NUBIC CTMS System Overview

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NUBIC makes web applications to help manage participants on clinical research. This slideshow presents some of the websites we've developed and how they work in the research process. http://www.nucats.northwestern.edu/centers/nubic

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NUBIC CTMS System Overview

  1. 1. Research begins with a population of people (often a large one)
  2. 2. Some of these people are willing to participate in research (often because they were recently diagnosed with a disease)
  3. 3. These people are entered in a research registry (this allows researchers to contact them if they match criteria in some future studies)
  4. 4. Registar manages the people entered in a research registry (it handles many of the details of running a registry)
  5. 5. handles day-to-day details like: o Storing name, address, phone, and email o Consenting with electronic signature o Capturing NIH coded gender, race, and ethnicity o Filling out a survey or questionnaire o Searching for participants by question responses o Emailing reminders to renew registry o Forwarding potential participants to researchers o And much more!!!
  6. 6. Registar manages the people entered in a research registry (it handles many of the details of running a registry)
  7. 7. Registry participants can be identified for a study (based on how a person fills out a registry they may be a good fit for a study) Registry Participants Potential Study Participants
  8. 8. Identified participants are further screened and enrolled on a study (this allows researchers to begin collecting research related information on the participants) Potential Study Participants Screening and Consenting Process
  9. 9. eNOTIS helps manage participants enrolled on a study (this allows researchers to begin collecting research related information on the participants) Consented Study Participant
  10. 10. handles management details like: o Storing participant name, DOB, MRN, Case # o Capturing NIH coded gender, race, and ethnicity o Tracking participant status (consented, etc…) o Searching for participants, and studies o Exporting a study participant list to CSV o Generate NIH Inclusion Enrollment report o Help identify if participants are on multiple trials o And much much more!!!
  11. 11. eNOTIS helps manage participants enrolled on a study (this allows researchers to begin collecting research related information on the participants) Consented Study Participant
  12. 12. participants enrolled on a study in eNOTIS can be accessed by other NUBIC systems (Other NUBIC systems can schedule visits, track samples, collect data, or generate EDW reports based off eNOTIS) Study Participant listed in eNOTIS EDW NUBIC systems
  13. 13. participants enrolled on a study in eNOTIS can be accessed by other NUBIC systems (Other NUBIC systems can schedule visits, track samples, collect data, or generate EDW reports based off eNOTIS) All scheduling of study visits can be handled through PSC (patient study calendar) Any Bio-specimens taken from the participant can be tracked and cataloged in SAMPLE Surveyor has forms and surveys for capturing participant data that is outside the scope of the medical record EDW Reports on medical history and current lab data can be generated from an eNOTIS study participant list
  14. 14. Northwestern University Biomedical Informatics Core o Lattice Grid o iNav patient outcomes navigator o Women’s Health Registry o NOTIS Cancer trial management o NUCATS Assist o And many others… Some of our other projects We can be contacted here: … … … http://projects.nubic.northwestern.edu For more information visit our website:

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