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The Construction of
Disability & Health:
Integration vs. Inclusion
Institutionalization and Isolation
APHA Disability Section
Chair’s Forum 2013
Integration vs. Inclusion
Mary Olson and Robert Liston
“…if the way that disabled
people are expected to get
into a building is round the
back, past the bins and
through the kitchens, what
does that message
communicate? How will it
make a disabled person
feel?”
~Napolitano, 1995

“Good inclusive design will
send positive messages to
disabled people, messages
which tell them: ‘you are
important’; ‘we want you
here’; and ‘welcome’…”
~Napolitano, 1995
Integration
• You can legislate integration and
accessibility- but not attitudes or
inclusion
• Barriers to inclusion
• Space is organized to perpetuate the
dominance of ‘able-bodied’ people
Inclusion
• A belief that communities are better when
representing all people.
• Being in the community vs. being part of the
community.
• Special Places

• Environments that exclude people with disabilities
are constructed
For Your Consideration
• What would a world of inclusion vs. integration look
like?
• How can we change landscape to facilitate
inclusion?
Institutionalization & Isolation
Mary Olson and Robert Liston
“An understanding of how disabled
people become marginalized and
excluded within society cannot be
understood without an appreciation of
the socio-spatial processes that
reproduce social relations .”
~Kitchin, 1998
Institutions as Exclusionary Spaces
• As a way to separate those who are
“deviant”
• Creation of institutions
• Types of Institutions across time
• Modern Definition: Places people live
without choice or as default
Socio-spatial Isolation
Historical interactions create culture
• Where do people belong?
• Where can people’s needs be met?
What spaces teach us
• Out of sight, out of mind
• “Othering”, difference is “bad”
• Culturally reinforcing
• Perceptions of where people with disabilities fit &
how they belong
The Role of Systems
State Sponsored Isolations
• Institutional bias in Medicaid’s long-term care
• Economic benefit to communities

Possibilities
• Money Follows the Person

• Community First Choice Option
For Your Consideration
How do isolation and institutionalization influence:
– How we perceive people with disabilities?
– How we run our services?
– How we build our environments?

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The Construction of Disability and Health: Institutionalization, Isolation, Integration....Inclusion.

  • 1. The Construction of Disability & Health: Integration vs. Inclusion Institutionalization and Isolation APHA Disability Section Chair’s Forum 2013
  • 2. Integration vs. Inclusion Mary Olson and Robert Liston
  • 3. “…if the way that disabled people are expected to get into a building is round the back, past the bins and through the kitchens, what does that message communicate? How will it make a disabled person feel?” ~Napolitano, 1995 “Good inclusive design will send positive messages to disabled people, messages which tell them: ‘you are important’; ‘we want you here’; and ‘welcome’…” ~Napolitano, 1995
  • 4. Integration • You can legislate integration and accessibility- but not attitudes or inclusion • Barriers to inclusion • Space is organized to perpetuate the dominance of ‘able-bodied’ people
  • 5. Inclusion • A belief that communities are better when representing all people. • Being in the community vs. being part of the community. • Special Places • Environments that exclude people with disabilities are constructed
  • 6.
  • 7. For Your Consideration • What would a world of inclusion vs. integration look like? • How can we change landscape to facilitate inclusion?
  • 8. Institutionalization & Isolation Mary Olson and Robert Liston
  • 9. “An understanding of how disabled people become marginalized and excluded within society cannot be understood without an appreciation of the socio-spatial processes that reproduce social relations .” ~Kitchin, 1998
  • 10. Institutions as Exclusionary Spaces • As a way to separate those who are “deviant” • Creation of institutions • Types of Institutions across time • Modern Definition: Places people live without choice or as default
  • 11. Socio-spatial Isolation Historical interactions create culture • Where do people belong? • Where can people’s needs be met? What spaces teach us • Out of sight, out of mind • “Othering”, difference is “bad” • Culturally reinforcing • Perceptions of where people with disabilities fit & how they belong
  • 12. The Role of Systems State Sponsored Isolations • Institutional bias in Medicaid’s long-term care • Economic benefit to communities Possibilities • Money Follows the Person • Community First Choice Option
  • 13. For Your Consideration How do isolation and institutionalization influence: – How we perceive people with disabilities? – How we run our services? – How we build our environments?

Editor's Notes

  1. Thank you
  2. They are “normal” because we (society) make them so.