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Research 3 HINTS TO AUTISM principal investigator in the National Institute of go by. But using the wrong intervention for a
Mental Healthʼs Intramural Research Program child with ASD can squander a precious window
on autism. “Weʼre muddying the waters.” Not of opportunity. Learning is life long, but many
everyone concurs, “In many areas of the country, kids who receive intensive intervention early,

demonstrates that
there is still a problem with under-diagnosis,” in their first five years, do better than those

are distributed into autistic traits
says Nancy Minshew, M.D. a professor of who receive it later.” Establishing treatment

the non-autistic po
psychiatry and neurology at the University of standards so parents can choose effective

more of them, some pulation; some peop
Pittsburghʼs School of Medicine. There is also programs is the mission of the newly organized

have fewer. History le have
growing concern that minority children are NAC (National Autism Center).
diagnosedat a rate far below that of Caucasian

viduals whom we suggests that many kids, and at later ages.

would today diagn indi- THE GOOD NEW
so - contributed pro ose as autistic - so Experts do agree, however, that there is no one

foundly to our art, me severely Autism was first described and named thing called autism, but that there are autisms
Millions of dollars have been

our math, our scien
spent to determine what autism

our literature. “
in 1943 and was said to comprise three - the broad categories of “regressive” and

ce, and
common characteristics:
“non-regressive” types, as well as subtypes is, what causes it, and how we
• Autistic children prefer to relate to within these categories. To help clear up the might prevent or cure it. And
objects over people controversy, the National Institute of Mental thatʼs all to the good. Weʼre on
Health launched a vast study last September the brink of learning which genes

-- Morton Gernsba
• Theyʼre obsessed with maintaining to identify variants and refine the way doctors predispose a child to autism and

cher, parent of an
routines and sameness in their lives
make diagnoses. So as prevalent as autism is. what might trigger its onset.

autistic child.
• They tend to seek complete aloneness, While a cure is not yet in sight,
shutting out the world around them. DIAGNOSIS & TREATMENT
evʼve begun to figure out what
How can you know - and how ealry can you find
works for some children, in terms
out - if your child falls anywhere on the broad of intervention between the ages
concerns. spectrum? of 12 months and 5 years. “I
While the disorder has always been said to do think, on balance, kids are
represent a “spectrum,” or range, of problems, Parents whoʼve noted that their 14-month old doing better,” says Dr. Volkmar.
today more children than in the past whose doesnʼt babble or point, is losing skills, or “Twenty-five years ago, when I
symptoms show both moreand less- severity isnʼt talking by 18 months should talk to their did my first follow-up on adults
are included. For instance,kids with Asperger pediatrician and get a deveopmental screening. Iʼd diagnosed as kids - kids
syndrome, which refers to high intelligence If it indicates a possible problem, you should be
who never had any intervention
without language deficits but with social referred to a specialist who can evaluate your
- only about two percent could
impairments, are placed on the spectrum, as child further using tools such as the Autism
are those whose symptoms are so severe that Diagnostic Observation Schedule (ADOS), a
live along, hold a job. But since
a generation ago they would have been termed workup done by observing and interacting with we started mandating education
mentally retarded. the child. and services, weʼre seeing more
independent kids. Iʼd say that
No one disputes that the number of children That said, getting a qualified medical two percent has become more
diagnosed with an autistic spectrum disorder diagnosis for an infant or a toddler is not the like twenty.” In other words,
(ASD) has gone way up compared with statistics straightforward process it should be. Thereʼs weʼre doing ten times better than
from 30 years ago. “tremendous variability” in the skill that public we were doing a generation ago
But as widespread as ASD appears to be- agencies and private practices bring to the
Thatʼs the “growing number”
affecting as many as 1 in every 150 children, screening process, says Fred Volkmar, M.D.,
we s h o u l d b e a w a r e o f .
according to the Centers for Disease Control chairman of the Department of Child Study at
and Prevention - experts agree that it cannot be Yale University. “Weʼve put a lot of money into
A n d thatʼs the evidence we
called an “epidemic. research but not enough into translating that should start seeing.
research into medical practice.”
Research
-BRIAN DINOT The fact is, itʼs impossible to compare how

WHAT IS AUTISM? common autism is today with 10 or 20 years And a sound diagnosis is only the beginning.

AUTIS
demonstrates that autistic traits DIAGNOSIS & TREATMENT
ago. Not only are doctors better at spotting Treatment is the next step, and there are no
are distributed into the non- into translating that research into medical
ASD, so the diagnosis is more frequent, but fewer than ten types of interventions offered
autistic population; some people How can you know - and how ealry can you practice.”
many experts say that doctorsʼ interpretation nationwide that work to some degree, says Dr.

A
have more of them, some have find out - if your child falls anywhere on the
of the spectrum has become so inclusive that Volkmar.
tism seems to be everywhere these days a diagnosis of autism is no diagnosis at all.
fewer. History suggests that
many individuals whom we
broad spectrum? And a sound diagnosis is only the beginning.
Treatment is the next step, and there are no
“The use of the term has expanded to the point But usually only one type is available in any one
would today diagnose as autistic Parents whoʼve noted that their 14-month fewer than ten types of interventions offered
where children referred to me as autistic lack area. Making a choice (if there is one) between
old doesnʼt babble or point, is losing skills, nationwide that work to some degree, says
- in newspapers, on TV, even on bumper the social deficit, which is the core symptom,”
says Susan Swedo, M.D., a pediatrician and the
- some severely so - contributed
or among approaches not easy on the parent,
profoundly to our art, our math,
either, because theyʼre arenʼt clear standards to
or isnʼt talking by 18 months should talk to Dr. Volkmar.
our science, and our literature. “ their pediatrician and get a deveopmental
-- Morton Gernsbacher, parent of screening. If it indicates a possible problem, But usually only one type is available in
stickers. The rate is skyrocketing,reports an autistic child.
Family Living 3
you should be referred to a specialist who can
evaluate your child further using tools such as
any one area. Making a choice (if there is
one) between or among approaches not
the Autism Diagnostic Observation Schedule easy on the parent, either, because theyʼre
(ADOS), a workup done by observing and arenʼt clear standards to go by. But using
say. We all seem to know of at least one interacting with the child. the wrong intervention for a child with
ASD can squander a precious window of
That said, getting a qualified medical opportunity. Learning is life long, but many
child “on the spectrum.” diagnosis for an infant or a toddler is not the
straightforward process it should be. Thereʼs
kids who receive intensive intervention early,
in their first five years, do better than those
“tremendous variability” in the skill that who receive it later.” Establishing treatment
public agencies and private practices bring standards so parents can choose effective
And since the latest to the screening process, says Fred Volkmar, programs is the mission of the newly
M.D., chairman of the Department of Child organized NAC (National Autism Center).
Study at Yale University. “Weʼve put a
buzz suggests that early lot of money into research but not enough

AUTISM
intervention is crucial for
successful treatment, parents
of ever younger children are
AUTISM FACTS
searching for signs. Would • 1 in 150 children is diagnosed with autism
• 1 in 94 boys is on the autism spectrum
your pediatrician recognize • 67 children are diagnosed per day

them? Would you? The hype • A new case is diagnosed almost every 20 minutes
• More children will be diagnosed with autism this year than with AIDS, diabetes & cancer combined

is worrisome, but the truth • Autism is the fastest-growing serious developmental disability in the U.S.
• Autism costs the nation over $90 billion per year, a figure expected to double in the next decade

behind it should ease some • Autism receives less than 5% of the research funding of many less prevalent childhood diseases

• Boys are four times more likely than girls to have autism
• There is no medical detection or cure for autism

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