SlideShare a Scribd company logo

2017.Jun.22 Szinapszis_Takeda_Patient_Insight_EphMRA

E
Eszter Kun

We presented this paper at the EphMRA conference in Amsterdam, 22 June 2017. A Multi-disciplinary Research to Guide Multiple Myeloma Patient Support Efforts by Nienke Feenstra, Takeda and Eszter Kun, Szinapszis Market Research and Consulting In order to aid our client in providing as much patient support as possible, Szinapszis conducted a completely patient oriented market research study that focused solely on the needs of the patients and not on the drugs and therapies. An expert team of KOLs, patient organisation, company medical and marketing people and the researchers collaborated in the two-stage project using ethnographic interviews followed by following the daily life of a larger group of patients in a 3 month long online community. This multi-disciplinary study has helped shape Takeda’s patient support programme and really made a positive impact on patients.

1 of 20
A Multi-disciplinary Research to Guide
Multiple Myeloma Patient Support Efforts
A joint project of Takeda Pharmaceutical Company Limited And
Szinapszis Market Research & Consulting
Nienke Feenstra
Country Head for Hungary
Eszter Kun
Director of
Research
Objectives from Takeda
Translating objectives to research questions and methodology
Outcomes of the study – which unmet needs were identified?
Learnings on doing the study / technical
Key learnings
Agenda
In preparing our entry in the field on myeloma we had the
following starting points
How to build a bespoke Patient Engagement Program that goes beyond adherence?
Takeda wants to put the
patient at the center of
everything we do
In Hungary there was a lot of
passion at different
stakeholders in haematology
– but not very well connected
Big differences in knowledge
on myeloma within Hungary
and lower availability of
treatments for patients
2017.Jun.22 Szinapszis_Takeda_Patient_Insight_EphMRA
So, how did Szinapszis translate the
question into research?
The research question:
 IMPACT of Multiple Myeloma on patients’ life
 ? IMPROVE QoL ?
(outside of medical treatment)
So, how did Szinapszis translate the
question into research?
The research goal:
 To fully understand their quality of life,
experience with symptoms, treatments, doctors.
1. LIVING with MULTIPLE MYELOMA
2. Difficulties on PATIENT PATHWAY
3. Mapping the phases: WHERE to support
4. And HOW to best support

Recommended

AI Trends in Creative Operations 2024 by Artwork Flow.pdf
AI Trends in Creative Operations 2024 by Artwork Flow.pdfAI Trends in Creative Operations 2024 by Artwork Flow.pdf
AI Trends in Creative Operations 2024 by Artwork Flow.pdfmarketingartwork
 
PEPSICO Presentation to CAGNY Conference Feb 2024
PEPSICO Presentation to CAGNY Conference Feb 2024PEPSICO Presentation to CAGNY Conference Feb 2024
PEPSICO Presentation to CAGNY Conference Feb 2024Neil Kimberley
 
Content Methodology: A Best Practices Report (Webinar)
Content Methodology: A Best Practices Report (Webinar)Content Methodology: A Best Practices Report (Webinar)
Content Methodology: A Best Practices Report (Webinar)contently
 
How to Prepare For a Successful Job Search for 2024
How to Prepare For a Successful Job Search for 2024How to Prepare For a Successful Job Search for 2024
How to Prepare For a Successful Job Search for 2024Albert Qian
 
Social Media Marketing Trends 2024 // The Global Indie Insights
Social Media Marketing Trends 2024 // The Global Indie InsightsSocial Media Marketing Trends 2024 // The Global Indie Insights
Social Media Marketing Trends 2024 // The Global Indie InsightsKurio // The Social Media Age(ncy)
 
Trends In Paid Search: Navigating The Digital Landscape In 2024
Trends In Paid Search: Navigating The Digital Landscape In 2024Trends In Paid Search: Navigating The Digital Landscape In 2024
Trends In Paid Search: Navigating The Digital Landscape In 2024Search Engine Journal
 
5 Public speaking tips from TED - Visualized summary
5 Public speaking tips from TED - Visualized summary5 Public speaking tips from TED - Visualized summary
5 Public speaking tips from TED - Visualized summarySpeakerHub
 

More Related Content

Recently uploaded

dr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdf
dr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdfdr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdf
dr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdfد حاتم البيطار
 
Use of AI: Misinformation on Social Media
Use of AI: Misinformation on Social MediaUse of AI: Misinformation on Social Media
Use of AI: Misinformation on Social MediaIris Thiele Isip-Tan
 
sara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdf
sara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdfsara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdf
sara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdfد حاتم البيطار
 
Ramy Case Study 1د حاتم البيطار زويل اكاديمي.pptx
Ramy Case Study 1د حاتم البيطار زويل اكاديمي.pptxRamy Case Study 1د حاتم البيطار زويل اكاديمي.pptx
Ramy Case Study 1د حاتم البيطار زويل اكاديمي.pptxد حاتم البيطار
 
A BIRD VIEW ON DUSHI & GARAVISHA......pdf
A BIRD VIEW ON DUSHI & GARAVISHA......pdfA BIRD VIEW ON DUSHI & GARAVISHA......pdf
A BIRD VIEW ON DUSHI & GARAVISHA......pdfMallamma Biradar
 
2024 Compliatric Webinar Series - Components of a Needs Assessment.pdf
2024 Compliatric Webinar Series - Components of a Needs Assessment.pdf2024 Compliatric Webinar Series - Components of a Needs Assessment.pdf
2024 Compliatric Webinar Series - Components of a Needs Assessment.pdfCompliatric Where Compliance Happens
 
quangnguyen22624444444444444444444 .pptx
quangnguyen22624444444444444444444 .pptxquangnguyen22624444444444444444444 .pptx
quangnguyen22624444444444444444444 .pptxTyraRideaux
 
Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...
Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...
Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...akashdashjsr99
 
DIABETIC_STUDIES_STY_2 presentation dhir hospital bhiwani.pptx
DIABETIC_STUDIES_STY_2  presentation dhir hospital bhiwani.pptxDIABETIC_STUDIES_STY_2  presentation dhir hospital bhiwani.pptx
DIABETIC_STUDIES_STY_2 presentation dhir hospital bhiwani.pptxdhbketan
 
Strategies and Options For Making India Zero Waste Water-26-2-24.pptx
Strategies and Options For Making India Zero Waste Water-26-2-24.pptxStrategies and Options For Making India Zero Waste Water-26-2-24.pptx
Strategies and Options For Making India Zero Waste Water-26-2-24.pptxJIT KUMAR GUPTA
 
LINEAR ACCELERATOR PRINCIPAL AND WORKING
LINEAR ACCELERATOR PRINCIPAL AND WORKINGLINEAR ACCELERATOR PRINCIPAL AND WORKING
LINEAR ACCELERATOR PRINCIPAL AND WORKINGKrishan Murari Yadav
 
The Natural Formula That Supports Men’s Virility And Libido
The Natural Formula That Supports Men’s Virility And LibidoThe Natural Formula That Supports Men’s Virility And Libido
The Natural Formula That Supports Men’s Virility And LibidoZaheerJamal1
 
To study about ITC in FMCG Sector -All domain
To study about ITC in FMCG Sector -All domainTo study about ITC in FMCG Sector -All domain
To study about ITC in FMCG Sector -All domainChitraSrivastava15
 
CRO Audit & Monitoring Quality Perspectives.pdf
CRO Audit & Monitoring Quality Perspectives.pdfCRO Audit & Monitoring Quality Perspectives.pdf
CRO Audit & Monitoring Quality Perspectives.pdfDr Prashant Bodhe
 
The Doctor's Book Of Survival Home Remedies Book (printed)
The Doctor's Book Of Survival Home Remedies Book (printed)The Doctor's Book Of Survival Home Remedies Book (printed)
The Doctor's Book Of Survival Home Remedies Book (printed)ZaheerJamal1
 
tayloranderson44444444444444444444444444444444.pptx
tayloranderson44444444444444444444444444444444.pptxtayloranderson44444444444444444444444444444444.pptx
tayloranderson44444444444444444444444444444444.pptxTyraRideaux
 
ESOPHAGITIS.pptx...easy to study & learn more
ESOPHAGITIS.pptx...easy to study & learn moreESOPHAGITIS.pptx...easy to study & learn more
ESOPHAGITIS.pptx...easy to study & learn moreBeena Vaza
 
Advanced Cardiac Disease | VITAS Healthcare
Advanced Cardiac Disease | VITAS HealthcareAdvanced Cardiac Disease | VITAS Healthcare
Advanced Cardiac Disease | VITAS HealthcareVITASAuthor
 
2023 Kangen Water Presentation By Edwin Mamaril
2023 Kangen Water Presentation By Edwin Mamaril2023 Kangen Water Presentation By Edwin Mamaril
2023 Kangen Water Presentation By Edwin MamarilEdwin Mamaril
 
INTESTINAL OBSTRUCTION.pptx...smart study..
INTESTINAL OBSTRUCTION.pptx...smart study..INTESTINAL OBSTRUCTION.pptx...smart study..
INTESTINAL OBSTRUCTION.pptx...smart study..Beena Vaza
 

Recently uploaded (20)

dr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdf
dr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdfdr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdf
dr heba allah abozeidد حاتم البيطار زويل اكاديمي.pdf
 
Use of AI: Misinformation on Social Media
Use of AI: Misinformation on Social MediaUse of AI: Misinformation on Social Media
Use of AI: Misinformation on Social Media
 
sara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdf
sara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdfsara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdf
sara atefد حاتم البيطار زويل اكاديميد حاتم البيطار.pdf
 
Ramy Case Study 1د حاتم البيطار زويل اكاديمي.pptx
Ramy Case Study 1د حاتم البيطار زويل اكاديمي.pptxRamy Case Study 1د حاتم البيطار زويل اكاديمي.pptx
Ramy Case Study 1د حاتم البيطار زويل اكاديمي.pptx
 
A BIRD VIEW ON DUSHI & GARAVISHA......pdf
A BIRD VIEW ON DUSHI & GARAVISHA......pdfA BIRD VIEW ON DUSHI & GARAVISHA......pdf
A BIRD VIEW ON DUSHI & GARAVISHA......pdf
 
2024 Compliatric Webinar Series - Components of a Needs Assessment.pdf
2024 Compliatric Webinar Series - Components of a Needs Assessment.pdf2024 Compliatric Webinar Series - Components of a Needs Assessment.pdf
2024 Compliatric Webinar Series - Components of a Needs Assessment.pdf
 
quangnguyen22624444444444444444444 .pptx
quangnguyen22624444444444444444444 .pptxquangnguyen22624444444444444444444 .pptx
quangnguyen22624444444444444444444 .pptx
 
Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...
Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...
Embark on a delicious journey to a healthier you with 'A Healthy Guide to Eat...
 
DIABETIC_STUDIES_STY_2 presentation dhir hospital bhiwani.pptx
DIABETIC_STUDIES_STY_2  presentation dhir hospital bhiwani.pptxDIABETIC_STUDIES_STY_2  presentation dhir hospital bhiwani.pptx
DIABETIC_STUDIES_STY_2 presentation dhir hospital bhiwani.pptx
 
Strategies and Options For Making India Zero Waste Water-26-2-24.pptx
Strategies and Options For Making India Zero Waste Water-26-2-24.pptxStrategies and Options For Making India Zero Waste Water-26-2-24.pptx
Strategies and Options For Making India Zero Waste Water-26-2-24.pptx
 
LINEAR ACCELERATOR PRINCIPAL AND WORKING
LINEAR ACCELERATOR PRINCIPAL AND WORKINGLINEAR ACCELERATOR PRINCIPAL AND WORKING
LINEAR ACCELERATOR PRINCIPAL AND WORKING
 
The Natural Formula That Supports Men’s Virility And Libido
The Natural Formula That Supports Men’s Virility And LibidoThe Natural Formula That Supports Men’s Virility And Libido
The Natural Formula That Supports Men’s Virility And Libido
 
To study about ITC in FMCG Sector -All domain
To study about ITC in FMCG Sector -All domainTo study about ITC in FMCG Sector -All domain
To study about ITC in FMCG Sector -All domain
 
CRO Audit & Monitoring Quality Perspectives.pdf
CRO Audit & Monitoring Quality Perspectives.pdfCRO Audit & Monitoring Quality Perspectives.pdf
CRO Audit & Monitoring Quality Perspectives.pdf
 
The Doctor's Book Of Survival Home Remedies Book (printed)
The Doctor's Book Of Survival Home Remedies Book (printed)The Doctor's Book Of Survival Home Remedies Book (printed)
The Doctor's Book Of Survival Home Remedies Book (printed)
 
tayloranderson44444444444444444444444444444444.pptx
tayloranderson44444444444444444444444444444444.pptxtayloranderson44444444444444444444444444444444.pptx
tayloranderson44444444444444444444444444444444.pptx
 
ESOPHAGITIS.pptx...easy to study & learn more
ESOPHAGITIS.pptx...easy to study & learn moreESOPHAGITIS.pptx...easy to study & learn more
ESOPHAGITIS.pptx...easy to study & learn more
 
Advanced Cardiac Disease | VITAS Healthcare
Advanced Cardiac Disease | VITAS HealthcareAdvanced Cardiac Disease | VITAS Healthcare
Advanced Cardiac Disease | VITAS Healthcare
 
2023 Kangen Water Presentation By Edwin Mamaril
2023 Kangen Water Presentation By Edwin Mamaril2023 Kangen Water Presentation By Edwin Mamaril
2023 Kangen Water Presentation By Edwin Mamaril
 
INTESTINAL OBSTRUCTION.pptx...smart study..
INTESTINAL OBSTRUCTION.pptx...smart study..INTESTINAL OBSTRUCTION.pptx...smart study..
INTESTINAL OBSTRUCTION.pptx...smart study..
 

Featured

ChatGPT and the Future of Work - Clark Boyd
ChatGPT and the Future of Work - Clark Boyd ChatGPT and the Future of Work - Clark Boyd
ChatGPT and the Future of Work - Clark Boyd Clark Boyd
 
Getting into the tech field. what next
Getting into the tech field. what next Getting into the tech field. what next
Getting into the tech field. what next Tessa Mero
 
Google's Just Not That Into You: Understanding Core Updates & Search Intent
Google's Just Not That Into You: Understanding Core Updates & Search IntentGoogle's Just Not That Into You: Understanding Core Updates & Search Intent
Google's Just Not That Into You: Understanding Core Updates & Search IntentLily Ray
 
Time Management & Productivity - Best Practices
Time Management & Productivity -  Best PracticesTime Management & Productivity -  Best Practices
Time Management & Productivity - Best PracticesVit Horky
 
The six step guide to practical project management
The six step guide to practical project managementThe six step guide to practical project management
The six step guide to practical project managementMindGenius
 
Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...
Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...
Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...RachelPearson36
 
Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...
Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...
Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...Applitools
 
12 Ways to Increase Your Influence at Work
12 Ways to Increase Your Influence at Work12 Ways to Increase Your Influence at Work
12 Ways to Increase Your Influence at WorkGetSmarter
 
Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...
Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...
Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...DevGAMM Conference
 
Barbie - Brand Strategy Presentation
Barbie - Brand Strategy PresentationBarbie - Brand Strategy Presentation
Barbie - Brand Strategy PresentationErica Santiago
 
Good Stuff Happens in 1:1 Meetings: Why you need them and how to do them well
Good Stuff Happens in 1:1 Meetings: Why you need them and how to do them wellGood Stuff Happens in 1:1 Meetings: Why you need them and how to do them well
Good Stuff Happens in 1:1 Meetings: Why you need them and how to do them wellSaba Software
 
Introduction to C Programming Language
Introduction to C Programming LanguageIntroduction to C Programming Language
Introduction to C Programming LanguageSimplilearn
 
The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...
The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...
The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...Palo Alto Software
 
9 Tips for a Work-free Vacation
9 Tips for a Work-free Vacation9 Tips for a Work-free Vacation
9 Tips for a Work-free VacationWeekdone.com
 
I Rock Therefore I Am. 20 Legendary Quotes from Prince
I Rock Therefore I Am. 20 Legendary Quotes from PrinceI Rock Therefore I Am. 20 Legendary Quotes from Prince
I Rock Therefore I Am. 20 Legendary Quotes from PrinceEmpowered Presentations
 
How to Map Your Future
How to Map Your FutureHow to Map Your Future
How to Map Your FutureSlideShop.com
 

Featured (20)

ChatGPT and the Future of Work - Clark Boyd
ChatGPT and the Future of Work - Clark Boyd ChatGPT and the Future of Work - Clark Boyd
ChatGPT and the Future of Work - Clark Boyd
 
Getting into the tech field. what next
Getting into the tech field. what next Getting into the tech field. what next
Getting into the tech field. what next
 
Google's Just Not That Into You: Understanding Core Updates & Search Intent
Google's Just Not That Into You: Understanding Core Updates & Search IntentGoogle's Just Not That Into You: Understanding Core Updates & Search Intent
Google's Just Not That Into You: Understanding Core Updates & Search Intent
 
How to have difficult conversations
How to have difficult conversations How to have difficult conversations
How to have difficult conversations
 
Introduction to Data Science
Introduction to Data ScienceIntroduction to Data Science
Introduction to Data Science
 
Time Management & Productivity - Best Practices
Time Management & Productivity -  Best PracticesTime Management & Productivity -  Best Practices
Time Management & Productivity - Best Practices
 
The six step guide to practical project management
The six step guide to practical project managementThe six step guide to practical project management
The six step guide to practical project management
 
Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...
Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...
Beginners Guide to TikTok for Search - Rachel Pearson - We are Tilt __ Bright...
 
Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...
Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...
Unlocking the Power of ChatGPT and AI in Testing - A Real-World Look, present...
 
12 Ways to Increase Your Influence at Work
12 Ways to Increase Your Influence at Work12 Ways to Increase Your Influence at Work
12 Ways to Increase Your Influence at Work
 
ChatGPT webinar slides
ChatGPT webinar slidesChatGPT webinar slides
ChatGPT webinar slides
 
More than Just Lines on a Map: Best Practices for U.S Bike Routes
More than Just Lines on a Map: Best Practices for U.S Bike RoutesMore than Just Lines on a Map: Best Practices for U.S Bike Routes
More than Just Lines on a Map: Best Practices for U.S Bike Routes
 
Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...
Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...
Ride the Storm: Navigating Through Unstable Periods / Katerina Rudko (Belka G...
 
Barbie - Brand Strategy Presentation
Barbie - Brand Strategy PresentationBarbie - Brand Strategy Presentation
Barbie - Brand Strategy Presentation
 
Good Stuff Happens in 1:1 Meetings: Why you need them and how to do them well
Good Stuff Happens in 1:1 Meetings: Why you need them and how to do them wellGood Stuff Happens in 1:1 Meetings: Why you need them and how to do them well
Good Stuff Happens in 1:1 Meetings: Why you need them and how to do them well
 
Introduction to C Programming Language
Introduction to C Programming LanguageIntroduction to C Programming Language
Introduction to C Programming Language
 
The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...
The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...
The Pixar Way: 37 Quotes on Developing and Maintaining a Creative Company (fr...
 
9 Tips for a Work-free Vacation
9 Tips for a Work-free Vacation9 Tips for a Work-free Vacation
9 Tips for a Work-free Vacation
 
I Rock Therefore I Am. 20 Legendary Quotes from Prince
I Rock Therefore I Am. 20 Legendary Quotes from PrinceI Rock Therefore I Am. 20 Legendary Quotes from Prince
I Rock Therefore I Am. 20 Legendary Quotes from Prince
 
How to Map Your Future
How to Map Your FutureHow to Map Your Future
How to Map Your Future
 

2017.Jun.22 Szinapszis_Takeda_Patient_Insight_EphMRA

  • 1. A Multi-disciplinary Research to Guide Multiple Myeloma Patient Support Efforts A joint project of Takeda Pharmaceutical Company Limited And Szinapszis Market Research & Consulting Nienke Feenstra Country Head for Hungary Eszter Kun Director of Research
  • 2. Objectives from Takeda Translating objectives to research questions and methodology Outcomes of the study – which unmet needs were identified? Learnings on doing the study / technical Key learnings Agenda
  • 3. In preparing our entry in the field on myeloma we had the following starting points How to build a bespoke Patient Engagement Program that goes beyond adherence? Takeda wants to put the patient at the center of everything we do In Hungary there was a lot of passion at different stakeholders in haematology – but not very well connected Big differences in knowledge on myeloma within Hungary and lower availability of treatments for patients
  • 5. So, how did Szinapszis translate the question into research? The research question:  IMPACT of Multiple Myeloma on patients’ life  ? IMPROVE QoL ? (outside of medical treatment)
  • 6. So, how did Szinapszis translate the question into research? The research goal:  To fully understand their quality of life, experience with symptoms, treatments, doctors. 1. LIVING with MULTIPLE MYELOMA 2. Difficulties on PATIENT PATHWAY 3. Mapping the phases: WHERE to support 4. And HOW to best support
  • 7. So, how did Szinapszis translate the question into research? The business relevance:  IDENTIFY the strategy for market entry of Client's new drug,  findings can be COMMUNICATED to STAKEHOLDERS.
  • 8. Encompassing research design 8 In order to add value in care and support, all stakeholders need to be involved! (Stakeholder Board no 2.) We met patients in their home environment… (Ethnopraphic IDIs) We brought to light patients’ journey and wishes… (Stakeholder Board no 2.) Then started a community… Next 3 months: the Marathon of Understanding (Online Bulletin Board)
  • 10. Changes due to the disease MEDICATIONS, VITAMINS NEW MOWING MACHINE ORTHOPEDIC SHOES NEW CAR WITH EXTRAS MEDICAL ACCESSORIES *Picture is illustration FURNITURE POSITINONED FOR SUPPORT
  • 11. Process flow explored Diagnosis Possibility of Transplant Transplant not possible Chemotherapy Hospitalization - ambulant treatment – treatment at home Infusion – injection - medicine Chemotherapy preparing for transplantation Treatment of other diseases and symptoms Remission Control – phlebotomy, infusion for bones strengthening Transplantation Relapse
  • 12. Transplantation as treatment = Belief Process told in feelings Chemo = Pain & suffering Chemo = Pain & suffering Remission = Peace & relief Relapse = Falling down Other treatments = Awaiting Chemotherapy as treatment = Hope Diagnosis = Despair Psychological support is particularly needed again! EK Psychological support is particularly needed!
  • 13. Process told in feelings – Patient Voice 13 Those, who took part in the ethnographic interviews agreed to answer some questions on camera. In Hungarian, the word one of the patients uses to describe Myeloma Multiplx is „treatable” – meaning it is not curable.
  • 15. Participant’s dashboard Text Questions and Answers Single Selection Multi Selection Agreement Polls Using polls Online Bulletin Board platform – Q&A and so much more 3 month long online community based experience, gain a deeper, longitudinal insight into their daily life. Support the respondents throughout – technical & personal! Client is be able to observe using a „ghost” account
  • 16. RELIABLE AND EASY TO UNDERSTAND INFORMATION ABOUT THE DISEASE AND TREATMENTS TRAIN DOCTORS, WHERE MYELOMA PATIENTS ARE LIKELY TO TURN UP BEFORE DIAGNOSIS COMMUNITIES TARGETED TO MYELOMA PATIENTS TRAIN MYELOMA SPECIALISTS IN COMMUNICATION  KEY AREAS OF NEED PRACTICAL HELP IN PROBLEMS CONNECTED TO RECEIVING TREATMENT AND HOW TO ADDRESS THEM PRACTICAL SUGGESTIONS HELP, PREPARE AND SUPPORT RELATIVES
  • 18. Haematologists Haematologists were surprised at the differences between medical science and patient’s perceptions Haematologists on board made changes in their patient- interactions during the research: Transplantation misunderstanding amongst patients was addressed Changes in patient- interactions made Patients Patients were happy to contribute and share their story Patients appreciated the received information during the process Patients in the online bulletin board asked for a personal meet-up opportunity Key learnings went beyond initial objectives
  • 19. We got the opportunity to form a strong relationship of trust with our client Gain a deeper understanding of KOL physicians – an important target group for us Key learnings went beyond initial objectives Outcomes / insights will be part of basic training curriculum for myeloma It has been a strong engagement tool with our external stakeholders in Takeda Main objective has been met: we have the starting points for building a bespoke PEP Project in the heart of the sweet spot where patients, haematologists and company needs meet
  • 20. Un-met patient needs un-related to drug therapy were identified and possible actionable ideas developed TOGETHER with patients! And where we arrived to: 20 The research itself added value we had not anticipated!

Editor's Notes

  1. NFA to present However, when describing the main reason of the positive feeling we have after finalising this research is really that it has had such a positive impact on patients whilst doing it and we will ensure the same for the follow up. Many people in pharma are in it to add value to patients lives through innovations, but not many get to experience the value we can bring to patients lives so clearly, especially together with them – this project has been one of those cherry on the cake projects where we realize we can truly do that.