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Data Security and
Privacy in Health IT
  HINZ Seminar Series
18 March 2005, Crowne Plaza
      Hotel, Auckland
A Well Known Quotation
We trained hard but it seemed that every
time we were beginning to form up into
teams, we would be re-organised.

I was to learn later in life that we tend to
meet any new situation by re-organising; and
a wonderful method it can be for creating the
illusion of progress while producing
confusion, inefficiency and demoralization."
Variously Attributed To
1.   Petronius Arbiter, (200 BC)
2.   Caius Petronius Arbiter (50 BC)
3.   Petronius Satyricon, (50 AD)
4.   Gaius Petronius. (66 AD)

•    Gaius Petronius Arbiter (1st Century AD)
But....
• The quote first appeared in Robert
  Townsend’s Up the Organization (1970)
• Believed to have been originated by
  “some disgruntled soldier who pinned
  this quotation to a bulletin board in one
  of the camps of the armies occupying
  Germany sometime after 1945”
A Correct Quotation
We trained hard but it seemed that every
time we were beginning to form up into
teams, we would be re-organised.

I was to learn later in life that we tend to
meet any new situation by re-organising; and
a wonderful method it can be for creating the
illusion of progress while producing
confusion, inefficiency and demoralization."

Gaius Petronius Arbiter (Not!)
• Most Black and White Documents
  could benefit from colour. research
  has shown that colour helps us to
  understand, retain and recall
  information. It also increases our
  willingness to read a document.
  In these ways colour helps to
  promote ideals, sell products
  and increase profits.
• Most Black and White Documents
  could benefit from colour. research
  has shown that colour helps us to
  understand, retain and recall
  information. It also increases our
  willingness to read a document.
  In these ways colour helps to
  promote ideals, sell products
  and increase profits.
• Most Black and White Documents
  could benefit from colour. research
  has shown that colour helps us to
  understand, retain and recall
  information. It also increases our
  willingness to read a document.
  In these ways colour helps to
  promote ideals, sell products
  and increase profits.
THE Facts about Privacy
• Many people know the facts about
  privacy and security – regardless of
  whether the facts are right or wrong
• The facts always support and justify a
  particular position or action
• It’s a wonderful subject for lengthy
  debate and thus can be used to avoid
  action and responsibility
For Today’s Discussion...
• Privacy means an individual' interest in
                                s
  (limiting) who has access to personal
  health care information (HIPAA Privacy Rule)
• Privacy is a legal issue
  – Not an IS/IT issue
For Today’s Discussion...
• Security means the protection of data
  against unauthorized access
• Security is an IS issue
  – In the sense of information created and
    stored in computers
Are Privacy & Security Issues?
An emphatic YES!
• The privacy issues have not changed significantly
  from ‘pre PC’ Days
  But
• The ability to breach
  privacy is significantly
  higher
   – Unlike the good old days
     information can be accessed
     from anywhere in the world
   – And be sent around the world
     in seconds
   – And in three years time 50%
     of all “information” will be
     accessed from offsite.
As a Starting Principle
• Auckland Regional IS Strategic Plan notes that
  – "Reasonable measures will be put in place to
    ensure that people’s information is managed in
    accordance with the Health Information Privacy
    Code, the NZ Privacy Act, and health information
    policies developed by the DHBs"

• The RISSP defines Reasonable as
  – "finding an appropriate balance between the
    interests of the individual, the practicality
    of the use of the system and the cost of
    implementing the measures"
Health Information Privacy Rules
•   Rule 1: Purpose of collection of health information
•   Rule 2: Source of health information
•   Rule 3: Collection of health information from individual
•   Rule 4: Manner of collection of health information
•   Rule 5: Storage and security of health information
•   Rule 6: Access to personal health information
•   Rule 7: Correction of health information
•   Rule 8: Accuracy etc of health information to be checked before use
•   Rule 9: Retention of health information
•   Rule 10: Limits on use of health information
•   Rule 11: Limits on disclosure of health information
•   Rule 12: Unique identifiers
(un)Reasonable Measures
• The Fortress Mentality
  – Lock it down
  – Throw away the key
(un) Reasonable Measures
• “It is people who must taken on the
  responsibility for ensuring privacy”
• Trust Us..
Reasonable
• You must have processes, procedures
  and security in place to prevent
  breaches
• All parties must be aware of their
  responsibilities and obligations
• Balanced by practicality and cost
Internal Threats
What when there’s a breach
• Too late
News CIO’s don’t want to hear
• The system is down
• The data is lost, corrupted, false, can’t
  be recovered etc etc
• We’ve been hit with a worm, virus or
  Trojan
• The Board would like....
• The Commissioner has a couple of
  queries
The Future?
In Closing
In Closing

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Electronic Health Record Privacy - CIO's Perspective

  • 1. Data Security and Privacy in Health IT HINZ Seminar Series 18 March 2005, Crowne Plaza Hotel, Auckland
  • 2. A Well Known Quotation We trained hard but it seemed that every time we were beginning to form up into teams, we would be re-organised. I was to learn later in life that we tend to meet any new situation by re-organising; and a wonderful method it can be for creating the illusion of progress while producing confusion, inefficiency and demoralization."
  • 3. Variously Attributed To 1. Petronius Arbiter, (200 BC) 2. Caius Petronius Arbiter (50 BC) 3. Petronius Satyricon, (50 AD) 4. Gaius Petronius. (66 AD) • Gaius Petronius Arbiter (1st Century AD)
  • 4. But.... • The quote first appeared in Robert Townsend’s Up the Organization (1970) • Believed to have been originated by “some disgruntled soldier who pinned this quotation to a bulletin board in one of the camps of the armies occupying Germany sometime after 1945”
  • 5. A Correct Quotation We trained hard but it seemed that every time we were beginning to form up into teams, we would be re-organised. I was to learn later in life that we tend to meet any new situation by re-organising; and a wonderful method it can be for creating the illusion of progress while producing confusion, inefficiency and demoralization." Gaius Petronius Arbiter (Not!)
  • 6. • Most Black and White Documents could benefit from colour. research has shown that colour helps us to understand, retain and recall information. It also increases our willingness to read a document. In these ways colour helps to promote ideals, sell products and increase profits.
  • 7. • Most Black and White Documents could benefit from colour. research has shown that colour helps us to understand, retain and recall information. It also increases our willingness to read a document. In these ways colour helps to promote ideals, sell products and increase profits.
  • 8. • Most Black and White Documents could benefit from colour. research has shown that colour helps us to understand, retain and recall information. It also increases our willingness to read a document. In these ways colour helps to promote ideals, sell products and increase profits.
  • 9.
  • 10.
  • 11. THE Facts about Privacy • Many people know the facts about privacy and security – regardless of whether the facts are right or wrong • The facts always support and justify a particular position or action • It’s a wonderful subject for lengthy debate and thus can be used to avoid action and responsibility
  • 12. For Today’s Discussion... • Privacy means an individual' interest in s (limiting) who has access to personal health care information (HIPAA Privacy Rule) • Privacy is a legal issue – Not an IS/IT issue
  • 13. For Today’s Discussion... • Security means the protection of data against unauthorized access • Security is an IS issue – In the sense of information created and stored in computers
  • 14. Are Privacy & Security Issues? An emphatic YES! • The privacy issues have not changed significantly from ‘pre PC’ Days But • The ability to breach privacy is significantly higher – Unlike the good old days information can be accessed from anywhere in the world – And be sent around the world in seconds – And in three years time 50% of all “information” will be accessed from offsite.
  • 15. As a Starting Principle • Auckland Regional IS Strategic Plan notes that – "Reasonable measures will be put in place to ensure that people’s information is managed in accordance with the Health Information Privacy Code, the NZ Privacy Act, and health information policies developed by the DHBs" • The RISSP defines Reasonable as – "finding an appropriate balance between the interests of the individual, the practicality of the use of the system and the cost of implementing the measures"
  • 16. Health Information Privacy Rules • Rule 1: Purpose of collection of health information • Rule 2: Source of health information • Rule 3: Collection of health information from individual • Rule 4: Manner of collection of health information • Rule 5: Storage and security of health information • Rule 6: Access to personal health information • Rule 7: Correction of health information • Rule 8: Accuracy etc of health information to be checked before use • Rule 9: Retention of health information • Rule 10: Limits on use of health information • Rule 11: Limits on disclosure of health information • Rule 12: Unique identifiers
  • 17. (un)Reasonable Measures • The Fortress Mentality – Lock it down – Throw away the key
  • 18. (un) Reasonable Measures • “It is people who must taken on the responsibility for ensuring privacy” • Trust Us..
  • 19. Reasonable • You must have processes, procedures and security in place to prevent breaches • All parties must be aware of their responsibilities and obligations • Balanced by practicality and cost
  • 21. What when there’s a breach • Too late
  • 22. News CIO’s don’t want to hear • The system is down • The data is lost, corrupted, false, can’t be recovered etc etc • We’ve been hit with a worm, virus or Trojan • The Board would like.... • The Commissioner has a couple of queries