Netta Hollings (Programme Manager - Mental Health and Community Care) discusses how you can get the most out of the Maternity Services Data Set (MSDS) and the Child Health Data Sets. The data sets provide comparative, mother and child-centric data that will be used to improve clinical quality and service efficiency; and to commission services in a way that improves health and reduce inequalities.

1. Maternity and Children’s Data Sets
Measure quality and improve performance
Child and Family Health Community Health Professionals Forum: June 2014

2. Agenda
• Introducing the Maternity and Child Health data
sets
• What's in the data sets?
• How can your organisation get the most out of
the data sets?
• How can the HSCIC help you to get the most
from the data sets?
• What will the HSCIC produce from the data and
how will it compliment your own analyses?
2

3. Introducing the Maternity and Child Health data sets
• http://www.hscic.gov.uk/maternityandchildren
• Maternity Services Data Set
• Child and Young Person’s Health Services
(CYPHS) Data Set
• Child and Adolescent Mental Health Services
(CAMHS) Data Set
3

4. What's in the Maternity data set?
• The Maternity Services Data Set (MSDS) sets
out national definitions for the extraction of data
for:
– routine booking appointment activities
– maternity care plan
– dating scan
– antenatal screening tests
– structural foetal anomaly screening
– labour & delivery
– newborn screening
– maternal or neonatal death
4

5. What's in the Child Health data set?
• The CYPHS data set describes national
definitions for the extraction of data in relation
to the following key areas:
– personal and demographic
– social and personal circumstances
– breastfeeding and nutrition
– care event and screening activity
– observations of BMI
– Assessment at age 2-2.5} being
– Childhood disability } added
5

6. What's in the CAMHS data set?
• The CAMHS Data Set sets out national definitions
for the extraction of data in relation to:
– demographics
– background
– family history
– targeted needs
– referrals to CAMH services
– care planning
– interventions
– outcome measures
– inpatient stays
– presenting problems and diagnoses
 Children and Young People’s IAPT being added in next version
6

7. Getting the most out of the data sets?
• The Maternity and Children's Data Sets
(MCDS) have been developed to help
achieve better outcomes of care for mothers,
babies and children. The data sets will
provide comparative, mother and child-centric
data that will be used to improve clinical
quality and service efficiency; and to
commission services in a way that improves
health and reduce inequalities.
7

8. Getting the most out of the data sets?
• Information from the data sets will be made widely available
to commissioners, providers, clinicians and service users
and will be used to:
– record, compare and improve outcomes and safety
– improve clinical quality and service efficiency
– commission services in a way that improves health and reduces
inequalities
– improve accountability by providing comparative information to
service users
– provide activity data on which to base mandatory tariffs for
payment
– support regulation
– increase the understanding and dissemination of best practice
– underpin improvement of local information systems to meet data
set standards
8

9. Getting the most out of the data sets?
• Work on the Maternity and Children's Data Sets
began with the policy driver of the National
Service Framework (NSF) for Children, Young
People and Maternity Services in 2004 and
remains aligned to the policy direction set out in:
– Equity and excellence: Liberating the NHS
– Achieving Equity and Excellence for Children
– NHS Outcomes Framework 2013-14
– NHS Outcomes Framework 2014-15
– Everyone Counts: Planning for Patients 2013-14
9

10. Getting the most out of the data sets?
• Try not to see them as a data set for central
submission
• Use them locally – build into Board reports
• Could be used to implement changes e.g.
electronic red book, digital pen technology
• Talk to us about what would be useful for you –
we would much rather do things that were useful
to data providers!
– What data to collect
– What reports would be useful
– enquiries@hscic.gov.uk
10

11. How can the HSCIC help?
• CAMHS Data Set Specification: This document precisely defines the information standard, 'what it is' and 'how it
should be implemented'. It is the formal definition of the standard.
• CAMHS data set technical output specification: This is the approved data set for implementation. It fully
defines the data items that are in scope for submission.
• (Draft) CAMHS data set user Guidance v1.3: This describes how the information standard should be interpreted
by service providers, IT system suppliers and other stakeholders. It helps users understand the scope of the
standard and how it should be implemented locally.
– Please note: This document will remain in draft form. This will enable us to address issues in a timely way through updates to the
document.
• CAMHS Data Set Technical Guidance: This describes the data submission framework; how service providers
should create and submit a data submission file.
• CAMHS Dataset Model: Shows the structure of the dataset and the inter linkages between the different data
tables.
• CAMHS Data Set Validation Reporting Specification: This describes the validation reporting which is designed
to highlight issues that suggest incomplete or poor data.
• CAMHS Intermediate Database (IDB): The IDB is a Microsoft Access database which is used to submit the
dataset. Please request this via enquiries@hscic.gov.uk specifying that you require the CAMHS IDB.
• System Conformance Checklist: This is a worksheet tool for service providers to assess how well their local IT
systems 'map' to the data set specification.
• CAMHS Implementation Planning Template: You can use this planning template to plan your organisation's
activity for implementing the CAMHS dataset. The resulting plan should give a high level picture of how your
organisation intends to tackle this implementation within the anticipated timescales.
• CAMHS Readiness Assessment Tool: You can use this readiness assessment tool to measure your
organisation's CAMHS dataset Implementation progress. This spans a baseline assessment, regular reviews and
a final review to report successful implementation.
• CAMHS Frequently Asked Questions (FAQs): An FAQ document to help providers further understand the data
set submission process by providing guidance for frequently asked questions.
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12. Reporting and Analysis
What will the HSCIC produce from the data
and how will it compliment your own
analyses?
Maternity examples
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13. Overview
• What are we doing?
– Working with internal and external customers
– Undertaken pilot submissions
– Encouraging feedback for reporting wants/needs
– Data due to published around Sept 2015
– Maternity Compendium (September 2014)

14. Data Quality
• Expectation of some data quality issues
initially
• Statistical outputs will be dependent upon the
data quality
• As this improves, the statistical outputs will
evolve
• Bear in mind – Maternity currencies

15. Current Maternity (HES) Reports
• Monthly collections and publications
(headline figures)
• Annual report (more detail)
• The number of deliveries (not children) taking place in NHS
hospitals is 671,255.
• 404,094 (61.7 per cent) of deliveries in NHS hospitals were
spontaneous, whilst 25.5 per cent (167,283) were caesarean
deliveries.
• Over a third of all deliveries (37.1 per cent, 211,374) required no
anaesthetic before or during delivery.
• 44.3 per cent (297,066) of delivery episodes had a total duration
of one day or less;
 69.9 per cent (468,891) two days or less and only 10.4 per
cent (69,861) of delivery episodes lasted five days or more.
 The longest stays were associated with caesarean deliveries.
• http://www.hscic.gov.uk/hes

16. HES Maternity (National & Provider level)
Age of
mother
Unknown Total excl.
Unknown
Spontaneous
vertex
Spontaneous
other
Forceps
low
Forceps
other
Ventouse Breech Breech
extraction
Elective
caesarean
Emergency
caesarean
Other
Total 671,255 2.4% 655,459 60.9% 0.4% 3.2% 3.6% 6.0% 0.4% 0.0% 10.7% 14.8% 0.0%
14 and under 223 35.9% 143 69.9% 1.4% 4.2% 2.1% 10.5% 0.0% 0.7% 3.5% 7.7% 0.0%
15-19 30,650 3.0% 29,718 71.8% 0.4% 2.9% 3.7% 7.1% 0.3% 0.0% 2.7% 10.9% 0.0%
20-24 120,302 2.6% 117,173 69.0% 0.5% 2.8% 3.5% 6.0% 0.3% 0.0% 5.4% 12.5% 0.0%
25-29 185,856 2.4% 181,394 63.6% 0.4% 3.3% 3.8% 6.0% 0.4% 0.0% 8.4% 14.1% 0.0%
30-34 196,593 2.3% 192,139 58.6% 0.3% 3.4% 3.7% 6.1% 0.4% 0.1% 12.2% 15.2% 0.0%
35-39 102,775 2.1% 100,629 53.4% 0.3% 3.0% 3.2% 5.5% 0.4% 0.0% 17.1% 16.8% 0.0%
40-44 24,342 1.8% 23,900 47.7% 0.2% 2.6% 2.7% 5.1% 0.4% 0.0% 21.7% 19.5% 0.0%
45-49 1,343 2.6% 1,308 37.4% 0.2% 1.9% 2.0% 3.6% 0.2% 0.1% 31.3% 23.4% 0.0%
50 and over 114 11.4% 101 21.8% 0.0% 2.0% 0.0% 5.0% 1.0% 0.0% 48.5% 21.8% 0.0%
unknown 9,057 1.1% 8,954 36.9% 0.3% 4.2% 5.0% 7.3% 0.7% 0.1% 19.6% 26.0% 0.0%
Total
deliveries
Method of Delivery

17. Maternity Compendium
• Linking to existing Mental Health datasets
(IAPT & MHMDS)
• Linking within HES (Inpatients, Outpatients,
Maternity, A&E)
• Causality of birth weights/lengths – e.g. age
of mother, health conditions, ethnicity?
• Examine existing data sources – ONS,
Maternity Survey
• Variety of presentation formats

18. Maternity Services Data Set
• Will be able to report on the whole pregnancy
pathway not just the delivery
– Ante and Post natal care
– Ultrasound Scan results
– Tests
 Before (Downs Syndrome)
 After (Blood spot)
– Babies linked to the mother
– Breastfeeding initiated
– Smoking status

19. Reporting MSDS
• Interactive online tool
• Requirements to include:
– Filtering
– Charts
– Hierarchies
– Maps
– Dashboards
– Ability to connect to a range of data sources (SQL,
Excel etc.)
– Ease of use
– Support
– Basic statistical capabilities
• Evaluating options

20. Example (screenshots)

21. Connect with us
www.hscic.gov.uk
@hscic
www.slideshare.net/hscic