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Social Emotional
Wellness for
Transition Age
Youth with ASD
with Anne Roux, Dr. Kimberly Smalley
& Maurice Snell
About Our
Guests
Anne Roux
MPH, MA
Kimberly Smalley
PhD BCBA-D
Maurice Snell
Development Coordinator,
Easter Seals
During this
webinar you will:
● Learn about the social-emotional
challenges faced by young adults with
ASD
● Hear first hand from a young adult
with ASD about the challenges he
experienced transitioning into
adulthood
● Learn best practice tips for promoting
social emotional wellness for young
people with ASD as they transition into
adulthood
Agenda
● Taking the Temperature: What
the research tells us about social
emotional wellness for transition age
youth with ASD
● Services, Supports, Success:
Best practices for promoting social
emotional wellness among youth with
ASD
● Personal Perspectives: First-hand
perspectives from our guests on social
emotional wellness
● Q&A: A chance to asks our guests your
questions
Taking the
Temperature
What the research tells us about social emotional
wellness for transition age youth with ASD
What is the most
compelling fact that
has emerged from
your research?
● 60-70% of youth and young adults
with autism have at least 1 co-
occurring health or mental health
condition
● ¾ of youth are taking at least 1
medication on regular basis for a
health or mental health condition
● what we don’t know is how mental
health conditions impact individuals
with autism
Taking the
Temperature
What the research tells us about social emotional
wellness for transition age youth with ASD
What are you seeing
in your practice
arena in terms of co-
occurring
challenges?
● lots of people have a co-occurring
mental health condition diagnosis,
some b/c they have the condition,
some because they need a medication
● need to determine that which is autism
related, inclusion related, skill set
related, and that which is medical
● as families, educators, people with
autism, and clinicians, we are often
talking about the same condition/skill
set (or lack thereof), but from very
different perspectives
Taking the
Temperature
What the research tells us about social emotional
wellness for transition age youth with ASD
How are mental health
and developmental
disability addressed
together?
● Where you are in the country makes a
huge difference as to coordinated
services
● California has the regional system,
which in some cases pulls together a
multidisciplinary team together via
telehealth
● Sometimes adults with autism who are
receiving disability support have
difficult getting mental health supports
too
● People don’t feel like they have a
unified system like the IEP to detail
supports
Taking the
Temperature
What the research tells us about social emotional
wellness for transition age youth with ASD
What we talk about
when we talk about
the services cliff.
● There is a dramatic decline in services
once people leave the education
system and enter adult services
● Many people do not even qualify for
adult services
● about 4 of 10 adults are not connected
after high school (no job, no school
etc.) for 6/8 years outside of school
● Of those disconnected 4, about ¼
have never had any services after high
school
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Leaving school with a job or community is
still the best predictor of success
● Having a place to go, people they are
connected with, services committed to
maintaining that community makes the
difference for people with autism
● Not having a community or connections
before leaving school can often lead to
isolation after school
● Paying attention to the skills people with
need for successful transition, and
addressing gaps before leaving school
has lead to success.
What supports
have lead to
success?
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Employment during school
● Extracurricular activities can play a
positive role
● Intentional Planning
○ View transition as something that
begins at birth
● Supportive families
● Coordinated services
○ bringing systems together and
figuring our barriers in systems
● Having opportunities in the community
for students to transition to
What has the research
shown will lead to
success?
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● A supportive family
● A supportive school environment (Easter
Seals)
● Easter Seals provided opportunities in
school and a place to transition to after
school
What contributed to your
successful transition?
What supports did you
access in college?
● Learning assistance program, which
helped with planning and tutoring
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Success teaching a group of boys self-
advocacy and self determination
● We don’t always get around to teaching
the discrete details that go with making
adult decisions
● Breaking the components of self-
determination into small task analysis has
helped us teach these people the skills
they need to make adult decisions
● Using rapid fluency
Do you have a success
story, and what supports
lead to that success?
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Success teaching a group of boys self-
advocacy and self determination
● We don’t always get around to teaching
the discrete details that go with making
adult decisions
● Breaking the components of self-
determination into small task analysis has
helped us teach these people the skills
they need to make adult decisions
● Using rapid fluency
● We sometimes forget to assume
competence of individuals
● We are fighting the myth that autism
goes away in adulthood
Do you have a success
story, and what supports
lead to that success?
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Within a year of graduation, ¼ of young
adults are completely disconnected from
their communities
● Lack of connectedness can have an
impact on mental health
● Planning ahead for how we get people
connected before leaving school can
make a big difference in transition
What do you think youth with
ASD and their families need to do
to ensure social emotional
wellness?
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Joining ROTC
● Joining marching band
● Developing relationships with
peers and teachers through
these programs
● Spending time with a supportive
family
How did you develop a
sense of connectedness
when you were in high
school and beyond?
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Help students identify shared
interests and facilitate
opportunities for
connectedness
● Empower youth with ASD to be
responsible for what they can
do to make themselves
comfortable in the world
How do you facilitate
successful transition for
those who do not have
supportive communities?
● What the research tells us about social emotional
wellness for transition age youth with ASD
Services, Supports,
Success
Best practices for promoting social emotional
wellness among youth with ASD
● Look to the general population for
what connectedness/
disconnectedness looks like in the
general population and look at
strategies that are working
● Look for youth leadership
opportunities- faith communities
can be a good place for this
How do you promote
connectedness amongst
youth with ASD.
● What the research tells us about social
emotional wellness for transition age youth
with ASD
Personal
Perspectives
First-hand perspectives from our guests on social
emotional wellness
● It must be very individualized- people
have similar but also very different
challenges
● Supporting individuals in understanding
their own needs and being able to
articulate these needs
● We need to focus on integrated solutions
that promote social emotional wellness,
from employment and connectedness to
independent living
● Be patient- giving people (and
yourselves) the time they need to
develop
What is the most important thing to
know about social emotional
wellness and youth with ASD:
● What the research tells us about social
emotional wellness for transition age youth
with ASD
Thank you.
To learn more about Rethink, visit our website
or email us at:
info@rethinkfirst.com
www.rethinkfirst.com

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Social Emotional Wellness for Transition Age Youth with ASD

  • 1. Social Emotional Wellness for Transition Age Youth with ASD with Anne Roux, Dr. Kimberly Smalley & Maurice Snell
  • 2. About Our Guests Anne Roux MPH, MA Kimberly Smalley PhD BCBA-D Maurice Snell Development Coordinator, Easter Seals
  • 3. During this webinar you will: ● Learn about the social-emotional challenges faced by young adults with ASD ● Hear first hand from a young adult with ASD about the challenges he experienced transitioning into adulthood ● Learn best practice tips for promoting social emotional wellness for young people with ASD as they transition into adulthood
  • 4. Agenda ● Taking the Temperature: What the research tells us about social emotional wellness for transition age youth with ASD ● Services, Supports, Success: Best practices for promoting social emotional wellness among youth with ASD ● Personal Perspectives: First-hand perspectives from our guests on social emotional wellness ● Q&A: A chance to asks our guests your questions
  • 5. Taking the Temperature What the research tells us about social emotional wellness for transition age youth with ASD What is the most compelling fact that has emerged from your research? ● 60-70% of youth and young adults with autism have at least 1 co- occurring health or mental health condition ● ¾ of youth are taking at least 1 medication on regular basis for a health or mental health condition ● what we don’t know is how mental health conditions impact individuals with autism
  • 6. Taking the Temperature What the research tells us about social emotional wellness for transition age youth with ASD What are you seeing in your practice arena in terms of co- occurring challenges? ● lots of people have a co-occurring mental health condition diagnosis, some b/c they have the condition, some because they need a medication ● need to determine that which is autism related, inclusion related, skill set related, and that which is medical ● as families, educators, people with autism, and clinicians, we are often talking about the same condition/skill set (or lack thereof), but from very different perspectives
  • 7. Taking the Temperature What the research tells us about social emotional wellness for transition age youth with ASD How are mental health and developmental disability addressed together? ● Where you are in the country makes a huge difference as to coordinated services ● California has the regional system, which in some cases pulls together a multidisciplinary team together via telehealth ● Sometimes adults with autism who are receiving disability support have difficult getting mental health supports too ● People don’t feel like they have a unified system like the IEP to detail supports
  • 8. Taking the Temperature What the research tells us about social emotional wellness for transition age youth with ASD What we talk about when we talk about the services cliff. ● There is a dramatic decline in services once people leave the education system and enter adult services ● Many people do not even qualify for adult services ● about 4 of 10 adults are not connected after high school (no job, no school etc.) for 6/8 years outside of school ● Of those disconnected 4, about ¼ have never had any services after high school
  • 9. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Leaving school with a job or community is still the best predictor of success ● Having a place to go, people they are connected with, services committed to maintaining that community makes the difference for people with autism ● Not having a community or connections before leaving school can often lead to isolation after school ● Paying attention to the skills people with need for successful transition, and addressing gaps before leaving school has lead to success. What supports have lead to success?
  • 10. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Employment during school ● Extracurricular activities can play a positive role ● Intentional Planning ○ View transition as something that begins at birth ● Supportive families ● Coordinated services ○ bringing systems together and figuring our barriers in systems ● Having opportunities in the community for students to transition to What has the research shown will lead to success?
  • 11. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● A supportive family ● A supportive school environment (Easter Seals) ● Easter Seals provided opportunities in school and a place to transition to after school What contributed to your successful transition? What supports did you access in college? ● Learning assistance program, which helped with planning and tutoring
  • 12. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Success teaching a group of boys self- advocacy and self determination ● We don’t always get around to teaching the discrete details that go with making adult decisions ● Breaking the components of self- determination into small task analysis has helped us teach these people the skills they need to make adult decisions ● Using rapid fluency Do you have a success story, and what supports lead to that success?
  • 13. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Success teaching a group of boys self- advocacy and self determination ● We don’t always get around to teaching the discrete details that go with making adult decisions ● Breaking the components of self- determination into small task analysis has helped us teach these people the skills they need to make adult decisions ● Using rapid fluency ● We sometimes forget to assume competence of individuals ● We are fighting the myth that autism goes away in adulthood Do you have a success story, and what supports lead to that success?
  • 14. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Within a year of graduation, ¼ of young adults are completely disconnected from their communities ● Lack of connectedness can have an impact on mental health ● Planning ahead for how we get people connected before leaving school can make a big difference in transition What do you think youth with ASD and their families need to do to ensure social emotional wellness?
  • 15. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Joining ROTC ● Joining marching band ● Developing relationships with peers and teachers through these programs ● Spending time with a supportive family How did you develop a sense of connectedness when you were in high school and beyond?
  • 16. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Help students identify shared interests and facilitate opportunities for connectedness ● Empower youth with ASD to be responsible for what they can do to make themselves comfortable in the world How do you facilitate successful transition for those who do not have supportive communities?
  • 17. ● What the research tells us about social emotional wellness for transition age youth with ASD Services, Supports, Success Best practices for promoting social emotional wellness among youth with ASD ● Look to the general population for what connectedness/ disconnectedness looks like in the general population and look at strategies that are working ● Look for youth leadership opportunities- faith communities can be a good place for this How do you promote connectedness amongst youth with ASD.
  • 18. ● What the research tells us about social emotional wellness for transition age youth with ASD Personal Perspectives First-hand perspectives from our guests on social emotional wellness ● It must be very individualized- people have similar but also very different challenges ● Supporting individuals in understanding their own needs and being able to articulate these needs ● We need to focus on integrated solutions that promote social emotional wellness, from employment and connectedness to independent living ● Be patient- giving people (and yourselves) the time they need to develop What is the most important thing to know about social emotional wellness and youth with ASD:
  • 19. ● What the research tells us about social emotional wellness for transition age youth with ASD Thank you. To learn more about Rethink, visit our website or email us at: info@rethinkfirst.com www.rethinkfirst.com