The Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Online Consumer Accounts [4 Cr2 1100 Hughes]

Hughes, S. et al.: The Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Online Consumer Accounts ,[object Object],[object Object],[object Object]

The Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Online Consumer Accounts Shannon Hughes, MSW, Ph.D. Candidate Florida International University, Miami, FL Non-presenting author: David Cohen, Ph.D. Medicine 2.0 , Toronto, Ontario September 4-5, 2008

Speech of Drug User is Fundamental ,[object Object],[object Object],[object Object],Brunton, Lazo, & Parker (2006). Goodman & Gilman’s The Pharmacological Basis of Therapeutics, 11 th ed.

Randomized Controlled Trial (RCT) Mutes Users’ Voices ,[object Object],[object Object],[object Object],[object Object],[object Object]

Pharma Funds 70% of Research ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Heres et al., 2006 Turner, et al., 2008

[object Object],[object Object],[object Object],(Ross et al., 2007; The New York Times , 2007)

Drugs are Marketing-Driven ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],$29.9 billion industry reporting $57.5 billion independent estimates (Donohue, Cevasco & Rosenthal, 2007) (Gagnon & Lexchin, 2008) ,[object Object],[object Object],[object Object]

Consumer Drug Experiences on the Internet ,[object Object],[object Object],[object Object]

Typology of Sites ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Where Can You Get The Full Drug Story? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Are Consumer Drug Accounts Credible? ,[object Object],[object Object],- O'Neill, 2007

Head of Operations of a consumer-centric site: ,[object Object],[object Object]

Owner/moderator of a consumer-run forum: ,[object Object],[object Object]

Gauging Pharma Activity using Wikiscanner ,[object Object],[object Object],[object Object],[object Object]

Pharma Wikipedia Edits, 2002-2007 Omeprazole : Deleted sentence about heavy marketing of Nexium in the face of generic competition; Added summaries of several studies where Nexium outperforms Prilosec Drotrecogin alfa : Deleted word “deceptive” before “marketing campaign” ; Deleted 6 contraindications GlaxoSmithKline : Added paragraph about “Good Works” of company Total Edits Edits related to meds/pharma Example edited entries Astra Zeneca 949 23 (2.4%) quetiapine ; omeprazole Eli Lilly 832 38 (4.6%) drotrecogin alfa; Talk:fluoxetine GSK 1,148 31 (2.7%) GlaxoSmithKline

Authenticity is unresolved and evolving ,[object Object],[object Object]

Research, Clinical, Consumer Implications ,[object Object],[object Object],[object Object]

The Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Online Consumer Accounts [4 Cr2 1100 Hughes]

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The Construction of Expertise in the Age of the Internet: Psychotropic Drug Knowledge in Online Consumer Accounts [4 Cr2 1100 Hughes]