Speaker Presentation from U.S. News Healthcare of Tomorrow leadership summit, Nov. 1-3, 2017 in Washington, DC. Find out more about this forum at www.usnewshot.com.
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The Medically Complex Child: It Takes a Village
1. The Medically Complex Child:
It Takes a Village
Mary L. Ehlenbach, M.D.
Medical Director, UW Health-American Family Children’s Hospital Pediatric
Complex Care Program; Assistant Professor of Pediatrics, University of
Wisconsin School of Medicine and Public Health
David Hall, M.D.
Professor of Clinical Pediatrics, Vanderbilt University School of Medicine;
SecFon Head, Program for Children with Medically Complex Needs, Monroe
Carell Jr Children’s Hospital
Ingrid A. Larson, MBA, DNP, NEA-BC, APRN
Director, Beacon Program, Children’s Mercy Kansas City
2.
3. Defining the popula=on: Children with
Medical Complexity (CMC)
NaFonal Survey of Children with Special Health Care Needs. NS-CSHCN 2016. Data query from the Child and Adolescent Health Measurement IniFaFve, Data Resource Center for
Child and Adolescent Health website. Retrieved 9/6/17 from www.childhealthdata.org.
81%
19%
Healthy
Children
CSHCN
4. CMC are a Subset of Children with Special
Healthcare Needs
Severe Chronic
CondiAons
FuncAonal
LimitaAons
SubstanAal Service
Needs
High Health
Care Use
Cohen, et al. Children With Medical Complexity: An Emerging PopulaFon for Clinical and Research
IniFaFves. Pediatrics. 2011:127:529.
5.
6. Impact of CMC on Children’s Hospitals in US
-5
0
5
10
15
20
25
30
35
40
2004 2005 2006 2007 2008 2009 2010 2011 2012 2013
% Growth in Reference to 2004
Year
Growth in Number of PaAents
(Less ConservaAve)
Non_Chronic
Non_Complex
Complex
p<0.0001
Source: Children’s Hospital AssociaFon
7. Small but Mighty - Impact on Cost is Dispropor=onate
<1% of all children
~33% of healthcare
spending on children
Cohen E, et al. Paaerns and costs of health care use of children with medical complexity. Pediatrics. 2012.
Neff JM, et al. IdenFfying and classifying children with chronic condiFons using administraFve data with the clinical risk group classificaFon system. Ambulatory Pediatrics. 2002.
CMC
nonCMC
9. Child Health Spending and CMC
Non-CMC
66% Hospital use
Home nursing
OutpaFent
Pharmacy
ED
CMC
33%
Slide courtesy of Ryan Coller, MD MPH.
Cohen E, et al. Paaerns and Costs of health care use of children with medical complexity. Pediatrics. 2012
Neff J, et al. Profile of medical charges for children by health status group and severity level in a Washington State Health Plan. Health Services Research. 2004
$650 billion
annually
85% of all
costs are
just for
medicaAons,
specialty care,
and hospital
care.
13. Medical Management AND Care Coordina=on
• Took over prescrip=on drug management
• Created crisis plans – and ensured they were implemented!
• ED visits
• Hospitaliza=ons
• Made his EMR a useful tool
• Priori=zed (at =mes eliminated) specialty visits
• Advocated for labs to be performed by peds phlebotomists at the children’s
hospital instead of local clinic
• Facilitated mul=ple follow-up appointments on the same day
• Wrote a grant for rent assistance so family could buy an accessible vehicle
14. “In the span of 21 months, I have
received over 300 responses to my
inquiries in MyChart…This speaks to the
level of health issues that my son
chronically faces but [also] to the level
of care and management that Jess [RN]
extends to my son.”
16. Contact Informa=on
• Mary Ehlenbach
• Pediatric Complex Care Program: UW Health-American Family Children’s
Hospital
• mehlenbach@pediatrics.wisc.edu
• David Hall
• Program for Children with Medically Complex Needs: Monroe Carell Jr
Children’s Hospital
• david.e.hall@vanderbilt.edu
• Ingrid Larson
• Beacon Program: Children’s Mercy Hospital Kansas City
• ialarson@cmh.edu