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Short Generic Metrics for Outcome, Engagement and Experience
1. March 2015 1
Short Generic Metrics for Outcome,
Engagement and Experience
Tim Benson
Oxford AHSN CIO Forum
11 March 2015
2. March 2015 2
Outline of Presentation
• What is needed
• Health-related quality of life (howRu)
• Health Confidence Score (HCS)
• Patient experience (howRwe)
• Length and reading age
• Results and Feedback
4. March 2015 4
Everyone wants
• Patients to feel better and do more
• Patients to be fully engaged in their care
• Patients to get excellent service
• We should measure progress against these
criteria
5. March 2015 5
Design Criteria
• Quick and easy to use
– Short
– Low reading age
– Smart phones and kiosks
– Repeated use
• Applicable to almost all
patients
– All conditions
– All settings including social
care
– Benchmark along the pathway howRu Health Tracker app
6. March 2015 6
howRu
A short generic PROM
• Physical symptoms
• Mental symptoms
• Disability
• Dependency
Benson T et al. Evaluation of a new
short generic measure of health
status: howRu. Inf Prim Care 18 (2)
89-101. PDF
7. March 2015 7
Health Confidence
Score (HCS)
Short measure of engagement
(a.k.a. perceived self-efficacy,
patient activation and health
literacy)
• Knowledge
• Capability
• Signposting
• Involvement
8. March 2015 8
howRwe
Short generic measure of patient
experience:
Relationships
• Kindness
• Communication
Function
• Promptness
• Organisation
Benson T, Potts H. A short generic
patient experience questionnaire:
howRwe development and
validation. BMC Health Services
Research 2014, 14:499 PDF
9. March 2015 9
Length and Reading Age
Type Name No of items No of words Reading age
Outcome howRu 4 37 7
EQ-5D-3L 6 (inc VAS) 230 11
EQ-5D-5L 6 (inc VAS) 285 8
SF-12 12 474 11
SF-36 36 779 10
NHS PROMs (Hip pre-op) 27 1,485 11
Engagement Health Confidence Score (HCS) 4 40 8
NIH Toolkit Emotion: Self-efficacy 10 143 10
Patient Activation Measure (PAM-13) 13 293 12
Health Literacy Questionnaire (HLQ) 44 1,001 12
Experience howRwe 4 29 7
NHS Friends and Family Test 1 44 12
Picker PPE-15 15 467 12
Model of Patient Experience (MOPE) 20 942 11
HCAHPS 32 1,156 13
GP Patient Survey 62 2,922 12
NHS Adult Inpatient Survey 76 3,353 12
10. March 2015 10
Uses and users
• Public health
• GP
• OP
• IP
• Community
• Urgent care
• Care homes
• Staff
• Self-management
11. March 2015 11
Validation
Benson T, Whatling J, Arikan S, Sizmur S, McDonald D, Ingram D: Evaluation of a new short generic measure of HRQoL: howRu.
Informatics in Primary Care 2010, 18:89-101 PDF
12. March 2015 12
Feedback Requirements
• Quick
• Easy to understand
• For all stakeholders
– Patients and their families
– Clinicians for clinical care and audit
– Managers for quality assurance and improvement
– Commissioners for value and accountability
13. March 2015 13
Benson T, Bowman C. Health-Related Quality of Life and Patient Experience in Care Homes. Medicine 2.0 London, Sept 2013
14. March 2015 14
Benson T, Bowman C. Health-Related Quality of Life and Patient Experience in Care Homes. Medicine 2.0 London, Sept 2013
15. March 2015 15
Benson T, Potts HWW. A short generic patient experience questionnaire: howRwe development and
validation. BMC Health Services Research 2014, 14:499 PDF
16. March 2015 16
Benson T, Potts HWW. A short generic patient experience questionnaire: howRwe development and
validation. BMC Health Services Research 2014, 14:499