Home enzymatic therapy administration program for lysosomal diseases in Spain...Vicente Giner Galvañ
To summarize the key points from the document:
1. This study describes Spain's first national program for administering enzyme replacement therapy at home for stable patients with Fabry disease and Gaucher disease.
2. The program involved 16 patients from 11 hospitals across Spain who received agalsidase alfa or velaglucerase alfa infusions at home administered by nurses from a partner company.
3. Preliminary results found no secondary effects related to the home infusions and clinical parameters remained stable, suggesting home therapy is a safe and effective option for these patients in Spain.
Home enzymatic therapy administration program for lysosomal diseases in Spain...Vicente Giner Galvañ
To summarize the key points from the document:
1. This study describes Spain's first national program for administering enzyme replacement therapy at home for stable patients with Fabry disease and Gaucher disease.
2. The program involved 16 patients from 11 hospitals across Spain who received agalsidase alfa or velaglucerase alfa infusions at home administered by nurses from a partner company.
3. Preliminary results found no secondary effects related to the home infusions and clinical parameters remained stable, suggesting home therapy is a safe and effective option for these patients in Spain.
Talking with Your Family about Hereditary Cancerbkling
Karen E. Hurley, PhD, shares strategies for managing the sources of conflict that surround genetic testing within families, including whether or not to pursue testing, reaching out to at-risk relatives and the stress that can arise from hereditary disease. Dr. Hurley is a licensed clinical psychologist specializing in hereditary cancer risk.
Peter Ferdinand Drucker was an influential author and professor known as "The Father of Modern Management." He was born in Austria and became a U.S. citizen in 1943. Drucker made significant contributions in the fields of management, marketing, and economics. He emphasized management by objectives, organizational structure and functions, and conceptualized knowledge workers and the importance of treating workers as assets. Drucker authored 39 books and countless articles, influencing generations of business leaders and managers.
How to Make a Doll Jump Suit Tutorial - Jumpsuit Pattern - How to Make Doll Clothes
Making handmade doll crafts and sewing doll clothes is easy and fun in this how to make a doll jumpsuit Tutorial. Learn how to make this beautiful olive green Jumpsuit for your doll using the Jumpsuit pattern in this YouTube Video for your Barbie Doll, American Girl Doll, Monster High, EAH, or any 18 inch doll. You can make this easy Jumpsuit to add to your doll accessories, or add this to your Barbie Doll accessories. This Jumpsuit DIY is a fun and easy handmade doll craft; alter the doll dress pattern to fit your doll’s style and personality.
Karen McCloskey is a self-motivated IT professional with 14 years of experience in database administration, design, development, and maintenance using technologies like Oracle, SQL Server, and Access. She has worked for both government and private entities as a database administrator, analyst, and developer. Her experience includes database migrations, installations, configurations, designing databases, writing SQL queries, and troubleshooting issues. She holds a Master's degree in Information Systems from George Mason University.
Tiga kalimat ringkasan dokumen tersebut adalah:
Dokumen tersebut merangkum hasil praktikum pembuatan kamaboko dengan bahan baku cumi yang meliputi proses pembersihan, pencampuran bahan, pencetakan, dan pengukusan untuk menghasilkan kamaboko bertekstur lembut dan berwarna kuning kecoklatan.
The document discusses skills developed during the creation of a music video and print products. For the video, the author learned techniques like different shot types, effects, editing, and lighting. They hope to further develop these skills in Final Cut Pro for personal projects. For print, the author strengthened Photoshop skills like image composition and using color schemes. Multiple technologies were used during the project like WhatsApp, Google Drive, and YouTube.
David Perel has been a racing driver since childhood, inspired by photos of his father racing. At age 15, he had his first opportunity to race go-karts competitively. By age 23, he had reached the peak of karting but was forced to stop racing due to lack of funds. He turned his attention to building a web business with his brother. Five years later, after tireless work building the business, he had saved enough money for a racing comeback. He contacted teams and secured a seat in the Lamborghini Super Trofeo series, impressing with his performance and eventually becoming a professional racing driver.
Zachary Robinson is seeking a position in quality control, quality assurance, or non-destructive testing where he can continue developing his skills and knowledge to obtain additional certifications. He has an Associate's degree in Quality Control Management and a diploma in Non-Destructive Testing from Spartan College of Aeronautics and Technology. His education provided training in various quality control and non-destructive testing methods, including radiography, ultrasonic inspection, eddy current testing, and magnetic particle testing. Currently he works as a service coordinator but is looking to transition to a role utilizing his education and familiarity with inspection equipment and methods.
Las Tecnologías de la Información y las Comunicaciones (TIC) incluyen medios de comunicación como la radio, televisión y telefonía, así como aplicaciones que permiten capturar, producir, almacenar, procesar y presentar información en forma de voz, imágenes y datos. Las TIC también incluyen electrónica, computación, microelectrónica y técnicas de procesamiento de datos. Las TIC juegan un papel central en la transformación económica y social al modificar los hábitos, conducta y forma de pensar, traba
Talking with Your Family about Hereditary Cancerbkling
Karen E. Hurley, PhD, shares strategies for managing the sources of conflict that surround genetic testing within families, including whether or not to pursue testing, reaching out to at-risk relatives and the stress that can arise from hereditary disease. Dr. Hurley is a licensed clinical psychologist specializing in hereditary cancer risk.
Peter Ferdinand Drucker was an influential author and professor known as "The Father of Modern Management." He was born in Austria and became a U.S. citizen in 1943. Drucker made significant contributions in the fields of management, marketing, and economics. He emphasized management by objectives, organizational structure and functions, and conceptualized knowledge workers and the importance of treating workers as assets. Drucker authored 39 books and countless articles, influencing generations of business leaders and managers.
How to Make a Doll Jump Suit Tutorial - Jumpsuit Pattern - How to Make Doll Clothes
Making handmade doll crafts and sewing doll clothes is easy and fun in this how to make a doll jumpsuit Tutorial. Learn how to make this beautiful olive green Jumpsuit for your doll using the Jumpsuit pattern in this YouTube Video for your Barbie Doll, American Girl Doll, Monster High, EAH, or any 18 inch doll. You can make this easy Jumpsuit to add to your doll accessories, or add this to your Barbie Doll accessories. This Jumpsuit DIY is a fun and easy handmade doll craft; alter the doll dress pattern to fit your doll’s style and personality.
Karen McCloskey is a self-motivated IT professional with 14 years of experience in database administration, design, development, and maintenance using technologies like Oracle, SQL Server, and Access. She has worked for both government and private entities as a database administrator, analyst, and developer. Her experience includes database migrations, installations, configurations, designing databases, writing SQL queries, and troubleshooting issues. She holds a Master's degree in Information Systems from George Mason University.
Tiga kalimat ringkasan dokumen tersebut adalah:
Dokumen tersebut merangkum hasil praktikum pembuatan kamaboko dengan bahan baku cumi yang meliputi proses pembersihan, pencampuran bahan, pencetakan, dan pengukusan untuk menghasilkan kamaboko bertekstur lembut dan berwarna kuning kecoklatan.
The document discusses skills developed during the creation of a music video and print products. For the video, the author learned techniques like different shot types, effects, editing, and lighting. They hope to further develop these skills in Final Cut Pro for personal projects. For print, the author strengthened Photoshop skills like image composition and using color schemes. Multiple technologies were used during the project like WhatsApp, Google Drive, and YouTube.
David Perel has been a racing driver since childhood, inspired by photos of his father racing. At age 15, he had his first opportunity to race go-karts competitively. By age 23, he had reached the peak of karting but was forced to stop racing due to lack of funds. He turned his attention to building a web business with his brother. Five years later, after tireless work building the business, he had saved enough money for a racing comeback. He contacted teams and secured a seat in the Lamborghini Super Trofeo series, impressing with his performance and eventually becoming a professional racing driver.
Zachary Robinson is seeking a position in quality control, quality assurance, or non-destructive testing where he can continue developing his skills and knowledge to obtain additional certifications. He has an Associate's degree in Quality Control Management and a diploma in Non-Destructive Testing from Spartan College of Aeronautics and Technology. His education provided training in various quality control and non-destructive testing methods, including radiography, ultrasonic inspection, eddy current testing, and magnetic particle testing. Currently he works as a service coordinator but is looking to transition to a role utilizing his education and familiarity with inspection equipment and methods.
Las Tecnologías de la Información y las Comunicaciones (TIC) incluyen medios de comunicación como la radio, televisión y telefonía, así como aplicaciones que permiten capturar, producir, almacenar, procesar y presentar información en forma de voz, imágenes y datos. Las TIC también incluyen electrónica, computación, microelectrónica y técnicas de procesamiento de datos. Las TIC juegan un papel central en la transformación económica y social al modificar los hábitos, conducta y forma de pensar, traba