PLOT-IT crowd sources research ideas and health data (with academic health researchers providing a support service to ensure that the research is ethical, methodologically sound, clinically safe and that personal data is protected). Participants are involved in multiple aspects of an online clinical trial.

1. PLOT-IT
Public Led Online Trials
Amy Price Amanda Burls and Su May Liew

2. PLOT-IT AIMS
Amy Price Amanda Burls and Su May Liew

3. Public Led Online Trials
Amy Price Amanda Burls and Su May Liew

4. Ways the Public Collaborates
With PLOT-IT
PLOT
Prioritize
choose, supply
Research
Questions
Living
Systematic
Review
Project
Planning,
Recruiting
Steering
group, Peer
Advocacy,
Crowd-source
Teaching &
Funding
Design,
Develop &
Test Platform
and Protocol
Analyse,
interpret and
disseminate
How Participants Can Help
Amy Price Amanda Burls and Su May Liew

5. ThinkWell
Application Requires Preparation
The application of
what we know already will
have a bigger impact on health
and disease than any drug or
technology likely to be
introduced in the next decade.
Sir Muir Gray.
Amy Price Amanda Burls and Su May Liew

6. How Learning Changes Function
The world will not
evolve past its current
state of crisis by using
the same thinking that
created the situation.
- Albert Einstein,
scientist (1879-
1955)
1 2
Amy Price Amanda Burls and Su May Liew

7. The Public Speaks
The first thing we need is a list of those things that make people feel
powerless and a set of limited achievable objects to start removing
the barriers to people taking control of the health science process.
Amy Price Amanda Burls and Su May Liew

8. What I learned From Qualitative Research
Shame slows the Train
Amy Price Amanda Burls and Su May Liew

9. Paralyzed By Shame & Not Lack of Information
The miracle is not that I finished but that I had the courage to start J
Bingham
Amy Price Amanda Burls and Su May Liew

10. Understand Behavior
Amy Price Amanda Burls and Su May Liew

11. The Public Helping Themselves
Can Methods Mentoring Help?
Amy Price Amanda Burls and Su May Liew

12. Perspective Matters
It doesn’t have to be comfortable to work
Amy Price Amanda Burls and Su May Liew

13. Pattern recognition can float your boat
or sink your ship
Behavior is more than knowledge
Amy Price Amanda Burls and Su May Liew

14. Quality Clinical Trials Online
By the people for the people:
Amy Price Amanda Burls and Su May Liew

15. Does drinking water reduce
headaches?
Join study My data Contact usLearn more
H2O Study
ThinkWell
Amy Price Amanda Burls and Su May Liew

16. Where The Public Decides Research Priorities
DO IT TOGETHER YOUR WAY!
Choose
topic
Hands
On
learning
Do The
Research
• Bio-
Feedback for
Pain
• Aging
without
Alzheimer’s
Disease
• Drinking
water is it a
weight loss
tool?
Amy Price Amanda Burls and Su May Liew

17. We find solutions together
Amy Price Amanda Burls and Su May Liew

18. Tell us about you
Trial
information
Consent
Tasks
What’s in it for me
Consent for observational data, no randomization
yet Each layer separate sections
Amy Price Amanda Burls and Su May Liew

19. 1
2
4
3
5
7
6
8
Should we drink
extra water?
And if so, how
much? Join in
research
to find
out!
You expressed interest
in headaches
and drinking extra water
Amy Price Amanda Burls and Su May
Liew
Amy Price Amanda Burls and Su May Liew

20. NHS
CHOICESNHS
CHOICESNHS
CHOICESNHS
CHOICESNHS
CHOICES
Email
details
Complete
24 hrs 48 hrs

21. .5
1
5 76 8
Join in
research
to find
out!
How much water do I drink?
2
2
2
1
3 4
1 3 4
Forgot? Drink the extra
when you remember
=500ml
=120ml
=1L
=2L
Amy Price Amanda Burls and Su May Liew

22. Record fluid intake
Personal Dashboard
Record intake and report
outcomes
daily
Not done
Reminders
Day to Day Trial Activity

23. H2O For Headaches PLOT Flow Chart
Amy Price Amanda Burls and Su May Liew

24. The public is smart enough to master risk, odds and ethics while conducting
research. They have untapped potential for improving decision-making,
education, policy and advocacy. Join us to provide them with training and a
voice
24
The most under-realized resource is the participant.
Amy Price Amanda Burls and Su May Liew

25. Got Online Trials?
You can build them: We can help!
Amy Price Amanda Burls and Su May Liew
Find us at
http://ithinkwell.org
dr.amyprice@gmail.com

26. We Can Change Research Practice With Your Help!
Amy Price Amanda Burls and Su May Liew