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OSEHRA is a great business
opportunity for health IT vendors
and system integrators
2nd Annual OSEHRA Summit
Shahid N. Shah
Chairman of OSEHRA Advisory Board
NETSPECTIVE

Who is Shahid?
•
•

•
•

Chairman, OSEHRA Board of Advisors
20+ years of software engineering and
multi-discipline complex IT
implementations (Gov., defense, health,
finance, insurance)
12+ years of healthcare IT and medical
devices experience (blog at
http://healthcareguy.com)
15+ years of technology management
experience (government, non-profit,
commercial)

www.netspective.com

Author of Chapter 13, “You’re
the CIO of your Own Office”
2
NETSPECTIVE

What’s this talk about?
Background
•

•

•

EHRs are not the center of the
healthcare data ecosystem.
Applications come and go, data lives
forever. He who owns, integrates,
and uses data wins in the end.
Never leave data in the hands of the
application only.

www.netspective.com

Key takeaways
•

•

OSEHRA is major business
opportunity for ISVs and systems
integrators
There’s nothing special about
health IT data that justifies
complex, expensive, or special
technology.

3
NETSPECTIVE

VA, VHA, VistA, and OSEHRA
Top-notch pedigree and a well funded buyer of innovation

VA

FY2012 IT Spend: $3.1 B

VHA

OSEHRA
2011

VistA EHR Code

Community

Convergence, Refactoring

OSEHRA Core

Free or Commercial
2013

Contributed Core

Data 1

Facility 2

…

OSEHRA Add-ons

Contributed Add-ons

Data 2

Facility 1

…

IV&V (Test, Docs)

Contributed Tests/Docs

Certify

Commercial Deployments

Coordination

Innovation

OSEHRA Deployment

Delivery
www.netspective.com

2013

4
NETSPECTIVE

How OSEHRA makes the market bigger
Market generation and economic benefits

New businesses can be
created which service
OSEHRA code,
technologies, etc. and make
revenue from said services

www.netspective.com

New system integration
business or existing ones
can augment their products
/ services to include
OSEHRA capabilities

5
NETSPECTIVE

How OSEHRA makes the market bigger
Market generation and economic benefits

New or existing hosting /
datacenter businesses can offer
fully hosted OSEHRA capabilities
directly to clinicians or even at
some point VA/DoD/IHS

www.netspective.com

New revenue centers in existing
or new businesses can take
common certification criteria and
build tools around it for
automated testing,
documentation preparation, etc.

6
The macro environment
NETSPECTIVE

The realities of patient populations
Prevention
• Education
• Health Promotions
• Healthy Lifestyle Choices
• Health Risk Assessment

Management

• Obesity Management
• Wellness Management
•
•
•
•
•
•
•

Assessment – HRA
Stratification
Dietary
Physical Activity
Physician Coordination
Social Network
Behavior Modification

• Diabetes
• COPD
• CHF
•
•
•
•
•

Stratification & Enrollment
Disease Management
Care Coordination
MD Pay-for-Performance
Patient Coaching

•
•
•
•

Physicians Office
Hospital
Other sites
Pharmacology

• Catastrophic Case
Management
• Utilization Management
• Care Coordination
• Co-morbidities

26 % of Population

35 % of Population

35 % of Population

4% of Population

4 % of Medical Costs

22 % of Medical Costs

37 % of Medical Costs

36 % of Medical Costs

Source: Amir Jafri, PrescribeWell
www.netspective.com

8
NETSPECTIVE

Patient Collaboration Maturity Model
Accountable Care
Integrated Care
Coordinated Care

Connected Care

Independent
Care

www.netspective.com

Choosing a single EHR vendor as your
platform for connected care won’t work
beyond integrated care scenarios.
9
NETSPECTIVE

We’re digitizing biology
Last and past decades

Digitize
mathematics

Digitize
literature

Digitize social
behavior

Predict human
behavior

Gigabytes and petabytes
www.netspective.com

This and future decades

Digitize biology

Digitize
chemistry

Digitize physics

Predict
fundamental
behaviors

Petabytes and exabytes
10
NETSPECTIVE

We’re repurposing and enhancing health data
Try to use existing data to create new diagnostics or therapeutic solutions

Economics

Administrative

www.netspective.com

Phenotypics

Behavioral

Biochemical

Genomics

Proteomics

IOT sensors

11
NETSPECTIVE

Healthcare industry / market trends

Major market and regulatory trends that are causing customers and competitors to shift

You must learn and be able to talk to customers about all these terms

PPACA

ACO

PCMH

“Affordable Care
Act”

“Accountable
Care Org”

“Medical
Home”

Health
Home

www.netspective.com

mHealth

MU
“Meaningful Use”

PCPCC
“Patient Centered
Care”

12
NETSPECTIVE

Implications of healthcare trends
PPACA

ACO

Software

Regulated IT and Systems
Integration Services

MU
Health
Home
www.netspective.com

PCMH
mHealth

DATA

Evidence Based Medicine
Comparative Effectiveness

13
NETSPECTIVE

The new world order
General
Wellness

Specific
Prevention

Self Service
Physiologics

Self Service
Monitoring

Healthcare
Professional
Monitoring

Care Team
Diagnostics

Care Team
Monitoring

Self Service
Diagnostics

Healthcare
Professional
Diagnostics

Hospital
Monitoring

Hospital
Diagnostics

www.netspective.com

14
NETSPECTIVE

We’re in the integration age
We’re not in an
app-driven
future but an
integrationdriven future.
He who
integrates the
best, wins.

Source: Geoffrey Raines, MITRE
www.netspective.com

15
What are we doing wrong when it comes to health IT applications?

What’s the problem?
NETSPECTIVE

Why you can’t just “buy integration”
Myth

• I only have a few systems
to integrate
• I know all my data formats
• I know where all my data is
and most of it is valid
• My vendor already knows
how all this works and will
solve my problems
www.netspective.com

Truth

• There are actually hundreds
of systems
• There are dozens of formats
you’re not aware of
• Lots of data is missing and
data quality is poor
• Tons of undocumented
databases and sources
• Vendors aren’t incentivized to
integrate data
17
NETSPECTIVE

Application focus is biggest mistake
Application-focused IT instead of Data-focused IT is causing business problems.
Silos of information exist across
groups (duplication, little sharing)

Clinical
Apps

Billing
Apps

Lab
Apps

Other
Apps

Healthcare Provider Systems

Patient
Apps

Partner Systems

Poor data integration across
application bases
www.netspective.com

18
NETSPECTIVE

The Strategy: Modernize Integration
Need to get existing applications to share data through modern integration
techniques

Clinical
Apps
NCI
App

Billing
Apps

Lab
Other
Apps
Apps
NEI
App
Healthcare Provider Systems

Patient
Apps
NHLBI
App

Partner Systems

Master Data Management, Entity Resolution, and Data Integration
Improved integration by services
that can communicate between applications
www.netspective.com

19
NETSPECTIVE

Important needs of non-Gov clinical customers
OSEHRA needs to get non-government clinical customers but there are important gaps

Easy to install
packages that make it
possible to experiment
with OSEHRA code

Patient portal
integration

www.netspective.com

RCM integration

Interoperable with
existing systems (labs,
pharma, etc.)
20
NETSPECTIVE

Value-adds to clinical users
The conceptual ROI for OSEHRA activities

More
functionality

Faster delivery

Interoperability

www.netspective.com

Better
integration

Free EHR

21
NETSPECTIVE

Important needs of engineering customers

OSEHRA needs to get non-government clinical customers but there are important gaps

Easy to install
packages that make it
possible to experiment
with OSEHRA code

Common data model

Platform to build on
(APIs, etc.)

www.netspective.com

Common identity
management

Ability to build
mHealth apps on top
of OSEHRA

22
NETSPECTIVE

Needed: Reimagined User Interactions
Data visualization requires integration and aggregation

What’s being offered to users

www.netspective.com

What users really want

23
NETSPECTIVE

Needed: Self-service applications
Patient Scheduling
for Services

Secure Social Patient
Relationship
Management (PRM)

Patient
Communications,
SMS, IM, E-mail,
Voice, and Telehealth

Patient Education,
Calculators, Widgets,
Content
Management

Blue Button, HL7,
X.12, HIEs, EHR, and
HealthVault
Integration

E-commerce, Ads,
Subscriptions, and
Activity-based Billing

Accountable Care,
Patient Care
Continuity and
Coordination

Patient Family and
Community
Engagement

Patient Consent,
Permissions, and
Disclosure
Management

www.netspective.com

24
NETSPECTIVE

Needed: diagnostic quality mHealth

www.netspective.com

25
NETSPECTIVE

Needed: predictive analytics

www.netspective.com

26
NETSPECTIVE

Needed: care team involvement
PATIENT/
CONSUMER

HEALTHCAR
E PROVIDER

Care Team

FAMILY
CAREGIVER

CALL CENTERS AND
REMOTE SUPPORT

www.netspective.com

HOSPITAL

ALTERNATE
SITE OF
CARE
27
NETSPECTIVE

Needed: automated diagnostics

www.netspective.com

28
Modern Microapps and Services Approach (Sample)

Browser Accessible
Bootstrap
Backplane

Identity
Manager

Domain
Services

CMS

LDAP

oData
LDIF

Domain

SQLV

oData
RDFa
HTML5 DA

Services

RDBMS

Bootstrap
AngularJS

Entity

Services

SQLV

Limited FK
Constraints

Analytics
SQL/Cube

Service

www.netspective.com

Micro Apps

Services

Rich client only
or tiny server
frameworks
(Mojo, Rack, etc.)

oData

Bootstrap
AngularJS
Backplane

SQLV
RDBMS

Third Party

oData

Reporting
Apps

ElasticSearch

XMPP

RDFa
HTML5 Data Attrs

Widgets

Entity

RDBMS

ETL

No Direct Table
Access
Separate Schemas
No FK Constraints

oAuth

SAML

RDFa
HTML5 Data Attrs

Search
Service

syslog

iCal

Log/Monitor
Service

CalDAV
Service

Bootstrap
Backplane

oData

Doc/Blob
Service

Rules

Service

oData
XACML
29
How do we modernize integration?
NETSPECTIVE

Why health IT systems integrate poorly
•
•

•

•
•

Permissions-oriented culture
prevents tinkering and “hacking”
We don't support shared identities,
single sign on (SSO), and industryneutral authentication and
authorization
We’re looking for "structured data
integration" instead of "practical app
integration" in our early project
phases
We create large monolithic data
warehouses instead of small service
oriented databases
We “push" data everywhere instead
of "pulling" it when necessary

www.netspective.com

•
•
•
•
•

We assume EHRs the center of
the universe
We accept and reward vendors
that don’t care about integration
We have “Inside out” architecture,
not “Outside in”
We're too focused on heavyweight
industry-specific formats instead of
lightweight or micro formats
Data emitted is not tagged using
semantic markup, so it's not
securable or searchable by default

31
NETSPECTIVE

Don’t assume your EHR will manage your data
The EHR can not be the center of the healthcare data ecosystem

• Most non-open-source
EHR solutions are
designed to put data in
but not get data out
• Never build your data
integration strategy with
the EHR in the center,
create it using the EHR as
a first-class citizen
Why EHRs are not (yet) disruptive
http://www.christenseninstitute.org/why-ehrs-are-not-yet-disruptive/
www.netspective.com

32
NETSPECTIVE

Encourage clinical “tinkering” and “hacking”
It’s ok to not know the answer in advance

• Clinicians usually go
into medicine because
they’re problem solvers
• Today’s permissionsoriented culture now
prevents “playing” with
data and discovering
solutions
www.netspective.com

33
NETSPECTIVE

Promote “Outside-in” architecture
Think about clinical and
hospital operations and
processes as a collection
of business capabilities or
services that can be
delivered across
organizations.
www.netspective.com

34
NETSPECTIVE

Integration improves focus on the real customer
Inside-out focus

IT
Personnel

Outside-in focus

Internal
business
users and
HCPs

HCP and
Staff
Evaluators

External
HCPs

Patients

Sophisticated and
more agile focus

Unsophisticated and
less agile focus
HCPs = healthcare providers
www.netspective.com

35
NETSPECTIVE

Implement industry-neutral ICAM

Implement shared identities, single sign on (SSO), neutral authentication and authorization

Proprietary identity is hurting us
•

•

Most health IT systems create their own
custom identity, credentialing, and access
management (ICAM) in an opaque part of
a proprietary database.
We’re waiting for solutions from health IT
vendors but free or commercial industryneutral solutions are much better and
future proof.

www.netspective.com

Identity exchange is possible
• Follow National Strategy for Trusted Identities
in Cyberspace (NSTIC)
• Use open identity exchange protocols such as
SAML, OpenID, and Oauth
• Use open roles and permissions-management
protocols, such as XACML
• Consider open source tools such as OpenAM,
Apache Directory, OpenLDAP Shibboleth, or
,
commercial vendors.
• Externalize attribute-based access control
(ABAC) and role-based access control (RBAC)
from clinical systems into enterprise systems
like Active Directory or LDAP
.

36
NETSPECTIVE

App-focused integration is better than nothing
Structured data dogma gets in the way of faster decision support real solutions

Dogma is preventing integration

App-centric sharing is possible

Many think that we shouldn’t integrate
until structured data at detailed machinecomputable levels is available.
The thinking is that because mistakes can
be made with semi-structured or hard to
map data, we should rely on paper, make
users live with missing data, or just make
educated guesses instead.

Instead of waiting for HL7 or other structured
data about patients, we can use simple
techniques like HTML widgets to share
"snippets" of our apps.
• Allow applications immediate access to
portions of data they don't already manage.
• Widgets are portions of apps that can be
embedded or "mashed up" in other apps
without tight coupling.
• Blue Button has demonstrated the power of
app integration versus structured data
integration. It provides immediate benefit to
users while the data geeks figure out what
they need for analytics, computations, etc.
• Consider Direct for app-centric connectivity.

www.netspective.com

37
NETSPECTIVE

Pushing data is more expensive than pulling it
We focus more on "pushing" versus "pulling" data than is warranted early in projects

Old way to architect:
“What data can you send me?” (push)

Better way to architect:
“What data can I publish safely?” (pull)

The "push" model, where the system that
contains the data is responsible for sending the
data to all those that are interested (or to some
central provider, such as a health information
exchange or HL7 router) shouldn’t be the only
model used for data integration.

• Implement FHIR or syndicated Atom-like feeds
(which could contain HL7 or other formats).
• Data holders should allow secure authenticated
subscriptions to their data and not worry about
direct coupling with other apps.
• Consider the Open Data Protocol (oData).
• Enable auditing of protected health information
by logging data transfers through use of syslog
and other reliable methods.
• Enable proper access control rules expressed in
standards like XACML.
• Consider Direct for connectivity if you can’t get
away from ‘push’.

www.netspective.com

38
NETSPECTIVE

Move to service-oriented (de-identifiable) data
Don’t assume all your data has to go into a giant data warehouse

Old way to architect:
Monolithic RDBMS-based data warehouse

Better way to architect:
Service-oriented databases on RDBMS/NoSQL

The centralized clinical data warehouse (CDW)
model, where a massive multi-year project
creates a monolithic relational database that all
analytics will run off was fine when retrospective
reporting is what defined analytics. This old
architecture won’t work in modern predictive
analytics and mobile-centric requirements.

• Drive transactional ACID-based data
requirements to RDBMS and consider columnstores, document-stores, and network-stores for
other kinds of data
• Break relationships between data and store
lookup, transactional, predictive, scoring, risk
strat, trial associated, retrospective, identity,
mortality ratios, and other types of data based on
their usage criteria not developer convenience
• Use translucent encryption and auto-deidentification of data to make it more useful
without further processing
• Design for decentralized sync’ing of data (e.g.
mobile, etc.) not centralized ETL

www.netspective.com

39
NETSPECTIVE

An example of structuring data for analysis
Preparing data is important

Hard to secure data structures

Easier to secure data structures

http://www.ibm.com/developerworks/data/library/techarticle/dm-ind-ehr/
www.netspective.com

40
NETSPECTIVE

Industry-specific formats aren’t always necessary

Reliance on heavyweight industry-specific formats instead of lightweight micro formats is bad

HL7 and X.12 aren’t the only formats

Consider industry-neutral protocols

The general assumption is that
formats like HL7, CCD, and X.12 are
the only ways to do data integration
in healthcare but of course that’s
not quite true.

•

•
•
•

www.netspective.com

Consider identity exchange
protocols like SAML for integration
of user profile data and even for
exchange of patient demographics
and related profile information.
Consider iCalendar/ICS publishing
and subscribing for schedule data.
Consider microformats like FOAF
and similar formats from
schema.org.
Consider semantic data formats
like RDF, RDFa, and related family.
41
NETSPECTIVE

Tag all app data using semantic markup

When data is not tagged using semantic markup, it's not securable or shareable by default

Legacy systems trap valuable data

Semantic markup and tagging is easy

In many existing contracts, the
vendors of systems that house the
data also ‘own’ the data and it can’t
be easily liberated because the
vendors of the systems actively
prevent it from being shared or are
just too busy to liberate the data.

• One easy way to create semantically
meaningful and easier to share and
secure patient data is to have all
HTML tags be generated with
companion RDFa or HTML5 Data
Attributes using industry-neutral
schemas and microformats similar to
the ones defined at Schema.org.
• Google's recent implementation of
its Knowledge Graph is a great
example of the utility of this
semantic mapping approach.

www.netspective.com

42
NETSPECTIVE

Produce data in search-friendly manner

Produce HTML, JavaScript and other data in a security- and integration-friendly approach

Proprietary data formats limit findability

Search engines are great integrators

• Legacy applications only present
through text or windowed
interfaces that can be “scraped”.
• Web-based applications present
HTML, JavaScript, images, and
other assets but aren’t search
engine friendly.

• Most users need access to
information trapped in existing
applications but sometimes they
don’t need must more than access
that a search engine could easily
provide.
• Assume that all pages in an
application, especial web
applications, will be “ingested” by
a securable, protectable, search
engine that can act as the first
method of integration.

www.netspective.com

43
NETSPECTIVE

Rely first on open source, then proprietary

“Free” is not as important as open source, you should pay for software but require openness

Healthcare fears open source

Open source can save health IT

• Only the government spends more per
user on antiquated software than we do
in healthcare.
• There is a general fear that open source
means unsupported software or lower
quality solutions or unwanted security
breaches.

• Other industries save billions by using
open source.
• Commercial vendors give better pricing,
service, and support when they know
they are competing with open source.
• Open source is sometimes more secure,
higher quality, and better supported
than commercial equivalents.
• Don’t dismiss open source, consider it
the default choice and select commercial
alternatives when they are known to be
better.

www.netspective.com

44
Modern Microapps and Services Approach (Sample)

Browser Accessible
Bootstrap
Backplane

Identity
Manager

Domain
Services

CMS

LDAP

oData
LDIF

Domain

SQLV

oData
RDFa
HTML5 DA

Services

RDBMS

Bootstrap
AngularJS

Entity

Services

SQLV

Limited FK
Constraints

Analytics
SQL/Cube

Service

www.netspective.com

Micro Apps

Services

Rich client only
or tiny server
frameworks
(Mojo, Rack, etc.)

oData

Bootstrap
AngularJS
Backplane

SQLV
RDBMS

Third Party

oData

Reporting
Apps

ElasticSearch

XMPP

RDFa
HTML5 Data Attrs

Widgets

Entity

RDBMS

ETL

No Direct Table
Access
Separate Schemas
No FK Constraints

oAuth

SAML

RDFa
HTML5 Data Attrs

Search
Service

syslog

iCal

Log/Monitor
Service

CalDAV
Service

Bootstrap
Backplane

oData

Doc/Blob
Service

Rules

Service

oData
XACML
45
NETSPECTIVE

Primary challenges
•
•
•
•
•

Tooling strategy must be comprehensive. What hardware and
software tools are available to non-technical personnel to encourage
sharing?
Formats matter. Are you using entity resolution, master data and
metadata schemas, documenting your data formats, and access
protocols?
Incentivize data sharing. What are the rewards for sharing or penalties
for not sharing healthcare data?
Distribute costs. How are you going to allow data users to contribute
to the storage, archiving, analysis, and management costs?
Determine utilization. What metrics will you use determine what’s
working and what’s not?

www.netspective.com

46
NETSPECTIVE

Additional Information
• OSEHRA website: www.osehra.org
• HardHats.org: http://www.hardhats.org
• MUMPS

– http://en.wikipedia.org/wiki/MUMPS
– http://www.mcenter.com/mtrc/mfaqhtm1.html

• World Vista: www.worldvista.org
• Webnairs:
https://www.vxvista.org/display/vx4Learn/Recorded+
Webinars
www.netspective.com

47
Visit
http://www.netspective.com
http://www.healthcareguy.com
E-mail shahid.shah@netspective.com
Follow @ShahidNShah
Call 202-713-5409

Thank You

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OSEHRA is a Great Business Opportunity for Systems Integrators

  • 1. OSEHRA is a great business opportunity for health IT vendors and system integrators 2nd Annual OSEHRA Summit Shahid N. Shah Chairman of OSEHRA Advisory Board
  • 2. NETSPECTIVE Who is Shahid? • • • • Chairman, OSEHRA Board of Advisors 20+ years of software engineering and multi-discipline complex IT implementations (Gov., defense, health, finance, insurance) 12+ years of healthcare IT and medical devices experience (blog at http://healthcareguy.com) 15+ years of technology management experience (government, non-profit, commercial) www.netspective.com Author of Chapter 13, “You’re the CIO of your Own Office” 2
  • 3. NETSPECTIVE What’s this talk about? Background • • • EHRs are not the center of the healthcare data ecosystem. Applications come and go, data lives forever. He who owns, integrates, and uses data wins in the end. Never leave data in the hands of the application only. www.netspective.com Key takeaways • • OSEHRA is major business opportunity for ISVs and systems integrators There’s nothing special about health IT data that justifies complex, expensive, or special technology. 3
  • 4. NETSPECTIVE VA, VHA, VistA, and OSEHRA Top-notch pedigree and a well funded buyer of innovation VA FY2012 IT Spend: $3.1 B VHA OSEHRA 2011 VistA EHR Code Community Convergence, Refactoring OSEHRA Core Free or Commercial 2013 Contributed Core Data 1 Facility 2 … OSEHRA Add-ons Contributed Add-ons Data 2 Facility 1 … IV&V (Test, Docs) Contributed Tests/Docs Certify Commercial Deployments Coordination Innovation OSEHRA Deployment Delivery www.netspective.com 2013 4
  • 5. NETSPECTIVE How OSEHRA makes the market bigger Market generation and economic benefits New businesses can be created which service OSEHRA code, technologies, etc. and make revenue from said services www.netspective.com New system integration business or existing ones can augment their products / services to include OSEHRA capabilities 5
  • 6. NETSPECTIVE How OSEHRA makes the market bigger Market generation and economic benefits New or existing hosting / datacenter businesses can offer fully hosted OSEHRA capabilities directly to clinicians or even at some point VA/DoD/IHS www.netspective.com New revenue centers in existing or new businesses can take common certification criteria and build tools around it for automated testing, documentation preparation, etc. 6
  • 8. NETSPECTIVE The realities of patient populations Prevention • Education • Health Promotions • Healthy Lifestyle Choices • Health Risk Assessment Management • Obesity Management • Wellness Management • • • • • • • Assessment – HRA Stratification Dietary Physical Activity Physician Coordination Social Network Behavior Modification • Diabetes • COPD • CHF • • • • • Stratification & Enrollment Disease Management Care Coordination MD Pay-for-Performance Patient Coaching • • • • Physicians Office Hospital Other sites Pharmacology • Catastrophic Case Management • Utilization Management • Care Coordination • Co-morbidities 26 % of Population 35 % of Population 35 % of Population 4% of Population 4 % of Medical Costs 22 % of Medical Costs 37 % of Medical Costs 36 % of Medical Costs Source: Amir Jafri, PrescribeWell www.netspective.com 8
  • 9. NETSPECTIVE Patient Collaboration Maturity Model Accountable Care Integrated Care Coordinated Care Connected Care Independent Care www.netspective.com Choosing a single EHR vendor as your platform for connected care won’t work beyond integrated care scenarios. 9
  • 10. NETSPECTIVE We’re digitizing biology Last and past decades Digitize mathematics Digitize literature Digitize social behavior Predict human behavior Gigabytes and petabytes www.netspective.com This and future decades Digitize biology Digitize chemistry Digitize physics Predict fundamental behaviors Petabytes and exabytes 10
  • 11. NETSPECTIVE We’re repurposing and enhancing health data Try to use existing data to create new diagnostics or therapeutic solutions Economics Administrative www.netspective.com Phenotypics Behavioral Biochemical Genomics Proteomics IOT sensors 11
  • 12. NETSPECTIVE Healthcare industry / market trends Major market and regulatory trends that are causing customers and competitors to shift You must learn and be able to talk to customers about all these terms PPACA ACO PCMH “Affordable Care Act” “Accountable Care Org” “Medical Home” Health Home www.netspective.com mHealth MU “Meaningful Use” PCPCC “Patient Centered Care” 12
  • 13. NETSPECTIVE Implications of healthcare trends PPACA ACO Software Regulated IT and Systems Integration Services MU Health Home www.netspective.com PCMH mHealth DATA Evidence Based Medicine Comparative Effectiveness 13
  • 14. NETSPECTIVE The new world order General Wellness Specific Prevention Self Service Physiologics Self Service Monitoring Healthcare Professional Monitoring Care Team Diagnostics Care Team Monitoring Self Service Diagnostics Healthcare Professional Diagnostics Hospital Monitoring Hospital Diagnostics www.netspective.com 14
  • 15. NETSPECTIVE We’re in the integration age We’re not in an app-driven future but an integrationdriven future. He who integrates the best, wins. Source: Geoffrey Raines, MITRE www.netspective.com 15
  • 16. What are we doing wrong when it comes to health IT applications? What’s the problem?
  • 17. NETSPECTIVE Why you can’t just “buy integration” Myth • I only have a few systems to integrate • I know all my data formats • I know where all my data is and most of it is valid • My vendor already knows how all this works and will solve my problems www.netspective.com Truth • There are actually hundreds of systems • There are dozens of formats you’re not aware of • Lots of data is missing and data quality is poor • Tons of undocumented databases and sources • Vendors aren’t incentivized to integrate data 17
  • 18. NETSPECTIVE Application focus is biggest mistake Application-focused IT instead of Data-focused IT is causing business problems. Silos of information exist across groups (duplication, little sharing) Clinical Apps Billing Apps Lab Apps Other Apps Healthcare Provider Systems Patient Apps Partner Systems Poor data integration across application bases www.netspective.com 18
  • 19. NETSPECTIVE The Strategy: Modernize Integration Need to get existing applications to share data through modern integration techniques Clinical Apps NCI App Billing Apps Lab Other Apps Apps NEI App Healthcare Provider Systems Patient Apps NHLBI App Partner Systems Master Data Management, Entity Resolution, and Data Integration Improved integration by services that can communicate between applications www.netspective.com 19
  • 20. NETSPECTIVE Important needs of non-Gov clinical customers OSEHRA needs to get non-government clinical customers but there are important gaps Easy to install packages that make it possible to experiment with OSEHRA code Patient portal integration www.netspective.com RCM integration Interoperable with existing systems (labs, pharma, etc.) 20
  • 21. NETSPECTIVE Value-adds to clinical users The conceptual ROI for OSEHRA activities More functionality Faster delivery Interoperability www.netspective.com Better integration Free EHR 21
  • 22. NETSPECTIVE Important needs of engineering customers OSEHRA needs to get non-government clinical customers but there are important gaps Easy to install packages that make it possible to experiment with OSEHRA code Common data model Platform to build on (APIs, etc.) www.netspective.com Common identity management Ability to build mHealth apps on top of OSEHRA 22
  • 23. NETSPECTIVE Needed: Reimagined User Interactions Data visualization requires integration and aggregation What’s being offered to users www.netspective.com What users really want 23
  • 24. NETSPECTIVE Needed: Self-service applications Patient Scheduling for Services Secure Social Patient Relationship Management (PRM) Patient Communications, SMS, IM, E-mail, Voice, and Telehealth Patient Education, Calculators, Widgets, Content Management Blue Button, HL7, X.12, HIEs, EHR, and HealthVault Integration E-commerce, Ads, Subscriptions, and Activity-based Billing Accountable Care, Patient Care Continuity and Coordination Patient Family and Community Engagement Patient Consent, Permissions, and Disclosure Management www.netspective.com 24
  • 25. NETSPECTIVE Needed: diagnostic quality mHealth www.netspective.com 25
  • 27. NETSPECTIVE Needed: care team involvement PATIENT/ CONSUMER HEALTHCAR E PROVIDER Care Team FAMILY CAREGIVER CALL CENTERS AND REMOTE SUPPORT www.netspective.com HOSPITAL ALTERNATE SITE OF CARE 27
  • 29. Modern Microapps and Services Approach (Sample) Browser Accessible Bootstrap Backplane Identity Manager Domain Services CMS LDAP oData LDIF Domain SQLV oData RDFa HTML5 DA Services RDBMS Bootstrap AngularJS Entity Services SQLV Limited FK Constraints Analytics SQL/Cube Service www.netspective.com Micro Apps Services Rich client only or tiny server frameworks (Mojo, Rack, etc.) oData Bootstrap AngularJS Backplane SQLV RDBMS Third Party oData Reporting Apps ElasticSearch XMPP RDFa HTML5 Data Attrs Widgets Entity RDBMS ETL No Direct Table Access Separate Schemas No FK Constraints oAuth SAML RDFa HTML5 Data Attrs Search Service syslog iCal Log/Monitor Service CalDAV Service Bootstrap Backplane oData Doc/Blob Service Rules Service oData XACML 29
  • 30. How do we modernize integration?
  • 31. NETSPECTIVE Why health IT systems integrate poorly • • • • • Permissions-oriented culture prevents tinkering and “hacking” We don't support shared identities, single sign on (SSO), and industryneutral authentication and authorization We’re looking for "structured data integration" instead of "practical app integration" in our early project phases We create large monolithic data warehouses instead of small service oriented databases We “push" data everywhere instead of "pulling" it when necessary www.netspective.com • • • • • We assume EHRs the center of the universe We accept and reward vendors that don’t care about integration We have “Inside out” architecture, not “Outside in” We're too focused on heavyweight industry-specific formats instead of lightweight or micro formats Data emitted is not tagged using semantic markup, so it's not securable or searchable by default 31
  • 32. NETSPECTIVE Don’t assume your EHR will manage your data The EHR can not be the center of the healthcare data ecosystem • Most non-open-source EHR solutions are designed to put data in but not get data out • Never build your data integration strategy with the EHR in the center, create it using the EHR as a first-class citizen Why EHRs are not (yet) disruptive http://www.christenseninstitute.org/why-ehrs-are-not-yet-disruptive/ www.netspective.com 32
  • 33. NETSPECTIVE Encourage clinical “tinkering” and “hacking” It’s ok to not know the answer in advance • Clinicians usually go into medicine because they’re problem solvers • Today’s permissionsoriented culture now prevents “playing” with data and discovering solutions www.netspective.com 33
  • 34. NETSPECTIVE Promote “Outside-in” architecture Think about clinical and hospital operations and processes as a collection of business capabilities or services that can be delivered across organizations. www.netspective.com 34
  • 35. NETSPECTIVE Integration improves focus on the real customer Inside-out focus IT Personnel Outside-in focus Internal business users and HCPs HCP and Staff Evaluators External HCPs Patients Sophisticated and more agile focus Unsophisticated and less agile focus HCPs = healthcare providers www.netspective.com 35
  • 36. NETSPECTIVE Implement industry-neutral ICAM Implement shared identities, single sign on (SSO), neutral authentication and authorization Proprietary identity is hurting us • • Most health IT systems create their own custom identity, credentialing, and access management (ICAM) in an opaque part of a proprietary database. We’re waiting for solutions from health IT vendors but free or commercial industryneutral solutions are much better and future proof. www.netspective.com Identity exchange is possible • Follow National Strategy for Trusted Identities in Cyberspace (NSTIC) • Use open identity exchange protocols such as SAML, OpenID, and Oauth • Use open roles and permissions-management protocols, such as XACML • Consider open source tools such as OpenAM, Apache Directory, OpenLDAP Shibboleth, or , commercial vendors. • Externalize attribute-based access control (ABAC) and role-based access control (RBAC) from clinical systems into enterprise systems like Active Directory or LDAP . 36
  • 37. NETSPECTIVE App-focused integration is better than nothing Structured data dogma gets in the way of faster decision support real solutions Dogma is preventing integration App-centric sharing is possible Many think that we shouldn’t integrate until structured data at detailed machinecomputable levels is available. The thinking is that because mistakes can be made with semi-structured or hard to map data, we should rely on paper, make users live with missing data, or just make educated guesses instead. Instead of waiting for HL7 or other structured data about patients, we can use simple techniques like HTML widgets to share "snippets" of our apps. • Allow applications immediate access to portions of data they don't already manage. • Widgets are portions of apps that can be embedded or "mashed up" in other apps without tight coupling. • Blue Button has demonstrated the power of app integration versus structured data integration. It provides immediate benefit to users while the data geeks figure out what they need for analytics, computations, etc. • Consider Direct for app-centric connectivity. www.netspective.com 37
  • 38. NETSPECTIVE Pushing data is more expensive than pulling it We focus more on "pushing" versus "pulling" data than is warranted early in projects Old way to architect: “What data can you send me?” (push) Better way to architect: “What data can I publish safely?” (pull) The "push" model, where the system that contains the data is responsible for sending the data to all those that are interested (or to some central provider, such as a health information exchange or HL7 router) shouldn’t be the only model used for data integration. • Implement FHIR or syndicated Atom-like feeds (which could contain HL7 or other formats). • Data holders should allow secure authenticated subscriptions to their data and not worry about direct coupling with other apps. • Consider the Open Data Protocol (oData). • Enable auditing of protected health information by logging data transfers through use of syslog and other reliable methods. • Enable proper access control rules expressed in standards like XACML. • Consider Direct for connectivity if you can’t get away from ‘push’. www.netspective.com 38
  • 39. NETSPECTIVE Move to service-oriented (de-identifiable) data Don’t assume all your data has to go into a giant data warehouse Old way to architect: Monolithic RDBMS-based data warehouse Better way to architect: Service-oriented databases on RDBMS/NoSQL The centralized clinical data warehouse (CDW) model, where a massive multi-year project creates a monolithic relational database that all analytics will run off was fine when retrospective reporting is what defined analytics. This old architecture won’t work in modern predictive analytics and mobile-centric requirements. • Drive transactional ACID-based data requirements to RDBMS and consider columnstores, document-stores, and network-stores for other kinds of data • Break relationships between data and store lookup, transactional, predictive, scoring, risk strat, trial associated, retrospective, identity, mortality ratios, and other types of data based on their usage criteria not developer convenience • Use translucent encryption and auto-deidentification of data to make it more useful without further processing • Design for decentralized sync’ing of data (e.g. mobile, etc.) not centralized ETL www.netspective.com 39
  • 40. NETSPECTIVE An example of structuring data for analysis Preparing data is important Hard to secure data structures Easier to secure data structures http://www.ibm.com/developerworks/data/library/techarticle/dm-ind-ehr/ www.netspective.com 40
  • 41. NETSPECTIVE Industry-specific formats aren’t always necessary Reliance on heavyweight industry-specific formats instead of lightweight micro formats is bad HL7 and X.12 aren’t the only formats Consider industry-neutral protocols The general assumption is that formats like HL7, CCD, and X.12 are the only ways to do data integration in healthcare but of course that’s not quite true. • • • • www.netspective.com Consider identity exchange protocols like SAML for integration of user profile data and even for exchange of patient demographics and related profile information. Consider iCalendar/ICS publishing and subscribing for schedule data. Consider microformats like FOAF and similar formats from schema.org. Consider semantic data formats like RDF, RDFa, and related family. 41
  • 42. NETSPECTIVE Tag all app data using semantic markup When data is not tagged using semantic markup, it's not securable or shareable by default Legacy systems trap valuable data Semantic markup and tagging is easy In many existing contracts, the vendors of systems that house the data also ‘own’ the data and it can’t be easily liberated because the vendors of the systems actively prevent it from being shared or are just too busy to liberate the data. • One easy way to create semantically meaningful and easier to share and secure patient data is to have all HTML tags be generated with companion RDFa or HTML5 Data Attributes using industry-neutral schemas and microformats similar to the ones defined at Schema.org. • Google's recent implementation of its Knowledge Graph is a great example of the utility of this semantic mapping approach. www.netspective.com 42
  • 43. NETSPECTIVE Produce data in search-friendly manner Produce HTML, JavaScript and other data in a security- and integration-friendly approach Proprietary data formats limit findability Search engines are great integrators • Legacy applications only present through text or windowed interfaces that can be “scraped”. • Web-based applications present HTML, JavaScript, images, and other assets but aren’t search engine friendly. • Most users need access to information trapped in existing applications but sometimes they don’t need must more than access that a search engine could easily provide. • Assume that all pages in an application, especial web applications, will be “ingested” by a securable, protectable, search engine that can act as the first method of integration. www.netspective.com 43
  • 44. NETSPECTIVE Rely first on open source, then proprietary “Free” is not as important as open source, you should pay for software but require openness Healthcare fears open source Open source can save health IT • Only the government spends more per user on antiquated software than we do in healthcare. • There is a general fear that open source means unsupported software or lower quality solutions or unwanted security breaches. • Other industries save billions by using open source. • Commercial vendors give better pricing, service, and support when they know they are competing with open source. • Open source is sometimes more secure, higher quality, and better supported than commercial equivalents. • Don’t dismiss open source, consider it the default choice and select commercial alternatives when they are known to be better. www.netspective.com 44
  • 45. Modern Microapps and Services Approach (Sample) Browser Accessible Bootstrap Backplane Identity Manager Domain Services CMS LDAP oData LDIF Domain SQLV oData RDFa HTML5 DA Services RDBMS Bootstrap AngularJS Entity Services SQLV Limited FK Constraints Analytics SQL/Cube Service www.netspective.com Micro Apps Services Rich client only or tiny server frameworks (Mojo, Rack, etc.) oData Bootstrap AngularJS Backplane SQLV RDBMS Third Party oData Reporting Apps ElasticSearch XMPP RDFa HTML5 Data Attrs Widgets Entity RDBMS ETL No Direct Table Access Separate Schemas No FK Constraints oAuth SAML RDFa HTML5 Data Attrs Search Service syslog iCal Log/Monitor Service CalDAV Service Bootstrap Backplane oData Doc/Blob Service Rules Service oData XACML 45
  • 46. NETSPECTIVE Primary challenges • • • • • Tooling strategy must be comprehensive. What hardware and software tools are available to non-technical personnel to encourage sharing? Formats matter. Are you using entity resolution, master data and metadata schemas, documenting your data formats, and access protocols? Incentivize data sharing. What are the rewards for sharing or penalties for not sharing healthcare data? Distribute costs. How are you going to allow data users to contribute to the storage, archiving, analysis, and management costs? Determine utilization. What metrics will you use determine what’s working and what’s not? www.netspective.com 46
  • 47. NETSPECTIVE Additional Information • OSEHRA website: www.osehra.org • HardHats.org: http://www.hardhats.org • MUMPS – http://en.wikipedia.org/wiki/MUMPS – http://www.mcenter.com/mtrc/mfaqhtm1.html • World Vista: www.worldvista.org • Webnairs: https://www.vxvista.org/display/vx4Learn/Recorded+ Webinars www.netspective.com 47