PHA 2013 Annual Report EN

Pulmonary Hypertension Association of Canada
Keeping the Flame of Hope Alive
Annual Report 2013

32
2013 Highlights
In 2013, we saw the flame of hope burn bright…
Global Hope for Pulmonary Hypertension
On May 5th, 2013, PHA Canada joined more than 60 other
PH associations worldwide in raising pulmonary hyperten-
sion awareness during the 2nd Annual World PH Day. This
incredible unity across the globe demonstrates that pulmo-
nary hypertension is a disease that exists in many towns and
cities, but that our hope for the future transcends all borders.
Hope Unites Us
Almost 250 members of our community came together in
Ottawa for the 3rd National PH Conference from Septem-
ber 20th-22nd. This gathering was one of the largest in PHA
Canada history, with almost 250 attendees, more than 50
speakers, more youth and children than ever before, and
unlimited inspiration. Turn to page 14 to view a photo essay
and full report from the 3rd National Conference.
Hope from the Community
This year, PHA Canada witnessed greater community involve-
ment than ever before. This involvement comes in the form
of organizing fundraisers and awareness events, advocating
for pulmonary hypertension at the government level, holding
support group meetings, writing articles, creating videos
and sharing hope in all ways. Our members do it all with the
hope of a better future for those living with PH, and we are
honoured to support each and every initiative to this end.
To read more about the community initiatives held across
the country in 2013, turn to page 8.
Hope through Education
In September, we launched a burden of illness survey to better
learn how PH affects patients and caregivers; the tangible
statistics from this survey will allow PHA Canada to shape
programming to better suit the needs of the community and
will be used to drive home a crucial message in awareness
campaigns. Read more about the Burden of Illness survey
and all of the advocacy and education work that was done
over the 2013 year on page 21.
Hope for Families
2013 has seen a great emphasis on pediatric pulmonary
hypertension. Our September issue of Connections featured
the stories of young children, their parents and their medical
supporters from across Canada. These personal stories
highlighted the impact of pediatric pulmonary hyperten-
sion and our need for less invasive medical procedures,
better treatments, and ultimately a cure. The 2013 National
PH Conference also saw more children and youth than any
previous gathering. Finally, our Pediatric Committee has been
working to develop unique resources to support families that
are facing pulmonary hypertension. For greater detail on the
work of the Pediatric Committee, visit page 12.
Hope through Developments in Research
Actelion’s new medication Caripul (epoprostenol), another
prostanoid infusion therapy for injection was launched in
Canada in September, 2013. This new form of infusion medica-
tion offers an expanded stability profile, lack of need for ice
packs, and the convenience of prolonged refrigerated storage
prior to use, all of which allow PH patients greater flexibility
in their daily lives.
Bayer’s new oral medication Adempas (riociguat) was approved
for use in Canada in September, 2013. Adempas is the first and
only drug indicated for the treatment of patients with chronic
thromboembolic pulmonary hypertension (CTEPH), a form
of PH due to multiple or recurrent pulmonary emboli or
blood clots in the lungs. Adempas will offer new hope to
CTEPH patients.
Pulmonary Hypertension Association
of Canada Annual Report 2013
About our organization..................................................................2
2013 Highlights.............................................................................3
Letter from the Chair of the Board................................................4
Letter from the National Manager................................................5
Global Hope for Pulmonary Hypertension................................................ 6
Around the World for World PH Day...............................................................6
Hope from the Community........................................................................ 8
Imagining a better future................................................................................8
Pennies for PH – Fundraiser report and contest winners..................................9
Striding for Breath in Cornwall...................................................................... 10
In brief – community events 2013................................................................. 11
Hope for Families..................................................................................... 12
Programming focused Committees................................................................ 12
Phocus on the PHamily: an update from the Pediatric Committee............... 12
Working with Medical Professionals............................................................... 13
Hope Unites Us........................................................................................ 14
2013 Highlight: the 3rd National PH Conference Feature............................ 14
Conference Scholarship fund......................................................................... 16
Hope through Education.......................................................................... 18
Advocacy ...................................................................................................... 18
PHA Canada initiative: the Burden of Illness Survey..................................... 21
Inside PHA Canada.................................................................................. 22
Our Fundraising............................................................................................ 22
Corporate donations and donors list.............................................................. 22
Financial statements..................................................................................... 23
Our Revenues & Our Expenditures................................................................ 25
Our Board and Staff...................................................................................... 26
The NFP Act................................................................................................. 28
Reflection.......................................................................................29
In loving memory ......................................................................................... 29
Tribute: In memory of Sandy Metcalfe.......................................................... 30
Looking forward with Hope........................................................32
Our Mission
To work within a united pulmonary hypertension
community and to provide leadership in awareness,
advocacy, education and patient support on behalf
of all Canadians living with pulmonary hypertension.
Our Vision
A better life for Canadians living with PH.
Who we are
The Pulmonary Hypertension Association of Canada
(PHA Canada) is a registered Canadian charitable
organization serving those whose lives have been
touched by pulmonary hypertension (PH). PH is a
rare and incurable lung disease that affects as many
as 10,000 Canadians of all ages, races and genders.
PHA Canada was established by patients, caregiv-
ers, parents and family members who are collectively
referred to as “Canadians living with PH”. Our aims
are to end isolation, provide education and create a
united Canadian PH community.
PHA Canada works to raise awareness of this disease
in the general public and among healthcare provid-
ers. It engages in advocacy activities with all levels
of government and offers patients and their families
wide-ranging support, education and hope. When you
become involved with PHA Canada, you’re helping to
connect members of our community, create resources
for patients and caregivers and ensure that those
suffering with PH are not alone.
Our
Organization
All photos featured in this Annual Report were taken
by Wade Pringle, Ray Lamontagne and PHA Canada
community members.

54
Letter from the National Manager
This year, the Pulmonary
Hypertension Association
of Canada celebrated its fifth
year of operations. When we
began discussions in 2006,
we envisioned a national
organization that would
unite our community, bring
a voice to those living with
PH and provide tools for our
members to fight back. We
dreamed that our members
would become engaged at
a grassroots level, reaching
out to their local commu-
nities so that others would
learn about PH. We dreamed that this awareness could potentially
help others be diagnosed, be treated earlier, and not feel alone in
their experiences. These dreams are becoming realities with each
passing day. Since those first meetings in 2006 and since the PH
Society of Canada became PHA Canada in April 2008, we as a
community have made tremendous strides:
We’ve held 3 National PH Conferences, each one larger than the last.
We’ve advocated at all levels of government and helped to overturn
legislation that was preventing access to medication for PH patients.
We helped introduce a bill to mandate rare disease legislation at
the federal level.
We’ve held incredibly successful awareness campaigns, which have
garnered millions of media impressions.
We’ve launched a successful yearly fundraising and awareness
campaign, the “6 Minute Walk for Breath”. In 2012, this campaign
was a key aspect of November Awareness Month, through which
members of our community raised close to $50,000 for programs.
We have expanded our office space to accommodate new staff and
program materials, moving into our 3rd and largest office this year.
We have witnessed member engagement across neighbourhoods,
cities and provinces that we could not have even imagined when
we first founded PHA Canada. Every day, our community is stron-
ger and more connected.
Despite all of these milestones, however, there is much to be done.
Of PHA Canada’s seven founding members, two have passed on
as a result of PH. Countless others have also lost their lives to this
devastating disease because we still have no cure. While medica-
tions can help to alleviate some symptoms, no treatment exists that
allows patients to live how they did before pulmonary hypertension.
We have a lot of work to do. We need to create education, awareness
and patient support, particularly from a psychosocial standpoint.
We need to ensure that the average time to diagnosis is reduced
from its current 2.8 years, and that the medical community knows
about and can recognize the symptoms of PH. We need to help
PH become a publicly known disease, so that those living with PH
– patients, caregivers and their loved ones - have the support that
they need to be able to fight back.
Even in the face of these continued challenges, the activity of our
organization and community over the past five years fills us with a
tremendous sense of hope. The 2013 year was so full of commu-
nity activities: you’ll find the heartwarming stories of our members
in these pages. 2013 also saw significant pulmonary hyperten-
sion research advances. In the past months, two new drugs for
PH were approved: one for a subset of PH patients who have not
previously had approved medications, and another which alters an
existing molecule in a completely novel way. While limited, these
treatments will have a meaningful impact on the lives of patients
across Canada. Continued research into medications may one day
allow PH patients to live normal lives.
Keeping the PHlame of Hope Alive was the theme of the 3rd National
PH Conference, which was held in Ottawa this year. We intend to
stoke that flame and ensure that it continues to burn brightly. This
hope is our inspiration for the theme of our annual report, and we
hope that you will be inspired by seeing how much the community
has done. Let the flame of hope within you burn a little brighter,
and join us on this journey towards a better life for Canadians
living with PH.
Angie Knott
National Manager, PHA Canada
Letter from the Chair of the Board
After having been involved
in PHA Canada since we
founded the organization
in 2008, it is a great honour
and my pleasure to now
serve you as the new Chair
of the Board of Directors of
PHA Canada.
From separate regional
and provincial PH support
groups, together we have
built a truly national organi-
zation over the past 5 years.
From humble and uncertain
beginnings, PHA Canada is
now a stable, strong, effective organization committed to support-
ing PH patients and their caregivers. We have become a widely
recognized voice on behalf of all Canadians living with PH.
We recently had the pleasure of getting together at the 3rd National
PHA Canada Conference in Ottawa! It was excellent meeting many
of you from affiliate chapters, support groups, and PH clinics
across Canada: kudos to the entire Organizing Committee and our
wonderful volunteers for helping to organize a fantastic conference.
I especially wanted to recognize the tremendous work of the Chair
of the 2013 Conference, Carolyn Pugliese from the Ottawa PH clinic.
I always come away from PHA Canada Conferences inspired by
our patients and their caregivers. As we all returned to our regular
lives, families, and responsibilities, I hope you felt as energized and
rejuvenated as I did regarding your own efforts in dealing with PH –
whether as a patient, a family member or friend caring for someone
with PH, or as a nurse, physician, or other healthcare provider.
All of us work to support the vision and mission of PHA Canada in
many ways, whether it be through volunteering our time, fundrais-
ing, spreading the word to increase awareness, or caring for an
individual patient living with PH. Although we have made great
progress in only 5 years, we still have a great amount to do. Many
patients are still not being diagnosed quickly: some have to suffer
for more than 2 years before receiving a correct diagnosis of PH.
Some PH patients in Canada do not have access to the most
effective medications. Even with medication, most patients still
suffer from significant pulmonary hypertension. These ongoing
issues in the diagnosis and treatment of PH show that our work
is not yet done.
The 2013 PHA Canada Conference was an exciting testament to the
great strength of our national PH community, in terms of members
across the country as well as our Board of Directors. I am very
optimistic and fully expect that we will grow and strengthen PHA
Canada over the next year. This will enable us to support more
patients and their caregivers, improve PH awareness nationally, and
deal with PH-related issues as they arise anywhere in the country.
Through working together, I believe we can make PHA Canada the
definitive resource and voice nationally for any PH patient, family,
healthcare provider, pharmaceutical/pharmacy provider, media
and government agency for any and all issues related to PH. Here
is to looking at the year ahead with resounding hope.
Sanjay Mehta MD, FRCPC, FCCP
Southwest Ontario PH Clinic
Board Chair, PHA Canada
“PH patients
inspire me
every day.”

76
The Lend a Hand for PH Campaign will continue for World PH Day 2014: Remember to
order your kit to help in planning your event! For 2014, we are challenging our community to
raise awareness of PH far and wide, and have set the very ambitious goal of 3000 handprints
collected. We estimate that there are approximately 3000 patients diagnosed with pulmonary
hypertension in Canada, so this number represents one hand for each patient. We can’t wait
for World PH Day 2014!
My best friend’s daughter was diagnosed with PH two years ago, at age 27. She is also my grand-daughter’s god-mother.
None of us had any idea what PH was prior to this diagnosis, and we were devastated and frightened. The first of many challenges
was finding ways to deal with our fear and to support her on an emotional level. The second was figuring out what we could do
about pulmonary hypertension.
Because of our own initial lack of awareness, we wanted others to learn about this rare disease. We also wanted to raise funds for
PHA Canada so that we could support not only our close friend, but even more patients. Awareness and fundraising were our focus.
Now that we knew what we wanted to do, how would we do it? A 6 Minute Walk event at the Heart institute here in Ottawa was
our first seed of inspiration.
We knew that organizing any type of event could be
a big undertaking. How much could we invest our
time energy and finances, not knowing what we
would be able to fund-raise? There were a lot of vari-
ables,but we weren’t about to be discouraged.
Our World PH Day PHundraising event was called
“The 6 Minute Walk and Family PHundraiser”. It
was held on Sunday, May 5th, from noon to 6PM.
Along with my trusty side-kick Connie Pfitzer and
the help of the most amazing group of volunteers,
we pulled it off. So many people and companies
came together to create the success of our event.
Family and friends helped by volunteering for the
day, and sponsors donated things like a sound sys-
tem (The Gallaher Family), sausages and hot dogs
for our BBQ (The Country Grocer), financial sup-
port (T & L Upholstering, Aegisys) and more. Need-
less to say, the support we received for our event
was overwhelming.
Our event raised $6600, and we couldn’t have been more elated. I remember the moment when we packed the
last things into the truck at the end of the event, and Connie and I embraced one another in the biggest hug. We knew that we had
had a very successful World PH Day and had achieved all that we had set out to do. There’s no better feeling.
I was absolutely floored by the willingness of the community at large, but even more so by the people in our lives to support us to
the full extent of their ability. I was moved to tears several times over the course of planning this event, just from witnessing the love
of our friends, acquaintances and community. Every time we reached out with a need, it was answered almost immediately.
We were truly overcome with gratitude.
All in all, I would absolutely recommend the experience of holding an event to others. It is an incredible way to raise awareness and
raise funds, while providing an exciting day for everyone in the community. It is rewarding in a so many different ways. It wasn’t the
actual success of the event that was the most uplifting part; it was the generosity of human spirit that we saw along the way that
moved us the most. We can’t wait to plan our next event.
Elaine Goodhue
The 6 Minute Walk and Family PHundraiser was a true community achievement and an incredible success in honour of World
PH Day. We at PHA Canada were excited and grateful for the work of the Greely PH community in addition to all of the other
groups across the globe who helped to recognize this important day.
The 6 Minute Walk and Family PHun day event. May 5th 2013 was a beautiful
and sunny day in Greely, Ontario!
Global Hope for
Pulmonary Hypertension
May 5th was proclaimed World Pulmonary
Hypertension Day in 2012. The date May
5th was chosen because it is the anniversary
of the first child’s death from pulmonary
hypertension (as a result of toxic rapeseed
oil more than 30 years ago) in Spain.
On May 5th, 2013, PH associations, patients
and supporters across the globe held unique
and innovative events in order to recog-
nize the day.
The Japanese PH Association held a ski
tournament to “Get Breathless for PH.”
A four year old girl named Milka who has
PH was also able to participate: she skied
with the help of her father, who carried her
oxygen tank on skis behind her!
PHA Austria created a brand new song for
pulmonary hypertension awareness, which
was released for World PH Day.
In Costa Rica, patients and families
celebrated a “healthy living” day with
exercise and dance activities.
PHA Europe created a campaign called
“Get Breathless for PH”, where member
country associations were invited to create
events surrounding physical activity.
In Bulgaria, in the capital city Sofia, profes-
sional dancer Victoria Mihova taught dance
workshops. At the end of the event, a profes-
sional dance group performed.
The Italian PH Association (AMIP) partici-
pated in the Rome International Marathon.
The pre-event included meet the press,
where runners also did a 6 minute walk
event. Some even had their noses pinned
and were breathing through straws to get
a bit of a better understanding of PH. In
addition, AMIP encouraged Pope Francis
to recognize world PH Day. On May 5th,
Pope Francis did just that by sending his
best wishes to all PH patients in his weekly
public address from St. Peter’s Cathedral!
The Latin PH Society (an umbrella organiza-
tion for all Latin American PH associations)
hosted a World PH Day conference, with the
participation of many member associations.
In China, to celebrate World PH Day, the
PH group published the first edition of a
Chinese PH Journal called “BlueLips”.
You can view videos of World PH Day events
across the globe on our youtube channel at
www.youtube.com/phacanada.
Canadian Community highlights
While countless events were occurring
across the globe for PH awareness, some
very important events were happening
right in our own backyards. Our Corpo-
rate Committee recognized World PH
Day by collecting signed handprints in the
Lend A Hand campaign. Longterm PHA
Canada supporter Actelion Pharmaceuticals
collected nearly 500 handprints!
Our Canadian community also helped to
recognize World PH by holding 6 Minute
Walk for Breath walks and Lend a Hand
for PH events, including a special “Lend
a Virtual Hand” online campaign. Our
community collected over 1000 handprints,
which were later displayed on a large
banner at the 3rd National PH Confer-
ence. In addition, we invited our commu-
nity members to share their own initiatives.
While we heard about incredible events
across the country that celebrated this
special day, Elaine Goodhue’s “6 Minute
Walk and Family PHundraiser” stood out.
On the next page is a special report on The
Family PHun Day and 6 Minute Walk for
Breath in Greely, Ontario, from Elaine.
Around the World for World PH Day

98
Group winner:
Supporters across Canada, including elementary schools in Quebec, the
Jewish General Hospital’s PH clinic, and the Saskatchewan and Manitoba
support groups, contributed significant numbers of pennies. However, there
were three groups that really stood out.
The Ottawa Support Group concentrated their efforts during the month of
November, as campaign leader Jacqueline Brandwood only learned of the
campaign at the Awareness Month launch event. The group achieved putting
penny jars in stores and restaurants all over Ottawa, including Staples and
Walmart. In a short 3 weeks, they collected a few pennies shy of $1000: a
whopping 100,000 pennies in less than one month!
The Atlantic Canada Chapter excluded themselves from our contest because
they began collecting pennies, as part of the New Brunswick PH Society, long
before the contest was in place. Their contribution was of $1975, and we wish
to acknowledge their tremendous efforts in penny collecting over the years.
The group winner of the contest however was the Toronto Chapter! Thanks to
contributions from many of their members, including McKynlea Waters-Good-
man, they collected $1658.65: 165,865 pennies. As a thank you for their
efforts, the Toronto chapter will receive a gift of $200 towards food for an
upcoming support group meeting.
Individual winner:
We received penny contributions from individuals across the country, and
were overwhelmed by the community’s involvement. The single individual
who collected the most pennies was 12-year old McKynlea Waters-Good-
man, who collected $202.90 (20,290) in pennies. However, as McKynlea’s
contributions counted towards the Toronto Chapter’s winning total, we
selected an individual winner who gathered pennies without contributing
to a group’s goal. That winner is Katherine Huisman, who collected $91.24
(9,124) in pennies. Katherine will receive a $10 Starbucks gift card as a small
token of gratitude from PHA Canada.
The grand total of pennies collected during the campaign (and beyond –
some contributions came in after the end of the campaign or begun before
its official start) was $6226.97: 622,697 pennies!
Congratulations to the Toronto Chapter, McKynlea and Katherine, and an
enormous thanks to every person who gave of their time and energy towards
this cause. We are truly grateful.
What to do with all those pennies?
PHA Canada took the pennies collected by our members to the bank, and
has allotted the funds to community programs. However, the Ottawa pennies
were purchased from the Ottawa group by a friend, and used to make
something extra special. This individual took all 100,000 pennies and used
them to tile her front hallway! (See photo above)
Now that pennies are a thing of the past, here’s a great idea for a similar fundraiser:
Jacqueline Brandwood, the coordinator of the Ottawa group’s pennies efforts,
has said that she will be launching a “Make Change for PH” fundraiser. This
will focus on contributions of spare change – imagine how much can be raised
if people donate their loose change in nickels, dimes, and quarters!
One special donor purchased all of the pennies and created
this incredible art piece in her front hallway!
Volunteer Susan Garland hard at work.
Mary Argus, Nurse Carolyn Pugliese and Susan Garland
collecting pennies at the Ottawa Heart Institute
The team of penny collectors from left to right: Gilda and
Colin Brinkworth, Jacqueline Brandwood, PH patient
Brenden Brinkworth and his sister Shawna.
12 year old Mckynlea Waters-Goodman was recognized for
her volunteer work on the Pennies for PH campaign at our
2013 Conference.
Clockwise from top
Imagining a better future
PHA Canada has never witnessed community involvement in the way
that it was demonstrated this year. Our organization has always existed
with the goal of supporting patients and advocating for the cause of
pulmonary hypertension. However, this year PHA Canada acted as an
organization to support patients who themselves conducted fundraisers,
awareness events, patient support initiatives and advocacy work. This
shift in PHA Canada’s role has been initiated by the countless members
who are creating change in their own communities. It is a significant
shift because it represents the continued growth and expansion of PHA
Canada’s vision: beyond our little office into the backyards, town halls
and government offices found across the entire country. Our members
carry hope for pulmonary hypertension far, far beyond where PHA Canada
could carry it alone. And a few meaningful community events are not
the end of this movement, but the beginning, as their splash creates
ripple effects that extend past our national borders. Ours is a diverse
community that is truly united for hope in the face of this challenging
disease. This section of our Annual Report highlights several exciting
community initiatives which occurred over the 2013 year.
Pennies for PH –
Fundraiser Report & Contest Winners
Last year, the demise of the Canadian penny was announced. Interestingly, many of our members had the same idea. Why not collect all
those soon-to-be-useless pennies, and use them to help make change for the PH community? And so the Pennies for PH campaign and
contest was born. Pennies were gathered from February to November 30, 2012. While we were overwhelmed by the results, we have not
yet recognized them in any official capacity. We wish to finally announce the results of this fantastic campaign, and recognize all of those
who dedicated their time and efforts to collecting and rolling hundreds of thousands of pennies.
At the outset of the contest, we offered a little incentive for penny collection: both the group and the individual who collected the most
pennies would receive a small prize as a thank you for their efforts. Here are the results!
Hope from
the Community
“Keep Hope: we’re
all in this together!”
–Wendy Bedard

1110
In Brief – Community Events 2013
Southern Alberta Chapter Holiday Party, January 2013
Place: Calgary, AB
Hosted by: Southern Alberta Chapter
Details: This potluck party had a “New Year, New Hope” theme.
4th annual Fundraising Dinner, February 2013
Place: Plessisville, QC
Hosted by: HTAPQ Foundation
Details: 250 people present at this annual dinner: together, they
raised $4000 for the Quebec foundation!
“Educational Afternoon” February 2013
Place: Calgary, AB
Details: An educational afternoon with guest speaker Linda
Morrell, Provisional Psychologist.
“Pennies for PH” at St. John Fisher Elementary, March 2013
Place: Pointe Claire, QC
Hosted by: St. John Fisher Elementary School
Details: The students at St. John Fisher collected $257 in
pennies, with proceeds benefitting PHA Canada. This
student-led fundraiser was full of heart, and we could
not be more grateful.
The Calgary Transplant Trot, April 2013
Place: Calgary, AB
Details: A fun 5km run/walk around Preswick Pond at the
McKenzie town hall, with the goal of raising awareness
for the pulmonary hypertension transplant community.
‘Pampered for PH’ Party, April 2013
Place: Edmonton, AB
Hosted by: PH patient and PHA Canada Secretary Lynn-Marie Cox
Details: A Pampered Chef party with proceeds of nearly $500
benefiting the PHA Canada Scholarship Fund.
6 Minute Walk and Family PHun Day, May 2013
Place: Greely, ON
Hosted by: Elaine Goodhue
Details: Read a full report on the Family PHun Day event in
‘Around the World for World PH Day.’
Stride for Breath, May 2013
Place: Cornwall, ON
Hosted by: Shawna Brinkworth
Details: Read the full story on the Stride for Breath event in the
Hope from the Community section.
Community Booth at the Farmers’ Market, May 2013
Place: Calgary, AB
Details: A community booth at the Farmer’s Market to promote
PH awareness and education in celebration of World
PH Day.
‘Pop a Cork for PH’ Garden Party, August 2013
Place: Vancouver, BC
Hosted by: PH patient Tarya Laviolette
Details: This summer party featured a wine tasting, live music,
a silent auction and a 50/50 draw. The event raised
$1570 for PHA Canada!
2nd Annual PH Kids Golf Classic, August 2013
Place: Orno, ON
Hosted by: The Blenkinsop family
Details: An afternoon at the prestigious Mills
Run Golf Club to raise funds for programs to support
kids living with PH and their families.
An afternoon with your medical professionals, October 2013
Place: Montreal, QC
Hosted by: The Jewish General Hospital
Details: Featuring medical professionals
Dr. David Langleben, Dr. Andrew Hirsch, Lyda Lesenko,
RN and Barbara Di Michele, Secretary.
“Let Me Breathe” – A Vegas Night Fundraiser for Pulmonary Hypertension,
November 2013
Place: Toronto, ON
Hosted by: PHA Canada Toronto Chapter
Details: Featuring casino game favourites, live entertainment,
live and silent auction, door prizes, raffles and much
more! A more detailed report on this event will follow
in the Winter 2014 issue of Connections.
6 Minute Walk and “Out of Breath” Movie Premiere Luncheon, November
2013
Place: Edmonton, AB
Hosted by: PHA Canada and the Stollery Children’s Hospital
Details: This Awareness Month event featured a 6 minute
walk followed by the Edmonton premiere of “Out of
Breath”: PHA Canada’s short feature film. A more
detailed report on this event will follow in the Winter
2014 issue of Connections.
“6 Minute Walk for Breath” for November Awareness Month
Place: Across Canada!
Hosted by: Patients, caregivers, friends and family
Details: Members of our community ordered kits and organized
6-minute walk events all across Canada to raise
awareness of PH during Awareness Month.
Vancouver PH Support Group launch, December 2013
Place: Vancouver, BC
Hosted by: Tarya Laviolette, PH patient
Details: Tarya is a young mother and holds a Masters’ degree
in Public Health. In her own words: “I was diagnosed
with idiopathic pulmonary arterial hypertension just
over a year ago. When I was first diagnosed, I felt like I
was under water; and when I looked for a local support
group, I was surprised and saddened that I didn’t have
one to reach out to. PH is difficult and scary, and I think
we’d all be better off if we could get together.” PHA
Canada is excited about what the future of this new
support group holds.
Striding for Breath in Cornwall
In 2013, the town of Cornwall, Ontario
experienced its first ever fundraising event
for pulmonary hypertension. This event
was inspired by a very special relationship:
the bond between siblings. The ‘Stride for
Breath’ event in Cornwall is an incredible
example of transforming a challenge into
hope – something PH patients and caregiv-
ers do on a daily basis. Below is a special
report on the Stride for Breath event from
its leader, Shawna Brinkworth.
Three years ago, at the tender age of 15, my
little brother was diagnosed with Pulmo-
nary Hypertension. He went to the hospital
for a regular asthma pump refill, but was
sent for further tests. When we got the
results, our lives were forever changed. We
spent a week at our local hospital and two
more at Sick Kids in Toronto. Three years
later, he’s doing the best that he can, but
still suffers daily. My little brother is my
best friend and I plan to dedicate my life
to raise awareness for this disease.
The day Brenden was diagnosed, I knew I
wanted to step up and try to make a differ-
ence... but how? I’ve always been an athlete,
specifically a runner. In Cornwall where we
live, there are a lot of 5k runs and they seem
popular. When I attended the 6 minute walk
event in Ottawa this past November, I met
several people from my area who either
have PH or know someone who does. I
told them about my idea. From then on,
Kriss Ross, Hanna Mullin and I worked
together to make our 5k run for PH happen.
Our motivation came from those around
us: friends and family who could sadly not
dream of running 5k. Their struggle was
our motivation.
The First Annual Cornwall “Stride For
Breath” event took place at 10AM on May
11th, 2013. We chose a run because people
with PH have trouble breathing, and there-
fore even walking is difficult. I wanted my
brother, and the others who struggle with
PH to see all of us crossing the finish line
and know that we are all running or walking
for them. The message we wanted to send
was that PH doesn’t affect only individuals
but whole families and communities, and
that we were all in this together.
Several memorable moments from the day
stood out for me. One was watching my
grandmother, sitting in a wheelchair and
crossing the finish line. She cannot talk
due to a stroke, but her huge smile said it
all. Hearing my little cousin’s words when
he said “We are running because we love
our cousin” was another.
Originally, our goal was simply to raise at
least $1000. We reached this target within
our first week of fundraising, thanks to
Angie at PHA Canada and the fantastic
website she created for us. The day before
the race we were already at $2540, and by
the end of race day, we were elated to have
reached $5780. We are so blessed to have
had such amazing support.
To anyone considering holding an event
of their own: I would recommend it in a
heartbeat. It was such a positive, joyful
day. I met so many people and families
with PH and I know without a doubt in
my mind that there were forever friend-
ships made. Looking around that day
at all of those who showed up despite
the cold weather made me realize that
family and friends are forever. That’s
why it’s so important to treasure them.
~Shawna Brinkworth
Left: Shawna Brinkworth with Jacqueline Brandwood: these incredible
women both received Community Hero Awards at our Conference.
Top:The entire community came out to Stride for Breath in Cornwall, Ontario.
“Not everything that is faced
can be changed, but nothing
can be changed until it’s faced.”
–Shawna and Gilda Brinkworth

1312
Hope For Families Working with Medical Professionals
Since our inception, PHA Canada has strived to work alongside the
medical community. Our pulmonary hypertension-treating medical
professionals play a vital role in allowing patients to experience the
greatest possible quality of life. For this reason, we have deepened
our involvement and collaboration with the medical community
over the 2013 year. The following committees play important roles
in building this relationship.
Medical Advisory Committee (MAC)
PHA Canada’s Medical Advisory Committee is now operational,
with a membership of 7 PH-treating doctors from across the
country. They are:
Dr. Sanjay Mehta (Chair), London
Dr. Steeve Provencher, Quebec
Dr. Andrew Hirsch, Montreal
Dr. Ali Kapasi, Calgary
Dr. Lisa Mielniczuk, Ottawa
Dr. Jakov Moric, Toronto
Dr. Ian Adatia (Pediatrics), Edmonton
The MAC established their terms of reference and held two confer-
ence calls prior to their first in-person meeting on September 21st
at the 3rd National PH Conference in Ottawa, ON. The MAC has
a meaningful liaison with the Canadian Thoracic Society (CTS),
wherein a permanent place on the MAC is reserved for the Chair
of the CTS’ Pulmonary Vascular Clinical Assembly, currently Dr.
Steeve Provencher. The MAC has also invited Dr. David Coates, a
family doctor from Amherstburg, Ontario, to sit on the Commit-
tee. Dr. Coates is not only a GP: he’s also a former CTEPH patient
(post PEA surgery). Dr. Coates, who is now a strong advocate for
PH awareness, will be sharing his expertise on how to best engage
medical professionals in family practice. This will be particularly
salient with our increased focus on early diagnosis.
PH Health Professionals Committee (PHHP)
The PHHP held their first meeting at our 3rd National Conference
in order to establish projects and terms of reference. This commit-
tee is based on the PHPN model at PHA USA, and Committee
Chair Carolyn Pugliese has been in contact with the leadership
of PHPN for guidance. The PHHP aims to unite all allied health
professionals who are coming into the field of PH with the goal
of providing a network of mentorship and support. PHA Canada
envisions stronger ties with health professionals across the country
as a result of the PHHP.
Clinic Support and Resources
In 2013, PHA Canada continued to strengthen our relationships
with pulmonary hypertension clinics in every province. By meeting
clinicians and providing them with relevant materials and resources,
we have seen a tremendous increase in the participation of PH
community members and engagement of newly diagnosed patients.
By building these relationships and encouraging clinics to actively
disseminate PHA Canada materials, we can ensure that no patient
is left without a support network and the resources they need.
Early Diagnosis Campaign
Going forth into the 2014 year, the MAC’s primary focus
will be helping PHA Canada to build and launch an early diagnosis
campaign targeted at medical professionals. For a more extensive
report on this campaign, please review our Looking Forward with
Hope article on the final page of this annual report.
to assist in the planning of additional programming for families at conference. Child Life Specialists Amanda English and Jane Darch led a full
slate of children’s activities with help from many volunteers. The parent’s support group held at conference was the largest one to date. This
provided an opportunity for parents to connect and share their stories while exchanging knowledge and coping strategies. We look forward
to building on this unity and sharing in the future by encouraging greater numbers of families to attend Conferences.
As we look ahead to 2014, the Pediatric Committee will continue to seek avenues through which we can support the youngest pulmonary
hypertension patients and their families. PHA Canada is honoured to be a source of knowledge, hope and support for those who are touched
by pediatric pulmonary hypertension.
Dr. Sanjay Mehta and PH patient Isabel Dade.
PHA Canada has several programming focused committees. These Committees help to advise staff on programs and help with the creation
of materials and programming based on their area of expertise. Members of these committees have expertise and skills in that particular
programming area. Currently operating programming committees are:
Pediatric Committee
Chair: Ian Adatia
Members: Janie Kidd, Sarah Platnar,
Shannon Bloomfield,
Janette Reyes,
Jennifer Gendron
Medical Advisory Committee
Chair: Sanjay Mehta
Members: Andrew Hirsch, Steve
Provencher,
Jakov Moric, Ali Kapasi,
Lisa Mielniczuk, Ian Adatia
PH Health Professionals Committee
Chair: Carolyn Pugliese
Members: currently being recruited
Read on to learn more about the initiatives and progress of these committees over the past year.
Programming focused Committees
The 2013 year has reflected PHA Canada’s
increased recognition of the challenges
faced by families living with pulmonary
hypertension. Some of these challenges
can be alleviated through increased
access to resources, for families, schools
and communities. Over the past year,
the Pediatric Committee has worked to
develop a number of resources that will
soon be available to families dealing with
PH, including helpful information for
school and home. The Committee has
been working closely with PHA USA to
revise and adapt some of their materials
to represent the Canadian reality. These
materials will be available for distribution
in early 2014.
In order to gain greater knowledge and
stronger ties with the pediatric commu-
nity across North America, members of
the Pediatric Committee were also involved
in the 6th International Conference on
Neonatal Childhood Pulmonary Vascu-
lar Disease, which was held in San Francisco,
California from June 21st-22nd. Committee
members Janette Reyes, Jennifer Gendron,
Sarah Platnar and Janie Kidd attended the
meeting and presented a special session
for attendees. In this session, the two PH
parents Sarah and Janie, Janie’s daugh-
ter Gemma Kidd, and PH Dad Steve van
Wormer shared the touching stories of their
journeys through pulmonary hypertension.
Following this session, members of the
Committee led an open forum discussion
with conference attendees to discuss the
unique issues faced by families of children
with PH. A great deal of helpful information
came out of this session, which will help
to shape our programming in the future.
The Committee extends a special thanks to
conference organizers Dr. Ian Adatia (who
also chairs the Pediatric Committee) and
Dr. Jeff Fineman for allowing their partici-
pation in this event.
Finally, the Pediatric Committee was very
pleased with the significant role played by
families at the 2013 National Pulmonary
Hypertension Conference held in Ottawa
in September. This year, there was a great
deal of emphasis on our “PHocus on the
PHamily” program and we were very pleased
PHocus on the PHamily –
an update from the Pediatric Committee
Nurse Jeannette Reyes with Dr. Ian Adatia and PHA
Canada Regional Coordinator Jennifer Gendron.

1514
Adam Brendan, PH patients friends,
enjoying activities in the kids’ room.
3 year old PH patient Mayhaan his brother
Dev experimenting with paint.
PH patients Lenore Cook and Joan Nemeth
together at the highlight of the year: Our 3rd
National PH Conference.
We watched children become inspired by a novel
storybook which portrayed a child with pulmonary
hypertension as a superhero.
Kelsey Hepples is a young author who was inspired by a very
special friend of hers: 3 year old Talitha Decker. Talitha lives
with her family in Fort McMurray and enjoyed a regular child-
hood until she was diagnosed with pulmonary hypertension
in 2012. Kelsey Hepples was moved by Talitha’s struggle, and
wrote ‘Super Talitha’: a children’s book which portrays Talitha
as a powerful superhero. We were honoured to host Kelsey
at our Conference, where she did a reading and book signing
for young PH patients and their friends. To recognize the
very unique challenges faced by our youngest PH patients is
extraordinary: we are grateful for Kelsey’s contribution to our
Conference weekend.
We saw the photos of a young man who climbs
the world’s greatest mountains, all for pulmonary
hypertension.
Matt Moniz is a climber from Colorado, USA, who has climbed
to Mount Everest Base Camp, Mount Kilimanjaro and Aconcagua
which is the highest summit in the Americas, along with count-
less other mountains across Europe and the US. Matt is also
only 15 years old, and dedicates each of his climbs to his best
friend Ian. Ian has pulmonary hypertension. As keynote speaker
at our Conference, Matt showed us just what is possible when
we channel our energy towards a goal. Thank you to Matt for this
immeasurable inspiration.
We attended fantastic and inspiring sessions on how
to live better with PH.
This year’s Conference sessions concentrated not only on the latest
in research and treatment develops, but on living well despite
the challenges of pulmonary hypertension. This holistic focus
on well-being was demonstrated in several Conference sessions
which were received with extraordinary interest.
“Breathing your way to calm – exploring alternative
therapies” This novel session was led by Locana Sansregret,
and focused on utilizing the breath to calm the body and
mind. Locana introduced multiple breathing techniques,
all of which were grounded in various yoga, Chi Gong and
pranamudra practices. Participants loved the very involved
and hands-on approach of this session as they were led
through breathing exercises. In addition to Locana’s session,
Conference attendees were given an even greater opportunity
to relax before dinner by engaging in mini “alternative therapy”
sessions. “Chair Yoga” consisted of yoga poses tailored
specifically to the needs of PH patients, while “Breathe your
way to calm” was a recap of the extended session on breathing
techniques. These 15 minute calming, restorative sessions were
highly attended: the perfect close to a long day of learning.
“Avoiding the salt mines” presented a patient’s perspective
on diet and PH. This refreshing session by PH patient
Kate McGoey-Smith emphasized the healing strengths of
unprocessed, whole foods. Kate’s session made the concepts
of low-sodium, low-fat and whole foods accessible to every
Conference attendee, and even included recipes.
“Stay strong. Stay
super. Remember that
you are loved and that
you are not alone.”
–Kelsey Hepples
“Think about where we were
ten years ago… and now
imagine where we might
be ten years from now.
Keep up the PHight!”
–Tarya Laviolette
PHA Canada’s National PH conference is held biennially. The months leading up to Conference are always filled with excitement and antic-
ipation, with community members connecting with one another online in a virtual count-down of the weeks and days until the event. This
year was no exception, and we loved watching the Conference energy build for months before the weekend came.
The 3rd National PH Conference was held in Ottawa, Ontario from September 20th to 22nd. This was PHA Canada’s largest and most
eventful Conference to date. We hosted a grand total of 247 attendees. They were:
73 Patients
This was the greatest number of PH patients to ever attend a PHA
Canada Conference. Of these patients, 4 are thrilled to no longer
have PH, thanks to 3 successful translplants and one successful
PEA surgery. 5 of these patients were children.
40 Medical Professionals
Conference is a consistently enriching experience. This is in great
part due to the medical professionals who travel from across the
country to introduce the latest in research developments and PH
treatments. We are grateful for each PH-treating specialist who
volunteered his or her time to join in our weekend of hope.
25 Corporate Representatives
PHA Canada is honoured to be able to unite the pharmaceutical
companies who produce PH treatments with the women, men and
children who use them for survival. This is a very unique meeting,
which truly brings together these two groups to facilitate invalu-
able dialogue which otherwise may never occur.
73 attendees at our Conference came as families, showing how
pulmonary hypertension affects not only the individual, but the
entire family unit. 21 attendees had no direct connection to PH, but
were friends or volunteers who wished to be a part of our event.
While the majority of attendees hailed from the Ontario area, many
individuals travelled far and wide to be there, including 24 people
from British Columbia, 2 from New Brunswick and 2 from Prince
Edward Island. We even had 2 attendees from the US!
This 3rd Conference also hosted more children and youth attend-
ees than any previous event.
PHA Canada was thrilled to witness such an incredible diversity of
individuals, all of whom have been touched by PH in some way.
Every moment of the 3 day event was full of activity and connection.
We witnessed countless events, both great and small, throughout
the mornings and afternoons. These events demonstrated that
this was no ordinary gathering.
Hope Unites Us
2013 Highlight: the 3rd National PH Conference
Left to Right

1716
Clockwise from top left
A group of friends united at Conference.
Nurse Carolyn Pugliese leads a QA session on all
questions relating to PH.
Amanda English her twin sister Melissa Hutchings
organized led all of the kids’ room activities.
Author Kelsey Hepples signing copies of her book.
Keynote Speaker Matt Moniz leaves the stage with a
standing ovation.
PH patient Kate McGoey-Smith’s session on avoiding
the salt mines was loved by all attendees.
2 year old PH Patient Everleigh proudly displays her own copy.
Circle time in the kids’ room.
We were present at the premiere of a film that illustrates the impact of PH.
‘Out of Breath’ is a short feature film on pulmonary hypertension co-produced by PHA Canada and the Victoria School for the Arts in
Edmonton, Alberta. PHA Canada was thrilled to present the film before its first ever audience at Conference. This video will be available for
general viewing through PHA Canada’s website soon.
We witnessed beautiful new connections being forged between parents of children with PH, between caregivers, patients and
medical professionals.
Having a family member struggle with PH is even harder when the patient is a young child or a parent to children. This Conference was
one for families, with over 25 children and teens in attendance and several special programs. Support groups uniquely tailored to PH
parents and PH teens helped for attendees to share their common experiences. PHA Canada also hosted photographer Wade Pringle,
who is an uncle to PH patient Talitha Decker. Wade volunteered his time and skills to take special family photos throughout the weekend.
Finally, we felt a resounding sense of hope. This sense of hope is what will lead us into a better future for all Canadians living with pulmo-
nary hypertension. We are grateful to each individual and family who made the trip to join our Conference: your energy and spirit is what
makes Conference worthwhile.
Thanks to Our Sponsors
We are inundated with inspiration to keep fighting the PHight, and hope that you are too. We’d also like to acknowledge and thank our
Conference sponsors at all levels, for making the incredible weekend possible. They are:
Silver Bronze General
Actelion Pharmaceuticals Canada Bayer Inc British Columbia PH Society
Unither Biotech GlaxoSmithKline Inc. Mckesson Specialty Health
Pfizer Canada
Shoppers Drug Mart Specialty Health
To view a snapshot of our Conference experience, please visit the PHA Canada youtube page (www.YouTube.com/PHACanada) to watch
our Conference video.
“HOPE: Hold on.
Pain ends.”
–Jordan Blenkinsop
Conference Scholarship Fund
PHA Canada is so pleased to be able to offer a Scholarship Fund
for events such as PH Conferences. Education and support for
individuals living with pulmonary hypertension has always been
an organizational goal. As such, funding Conference opportuni-
ties for patients and caregivers who may not otherwise be able to
attend is a natural extension of PHA Canada’s vision of a better
life for individuals living with PH.
Scholarship funding is raised through individual and group fundrais-
ers, as well as donated by corporate supporters. A Scholarship
Committee exists in order to make decisions with regard to how
scholarship funding is distributed. Because of the nature of these
decisions, the committee is an anonymous group comprised of
board members, patients and caregivers. The Committee meets
on an ad hoc basis, when scholarship requests are made. The
Committee reviews each application individually assessing based
on need, available funds and set scholarship criteria guidelines.
This year, at total of almost $33,000 was awarded in Conference
scholarships. This amount was dispersed to nearly 50 PH patients
and families who would have not otherwise been able to attend
our 3rd National PH Conference in Ottawa, Ontario.
This assistance would not be possible without contributions to
the Scholarship fund.
We would like to recognize and give a heartfelt thank you to those
who contributed to the fund this year. They are: Bayer Inc, who
created the Bayer Inc Patient Scholarship Fund (contributing over
$10,000), and Lynn-Marie Cox, who contributed to the general
fund with proceeds from her ‘Pampered for PH’ birthday party.
On behalf PHA Canada, and our scholarship recipients, thank you
for your contributions.

1918
One of the smallest pair of lungs at Queen’s Park.
From left to right: Stephanie from the Respiratory Therapy Society of Ontario,
Cheryl from the Canadian Network for Respiratory Care and the Ontario Lung
Association, and Dilshad, all giving the lung salute.
Elizabeth from Ontario Lung Association gives her best
Lung Health Salute!
individual patient should be determined by his or her
PH treating specialist. However, we do believe that it is
crucial for as many options as possible be available to
our patients. PHA Canada firmly believes that PH patients
should have access to any and all medications that have
received a Notice of Compliance through Health Canada,
based on clinical trials demonstrating they are safe and
effective in the treatment of pulmonary hypertension. It
is for this reason that whenever a newly approved treat-
ment comes to CDR review, we gather information and
prepare a submission.
This year, we had the opportunity to provide patient group
input on Adempas. Adempas is the newly approved drug
for the treatment of patients with chronic thromboembolic
pulmonary hypertension (CTEPH), including both inopera-
ble and residual (persistent PH post PEA surgery) CTEPH.
Provincial Pharmacare submissions
Once CDR has reviewed the medication in question
and made their recommendations, Pharmacare/Drug
plans in each province review the recommendations
and make their decisions on whether the drug should
be listed on their province’s formulary (i.e. whether the
cost of the drug will be covered, or whether it will be only
available under special authority). Many provinces also
have a patient group input mechanism in place. PHA
Canada is active in those provinces that allow for this
input, ensuring that we make the voice of the community
heard throughout the entire approval and listing process.
This year, we had the opportunity to provide patient
group input for Caripul, a newly approved thermostable
epoprostenol, in several provinces. We will continue to
do this into the coming years, as opportunities for input
become available.
Advocacy
2013 has been a meaningful year for PHA Canada’s advocacy efforts.
What makes this year unique from years previous is the depth of
community involvement that we have seen with regard to advocacy
campaigns at all levels of government. From achieving town and
city proclamations for November Awareness Month to working in
conjunction with the Ontario Lung Association to make lung health
a provincial priority, we are extremely excited about our hearing the
voice of our membership speak out for PH-related issues. Below
are some highlights of advocacy work and alliances, which took
place over the 2013 year.
The Canadian Organization for Rare Disorders (CORD)
Over the past few years, PHA Canada has been working closely
with the Canadian Organization for Rare Disorders (CORD). PHA
Canada played an integral role in the 2008 private members bill,
which called for the creation of legislation specifically governing
rare diseases in Canada: we are the only G-8 country without such
legislation. Since the bill was passed, CORD has taken the lead
on providing the government with input and feedback during the
legislation drafting process. In 2013, PHA Canada had represen-
tatives at all 5 CORD meetings that took place across the country,
providing the PH patient perspective on the scope of this legisla-
tion. Additionally, former PHA Canada Board member Rita Hebert
has acted as liaison between PHA Canada and CORD for the past
year. In August 2013, (CORD) reached out to PHA Canada to invite
interested candidates to apply for their Board of Directors for the
2013-2016 term. We are pleased that Ruth Dolan, who joined PHA
Canada’s Board this year, will become our official liaison with
CORD. We will be pleased to continue to deepen our relationship
with CORD over the coming year.
The Canadian Agency for Drugs and Technologies in
Health (CADTH)
In September 2013, the Canadian Agency for Drugs and Technol-
ogy in Health (CADTH), began undertaking a review of the entire
therapeutic area of pulmonary hypertension. CADTH is Canada’s
drug approval agency, and approval of drugs to treat pulmonary
hypertension is a key issue at this time. This is because there are
multiple approved treatments for PH, and there are several others
in the pipeline, which are likely to be approved very shortly. As PHA
Canada acts as a voice for patients and caregivers across the country,
we wished to ensure that CADTH fully understood the implications
of PH on patients and caregivers, with regard to the benefits but
also the limitations and side effects of current medications. We
collected the experiences of several patients who are PHA Canada
members, in order to share their valuable knowledge with CADTH.
PHA Canada was pleased to act as a conduit between our members
and Canada’s drug approval agency, so that patients may have a
voice in the future of PH treatments in Canada. As the therapeutic
area review continues into next year, PHA Canada will continue to
monitor it and provide input and feedback to CADTH whenever
the opportunity is presented.
CDR submissions
The approval process for drugs is fairly complex: once Health
Canada has approved a drug as one that will be available in the
country, the company producing the drug then has to submit it
for review by the Common Drug Review (CDR), which is a part of
the larger CADTH agency. CDR reviews the drug from perspectives
such as: effectiveness and safety, value for money compared with
other available therapies, as well as patient perspectives on the
drug. This information is then used by the Canadian Drug Expert
Committee (CDEC) to make formulary listing recommendations
for Canadian public drug plans. Based on this recommendation,
the provinces then make decisions of whether or not the drug will
be listed on their drug plan formulary (if not, there is no coverage).
When a new medication is opened up for CDR review, there is a
2 week timeline during which groups which represent the patient
and caregiver community in that particular therapeutic area have
the opportunity to provide their input on the medication.
PHA Canada does not favour or recommend any specific treatment,
as the critical decision of what course of treatment is best for each
Hope Through Education
Top to bottom

2120
PHA Canada initiative: the Burden of Illness Survey
In September 2013, PHA Canada launched our very first Burden of Illness survey. The Burden of Illness Survey is the first of its kind to be
conducted within the PH community in Canada, and will provide rich data on the Canadian pulmonary hypertension community.
Why a Burden of Illness survey?
This bilingual survey was sponsored
through an unrestricted educational grant
from Actelion and is a significant oppor-
tunity for PHA Canada to learn about the
in-depth experiences of both patients and
caregivers. The goal of the survey is to
better understand the day-to-day issues
facing Canadians living with pulmonary
hypertension, so that we may better serve
and support the needs of our commu-
nity. We also envision the information
gathered from this data to be a vital tool
in raising awareness of the disease and
its impact, helping to inform and shape
our early diagnosis campaign, as well as
supporting government advocacy efforts.
Our vision is that the results of this sur-
vey may ultimately enable those who are
diagnosed with PH in the future to live
better lives.
How we got the word out
The survey questionnaires were devel-
oped by a voluntary committee of doc-
tors, nurses, caregivers and patients,
and designed to be simple and straight-
forward. We launched the online survey
in the days leading up to our September
20th-22nd Conference, and publicized
the survey throughout the course of the
weekend. In order to facilitate survey
completion, we had computers onsite at
Conference for individuals to complete
the survey if they wished, and we sent
every attendee home with an informa-
tion card. We also mailed this card to
key stakeholders within our communi-
ty, which included all of the PH treating
clinics and support groups across the
country, and asked in their assistance in
getting the word out to patients and care-
givers, and further promoted the survey
through the Scleroderma Society and
PHA USA.
The response
The Burden of Illness response rate has
been formidable. We collected over 50
responses over the first few days after
the survey’s launch, and continued to see
great numbers of both patients and care-
givers completing the survey. The survey
was live for just over one month, from
September 18th to October 25th 2013.
The grand total of community responses
was 179.
Next steps
The data collected from community
member responses will be analyzed and
summarized by Harris Interactive, the
company responsible for the program-
ming and analysis of the survey. We look
forward to utilizing these reports in our
future advocacy and community work. We
expect to have data available early in 2014
and will begin to use this to shape aware-
ness and education campaigns, includ-
ing World PH Day and Awareness month
2014, as well as a physician-targeted early
diagnosis campaign.
We wish to extend our thanks and gratitude
to all members of the PH community who
participated in the survey and took the time
to send us their responses. We would also
like to thank all the members of the Sur-
vey Committee and all of the support group
leaders and medical professionals who
helped us to disseminate information about
and promote the survey.
Ontario Lung Alliance
Over the past year, the PHA Canada Toronto Chapter has been heavily involved with the Ontario Lung Alliance (OLA). On May 6th, they
were a part of the very successful Breathers United reception at Queen’s park, hosted by the OLA. Representatives from almost all of the
Alliance’s 40 partners were in attendance, as were individuals living with lung diseases, their caregivers and health care providers. The
reception was an opportunity for the more than 25 MPPs present to witness the face of lung disease and to better understand the key
messages of the Breathers United movement: that Ontario needs to do more to advance lung health. To build upon the momentum from
the spring, the OLA is hosting a breakfast reception at Queen’s Park on Tuesday, November 26. In addition, a number of activities are
being planned throughout the month of November, which was officially declared for 2013 onwards as “Lung Month”. A special thanks to
Ruth Dolan, Jeannie Tom and Loretta Chu, as well as other members of the Toronto chapter, for their work in building this relationship.
Other associated disease organizations
As PHA Canada grows, we have begun to reach out to and create links with organizations dealing with diseases associated to PH: those
to which PH can be secondary. This year, we worked with the Scleroderma Society on the submission for CADTH’s therapeutic area review
and have begun to build relationships with other groups such as the Canadian Transplant Association and the newly forming BC Sickle
Cell Society.
Our goal is to continue to build links with the associations in order to share best practices. In addition, this will help us to reach members
of the larger PH community, which may not be aware of a PH-specific community.

2322
Inside PHA Canada
Individual contributions
PHA Canada is honoured to receive individual contributions from a number of gracious and committed donors. The follow-
ing are the major individual contributions to PHA Canada over the past year.
$500-$999 $1,000-$2,499
Andrew Weir Jean Paul Morel Marg Gress Al Glendinning Fern Homen Olive Appelle
Dave Doyle John Burrows Patricia James Bill Pulford Ian Adatia Sandra Langford
Emmanuel Decker John Murray Ryan Hanger Brian Pelley Jim Linda Jesson UA Local 401
Greg Dicks Jordan Kist Sanjay Mehta Desmond Dwyer Linda Metcalfe Victor Mercuri
Gregory Abbott Linda Woitas Susan Garlinski Edith Lang Nicole Moores Wade Pringle
Ilona Hawser Maeve Cahillane Tiffany Vance
J Karl Miller Trent Abbott Jack Limo
Kyle, Ashley, Ella
Austin Marshall
$2,500-$2,999 $5,000+
Don Moores Vincenzo Carnovale Maximum Yield Publications
We are pleased to share with you our financial statements. PHA Canada undergoes a yearly financial Review Engagement. Please
note that this does not constitute a certified financial audit. These are excerpts only and full financial statements may be found
on our website at: www.phacanada.ca/2013financialstatements
Our Fundraising
Community efforts
2013 has been a phenomenal fundraising year for PHA Canada. As you’ve learned through this annual report, countless community
events and initiatives have set 2013 apart from years previous. This increase in individual and community initiatives at the grassroots
level is evident in the increased funding we’ve seen over the year. Receiving funds from backyard garden parties and 6 minute walks in
small towns is extremely meaningful to PHA Canada, because this shows the community’s dedication to supporting those who are suf-
fering from pulmonary hypertension. Such events cannot help but raise awareness of PH at the same time as funding. When an entire
family, neighbourhood or extended community is involved in fundraising, the ripple effects carry far further than a government or corpo-
rate grant can. Receiving support from our members across the country also helps to diversify PHA Canada’s funding base: an essential
step towards becoming a strong and sustainable organization.
As illustrated, the hope from our community has supported PHA Canada in raising $120,006.47 total in funds between November
22nd 2012 (our last Annual Report print date) and November 7th, 2013. We are honoured to receive such support for our members,
and are excited for the fundraising possibilities to come as our community continues to expand.
Corporate efforts
The PHA Canada Corporate Committee members support the mission and vision of PHA Canada via a yearly dues contribution. We were
pleased to welcome a new Corporate Committee member Bayer Inc. this year. Corporate Committee members in 2013 were:
Actelion Pharmaceuticals Canada McKesson Specialty Health Unither Biotech Inc.
Bayer Inc Pfizer Canada
GlaxoSmithKline Inc. Shoppers Drug Mart Specialty Health
In addition, Corporate Committee members sponsor specific programs, which fit their company mandates. We wish to recognize the ded-
icated support of our Corporate Committee members and other Corporate partners, who have sponsored us at the following levels
beyond their membership contribution:
Platinum Silver Bronze General
Actelion Pharmaceuticals
Canada GlaxoSmithKline Inc. Pfizer Canada Eli Lilly Canada
Bayer Inc. Unither Biotech Inc.
Financial Statements

2524
Our Revenues
Our Expenditures
Membership (Individual Corporate) - 17.3 %
Individual Donations - 22.5%
Corporate Giving - 18.2%
Special Events - 16.2%
Conference Symposia - 3.7%
Investment Gains - 0.3%
Personal Pages - 18.5%
Merchandise Sales - 0.3%
Recovered Admin Costs - 2.7%
Workplace Giving - 0.3%
Administration Management - 16.24 %
Affilliate, Chapter, Support Group Patient Support - 9.62%
Awareness Advocacy - 15.43%
Conferences Symposia - 8.55%
Fundraising - 3.58%
Merchandise - 0.14%
Publications - 6.33%
Scholarships - 6.25%
Wages Benefits - 33.54%
Website - 0.34%
Our Treasurer and Members of our Finance committee are responsible for overseeing the financial health of our organization. We have
analyzed internal expenditures and revenues and prepared a supplementary chart to provide our members with an overview of expenditures
and revenues from April 1, 2012 to March 31, 2013.

2726
Board: transitioning to an oversight role
When PHA Canada was first formed in 2008, as a tiny organization with only one part-time paid staff person, it was understood that the role of
anyone who accepted a Board position would be to pull up their sleeves and participate in the work needing to be done to create a strong organi-
zation that would act as a voice for the Canadian PH community. All of the individuals who have served on the PHA Canada board since that time
have contributed their time and skills in many ways to grow this organization. As PHA Canada has grown and developed, what it requires from its
Board has also undergone some change. As an organization which is moving forward at a rapid pace, the role of the Board is transitioning into
one that focuses more on the future and the big picture. This includes a greater focus on good governance practices, establishing solid policies
and procedures, and ensuring that PHA Canada is an accountable and transparent organization that can exist beyond any one individual. Such
organizational qualities are what will allow PHA Canada to grow and succeed regardless of Board member changes and staff transitions. Board
members who are joining at this time possess skills and expertise to help PHA Canada build a strong plan for the future. This will allow us to serve
the PH community better and bring an even louder voice to our fight.
2013-2014 Committees
Several types of Committees assist with PHA
Canada’s development and operations. The first
are Board/Oversight committees, which focus on the
big picture and organizational health of PHA Canada.
While membership in these committees consists
primarily of Board members, non-board members
are at times asked to participate. Several new Board
committees were formed during the September 2013
Annual Board Meeting and shortly thereafter. These
committees will lead PHA Canada initiatives over the
next year. The below lists feature the current commit-
tee members, which may change depending on the
needs of projects.
Strategic Planning Committee
Chair: Harry Kingston
Members: Bill McLay, Frank Poon
Governance Committee
Chair: Harry Rozakis
Members: Roberta Massender, Charanpal Brar
Finance/Audit Committee
Chair: Charanpal Brar
Members: Bill McLay, Don Moores
Scholarship Committee‎
Membership anonymous
Ad-hoc committees or task forces are also sometimes
created based on needs. These committees have a
defined start and end point based on accomplishment
of a goal. One example of such a Task Force which
operated in the past year is the Bylaws Task Force,
which was charged with rewriting PHA Canada’s
bylaws and preparing the documents of continuance
for PHA Canada’s transition to the NFP act. Task
Force committees are disbanded once the goals of
their project have been met.
Current Committees/Task Forces which will continue to operate into 2014 are:
Communications/Marketing Committee
Chair: Don Moores
Members: Bill McLay, Harry Rozakis
Research Policy Task force
Chair: Lynn-Marie Cox
Members: Ian Adatia, Sanjay Mehta, Frank Poon, Harry Rozakis, Carolyn
Pugliese
Office and Staff
In April 2013, the PHA Canada office moved locations. While in the same building, the
new office features more space to hold meetings and to welcome volunteers. We are
pleased to be able to extend an open invitation to visitors in Vancouver to drop by anytime.
At the end of March, PHA Canada bid farewell to our Communications Associate Corinne
Crichlow who had been with us since September 2012. Corinne made several fantastic
contributions to our communications programming, including the re-design of our new
“Connections Magazine” and the design and implementation of our Annual Report.
With Corinne’s farewell, we welcomed Bronwyn McBride to the PHA Canada team.
Bronwyn was thrilled to attend her first ever Conference in September 2013, which gave
her a deeper understanding of the disease of pulmonary hypertension. PHA Canada
currently has a staff of 4 and looks forward to expanding over 2014.
PHA Canada Staff
Shirley Wong
Administrative
Assistant
Jennifer Gendron
Regional Coordinator
Angie Knott
National Manager
Bronwyn McBride
Communications
Associate
Officers
Directors
Outgoing Board Members
Our Board and Staff
The PHA Canada Board underwent some changes as a result of
our AGM and Board meetings at the 2013 National PH Confer-
ence in Ottawa. We would like to extend a very warm welcome
to Ruth Dolan, Harry Kingston, Bill McLay and Don Moores who
have joined our Board as Directors.
We also wish to thank outgoing members Darren Bell, Darwin
Hanofski, Rita Hébert and Maureen Tymkow for their years of
dedicated support.
In a reflection of PHA Canada’s new bylaws, which were approved
by membership at the AGM, we are currently transitioning from
utilizing the roles of President and Vice-President to Chair and
Vice Chair. This represents a shift of the PHA Canada Board from
a working Board into a more traditional governance role.
We are pleased to have Dr. Sanjay Mehta as our new Chair, and
Roberta Massender as Vice-Chair. Charanpal Brar will remain in
the position of Treasurer, and Lynn-Marie Cox in the position of
Secretary. We also wish to thank Frank Poon for his service as
PHA Canada President from September 2011-September 2013.
Sanjay Mehta, MD
FRCPC, FCCP
Chair
Ian Adatia, MD
Medical Advisor
Ruth Dolan
Director
Roberta Massendar
Vice Chair
Harry Kingston
Director
Bill McLay
Director
Charanpal Brar
Treasurer
Don Moores
Director
Frank Poon
Director
Lynn-Marie Cox
Secretary
Carolyn Pugliese, RN,
MSN, AP
Nurse Liason
Harry Rozakis
Director
Darren Bell
Board member 2008-2013
President 2008-2011,
immediate past President 2011-2013
Darwin Hanofski
Board member 2011-2013
Assistant Treasurer 2012-2013
Maureen Tymkow
Board Member 2010-2013
Treasurer 2011-2012
Rita Hébert
Board Member 2011-2013
Assistant Secretary 2012-2013

2928
Reflection
In loving memory
While our pulmonary hypertension community holds immeasurable hope for the future, our hearts are heavier because of the people that
we’ve lost along the way. The success stories from our members, from developments in research and from heightened awareness about
PH are worth celebrating, but they cannot and will not bring back our loved ones. The following individuals are those who lost their battle
to pulmonary hypertension over the 2013 year. Our hearts and minds are with their families as we look ahead and tentatively imagine a
world without pulmonary hypertension.
Elizabeth Manikiam
Marcel Bergeron
Carmen Carrière
Michel Coupal
Suzanne Dorais Vaisica
Annie Gauthier
Nicole Lamer
Solange Langelier
Heather Oliver
Sandy Meltcalfe
Maria Robichaud
Germain Poulin
Margaret Silver
Bobby Spink
Gabrielle Charbonneau
Marguerite Guimont
Heather Oliver
Rod Kelly
Harmen Feenstra
James F. Cooke
The following individuals passed on during the 2012 year. PHA Canada learned of their passing after our 2012 annual report went to print,
and as such, we wish to mention them here.
Valerie Fagrie
Lucie Moisan
Gloria Roseman
Terry Snell
Gilles Dionne
Venus Parkman
Mary Redcrowe Moore
Robert Rivers
The following individuals passed on prior to 2012 but have not yet been recognized by PHA Canada. We wish to honour them here.
Nora Monroe (prior to 2008)
Julia Lavelle (2009)
Marilyn Anderson (2009)
Kenneth Poyser (2010)
Penny Sorestad (2010)
The NFP Act
The Canada Not-for-profit Act (NFP Act) is a
new Act that came into force on October 17,
2011, to govern not-for-profit corporations.
Under the new Act, PHA Canada is consid-
ered a not-for-profit corporation. This desig-
nation recognizes organizations that have
membership and are governed by a board of
directors. All federally incorporated not-for-
profit corporations must transition to the
rules of the NFP Act prior to October 17th,
2014. As such, PHA Canada is currently in a
process of transition to meet the rules and
requirements of the NFP Act.
Under the NFP Act, an organization’s Board
of Directors maintains responsibility for
ensuring proper and transparent stewardship
of the organization. This includes managing
financial reporting, ensuring annual audits
of financial statements and developing and
implementing relevant organizational bylaws.
PHA Canada will maintain its registered
charity status under the Canada Revenue
Agency, and will adopt its new status of
not-for-profit Corporation under the NFP
Act upon completing transition.
The transition process includes several steps,
many of which were completed this year.
A Bylaws/Transition Task Force was estab-
lished: their responsibility was to review
PHA Canada’s current governing documents
(Bylaws and Articles Patent) and determine
what changes needed to be made in compli-
ance with transition to the new Act.
The Task Force worked over the course of
2013 to write new Bylaws and prepare the
Articles of Transition, which will become
PHA Canada’s new governing documents.
The Board of Directors approved the new
documents by special resolution on August
1, 2013. The new documents were then sent
to PHA Canada’s membership, along with
the Notice of AGM for their review. The
new bylaws were unanimously passed by
membership in attendance at the AGM on
September 22, 2013.
What happens next?
PHA Canada’s Board must now file the
documents, within 12 months of member-
ship approval, to Industry Canada to receive
a Certificate of Continuance. This certif-
icate, along with the Articles of Continu-
ance and new Bylaws, will compose the bulk
of the documents by which PHA Canada is
governed.
Our articles of Continuance slightly amend
and update the objectives which were laid
out in PHA Canada’s original letters patent.
These were inherited from the PH Society
of Canada, which became PHA Canada in
2008. As such, Canada Revenue Agency
(CRA) approval is required on these objec-
tives as they form the basis of our chari-
table status. We have filed the objectives
and our statement of activities with CRA
and are currently awaiting approval. The
Board has also filed the Articles of Contin-
uance, our new bylaws and all other neces-
sary documentation with Industry Canada,
and we are currently awaiting our Certificate
of Continuance. The new bylaws will come
into effect once PHA Canada receives our
certificate of continuance from the Minis-
try of Canada.
The new governance documents will bring about several changes. These are:
• A transition from President/Vice-President titles to Chair and Vice-Chair. These reflect the changing nature of the Board and its transi-
tion to a more traditional oversight role.
• An introduction of term limits for Board members. A Board term will now be for a period of two years (instead of yearly) and a maximum
of three consecutive terms will be allowed. This is to provide Board members with clear parameters of their time commitment to PHA
Canada, to have less frequent transitions, and also to allow for new Board members who bring fresh ideas and perspectives.
• The introduction of several categories of members. There will now be three different membership categories:
1. Non-voting: most of PHA Canada’s current members will fall into this category, as will new members. This is the regular member-
ship that has the benefits of attending PHA Canada meetings and conferences and receiving PHA Canada publications. This
membership category will not be invited to members meetings, nor have a vote at AGMs.
2. Voting members: Voting membership will now be reserved for those members who participate in PHA Canada beyond paying a
membership. This category of members is reserved for PHA Canada Board and PHA Canada Ambassadors, both of whom must
meet certain participation criteria to remain in these roles.
3. Founding members: this category is reserved for those individuals who were the key players in the founding of PHA Canada.
These individuals will have a lifetime membership and a vote at members meetings. They include and are limited to: Darren
Bell, Lynda Beriault, Jennifer Gendron, Elizabeth McCall, Leon Paroian, Sharon Proudfoot and Sanjay Mehta. This category of
membership is a way to honour and preserve PHA Canada’s history while moving toward the future.
This transition to the NFP Act has offered PHA Canada a legislated opportunity to review and update our existing bylaws. It has
provided a chance to further develop organizational documents that are modern and streamlined, with a view to enhancing struc-
ture, governance and accountability. This will support PHA Canada’s continuous growth as a not-for-profit organization.

3130
We hold immeasurable hope for the future,
and for PH patients like Everleigh.
Looking forward with Hope
As we move into the 2014 year, we will continue to create new ways of supporting our PH community. Our holistic focus on living better
with PH will be amplified this year through initiatives from our Psychosocial Support Program. Living well also means giving back, so we
are pleased to be extending PHA Canada’s volunteer program through the introduction of ambassador roles and a community helpline.
Finally, PHA Canada truly believes that a better life with pulmonary hypertension begins with the earliest possible diagnosis. As such, our
Early Diagnosis campaign will take centre focus over the coming year.
Psychosocial Support Program
A new Psychosocial Support Program committee has been
formed, composed of PH patients who also have a background
in psychology and/or social work. The purpose of the committee
is to address the need for psychosocial support in the PH commu-
nity. While patients may have their physical needs met through
medications, social, support and emotional needs may often go
unaddressed. This truth applies to caregivers as well. 2014 will see
the Psychosocial Support Program take shape, with early plans for
a patient-to-patient support line as well as several other projects
in development.
Volunteering to give back
PHA Canada is expanding our volunteer roles. We are creating a
robust volunteer (or knowledge philanthropist) program, which
we will continue to grow in 2014. Our aim is to work with skilled
volunteers on a per-project basis, matching a volunteer’s skills,
availability and interests to a specific project that has measurable
and concrete outcomes. This creates a truly rewarding opportu-
nity to give back. If you have skills that you would like to lend to
the PH community, learn more on our website or contact the
PHA Canada office.
Focusing on early diagnosis
PHA Canada understands that the sooner a patient is diagnosed
with PH, the sooner they may begin to work with their physician to
determine the best treatment path to alleviate symptoms, increase
quality of life and prolong life. The timing of diagnosis is critical
for a progressive disease like PH. Current statistics show that
it still takes on average 2.8 years for a correct diagnosis: this is
too long. Our Early Diagnosis Campaign, generously sponsored
by Bayer, will utilise some of the learnings from our Burden of
Illness survey to target the medical community and educate them
on what to do if a patient is presenting with these symptoms. 2014
will see PHA Canada, under the guidance of our Medical Advisory
Committee, building and launching our much-anticipated early
diagnosis campaign.
Looking forward with Hope
Over the coming year, PHA Canada will continue to grow and
evolve with our members. We are honoured to be a part of your
day to day experiences. Our lives are made rich by our commu-
nities, and we are grateful to be able to facilitate the creation of
lifelong connections.
We urge our community to remember the ripple effect. Your every action may inspire
hope in someone else – to speak up, to step out, or to keep phighting. Thank you for
being a part of PHA Canada.
Tribute: In memory of Sandy Metcalfe
Sept 4, 1952 - June 6th, 2013
We regret to announce the passing of a
valued friend and mentor to the Canadian
PH community. Sandy Metcalfe passed away
peacefully on June 6th after complications
following a double lung transplant. Sandy
had experienced a very long and hard battle
with idiopathic pulmonary arterial hyperten-
sion. She touched thousands of lives in her
roles as a teacher, mother, wife, colleague,
grandmother, sister, board member and
trusted friend. Most significantly for PHA
Canada, Sandy will be remembered for her
tireless efforts as a support group founder
and leader in Saskatchewan, and for her
years as Board Member and Secretary of
our organization.
We wish to recognize everything that Sandy
lived for through this tribute. Below is
Sandy’s story in greater depth, taken from
her obituary.
Alexandria Marie was born to Edmund
and Olive Kramer on September 4, 1952.
Her childhood was spent near Anaheim,
SK, leading her 8 brothers and sisters in
adventures on the farm and beyond. Moving
to Unity in 1966, Sandy attended Unity
Composite High School where she excelled
in her academic, athletic and “social”
studies. This is where she met and fell in
love with Billy Metcalfe, her high school
sweetheart and partner for life. After gradu-
ation, Sandy moved to Saskatoon to study
nursing. She and Bill were married in 1971
and started their life together in Saskatoon.
Sandy stayed at home with her sons Shayne
Jonathan and Jarrett James, and was kept
busy leading them in adventures camping,
travelling and playing sports. As the boys got
older, Sandy went back to school, receiving a
Bachelor’s of Education degree (with Great
Distinction) from the University of Saskatch-
ewan in 1986. She spent 20 years teaching
kindergarten in the Catholic school system
in Saskatoon, where she was a dedicated,
caring and skilled educator who truly loved
and cared for her students.
Sandy was also a skilled athlete and a
formidable competitor. A member of the
Riverside Badminton club for many years,
she excelled at the sport and won 6 national
level silver medals. She was always the first
one to start a game, to lead an exciting
adventure, to dress up, to start a party and
laugh. She was a tiny firecracker with an
infectious spirit and a killer wardrobe, but
also tender and caring with a gentle touch
for those who needed it, whether they knew
it or not. “Sheena’s” delight in her grand-
children was evident, and her love for them
unbounded. Her joy seemed so effortless
and her energy unstoppable.
Sandy became active in PHA Canada, and
co-founded a PH Support Group for patients
in Saskatchewan. As her health worsened
over the past 5 years, she continued to
challenge herself, the disease and every-
one around her to keep up. Her positive
attitude and refusal to give in to the increas-
ing pain and exhaustion gave her family and
friends hope that we could keep her longer
than the prognosis allowed. A double lung
transplant was the hope we were waiting for,
but complications after the surgery made
it impossible for even Sandy to overcome.
She passed away peacefully at the Univer-
sity of Alberta Hospital with Bill at her side.
Sandy is so missed by her family and friends,
who remember her with love and respect
for the amazing woman she was. But she
hasn’t really left us. As always, she’s just
leading us on the next adventure.
A celebration of Sandy’s life was held on
Wednesday June 12th at 1:30 p.m. at Holy
Spirit Church in Saskatoon.
Over the years at PHA Canada, we witnessed
Sandy deal with PH in the same graceful way
that she met all challenges: with optimism,
faith and determination. Sandy had a
beautiful and infectious energy that inspired
everyone who came across her. She will be
deeply missed.
Left to right:
Sandy with her family.
Sandy’s contribution to the ‘I dream’ video.
Sandy with her husband Bill in the airport.
Sandy was always the adventurer: she loved to
travel and hike.

3332
L’Espoir
voitl’invisible,
sentlavaleurimmatérielle
etréalisel’impossible.
Hope
Sees the invisible,
Feels the intangible,
And achieves the impossible.

PHA 2013 Annual Report EN

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