = 150) Group (N = 91) Self-care Book (% Possessing) 93 39 Self-Care Book (Average Number of Uses Past Four Weeks) 5.0 2.9 Self-Care Book (Median Number Uses Past Four Weeks) 2.0 1.0 Problem-solving Approach' How Solve Medical Problem (% Using Self- Care Book Initially) 35 8 1) "Problem-Solving Approach" was assessed by response to this question: "How do you initially prefer to solve a minor medical problem?" The response categories were: a) contact a doctor; b) use a self-care medical book; or c) other, e.g., discuss it with family or friends. AJPH December 1984, Vol. 74, No. 12 1360
  • 5. MEDICAL SELF-CARE EDUCATION FOR ELDERS TABLE 5-Utilization Differences after One Year by Test and Comparison Groups One-year Follow-up Test Comparison Utilization Variables Group (N = 150) Group (N = 91) Physician Visits (Average No. Past Year) 5.6 5.1 Hospital Stays (% One Or More Past Year) 21 20 Health and Social Agency Use Episodes2 (Average Number Past Year) 2.8 1.7 Health and Social Agency Relationships (Total Number of Different Agencies Contacted Past Year) 2.0 1.6 1) "Physician Visits" estimated based on self-report of total number of encounters with physician during past four weeks. 2) "Health and Social Agency" refers to community-based programs such as health departments, visiting nurse associations, health promotion centers, housing authority, nutrition centers, etc. It excludes facilities such as physicians' offices, hospitals, pharmacies, and nursing homes. and stress management. The program also provided a boost in the quality of life among persons who were in need of enhanced social support. These are all favorable outcomes. Nevertheless, there were no changes in two "bottom line" measures of impact- medical care utilization and health status. The net level of physician visits was not influenced by the program-both test and comparison groups averaged slightly over five visits per person per year. All the health status measures had high values at pretest and did not improve or decline. We did not anticipate a major change in health status during only one year of observation. Most study subjects enjoyed good health and, since participation was voluntary, were likely to be more health-oriented than the general population. These factors diminish the likelihood of observ- ing gains in health status. The results on number of physician visits are discourag- ing but not altogether surprising. First, other studies have generated mixed findings.1'823 Second, a utilization effect might be expected to be greatest for acute problem visits that are patient-initiated and more common among younger per- sons in contrast to chronic problem visits that are primarily physician-directed and predominate among older persons. Third, the intervention only involved self-care education directed at the. patient and was not fortified with further incentives involving either the source of care or payment mechanisms. Fourth, the absence of change in volume of physicians visits does not rule out the possibility that medi- cal self-management and the appropriateness of utilization (i.e., rate of visits for conditions that cannot be safely and effectively managed by self-care) improved.** The subjects in this study all volunteered for the pro- gram and, therefore, are not necessarily similar to the population of elderly living independently in the community. We compared the study population with a national sample of non-institutionalized persons age 65 years of age and older **For example, persons in need of physician-directed chronic disease care could have increased utilization; this would drive visits per person up. On the other hand, rates of visits for self-limited conditions or for reassurance purposes could have decreased, which would decrease visit rates. These changes could offset one another and result in no net change in physician visits. Appropriateness of utilization cannot be assessed adequately using patient-reported information as the sole source of data. Further research incorporating the physician's ratings on need for care is required to gauge appropriateness of utilization. TABLE 6-Health Status and Life Quality after One Year by Test and Comparison Groups One-year Follow-up Test Comparison Health Status and Life Quality Variables Group (N = 150) Group (N = 91) HEALTH STATUS Functional Health (Mean Score) (6 = Excellent Function) 4.4 4.4 Health Rating (Mean Score) (4 = Excellent Health) 3.0 3.1 Emotional Health Rating (Mean Score) (4 = Excellent Health) 3.4 3.5 Bed Disability Days (Mean Number Past Four Weeks) 1.2 1.5 LIFE QUALITY Social Interaction Scale (Mean Score) (1.1 = High Interaction)' 1.5 1.6 Pretest Score = Low Interaction 1.7 2.2 = Moderate Interaction 1.5 1.5 = High Interaction 1.4 1.4 Life Quality Rating (Mean Score) (10 = High Quality) 8.4 8.4 Pretest Rating = Low Quality 7.6 6.4 = Average Quality 8.4 8.5 = High Quality 9.0 9.2 'Range on Social Interaction Scale is 1.1-4.2 with low values indicating higher levels of social interaction. AJPH December 1984, Vol. 74, No. 12 1361
  • 6. NELSON, ET AL. (from the National Health Interview Survey)26,27 on selected health status and utilization variables and found that the study group is similar to the nation's elderly on utilization measures (5.6 vs 6.3 physician visits per person per year) and on persons with one or more hospital stays in the past year (21 per cent vs 18 per cent). The respective values for health status measures were 3.0 vs 2.9 for mean score on self-assessed health status (excellent = 4), and 1.4 vs 1.2 bed disability days per person per month. Thus, although the study group may have been more motivated to learn about self-care because they volunteered for the program, their health status patterns seem similar to those of the general population. It was easy to attract persons to register for the SCSC program and 87 per cent completed the entire program. Many graduates subsequently entered spin-off educational or self-help pfograms on various topics such as fitness, weight loss, cardiopulmonary resuscitation, and spiritual self-help. We have shown that it is possible to educate older persons about self-care, and that the skills and knowledge thereby acquired do not deteriorate substantially within the year following training. More importantly, we have also shown that elders trained in self-care are likely to attempt changing behaviors, such as eating and exercise patterns, that have long-run implications for improving health status. In addition, the data also suggest that individuals who interact less frequently with others, and those who tend to rate the quality of their life as somewhat low, are likely to improve on these dimensions as a consequence of a self-care education program with active participant involvement. Many older people are eager to learn ways to maintain their independence and self-esteem. Medical self-care repre- sents one strategy that merits further study to determine its potential for enabling elders to feel better and live longer, and to conserve health and social service resources. REFERENCES 1. Fries JF: Aging, natural death, and the compression of morbidity. N Engl J Med 1980; 303:130-135. 2. Palmer H: Long-Term Care: Perspectives From Research and Demon- strations, Health Care Financing Admin., US Department of Health, and Human Services, Library of Congress Card No. 82-600609. 3. Somers AR: Long-term care for the elderly and disabled: a new health priority. N Engl J Med 1982; 307:221-226. 4. Program for the Health-Impaired Elderly. Princeton, NJ: Robert Wood Johnson Foundation, 1979. 5. US Department of Health, Education, and Welfare, Office of the Secre- tary: National Long-Term Care Channeling Demonstration. Washington, DC: DHEW, Request for Proposal (RFP-74-80-HEW-PS), April 25, 1980. 6. 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APPENDIX Major Study Variables Demographics Personal Support Needs Life-style Sex (1)* Personal Care (2) Life-style Change Attempts: Type and Number Age (1) Mobility (2) (7) Family Income Home Management (4) Success at Life-Style Change: Perceived Level Education (1) Transportation (6) of Success (7) Marital Status (1) Skills and Knowledge Smoking Practices (2) Number of Persons in Household (1) Self-care Skills Performance Index (6) Alcohol Use (1) Health Status Self-care Confidence Index (1 1) Utilization of Health and Social Services Elderly Functional Health Scale (6) Medical Problem Solving (10) Physician Visits (1) Health Rating: Perceived Physical Health (1) Health Knowledge Index (10) Medical Provider Visits (1) Emotional Health Rating: Perceived Mental Attitudes and Beliefs Hospital Stays (1) Health (1) Satisfaction with Personal Physician (6) Nursing Home Stays (1) Bothersome Health Problems: Type and Num- Control over Health (6) Health and Social Agency Use (24) ber (2) Unmet Medical Care and Social Service Needs Life Quality Bed Disability Days Past Four Weeks (1) (6) Social Interaction Scale for the Elderly: Number Chronic Conditions (13) and Quality (8)f Life Quality Rating (2) Numbers in parentheses indicate the number of items used to measure variable or to construct scale. tSOURCE: See reference 28. tSOURCE: See reference 29.