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Building International Bridges for
Nursing Research in Skin Care &
           Wound Care

       Professor Carol Dealey
Building bridges
• Is complex
• There needs to be a
  good foundation on
  each side
• Many different groups
  may need to be
  considered
• It takes time
Why should we bother?
• We are doing fine on
  our own
• I do not know anyone
  elsewhere
• It is a lot of effort
• I might not be
  successful
• I don’t have time
All of those comments are true, but...
                   • The world is getting
                     smaller
                   • Communication is
                     getting easier
                   • Others are working
                     together to improve
                     health
                   • So should nurses
Back to building bridges
This is a big topic
• So I am going to set the scene by starting with
  the development of Tissue Viability Nursing in the
  UK and how this led to research initiatives
• I will move on to improving relationships across
  Europe
• I will conclude with discussing my current
  research programme
• Much of the work has been achieved through
  working within societies such as SOBENDE and
  they will be very much part of my description

• Some of this describes my own personal
  journey
• Is the main wound care organisation in the UK
• One of the founding principles of TVS was the
  importance of different professional
  disciplines working together
• I think it is reasonable to state that TVS
  influenced the development of TV services in
  the UK.
1980s                        1990s      2000s               2010s


                                          I joined TVS in 1986
           Tissue
           Viability                      Tissue Viability was not
                                          mainstream clinical practice – but
                                          I was very impressed that it was
                                          multidisciplinary


                                          There was a small amount of
Clinical                                  research going on, but it was
Practice                                  mostly small scale unfunded or
                                          company funded

                       Small
                       research
                       projects
What did we learn from these events?

• Tissue Viability needed to be mainstream to
  make progress
• Being a multidisciplinary society was a
  strength
• We needed research evidence to support our
  practice – but there was not a lot about
1980s             1990s                      2000s                  2010s


 By 1990, TV was seen
 as relevant to clinical                                Government-funded
 practice – appointment                                 research
 of TVNs (prevalence
 surveys)
                                           Systematic
                                           Reviews
                               TVNs                        More
                               appointed                   TVNs


Clinical
Practice
                1st TVNs


                               All Party          RCN
                                                  Guidelines
   TVS was starting            Parliamentary
                               Group on Skin                      Policy developments
   get political
                                               TV Projects
                                               DoH
All Party Parliamentary Group on Skin
• It was started by the British Eczema Society
• Other groups joined in
• Chaired by an MP, with other MPs
  participating and held in Houses of Parliament
• Produced a document on the importance of
  skin and wound care
• Disintegrated after a general election and MP
  lost his seat
But there were good outcomes
• We learnt the importance of lobbying –
  including talking to the relevant people who
  selected topics for funded research
• We caught the attention of the Dept of Health
  as questions were raised in Parliament about
  the cost of treating pressure ulcers
• The Dept of Health funded several projects
  which lead to more research and guideline
  development
What did we learn in the ’90s?
• The value of the TVN role (I would say that
  wouldn’t I?)
• Not to put to put too much hope in politicians
  – they can lose their seats in elections
• Having the ear of people in the Dept of Health
  can make things happen
• Raising awareness with research funding
  bodies is important
What was happening in Europe at this time?
International Societies

• ETRS



• EWMA



• EPUAP
ETRS – Partnerships through Wound Repair &
               Regeneration
 • The official journal of
   The Wound Healing
   Society (USA), The
   European Tissue Repair
   Society, The Japanese
   Society for Wound
   Healing, and The
   Australian Wound
   Management
   Association
EWMA – acts as an umbrella organisation for
            national societies
• Co-operating
  organisations – 46
  societies across 35
  countries in Europe
• Examples: TVS, Wound
  Management
  Association of Ireland,
  Serbian Wound Healing
  Society
All of which leads me on……
EPUAP – collaboration on a
           project

• Development of
  International
  Pressure Ulcer
  Guidelines with
  NPUAP
Why did we start it?
• EPUAP guidelines were out of date
• NPUAP guidelines were out of date
• It seemed silly for both societies to
  review the same evidence separately and
  draw up roughly similar guidelines
What were our aims?
• Initially – high quality guidelines that would be
  accepted by other colleagues in tissue viability
  circles
• Then we just wanted them to be finished!
• Ultimately – we hoped that they would impact
  on practice and change policy
The guidelines were finally launched in
            October 2009
1980s             1990s                  2000s                     2010s




           The systematic reviews                 Large HTA             NIHR
           led to large funded                    funded studies        Programme
                                                                        Grants
           research studies

                                                                   International
                                                                   Guidelines


Clinical
Practice



                     Policy recognises the
                                                                                       CQUINS
                     importance of pressure             NICE & SIGN          Patient
                     ulcers as a quality                Guidelines           Safety
                     indicator
Research Funding
• Money is needed to
  fund large research
  projects
• This means funding
  agencies at national or
  international level
• There is unlikely to be
  commercial funding on
  this scale
National Institute for Health Research (NIHR)
Research Programmes



                 Opportunities!
In Europe
     • Must be international
       research
     • Can include countries
       outside Europe
     • Very topic specific – skin
       and wound care not a
       topic so far
     • EWMA has been
       lobbying for it to be
       included
Research and Clinical Practice
• Although NIHR funding is hard to get – TV
  research is recognised as being of value and
  we are building up evidence

• There is yet to be a breakthrough into EU
  funding – international research
Where does this leave us today?
Possibly with a half built bridge!
But it is important to persevere
Looking at the positives
• In the UK we have built up good relationships
  with others in Europe and beyond
• This not only includes other nurses, but
  doctors and scientists
• There was and is money for research in the UK
  and chronic wounds were being accepted as a
  relevant topic for research
Next step – identify source of serious
 money for pressure ulcer research
Programme Grants for Applied
             Research
• Run for 5 years
• Are worth up to £2million (approx 6.5 million
  reals)
• Should comprise a programme of several
  interrelated research studies
• Could be on any topic
NIHR PURPOSE Programme
How is this a bridge to
International Nursing Research?
Well, I would describe it as more of
         a small foot bridge!
PURPOSE Research
Programme
Has a steering group with
international members
Study 3 included an
international expert panel
to review literature and
determine a minimum
data set for pressure ulcer
reporting and the items for
a risk assessment tool.
There will also be a wide
international peer review
of the process
How has this been achieved?
• Some of us met through the Tissue Viability
  Society
• We maintained and developed the
  relationship through membership of European
  societies and widened it to include others
• We also met the Americans though working
  on the international guidelines
Other things that matter
• All the senior members of the research team
  – Had previously undertaken research
  – They had published their work and spoken at
    international conferences
  – So we have a track record which means others
    also have respect for us and are interested in
    joining us
But....
• We are not there yet
• International research
  funding is dominated by
  scientific and medical
  topics – which is not
  wrong, but we need an
  interest in wound care
So maybe I only have the right to
talk about starting to build a bridge
Where did I start?
• I started locally and got drawn into things at
  national level
• I joined societies and stood for committees as
  it meant I could go to conferences for free!
• I worked hard and became passionate about
  wounds and research
• I wrote papers and books and presented my
  research
Carol’s 10 Point Plan

1. Well you have already
   started through
   societies like SOBENDE
2. Collaborations
   between universities
   and hospitals for
   simple research
   studies (simple does
   not mean poor quality,
   but not costly)
There’s more
3. Publish papers
4. Use the findings to
    lobby politicians
5. Find out about available
    research monies from
    government or
    elsewhere – and apply
    for it!
6. Collaborations are good
Venture outside Brazil
7. I know some of you
   have attended
   international
   conferences – now
   think of a poster or
   presentation, maybe at
   a Portuguese or
   Spanish-speaking
   conference to start with
8. How about publishing in
   an English-speaking
   journal?
9. Is there an international
   society you could join?
10. Once a member,
   consider joining a
   committee
One thing is for certain...
• You will find many
  others in other
  countries with a passion
  for wound care
• Maybe if we all work
  together we can build a
  nice shiny bridge!
Building International Bridges for Nursing Research in Skin Care & Wound Care

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Building International Bridges for Nursing Research in Skin Care & Wound Care

  • 1. Building International Bridges for Nursing Research in Skin Care & Wound Care Professor Carol Dealey
  • 2. Building bridges • Is complex • There needs to be a good foundation on each side • Many different groups may need to be considered • It takes time
  • 3. Why should we bother? • We are doing fine on our own • I do not know anyone elsewhere • It is a lot of effort • I might not be successful • I don’t have time
  • 4. All of those comments are true, but... • The world is getting smaller • Communication is getting easier • Others are working together to improve health • So should nurses
  • 6. This is a big topic • So I am going to set the scene by starting with the development of Tissue Viability Nursing in the UK and how this led to research initiatives • I will move on to improving relationships across Europe • I will conclude with discussing my current research programme
  • 7. • Much of the work has been achieved through working within societies such as SOBENDE and they will be very much part of my description • Some of this describes my own personal journey
  • 8. • Is the main wound care organisation in the UK • One of the founding principles of TVS was the importance of different professional disciplines working together • I think it is reasonable to state that TVS influenced the development of TV services in the UK.
  • 9. 1980s 1990s 2000s 2010s I joined TVS in 1986 Tissue Viability Tissue Viability was not mainstream clinical practice – but I was very impressed that it was multidisciplinary There was a small amount of Clinical research going on, but it was Practice mostly small scale unfunded or company funded Small research projects
  • 10. What did we learn from these events? • Tissue Viability needed to be mainstream to make progress • Being a multidisciplinary society was a strength • We needed research evidence to support our practice – but there was not a lot about
  • 11. 1980s 1990s 2000s 2010s By 1990, TV was seen as relevant to clinical Government-funded practice – appointment research of TVNs (prevalence surveys) Systematic Reviews TVNs More appointed TVNs Clinical Practice 1st TVNs All Party RCN Guidelines TVS was starting Parliamentary Group on Skin Policy developments get political TV Projects DoH
  • 12. All Party Parliamentary Group on Skin • It was started by the British Eczema Society • Other groups joined in • Chaired by an MP, with other MPs participating and held in Houses of Parliament • Produced a document on the importance of skin and wound care • Disintegrated after a general election and MP lost his seat
  • 13. But there were good outcomes • We learnt the importance of lobbying – including talking to the relevant people who selected topics for funded research • We caught the attention of the Dept of Health as questions were raised in Parliament about the cost of treating pressure ulcers • The Dept of Health funded several projects which lead to more research and guideline development
  • 14. What did we learn in the ’90s? • The value of the TVN role (I would say that wouldn’t I?) • Not to put to put too much hope in politicians – they can lose their seats in elections • Having the ear of people in the Dept of Health can make things happen • Raising awareness with research funding bodies is important
  • 15. What was happening in Europe at this time?
  • 17. ETRS – Partnerships through Wound Repair & Regeneration • The official journal of The Wound Healing Society (USA), The European Tissue Repair Society, The Japanese Society for Wound Healing, and The Australian Wound Management Association
  • 18. EWMA – acts as an umbrella organisation for national societies • Co-operating organisations – 46 societies across 35 countries in Europe • Examples: TVS, Wound Management Association of Ireland, Serbian Wound Healing Society
  • 19. All of which leads me on……
  • 20. EPUAP – collaboration on a project • Development of International Pressure Ulcer Guidelines with NPUAP
  • 21. Why did we start it? • EPUAP guidelines were out of date • NPUAP guidelines were out of date • It seemed silly for both societies to review the same evidence separately and draw up roughly similar guidelines
  • 22. What were our aims? • Initially – high quality guidelines that would be accepted by other colleagues in tissue viability circles • Then we just wanted them to be finished! • Ultimately – we hoped that they would impact on practice and change policy
  • 23. The guidelines were finally launched in October 2009
  • 24. 1980s 1990s 2000s 2010s The systematic reviews Large HTA NIHR led to large funded funded studies Programme Grants research studies International Guidelines Clinical Practice Policy recognises the CQUINS importance of pressure NICE & SIGN Patient ulcers as a quality Guidelines Safety indicator
  • 25. Research Funding • Money is needed to fund large research projects • This means funding agencies at national or international level • There is unlikely to be commercial funding on this scale
  • 26. National Institute for Health Research (NIHR)
  • 27. Research Programmes Opportunities!
  • 28. In Europe • Must be international research • Can include countries outside Europe • Very topic specific – skin and wound care not a topic so far • EWMA has been lobbying for it to be included
  • 29. Research and Clinical Practice • Although NIHR funding is hard to get – TV research is recognised as being of value and we are building up evidence • There is yet to be a breakthrough into EU funding – international research
  • 30. Where does this leave us today?
  • 31. Possibly with a half built bridge!
  • 32. But it is important to persevere
  • 33. Looking at the positives • In the UK we have built up good relationships with others in Europe and beyond • This not only includes other nurses, but doctors and scientists • There was and is money for research in the UK and chronic wounds were being accepted as a relevant topic for research
  • 34. Next step – identify source of serious money for pressure ulcer research
  • 35. Programme Grants for Applied Research • Run for 5 years • Are worth up to £2million (approx 6.5 million reals) • Should comprise a programme of several interrelated research studies • Could be on any topic
  • 37. How is this a bridge to International Nursing Research?
  • 38. Well, I would describe it as more of a small foot bridge!
  • 39. PURPOSE Research Programme Has a steering group with international members Study 3 included an international expert panel to review literature and determine a minimum data set for pressure ulcer reporting and the items for a risk assessment tool. There will also be a wide international peer review of the process
  • 40. How has this been achieved? • Some of us met through the Tissue Viability Society • We maintained and developed the relationship through membership of European societies and widened it to include others • We also met the Americans though working on the international guidelines
  • 41. Other things that matter • All the senior members of the research team – Had previously undertaken research – They had published their work and spoken at international conferences – So we have a track record which means others also have respect for us and are interested in joining us
  • 42. But.... • We are not there yet • International research funding is dominated by scientific and medical topics – which is not wrong, but we need an interest in wound care
  • 43. So maybe I only have the right to talk about starting to build a bridge
  • 44. Where did I start? • I started locally and got drawn into things at national level • I joined societies and stood for committees as it meant I could go to conferences for free! • I worked hard and became passionate about wounds and research • I wrote papers and books and presented my research
  • 45. Carol’s 10 Point Plan 1. Well you have already started through societies like SOBENDE 2. Collaborations between universities and hospitals for simple research studies (simple does not mean poor quality, but not costly)
  • 46. There’s more 3. Publish papers 4. Use the findings to lobby politicians 5. Find out about available research monies from government or elsewhere – and apply for it! 6. Collaborations are good
  • 47. Venture outside Brazil 7. I know some of you have attended international conferences – now think of a poster or presentation, maybe at a Portuguese or Spanish-speaking conference to start with
  • 48. 8. How about publishing in an English-speaking journal? 9. Is there an international society you could join? 10. Once a member, consider joining a committee
  • 49. One thing is for certain... • You will find many others in other countries with a passion for wound care • Maybe if we all work together we can build a nice shiny bridge!