Enter/update your A1c data: http://tud4.us/TuAnalyzeProfile Take the TuAnalyze survey: http://tud4.us/TuSurvey Video excerpt: http://www.youtube.com/watch?v=Pmez7PWANws

1. PHIConnect CDC Center of Excellence in
Public Health Informatics
The
TuAnalyze
project
Mission
-­‐-­‐
To
empower
people
touched
by
diabetes
to
track,
share
and
compare
their
health
informa=on
for
research
advancing
diabetes
care
and
public
health
response
 TuAnalyze
is
a
so.ware
“app”
developed
for
TuDiabetes
 TuAnalyze
launched
May
2010
in
English,
December
2010
in
Spanish
 TuAnalyze
supports
reporEng
&
sharing
of
diabetes
informaEon
 Data
are
used
in
aggregate
community
reports,
in
charts
and
maps
generated
for
the
community,
and
in
public
health
research
 The
project
is
led
by
faculty
from
Children’s
Hospital
Boston
and
Harvard
Medical
School
in
collaboraEon
with
the
Diabetes
Hands
FoundaEon,
with
funding
from
the
US
Centers
for
Disease
Control
and
PrevenEon
In collaboration with:

2. PHIConnect CDC Center of Excellence in
Public Health Informatics
Early
results:
Who’s
using
TuAnalyze?

1
in
10
TuDiabetes
members
using
TuAnalyze
(about
1700
users)

Users
from
43
countries
and
all
50
US
states
are
parEcipaEng
 So
far
20
US
states
and
2
Canadian
provinces
have
reported
enough
A1c
values
to
“light
up”
these
map
regions
 ArgenEna,
Spain,
Great
Britain
and
several
Mexican
states
are
geQng
close.
In collaboration with:

3. PHIConnect CDC Center of Excellence in
Public Health Informatics
Glycemic
control
in
the
community
TuAnalyze
is
the
first
online
social
network
based
repor=ng
system
for
A1c—a
key
measure
of
diabetes
control
 The
average
A1c
of
TuAnalyze
users
is
6.9%
 A1c
ranges
from
4.0%
to
13.7%
Frequency
Distribu=on
of
A1c%
Among
TuAnalyze
Users
40%
35%
30%
%
of
Total
25%
20%
15%
10%
5%
0%
5%
or
lower
6%
7%
8%
9%
10%
11%
12%
or
higher
A1c
Value
Among
1453
Users
In collaboration with:

4. PHIConnect CDC Center of Excellence in
Public Health Informatics
Glycemic
control
in
the
community
 Most
users
(>
80%)
are
reporEng
current
A1c
values
 As
app
use
has
increased,
users
with
a
wider
range
of
A1c
have
begun
parEcipaEng—providing
a
more
complete
picture
May
2010
August
2010
December
2010
 1
of
4
users
have
entered
more
than
one
A1c
into
TuAnalyze
 Users
who
are
updaEng
their
A1cs
with
new
values
are,
on
average,
reporEng
lower
A1c
values
over
Eme
In collaboration with:

5. PHIConnect CDC Center of Excellence in
Public Health Informatics
US
na=onal
comparison
 Among
users
with
diagnosed
diabetes,
the
average
A1c
reported
by
US
TuAnalyze
users
is
lower
than
the
average
A1c
esEmated
from
a
US
naEonal
health
reporEng
system*
(avg.
A1c
respecEvely,
6.7%
vs.
7.3%)
 A
close
look
shows
different
A1c
distribuEon
in
the
two
groups
45%
40%
Percent
of
total
with
given
A1c
35%
30%
25%
20%
TuAnalyze
15%
NHANES
10%
5%
0%
5%
or
lower
6%
7%
8%
9%
10%
11%
12%
or
higher
Rounded
A1c
340
par=cpants
from
TuAnalyze
and
704
from
NHANES
*2007-­‐08
NaEonal
Health
and
NutriEon
ExaminaEon
Survey
(NHANES)
In collaboration with:

6. PHIConnect CDC Center of Excellence in
Public Health Informatics
TuAnalyze
survey
1
in
3
TuAnalyze
users
has
taken
the
1st
TuAnalyze
survey,
so
far!
Among
this
group:
Diabetes
Type
Among
Survey
Par=cipants
 60%
are
female
Pre-­‐Diabetes
 Average
age
is
44,
age
ranges
from
14-­‐81
LADA
0.7%
 Average
A1c
is
6.75%
10.5%
 A1c
does
not
differ
by
age,
diabetes
type,
Type
2
or
by
dura5on
of
diagnosis
26.1%
Type
1
62.7%
Among
437
Survey
ParEcipants
In collaboration with:

7. PHIConnect CDC Center of Excellence in
Public Health Informatics
Type
1
Diabetes
Type
2
Diabetes

Average:

Average:
•
A1c
6.75%
•
A1c
6.77%
•
Age:
42
•
Age:
52
•
Age
at
diagnosis:
17
•
Age
at
diagnosis:
44

74%
use
a
pump

48%
on
insulin;
23%
of
those

Most
important
treatment:
use
a
pump
•
Pump
(70%)

Most
important
treatment:
•
InjecEons
(23%)
•
Diet
(39%)
LADA
Diabetes
•
Insulin
injecEons
(25%)
 Average:
•
A1c
6.8%
•
Age:
51
•
Age
at
diagnosis:
40

69%
use
a
pump

Most
important
treatment:
•
Insulin
pump
(61%)
•
Insulin
injecEons
(28%)
In collaboration with:

8. PHIConnect CDC Center of Excellence in
Public Health Informatics
Caregivers
in
TuAnalyze
8%
of
survey
par=cipants
use
the
TuAnalyze
applica=on
on
behalf
of
a
loved
one
with
diabetes

89%
of
them
are
using
the
applicaEon
for
a
child

60%
spend
at
least
7
hours
per
week
helping
with
their
loved
one’s
diabetes
care

91%
are
the
primary
medical
liaison
for
their
loved
one
In collaboration with:

9. PHIConnect CDC Center of Excellence in
Public Health Informatics
Preven=ve
Care
%
of
Survey
Respondents
who
Follow
ADA
Care
Guidelines*
100%
90.2%
86.0%
90%
80%
68.7%
69.1%
70%
60%
50%
44.6%
40%
30%
20%
10%
0%

32%
of
survey
parEcipants
report
obtaining
all
five
recommended
care
pracEces
*
The
American
Diabetes
AssociaEon
recommends
that
all
persons
with
diabetes
receive
a
yearly
flu
vaccinaEon,
cholesterol
check,
foot
exam,
dilated
eye
exam,
and
a
one-­‐Eme
pneumonia
vaccinaEon.
In collaboration with:

10. PHIConnect CDC Center of Excellence in
Public Health Informatics
Self-­‐Care
Behaviors
and
Medical
Visits
Frequency
of
Care
Behaviors
70%
64.8%
60%
Check
their
blood
glucose
5+
Emes
per
day
50.6%
50.1%
50%
47.7%
%
of
Survey
Respondents
Check
their
blood
glucose
before
driving
40%
31.6%
Saw
a
DNE
in
the
last
year
30%
Saw
a
nutriEonist
in
the
last
year
20%
10%
Saw
their
diabetes
physican
4+
Emes
in
the
last
year
0%
Care
Behavior
In collaboration with:

11. PHIConnect CDC Center of Excellence in
Public Health Informatics
Challenges
in
the
Community
Frequency
of
Health
Challenges
in
the
Survey
Popula=on
40%
37.5%
37.1%
35%
30%
28.2%
25%
19.7%
20%
14.9%
15%
8.9%
%
of
survey
respondents
10%
5%
0%

2
of
3
survey
respondents
report
at
least
one
challenge
In collaboration with:

12. PHIConnect CDC Center of Excellence in
Public Health Informatics
What’s
Next?
Brief,
targeted
surveys
on
specific
topics,
such
as:
•
ConEnuous
Glucose
Monitoring
•
Pump
and
device
use
•
Hypoglycemia
•
Women’s
reproducEve
health
and
diabetes
Thank
you
to
everyone
who
has
par=cipated
in
TuAnalyze!
By
contribu=ng
your
data,
you
have
provided
an
invaluable
window
into
the
TuDiabetes
community.
Our
research
is
ongoing:
if
you
haven’t
yet
used
TuAnalyze,
we
invite
you
to
join,
enter
your
A1c
and
take
the
survey
at
hkp://tud4.us/TuAnalyzeProfile
.
In collaboration with: