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Wilson, S., Woodward, P. & Randell, R. (2010). PaperChain: A Collaborative Healthcare System
Grounded in Field Study Work. Paper presented at the Workshop on Interactive Systems in
Healthcare (WISH), 11 April 2010, Atlanta, Georgia.
City Research Online
Original citation: Wilson, S., Woodward, P. & Randell, R. (2010). PaperChain: A Collaborative
Healthcare System Grounded in Field Study Work. Paper presented at the Workshop on Interactive
Systems in Healthcare (WISH), 11 April 2010, Atlanta, Georgia.
Permanent City Research Online URL: http://openaccess.city.ac.uk/1055/
Copyright & reuse
City University London has developed City Research Online so that its users may access the
research outputs of City University London's staff. Copyright © and Moral Rights for this paper are
retained by the individual author(s) and/ or other copyright holders. All material in City Research
Online is checked for eligibility for copyright before being made available in the live archive. URLs
from City Research Online may be freely distributed and linked to from other web pages.
Versions of research
The version in City Research Online may differ from the final published version. Users are advised to
check the Permanent City Research Online URL above for the status of the paper.
Enquiries
If you have any enquiries about any aspect of City Research Online, or if you wish to make contact
with the author(s) of this paper, please email the team at publications@city.ac.uk.
PaperChain: A Collaborative Healthcare
System Grounded in Field Study Work
Abstract
In this extended abstract we summarise our recent
experiences of designing and deploying PaperChain, a
system to support real-time information sharing in
healthcare work. A guiding principle has been the
development of a deep understanding of the work as
the foundation for effective system design. We
summarise the field work that motivated the
development of PaperChain, some of the key findings
and the resulting system. We briefly reflect on the
benefits gained from undertaking substantial HCI work
in the design of a healthcare system.
Keywords
Collaborative work, healthcare systems, digital pen
ACM Classification Keywords
H.5.3. [Information interfaces and presentation (e.g.
HCI)]: Group and Organization Interfaces – computer-
supported cooperative work.
Introduction
In a world where healthcare work is increasingly
complex and collaborative, and where healthcare
systems and organizations face significant challenges in
managing huge volumes of information, there are
interesting opportunities for new technologies to
Copyright is held by the author/owner(s).
WISH 2010 April 11, 2010, Atlanta, Georgia, USA.
Stephanie Wilson
Centre for HCI Design
City University London
Northampton Square
London EC1V 0HB, UK
steph@soi.city.ac.uk
Peter Woodward
Centre for HCI Design
City University London
Northampton Square
London EC1V 0HB, UK
peter.woodward.1@soi.city.ac.uk
Rebecca Randell
Centre for HCI Design
City University London
Northampton Square
London EC1V 0HB, UK
rebecca.randell.1@soi.city.ac.uk
177
facilitate and enhance the effectiveness and safety of
the work. Yet in spite of this, studies of healthcare
work reveal a continuing reliance on artefacts such as
informal paper notes, forms and status boards and
there have been several notable failures of Information
and Communication Technologies (ICTs) introduced in
clinical settings. One reason for this has been a failure
to take adequate account of the situated clinical work.
In response, there is now a greater appreciation of the
important contribution that many disciplines, including
human-computer interaction, can make to the design of
healthcare ICT systems. This view has underpinned
recent work that we have undertaken in the
development of PaperChain, a novel system to support
one specific form of collaborative healthcare work
known as clinical handover. The design of PaperChain
was user-centered and participatory; it was motivated
and inspired by workplace studies of handover. In this
paper, we briefly summarise our studies and the
resulting PaperChain system. Our aim is to exemplify
the rich insights we gained from a strong focus on the
work and the benefit this brought to the design.
Background
Clinical handover is the process by which responsibility
for patient care is transferred from one healthcare
practitioner or group of practitioners to another and in
which relevant information may be shared between the
two parties [3]. We have been investigating clinical
handover for a number of years and one of our
interests has been the potential role of information
technology in supporting effective handover.
To understand this role, where technology may be
useful and where it may be less so (e.g. see [2]), we
have undertaken substantial field studies of handover.
These studies were located within a variety of hospital
settings [3] and focused primarily on nursing shift
handovers, medical shift handovers, temporary
delegations of responsibility and transfers between
settings (e.g. from an Accident and Emergency
department to an admitting ward). The studies took the
form of non-participant observations recorded as field
notes, audio recording of verbal communications and
informal interviews with staff. We have spent over 700
hours in the field undertaking these studies and have
acquired a rich set of data.
Handover has tended to be regarded as a baton-
passing activity, in which there is a single point of
transfer of responsibility and information. Based on our
field studies, we have suggested that it may instead be
fruitful to view handover as a process and the
attendant information sharing as on-going activity
(rather than a single transition) that promotes good
clinical situation awareness [3]. This reframing of
handover motivated and has grounded the
development of PaperChain, a system designed to
support the real-time sharing of clinical information for
one of our field study sites, a paediatric ambulance
transport service in London, UK.
Workplace Studies
The ambulance service transports critically ill children
from regional hospitals that do not have intensive care
facilities to the paediatric intensive care units (PICUs)
of major London hospitals. It also provides advice on
the treatment of children either prior to transporting
them or instead of doing so, in situations where
transport is deemed inappropriate. The service is
staffed by doctors and nurses, and the transport or
178
“retrieval” of each child is a collaborative activity
involving multiple healthcare professionals.
We spent 111 hours at the ambulance service as part of
our initial field studies (and many more hours since
then). We observed the work at the base office,
travelled on retrievals, and conducted informal
interviews with the staff. The retrieval of a child starts
when a regional hospital phones the office of the
transport service. At the time of the field studies,
details of the case were then recorded on a multi-page
paper form by an administrator and a trainee doctor
known as a “fellow”. If the decision was made to
retrieve the child, a team consisting of the fellow, a
nurse and an ambulance driver would be mobilized and
would travel to the regional hospital taking the paper
form with them to record further clinical details. Senior
physicians, who generally remained at the base office,
did not have access to the information on the form and
had to rely on a telephone handover from the fellow
prior to authorizing transport of the child.
Based on the field studies, we set out with the goal of
developing a system to support better real-time
information sharing between the clinical staff, thereby
taking the pressure off “baton-passing” handovers.
Specifically, the aim was to improve information
sharing between the team who travelled to the regional
hospital to stabilise and transfer the child, the senior
physicians and others at the base office and the PICU
staff. The field studies yielded valuable information
about handovers, how they happened, what
information was communicated etc, and this informed
the design of PaperChain. However, some of the most
valuable insights were not about the functionality of the
system but about the nature of the work and the
circumstances in which it was conducted. For example:
The fiction of a normal course of events
Healthcare work is well-known for its contingent and
responsive nature. When we spoke to the staff about
their work they gave us a high-level, process-oriented
description of how the service operated and what
happened on a retrieval. This was very valuable but
with the field studies it rapidly became apparent that
retrievals rarely (or never) conformed to this idealized
description. Instead, they varied in myriad ways that
we could not have anticipated and which the staff
would not have been able to articulate easily. It
became clear that our system should not be
constrained by a strong, process-oriented view of the
work but instead should acknowledge the non-normal
courses of events, allowing staff to flexibly capture and
view relevant clinical information irrespective of what
happened in practice.
Benefit without pain
The priority for the doctors and nurses on a retrieval is
looking after the patient. They are working in high-
pressure, sometimes life-critical circumstances. When
dealing with a critically ill patient they have no capacity
or motivation to use a system that adds to their work
or removes their attention from the patient unless
there is some immediate benefit to be gained. For us,
this was an imperative for truly lightweight data
capture and an argument against the perhaps obvious
solutions of a PDA or tablet PC-based system.
Similarly, staff at the base office are busy and perhaps
unlikely to access a display that requires effort on their
part. We needed a display paradigm where information
was “pushed” not “pulled”.
179
PaperChain
PaperChain uses a novel combination of digital
pens/paper and shared displays to provide light-weight
capture and sharing of information in (almost) real-
time. Digital pen and paper is a relatively new
technology. Anything written on digital paper with a
digital pen is captured electronically and can be
immediately transferred to a central server via the
mobile phone network.
Figure 1: Shared display with one page of the clinical form
overlaid on summary information
We replaced the existing paper forms used by the
ambulance service with digital pens and paper so that
all written information about a retrieval is now
automatically captured in electronic form. Hence, with
minimal change to the work of the ambulance team, we
are able to capture information about a retrieval while
it is in progress. This information is then transmitted to
base office and the PICU where shared displays make it
readily available. A large shared touchscreen display in
the base office acts as an “awareness display” [1],
providing a continuously updated view of current cases
and giving staff access to the digital form (Figure 1).
Status and Brief Reflection
PaperChain is a robust research prototype. It has now
been deployed for several months and is in routine
everyday use. We are currently evaluating its impact
through post-deployment field studies using multiple
evaluation methods. While there have inevitably been
some practical problems, our experiences thus far, and
the enthusiasm with which the clinical staff have
embraced PaperChain, suggest that this combination of
technologies has much promise. The strong focus on
the work provided by the detailed workplace studies
was invaluable and demonstrates (yet again) the
benefit of multidisciplinary approaches in healthcare
ICT design. The value of the studies was not just what
they revealed about the tasks and the information flow,
but what they told us about the many ways in which
work routinely varied from the norm and which had to
be accommodated in a flexible design.
Acknowledgements
This work was funded by the UK Engineering and
Physical Sciences Research Council (EPSRC), grant
EP/D078636/1. Thanks to all the staff at the ambulance
service and to Digital Field Solutions for sponsoring and
providing the digital pen technology and services.
References
[1] Bardram, J.E., Hansen, T.R. & Soegaard, M.,
AwareMedia: A Shared Interactive Display Supporting
Social, Temporal, and Spatial Awareness in Surgery,
Proc. CSCW 2006, ACM Press (2006), 109-118.
[2] Wilson, S, Galliers, J. & Fone, J. Medical Handover:
A Study and Implications for Information Technology.
Proc HEPS 2005, 2005.
[3] Wilson, S., Randell, R., Galliers, J. & Woodward, P.,
Reconceptualising Clinical Handover: Information
Sharing for Situation Awareness, Proc. ECCE 2009.
180

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wish-wilson

  • 1. Wilson, S., Woodward, P. & Randell, R. (2010). PaperChain: A Collaborative Healthcare System Grounded in Field Study Work. Paper presented at the Workshop on Interactive Systems in Healthcare (WISH), 11 April 2010, Atlanta, Georgia. City Research Online Original citation: Wilson, S., Woodward, P. & Randell, R. (2010). PaperChain: A Collaborative Healthcare System Grounded in Field Study Work. Paper presented at the Workshop on Interactive Systems in Healthcare (WISH), 11 April 2010, Atlanta, Georgia. Permanent City Research Online URL: http://openaccess.city.ac.uk/1055/ Copyright & reuse City University London has developed City Research Online so that its users may access the research outputs of City University London's staff. Copyright © and Moral Rights for this paper are retained by the individual author(s) and/ or other copyright holders. All material in City Research Online is checked for eligibility for copyright before being made available in the live archive. URLs from City Research Online may be freely distributed and linked to from other web pages. Versions of research The version in City Research Online may differ from the final published version. Users are advised to check the Permanent City Research Online URL above for the status of the paper. Enquiries If you have any enquiries about any aspect of City Research Online, or if you wish to make contact with the author(s) of this paper, please email the team at publications@city.ac.uk.
  • 2. PaperChain: A Collaborative Healthcare System Grounded in Field Study Work Abstract In this extended abstract we summarise our recent experiences of designing and deploying PaperChain, a system to support real-time information sharing in healthcare work. A guiding principle has been the development of a deep understanding of the work as the foundation for effective system design. We summarise the field work that motivated the development of PaperChain, some of the key findings and the resulting system. We briefly reflect on the benefits gained from undertaking substantial HCI work in the design of a healthcare system. Keywords Collaborative work, healthcare systems, digital pen ACM Classification Keywords H.5.3. [Information interfaces and presentation (e.g. HCI)]: Group and Organization Interfaces – computer- supported cooperative work. Introduction In a world where healthcare work is increasingly complex and collaborative, and where healthcare systems and organizations face significant challenges in managing huge volumes of information, there are interesting opportunities for new technologies to Copyright is held by the author/owner(s). WISH 2010 April 11, 2010, Atlanta, Georgia, USA. Stephanie Wilson Centre for HCI Design City University London Northampton Square London EC1V 0HB, UK steph@soi.city.ac.uk Peter Woodward Centre for HCI Design City University London Northampton Square London EC1V 0HB, UK peter.woodward.1@soi.city.ac.uk Rebecca Randell Centre for HCI Design City University London Northampton Square London EC1V 0HB, UK rebecca.randell.1@soi.city.ac.uk 177
  • 3. facilitate and enhance the effectiveness and safety of the work. Yet in spite of this, studies of healthcare work reveal a continuing reliance on artefacts such as informal paper notes, forms and status boards and there have been several notable failures of Information and Communication Technologies (ICTs) introduced in clinical settings. One reason for this has been a failure to take adequate account of the situated clinical work. In response, there is now a greater appreciation of the important contribution that many disciplines, including human-computer interaction, can make to the design of healthcare ICT systems. This view has underpinned recent work that we have undertaken in the development of PaperChain, a novel system to support one specific form of collaborative healthcare work known as clinical handover. The design of PaperChain was user-centered and participatory; it was motivated and inspired by workplace studies of handover. In this paper, we briefly summarise our studies and the resulting PaperChain system. Our aim is to exemplify the rich insights we gained from a strong focus on the work and the benefit this brought to the design. Background Clinical handover is the process by which responsibility for patient care is transferred from one healthcare practitioner or group of practitioners to another and in which relevant information may be shared between the two parties [3]. We have been investigating clinical handover for a number of years and one of our interests has been the potential role of information technology in supporting effective handover. To understand this role, where technology may be useful and where it may be less so (e.g. see [2]), we have undertaken substantial field studies of handover. These studies were located within a variety of hospital settings [3] and focused primarily on nursing shift handovers, medical shift handovers, temporary delegations of responsibility and transfers between settings (e.g. from an Accident and Emergency department to an admitting ward). The studies took the form of non-participant observations recorded as field notes, audio recording of verbal communications and informal interviews with staff. We have spent over 700 hours in the field undertaking these studies and have acquired a rich set of data. Handover has tended to be regarded as a baton- passing activity, in which there is a single point of transfer of responsibility and information. Based on our field studies, we have suggested that it may instead be fruitful to view handover as a process and the attendant information sharing as on-going activity (rather than a single transition) that promotes good clinical situation awareness [3]. This reframing of handover motivated and has grounded the development of PaperChain, a system designed to support the real-time sharing of clinical information for one of our field study sites, a paediatric ambulance transport service in London, UK. Workplace Studies The ambulance service transports critically ill children from regional hospitals that do not have intensive care facilities to the paediatric intensive care units (PICUs) of major London hospitals. It also provides advice on the treatment of children either prior to transporting them or instead of doing so, in situations where transport is deemed inappropriate. The service is staffed by doctors and nurses, and the transport or 178
  • 4. “retrieval” of each child is a collaborative activity involving multiple healthcare professionals. We spent 111 hours at the ambulance service as part of our initial field studies (and many more hours since then). We observed the work at the base office, travelled on retrievals, and conducted informal interviews with the staff. The retrieval of a child starts when a regional hospital phones the office of the transport service. At the time of the field studies, details of the case were then recorded on a multi-page paper form by an administrator and a trainee doctor known as a “fellow”. If the decision was made to retrieve the child, a team consisting of the fellow, a nurse and an ambulance driver would be mobilized and would travel to the regional hospital taking the paper form with them to record further clinical details. Senior physicians, who generally remained at the base office, did not have access to the information on the form and had to rely on a telephone handover from the fellow prior to authorizing transport of the child. Based on the field studies, we set out with the goal of developing a system to support better real-time information sharing between the clinical staff, thereby taking the pressure off “baton-passing” handovers. Specifically, the aim was to improve information sharing between the team who travelled to the regional hospital to stabilise and transfer the child, the senior physicians and others at the base office and the PICU staff. The field studies yielded valuable information about handovers, how they happened, what information was communicated etc, and this informed the design of PaperChain. However, some of the most valuable insights were not about the functionality of the system but about the nature of the work and the circumstances in which it was conducted. For example: The fiction of a normal course of events Healthcare work is well-known for its contingent and responsive nature. When we spoke to the staff about their work they gave us a high-level, process-oriented description of how the service operated and what happened on a retrieval. This was very valuable but with the field studies it rapidly became apparent that retrievals rarely (or never) conformed to this idealized description. Instead, they varied in myriad ways that we could not have anticipated and which the staff would not have been able to articulate easily. It became clear that our system should not be constrained by a strong, process-oriented view of the work but instead should acknowledge the non-normal courses of events, allowing staff to flexibly capture and view relevant clinical information irrespective of what happened in practice. Benefit without pain The priority for the doctors and nurses on a retrieval is looking after the patient. They are working in high- pressure, sometimes life-critical circumstances. When dealing with a critically ill patient they have no capacity or motivation to use a system that adds to their work or removes their attention from the patient unless there is some immediate benefit to be gained. For us, this was an imperative for truly lightweight data capture and an argument against the perhaps obvious solutions of a PDA or tablet PC-based system. Similarly, staff at the base office are busy and perhaps unlikely to access a display that requires effort on their part. We needed a display paradigm where information was “pushed” not “pulled”. 179
  • 5. PaperChain PaperChain uses a novel combination of digital pens/paper and shared displays to provide light-weight capture and sharing of information in (almost) real- time. Digital pen and paper is a relatively new technology. Anything written on digital paper with a digital pen is captured electronically and can be immediately transferred to a central server via the mobile phone network. Figure 1: Shared display with one page of the clinical form overlaid on summary information We replaced the existing paper forms used by the ambulance service with digital pens and paper so that all written information about a retrieval is now automatically captured in electronic form. Hence, with minimal change to the work of the ambulance team, we are able to capture information about a retrieval while it is in progress. This information is then transmitted to base office and the PICU where shared displays make it readily available. A large shared touchscreen display in the base office acts as an “awareness display” [1], providing a continuously updated view of current cases and giving staff access to the digital form (Figure 1). Status and Brief Reflection PaperChain is a robust research prototype. It has now been deployed for several months and is in routine everyday use. We are currently evaluating its impact through post-deployment field studies using multiple evaluation methods. While there have inevitably been some practical problems, our experiences thus far, and the enthusiasm with which the clinical staff have embraced PaperChain, suggest that this combination of technologies has much promise. The strong focus on the work provided by the detailed workplace studies was invaluable and demonstrates (yet again) the benefit of multidisciplinary approaches in healthcare ICT design. The value of the studies was not just what they revealed about the tasks and the information flow, but what they told us about the many ways in which work routinely varied from the norm and which had to be accommodated in a flexible design. Acknowledgements This work was funded by the UK Engineering and Physical Sciences Research Council (EPSRC), grant EP/D078636/1. Thanks to all the staff at the ambulance service and to Digital Field Solutions for sponsoring and providing the digital pen technology and services. References [1] Bardram, J.E., Hansen, T.R. & Soegaard, M., AwareMedia: A Shared Interactive Display Supporting Social, Temporal, and Spatial Awareness in Surgery, Proc. CSCW 2006, ACM Press (2006), 109-118. [2] Wilson, S, Galliers, J. & Fone, J. Medical Handover: A Study and Implications for Information Technology. Proc HEPS 2005, 2005. [3] Wilson, S., Randell, R., Galliers, J. & Woodward, P., Reconceptualising Clinical Handover: Information Sharing for Situation Awareness, Proc. ECCE 2009. 180