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Selection	
  from	
  Disability	
  and	
  Capitalism:	
  A	
  Caregiver’s	
  Perspective	
  
Jared	
  Wood,	
  published	
  in	
  Slingshot	
  January	
  2013	
  
	
  
.	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  
Each	
  of	
  the	
  three	
  [quadriplegics]	
  I	
  work	
  for	
  came	
  here	
  to	
  attend	
  UC	
  Berkeley,	
  which	
  offered	
  a	
  
program	
  for	
  disabled	
  students	
  unique	
  in	
  its	
  time.	
  The	
  “dorm	
  program”	
  provided	
  appropriate	
  
housing	
  and	
  on-­‐call	
  attendants	
  as	
  students	
  transitioned	
  into	
  school	
  life	
  and	
  hiring	
  helpers	
  
themselves.	
  Many	
  who	
  participated	
  in	
  this	
  program	
  ended	
  up	
  staying	
  in	
  Berkeley	
  because	
  of	
  the	
  
disabled	
  community,	
  the	
  city’s	
  efforts	
  toward	
  accessibility,	
  and	
  the	
  social	
  climate	
  here.	
  From	
  what	
  I	
  
have	
  been	
  told,	
  the	
  opportunities	
  available	
  here	
  for	
  personal	
  independence	
  and	
  community	
  
integration	
  are	
  unparalleled	
  elsewhere.	
  
The	
  broader	
  San	
  Francisco	
  Bay	
  Area	
  has	
  been	
  and	
  continues	
  to	
  be	
  one	
  of	
  the	
  epicenters	
  for	
  the	
  
disability	
  rights	
  movement	
  and	
  political	
  actions	
  led	
  by	
  disabled	
  organizers.	
  It	
  is	
  home	
  to	
  disability	
  
rights	
  advocacy	
  groups,	
  disabled	
  artists,	
  performers,	
  and	
  activists.	
  Berkeley	
  was	
  the	
  first	
  city	
  to	
  be	
  
home	
  to	
  an	
  Independent	
  Living	
  movement	
  and	
  an	
  Independent	
  Living	
  Center	
  aimed	
  at	
  uniting	
  
different	
  disabled	
  groups	
  to	
  change	
  social	
  and	
  structural	
  ableisms.	
  Perhaps	
  owing	
  to	
  this	
  political	
  
history,	
  Berkeley	
  was	
  one	
  of	
  the	
  first	
  cities	
  in	
  the	
  country	
  to	
  begin	
  implementing	
  federal	
  legislations	
  
such	
  as	
  the	
  Architectural	
  Barriers	
  Act	
  and	
  the	
  Americans	
  with	
  Disabilities	
  Act.	
  	
  
These	
  laws	
  are	
  meant	
  to	
  ensure	
  that	
  public	
  spaces	
  are	
  designed	
  to	
  be	
  accessible	
  for	
  those	
  with	
  
disabilities	
  and	
  that	
  disabled	
  persons	
  cannot	
  be	
  discriminated	
  against	
  in	
  the	
  field	
  of	
  education	
  or	
  in	
  
the	
  workplace.	
  The	
  American	
  Disabilities	
  Act	
  defines	
  disability	
  as	
  “a	
  physical	
  or	
  mental	
  impairment	
  
that	
  substantially	
  limits	
  a	
  major	
  life	
  activity,	
  such	
  as	
  walking,	
  seeing,	
  hearing,	
  learning,	
  breathing,	
  
caring	
  for	
  oneself,	
  or	
  working”	
  and	
  is	
  intended	
  to	
  protect	
  “those	
  who	
  have	
  a	
  disability,	
  those	
  who	
  
have	
  a	
  record	
  of	
  such	
  an	
  impairment,”	
  and	
  those	
  who	
  are	
  “regarded	
  as	
  having	
  such	
  an	
  impairment.”	
  	
  
This	
  definition	
  includes	
  persons	
  in	
  very	
  different	
  positions	
  with	
  widely	
  divergent	
  lifestyles	
  and	
  
needs.	
  Persons	
  who	
  are	
  blind	
  or	
  deaf,	
  who	
  have	
  severe	
  back	
  injuries,	
  cancer,	
  or	
  AIDS,	
  who	
  are	
  
former	
  drug	
  addicts,	
  have	
  learning	
  disabilities,	
  and	
  those	
  who	
  were	
  diagnosed	
  with	
  emotional	
  or	
  
psychological	
  conditions	
  are	
  all	
  among	
  those	
  that	
  the	
  state	
  recognizes	
  as	
  disabled.	
  In	
  this	
  context,	
  
“Disability”	
  is	
  defined	
  by	
  the	
  state	
  largely	
  as	
  one’s	
  inability	
  to	
  work.	
  	
  
This	
  condition	
  is	
  problematized	
  in	
  a	
  growth-­‐based	
  capitalist	
  paradigm	
  when	
  one’s	
  value	
  to	
  the	
  
nation	
  is	
  quantified	
  in	
  purely	
  economic	
  terms.	
  Government	
  agencies	
  and	
  programs	
  meant	
  to	
  
support	
  those	
  who	
  are	
  not	
  financially	
  self-­‐sufficient,	
  physically	
  disabled	
  and	
  otherwise,	
  are	
  
commonly	
  referred	
  to	
  as	
  “entitlement	
  programs”	
  and	
  are	
  consistently	
  under	
  attack	
  by	
  those	
  who	
  
would	
  prioritize	
  balancing	
  the	
  state	
  budget	
  over	
  peoples’	
  health	
  needs.	
  	
  
.	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  
We	
  all	
  suffer	
  when	
  a	
  person’s	
  individual	
  value	
  is	
  conflated	
  with	
  their	
  capacity	
  to	
  produce	
  labor	
  for	
  
institutional	
  interests.	
  And	
  we	
  are	
  all	
  judged	
  -­‐	
  by	
  strangers,	
  friends,	
  authority	
  figures,	
  and	
  ourselves	
  
–	
  according	
  to	
  the	
  perceived	
  value	
  of	
  the	
  labor	
  we	
  can	
  do.	
  We	
  all	
  suffer	
  as	
  opportunities	
  for	
  life	
  
outside	
  the	
  norm	
  of	
  productivism	
  are	
  diminished.	
  The	
  world	
  becomes	
  less	
  diverse	
  and	
  many	
  are	
  
marginalized,	
  oppressed,	
  and	
  eliminated.	
  	
  
This	
  is	
  an	
  issue	
  that	
  affects	
  any	
  person	
  who	
  does	
  not	
  serve	
  such	
  interests,	
  disabled	
  or	
  
otherwise,	
  and	
  more	
  generally	
  it	
  affects	
  all	
  earth	
  beings.	
  This	
  last	
  insight	
  is	
  something	
  I	
  heard	
  in	
  a	
  
roundtable	
  discussion	
  I	
  had	
  been	
  invited	
  to	
  by	
  disabled	
  activists	
  who	
  had	
  created	
  and	
  performed	
  in	
  
the	
  show	
  Sins	
  Invalid.	
  She	
  asked,	
  “When	
  will	
  we	
  all	
  be	
  honored	
  for	
  who	
  we	
  are,	
  the	
  fact	
  that	
  we	
  are,	
  
and	
  not	
  what	
  we	
  can	
  do?”	
  
.	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  	
  .	
  
In	
  opposition	
  to	
  the	
  norm	
  of	
  productivism	
  there	
  exists	
  an	
  opportunity	
  for	
  a	
  positive	
  project.	
  We	
  can	
  
value	
  each	
  other	
  in	
  ways	
  that	
  are	
  not	
  rooted	
  in	
  our	
  suitability	
  for	
  a	
  dominant	
  and	
  often	
  damaging	
  
paradigm	
  of	
  work.	
  We	
  can	
  value	
  each	
  other	
  in	
  ways	
  that	
  affirm	
  the	
  magnificent	
  diversity	
  of	
  this	
  
world	
  and	
  its	
  wild	
  difference,	
  celebrating	
  the	
  richness	
  of	
  opportunity	
  for	
  relationship	
  and	
  
experience	
  that	
  results.	
  	
  
In	
  this	
  spirit	
  I	
  would	
  like	
  to	
  celebrate	
  my	
  relationships	
  with	
  the	
  individual	
  quadriplegics	
  who	
  
have	
  become	
  my	
  intimate	
  friends.	
  I	
  would	
  like	
  to	
  celebrate	
  the	
  closeness	
  of	
  our	
  friendships,	
  the	
  
reciprocity	
  of	
  our	
  relationships,	
  the	
  wisdom	
  and	
  support	
  each	
  has	
  given	
  me.	
  I	
  would	
  like	
  to	
  
celebrate	
  the	
  beauty	
  of	
  their	
  lifestyles	
  and	
  the	
  particular	
  beauty	
  of	
  each	
  as	
  an	
  individual,	
  and	
  to	
  be	
  
grateful	
  for	
  the	
  ways	
  in	
  which	
  I	
  receive	
  their	
  caring.	
  
Friends,	
  you	
  have	
  helped	
  me	
  to	
  listen	
  to	
  my	
  body	
  for	
  real,	
  striving	
  to	
  identify	
  and	
  honor	
  my	
  own	
  
bodily	
  needs.	
  You	
  show	
  me	
  that	
  grown	
  men	
  can	
  be	
  unashamed	
  to	
  ask	
  directly	
  for	
  the	
  help	
  we	
  need.	
  
With	
  you	
  I	
  experience	
  difference	
  in	
  repetition	
  and	
  beauty	
  in	
  necessity.	
  You	
  all	
  have	
  helped	
  me	
  to	
  
mostly	
  get	
  over	
  a	
  streak	
  of	
  cranky	
  fundamentalist	
  luddism.	
  	
  
You	
  have	
  helped	
  me	
  to	
  become	
  more	
  mindful	
  of	
  my	
  relationship	
  to	
  our	
  shared	
  physical	
  
surroundings	
  and	
  more	
  sensitive	
  to	
  my	
  responsibility	
  for	
  the	
  changes	
  within	
  it.	
  You	
  teach	
  me	
  to	
  be	
  
grateful	
  for	
  our	
  interdependence	
  and	
  grateful	
  for	
  the	
  gifts	
  I	
  continue	
  to	
  receive.	
  Friends,	
  we	
  are	
  
here	
  together—	
  and	
  our	
  lives	
  are	
  richer	
  in	
  caring	
  for	
  one	
  another.	
  

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Disability and Capitalism clip

  • 1. Selection  from  Disability  and  Capitalism:  A  Caregiver’s  Perspective   Jared  Wood,  published  in  Slingshot  January  2013     .    .    .    .    .    .    .    .    .    .   Each  of  the  three  [quadriplegics]  I  work  for  came  here  to  attend  UC  Berkeley,  which  offered  a   program  for  disabled  students  unique  in  its  time.  The  “dorm  program”  provided  appropriate   housing  and  on-­‐call  attendants  as  students  transitioned  into  school  life  and  hiring  helpers   themselves.  Many  who  participated  in  this  program  ended  up  staying  in  Berkeley  because  of  the   disabled  community,  the  city’s  efforts  toward  accessibility,  and  the  social  climate  here.  From  what  I   have  been  told,  the  opportunities  available  here  for  personal  independence  and  community   integration  are  unparalleled  elsewhere.   The  broader  San  Francisco  Bay  Area  has  been  and  continues  to  be  one  of  the  epicenters  for  the   disability  rights  movement  and  political  actions  led  by  disabled  organizers.  It  is  home  to  disability   rights  advocacy  groups,  disabled  artists,  performers,  and  activists.  Berkeley  was  the  first  city  to  be   home  to  an  Independent  Living  movement  and  an  Independent  Living  Center  aimed  at  uniting   different  disabled  groups  to  change  social  and  structural  ableisms.  Perhaps  owing  to  this  political   history,  Berkeley  was  one  of  the  first  cities  in  the  country  to  begin  implementing  federal  legislations   such  as  the  Architectural  Barriers  Act  and  the  Americans  with  Disabilities  Act.     These  laws  are  meant  to  ensure  that  public  spaces  are  designed  to  be  accessible  for  those  with   disabilities  and  that  disabled  persons  cannot  be  discriminated  against  in  the  field  of  education  or  in   the  workplace.  The  American  Disabilities  Act  defines  disability  as  “a  physical  or  mental  impairment   that  substantially  limits  a  major  life  activity,  such  as  walking,  seeing,  hearing,  learning,  breathing,   caring  for  oneself,  or  working”  and  is  intended  to  protect  “those  who  have  a  disability,  those  who   have  a  record  of  such  an  impairment,”  and  those  who  are  “regarded  as  having  such  an  impairment.”     This  definition  includes  persons  in  very  different  positions  with  widely  divergent  lifestyles  and   needs.  Persons  who  are  blind  or  deaf,  who  have  severe  back  injuries,  cancer,  or  AIDS,  who  are   former  drug  addicts,  have  learning  disabilities,  and  those  who  were  diagnosed  with  emotional  or   psychological  conditions  are  all  among  those  that  the  state  recognizes  as  disabled.  In  this  context,   “Disability”  is  defined  by  the  state  largely  as  one’s  inability  to  work.     This  condition  is  problematized  in  a  growth-­‐based  capitalist  paradigm  when  one’s  value  to  the   nation  is  quantified  in  purely  economic  terms.  Government  agencies  and  programs  meant  to   support  those  who  are  not  financially  self-­‐sufficient,  physically  disabled  and  otherwise,  are  
  • 2. commonly  referred  to  as  “entitlement  programs”  and  are  consistently  under  attack  by  those  who   would  prioritize  balancing  the  state  budget  over  peoples’  health  needs.     .    .    .    .    .    .    .    .    .    .   We  all  suffer  when  a  person’s  individual  value  is  conflated  with  their  capacity  to  produce  labor  for   institutional  interests.  And  we  are  all  judged  -­‐  by  strangers,  friends,  authority  figures,  and  ourselves   –  according  to  the  perceived  value  of  the  labor  we  can  do.  We  all  suffer  as  opportunities  for  life   outside  the  norm  of  productivism  are  diminished.  The  world  becomes  less  diverse  and  many  are   marginalized,  oppressed,  and  eliminated.     This  is  an  issue  that  affects  any  person  who  does  not  serve  such  interests,  disabled  or   otherwise,  and  more  generally  it  affects  all  earth  beings.  This  last  insight  is  something  I  heard  in  a   roundtable  discussion  I  had  been  invited  to  by  disabled  activists  who  had  created  and  performed  in   the  show  Sins  Invalid.  She  asked,  “When  will  we  all  be  honored  for  who  we  are,  the  fact  that  we  are,   and  not  what  we  can  do?”   .    .    .    .    .    .    .    .    .    .   In  opposition  to  the  norm  of  productivism  there  exists  an  opportunity  for  a  positive  project.  We  can   value  each  other  in  ways  that  are  not  rooted  in  our  suitability  for  a  dominant  and  often  damaging   paradigm  of  work.  We  can  value  each  other  in  ways  that  affirm  the  magnificent  diversity  of  this   world  and  its  wild  difference,  celebrating  the  richness  of  opportunity  for  relationship  and   experience  that  results.     In  this  spirit  I  would  like  to  celebrate  my  relationships  with  the  individual  quadriplegics  who   have  become  my  intimate  friends.  I  would  like  to  celebrate  the  closeness  of  our  friendships,  the   reciprocity  of  our  relationships,  the  wisdom  and  support  each  has  given  me.  I  would  like  to   celebrate  the  beauty  of  their  lifestyles  and  the  particular  beauty  of  each  as  an  individual,  and  to  be   grateful  for  the  ways  in  which  I  receive  their  caring.   Friends,  you  have  helped  me  to  listen  to  my  body  for  real,  striving  to  identify  and  honor  my  own   bodily  needs.  You  show  me  that  grown  men  can  be  unashamed  to  ask  directly  for  the  help  we  need.   With  you  I  experience  difference  in  repetition  and  beauty  in  necessity.  You  all  have  helped  me  to   mostly  get  over  a  streak  of  cranky  fundamentalist  luddism.     You  have  helped  me  to  become  more  mindful  of  my  relationship  to  our  shared  physical   surroundings  and  more  sensitive  to  my  responsibility  for  the  changes  within  it.  You  teach  me  to  be   grateful  for  our  interdependence  and  grateful  for  the  gifts  I  continue  to  receive.  Friends,  we  are   here  together—  and  our  lives  are  richer  in  caring  for  one  another.