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Maternal Health Literacy
Pilot Project, Kerala
Final Report
Maternal	Health	Literacy	Pilot	Project,	Kerala	
Final	Report	
Ver:	Final	
	
	
Principal	author:		 Birth	for	Change	(BfC)	
Contributing	authors:		 Network	for	Information	&	Digital	Access	
(NIDA)	
Graphics:		 Carol	Usher	BfC/NIDA	
	
	
	
	
	
	
	
	
	
	
	 	
	 	 	
	
This	work	is	licensed	under	a	Attribution-NoDerivs 3.0 Unported
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		
	
	
Contents	
	
	
1.	 Introduction	..........................................................................................................................	3	
2.	 First	investigations	–	situation	report	....................................................................................	3	
3.	 Method	.................................................................................................................................	4	
4.	 The	Health	Literacy	intervention	...........................................................................................	5	
4.1	Clinic	......................................................................................................................................	5	
4.2	Classes	...................................................................................................................................	6	
5.	 Findings	of	impact	evaluation	...............................................................................................	7	
5.1	Class	participants	...................................................................................................................	7	
5.2	Clinic	participants	..................................................................................................................	8	
5.3	Control	Group	........................................................................................................................	8	
6.	 Statistical	testing	for	significant	differences	........................................................................	11	
7.	 Methodological	issues	and	limitations	................................................................................	12	
8.	 Conclusions	.........................................................................................................................	13	
References	................................................................................................................................	13	
Appendix	1:	Pre	and	Post	impact	questions	...............................................................................	14	
Appendix	2:	Class	Outline	..........................................................................................................	16
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		3	
1. Introduction	
The	aim	of	this	project	was	to	assess	and	evaluate	the	impact	of	a	series	of	health	education	classes	and	
clinic	 interventions	 in	 Udaya,	 a	 slum	 community	 in	 Cochin,	 Kerala,	 South	 India,	 to	 gather	 information	
regarding	the	health	literacy	of	the	women	in	the	community	and	how	this	could	be	improved.	The	starting	
point	was	a	maternal	health	survey	carried	out	within	the	slum	colony	in	April	2017	by	the	Birth	for	Change	
foundation	(BfC),	who	planned	to	postulate	an	information	encounter	approach	to	address	the	problem	
and	to	increase	‘health	literacy’.	In	addition,	they	planned	to	develop	some	training	resources,	run	health	
education	classes	and	health	clinic	encounters	as	well	as	design	and	carry	out	an	evaluation	of	the	impact	
and	recommend	what	should	happen	next.			
2. First	investigations	–	situation	report	
A	meeting	between	a	sister	from	the	'Sisters	of	the	Destitute'	convent	and	Birth	for	Change	took	place	in	
late	January	2017.	The	sister	had	worked	with	the	slum	colonies	since	1993	when	she	first	moved	to	the	
convent.	In	that	time,	she	had	provided	some	tuition	for	children	and	ran	a	girl’s	music	band.	In	her	view,	
the	women	wouldn’t	need	an	incentive	to	come	or	take	part.	She	reported	that	they	were	keen	to	access	
health	care	but	there	was	not	much	available	to	them.	
The	sister	informed	the	BfC	team	that:	
• Udaya	colony	had	124	families	living	in	it,	but	close	by	are	3	other	colonies-	one	of	300,	one	of	64	
and	 one	 of	 15	 families	 (the	 last	 one	 she	 described	 as	 ‘unlivable’	 because	 of	 the	 bad	 conditions	
leading	to	the	families	having	alcohol	problems.		There	is	a	major	problem	with	overflowing	from	
the	 stagnant,	 highly	 polluted	 canals	 so	 their	 homes	 are	 often	 flooded,	 which	 in	 turn	 leads	 to	
disease.		
• The	younger	generations	are	becoming	more	literate	but	women	over	25	are	not	able	to	read	or	
write	 for	 the	 most	 part	 (an	 estimated	 80%	 of	 mothers	 between	 the	 ages	 of	 30	 and	 50	 are	 not	
literate	but	can	count	money).	The	women	go	to	work	in	the	government	waste	collection	scheme	
from	3am	to	11am	and	then	often	have	other	jobs	after	that.	From	this	sought-after	work,	they	will	
earn	around	15000	INR	(175	GBP)	a	month.	The	team	focused	mainly	on	women	and	children	in	
their	questioning,	but	the	sister	reported	that	boys	do	not	do	much	work	until	they	get	to	around	
17	when	they	get	try	to	get	sales	jobs	or	drive	auto	rickshaws.	
• Women	often	start	living	with	a	man	when	they	are	around	18/20	years	old.	Surprisingly	they	are	
often	 not	 married,	 which	 is	 not	 the	 norm	 in	 India,	 and	 start	 having	 children	 soon	 afterwards.	
Families	are	of	mixed	religions,	which	is	not	common	in	India.	Other	than	the	tuition	offered	by	the	
nuns,	there	were	no	other	free	education	options	available	to	the	children	as	far	as	they	knew.		
• Overall	 health	 is	 poor,	 she	 reported	 there	 is	 a	 lot	 of	 alcoholism	 for	 men	 and	 women:	 and	 that	
around	40%	of	women	had	alcohol	problems	which	affects	their	ability	to	care	for	themselves	and	
their	families.	Children	have	a	high	incidence	of	asthma	and	allergies,	likely	to	be	caused	by	the	
canals	and	pollution.	She	reported	that	there	used	to	be	a	government	health	clinic	on	the	colony	
but	it	‘got	moved	and	the	people	of	the	slum	won’t	go	far’.	Every	second	Saturday	there	was	a	
government	health	clinic	available	for	women	and	children	to	get	vaccinations,	she	believed	around	
25-30	people	attended.	There	was	a	homeopathy	doctor	who	also	offered	a	service.	
• Birth	is	in	hospital;	the	sister	said	no	babies	are	born	in	the	slums	anymore:	women	attend	the	
government	hospitals	or	there	is	one	private	one	that	is	used	by	the	slum	community:	the	sister	
believed	 that	 the	 latter	 	 does	 nott	 provide	 proper	 treatment	 there	 because	 the	 women	 are	
uneducated	and	aren’t	in	a	position	to	contest	what	they	receive.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		4	
• The	average	number	of	children	in	a	family	is	3,	children	are	born	in	quick	succession,	the	nuns	said	
that	women	don’t	have	control	over	this	because	of	lack	of	information,	alcoholism	and	a	lack	of	
intermarital	sexual	consent.	Women	are	not	aware	of	health	issues	related	to	pregnancies	in	close	
succession.	Nutrition	is	also	an	issue:	the	sister	reported	that	people	who	live	in	the	community	eat	
a	 lot	 of	 junk	 food	 and	 have	 very	 poor	 nutrition.	 A	 packet	 of	 crisps	 costs	 5INR(5p),	 so	 is	 more	
affordable	than	fruits	and	vegetables.		
• The	 sister	 did	 not	 have	 information	 about	 whether	 women	 understood	 the	 link	 between	
menstruation	 and	 fertility	 and/or	 what,	 if	 anything,	 mothers	 tell	 their	 daughters	 about	
menstruation.	She	reported	that	when	a	girl	starts	her	menstrual,	there	is	a	celebration,	but	she	
was	not	sure	if	the	girl	would	have	any	understanding	of	the	meaning	behind	it.	The	sister	did	not	
know	of	any	other	customs	or	traditions	related	to	menstruation.	She	reported	that	girls	are	not	
sent	out	of	the	house	anymore,	neither	is	menstruation	seen	as	very	unclean.		
• There	is	no	sex	education	in	schools	in	India	in	general,	so	it	is	unlikely	that	the	women	in	the	slums	
would	have	education	about	this	to	pass	on	to	their	daughters.		
With	the	information	provided,	BfC	concluded	that	there	was	a	clear	opening	for	a	project	such	as	the	one	
under	consideration.	
3. Method		
Initially,	the	team	considered	conducting	a	Randomized	Control	Trial	(RCT)	to	assess	a	specific	aspect	of	the	
objective	expressed	in	the	project	concept.		It	was	considered	that	the	sample	size	available	would	not	be	
adequate	 to	 produce	 evidence	 which	 would	 be	 accepted	 as	 valid	 for	 wider	 adoption	 and	 that	 other	
methodological	barriers	may	have	inhibited	the	usefulness	of	such	an	approach.		
BfC	therefore	proposed	to	test	effectiveness	through	an	impact	assessment	process	following	the	results	of	
a	programme	of	health	education	and	information	interventions	in	a	clinic	setting,	by	means	of	a	group	of	
specific	questions,	put	initially	to	the	whole	sample	of	participants	in	the	community.	The	BfC	nurse	and	
midwives	went	from	door	to	door	in	the	colony	to	collect	data	from	women.	Women	were	included	if	they	
were	between	the	ages	of	18	and	60	years	old.	The	pre-impact	questions	were	asked	once	consent	had	
been	gained	(see	appendix	for	questions).	Confidentiality	of	the	women	was	maintained	using	anonymised	
participant	numbers.	Following	the	completion	of	health	classes	and	the	clinic,	the	nurses	and	midwives	
revisited	the	women	at	their	homes	to	follow	up	with	the	impact	post-test	questions.	
The	questions	were	answered	both	before	and	after	the	programme	of	interventions	to	measure	changes	
in	 the	 knowledge,	 attitudes	 or	 behaviour	 of	 the	 respondents.	 All	 questions	 were	 also	 put	 to	 a	 ‘control’	
group	of	women	who	did	not	attend	either	the	class	or	the	clinic	but	who	lived	within	the	slum	colony.		
Health	literacy	has	been	recognised	as	an	important	public	health	issue,	yet	there	are	currently	few	valid	
widely-used	 health	 literacy	 screening	 tools,	 suitable	 for	 this	 study.	 Three	 different	 methods	 of	
measurement	were	therefore	used	in	the	approach	to	impact	assessment.		
1) A	fact-based	question,	in	which	we	were	testing	the	participants’	knowledge	and	recollection	of	the	
subject.	This	method	was	used	for	the	assessment	of	Menstruation	and	Alcohol	and	Smoking.	
2) The	Rapid	Estimate	for	Adult	Literacy	in	Medicine	(REALM),	which	uses	word	recognition	and	has	
been	shown	to	correlate	highly	with	measures	of	health	literacy	(Ibrahim	et	al,	2008).	The	scoring	
system	uses	a	short	form	of	7	words,	the	higher	the	number	of	words	recognised	the	higher	the	
level	of	health	literacy.	This	method	was	used	for	the	topics	of	Diet	and	Pregnancy.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		5	
3) A	further	method	aimed	to	gather	information	about	the	perception	of	the	woman	regarding	her	
knowledge	 of	 the	 subject,	 whether	 she	 felt	 that	 she	 understood	 the	 subject	 and	 therefore	 her	
confidence	applying	it	to	her	daily	life.	When	analysing	the	answers,	the	midwives	also	compared	
the	 woman’s	 perception	 of	 her	 knowledge	 with	 an	 assessment	 of	 actual	 understanding	 of	 the	
subject,	in	order	to	help	decipher	whether	the	knowledge	that	the	woman	described	correlated	
with	accurate	and	appropriate	information.	This	method	was	used	regarding	the	topics	of	‘Taking	
care	of	children	(first	aid)’	and	‘Healthy	Birth	Practices’.	
Participant	information	was	discussed	with	the	women	and	informed	consent	gained.	Women	took	part	
voluntarily.	Initially	the	Birth	for	Change	team	felt	that	taking	technological	equipment	into	the	colony	may	
alienate	women,	so	it	was	felt	that	it	would	be	more	appropriate	to	use	paper	and	pen	to	record	their	
answers.	However,	after	the	first	day	of	interviews	it	became	apparent	that	this	would	not	be	time	efficient	
or	 effective	 in	 gathering	 all	 the	 information	 provided.	 Therefore,	 the	 answers	 to	 pre-	 and	 post-	 test	
questions	in	methods	1)	and	3)	above	were	recorded	during	the	meetings	and	transcribed	verbatim	later	to	
ensure	 all	 information	 given	 by	 the	 women	 was	 captured.	 The	 answers	 were	 then	 categorised	 by	 2	
midwives	 independently	 according	 to	 the	 categories:	 ‘Understands’’,	 ‘Partly	 Understands’,	 ‘Inaccurately	
Understands’	and	‘No	understanding’.		
The	questions	regarding	the	women’s	views	of	their	own	understanding	(method	3)	were	divided	into	two,	
with	 the	 above	 categorisation	 applied	 first,	 followed	 by	 a	 categorisation	 by	 the	 midwives,	 assessing	
whether	the	woman’s	feelings	about	her	understanding	represented	correct	facts.	Questions	were	asked	
before	the	initiation	of	the	services	in	April	2017	and	again	post-service	delivery	in	August	2017.	During	
collection	of	data,	the	nurses	and	midwives	often	found	that	the	women	used	the	opportunity	to	offload	
their	 feelings	 around	 the	 subjects	 in	 the	 questions	 to	 their	 attentive	 listener,	 so	 that	 the	 length	 of	
interviews	 varied	 greatly.	 Recorded	 Interviews	 were	 anonymised	 with	 participant	 numbers	 and	 deleted	
once	transcribed.	
It	was	expected	that	the	project	from	the	outset	(project	design)	to	completion	(final	report	with	impact	
evaluation)	would	take	between	9	to	12	months.		
4. The	Health	Literacy	intervention	
The	Sisters	provided	details	of	a	space	that	the	BfC	team	could	use	to	conduct	weekly	clinics	for	women	and	
children	in	which	information	could	also	be	given	to	the	women	about	a	chosen	health	topic.		The	Sisters	
suggested	an	inaugural	function	to	spread	awareness	of	the	clinic	and	education	sessions	for	bright	posters	
were	 prepared	 and	 tea	 and	 snacks	 arranged.	 40	 women	 attended	 the	 inauguration	 and	 it	 was	 felt	 that	
there	was	a	good	general	interest	in	the	clinic	and	classes.	A	monthly	education	session	over	a	period	of	6	
months,	which	began	in	April	2017	was	suggested.	See	Appendix	2	for	the	proposed	outline	programme	for	
these	sessions.		
4.1	Clinic	
A	clinic	space	was	found	within	the	slum	colony	to	provide	easy	access	for	the	women	and	children	of	the	
slum.	A	doctor	from	a	local	hospital	volunteered	his	time	for	2	hours	every	Friday	afternoon,	and	with	the	
support	 of	 a	 midwife	 and	 nurse	 saw	 the	 attending	 women	 and	 children.	 During	 the	 clinic	 time	 women	
would	have	an	appointment	with	the	doctor	regarding	their	concern(s)	and	then	move	into	another	room	
with	the	nurse	and	midwife	who	would	aim	to	provide	them	with	some	information	about	their	health,	
including	 provision	 of	 leaflets	 about	 nutrition,	 smoking,	 alcohol	 and	 fertility	 cycle	 beads,	 which	 are	 a	
handheld	tool	used	to	identify	fertile	and	non-fertile	days	in	a	woman’s	menstrual	cycle	for	effective	family	
planning.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		6	
The	 first	 3	 months	 of	 the	 clinic	 were	 well	 attended,	 on	 average	 between	 15-25	 women	 and	 children	
attended	in	the	2-hour	time	frame.	Care	was	provided	for	minor	ailments,	blood	pressure,	blood	sugar	and	
thyroid	consultations,	fertility,	pregnancy	and	growth	assessments	of	children.	
By	 August	 2017,	 the	 clinic	 was	 becoming	 less	 well	 attended.	 The	 BfC	 team	 began	 to	 seek	 further	
information	 from	 the	 women	 of	 the	 community.	 At	 this	 point	 women	 were	 more	 forthcoming	 with	
information	as	they	had	become	familiar	with	the	team.	They	were	told	that	a	government	health	clinic	was	
also	 running	 at	 the	 same	 time	 on	 a	 Friday	 afternoon	 within	 the	 slum	 colony.	 This	 clinic	 supplied	 free	
medications	but	not	free	blood	tests,	therefore	women	were	using	the	project	clinic	for	blood	tests	and	the	
government	clinic	for	free	medications.	BfC	arranged	a	meeting	with	the	doctor	at	the	government	clinic	to	
find	 out	 what	 service	 they	 were	 providing	 and	 how	 we	 could	 move	 forward.	 The	 elderly	 doctor	 in	 this	
meeting	 explained	 that	 the	 clinic	 had	 been	 set	 up	 33	 years	 ago	 by	 a	 Christian	 charity,	 when	 all	 they	
attended	to	was	‘running	nose	and	scabies’,	but	due	to	funds	was	not	reliably	running	every	week.	She	now	
ran	the	clinic	voluntarily.	She	told	the	team	that	her	clinic	used	to	be	very	well	attended	but	that	the	needs	
of	the	women	had	changed,	the	living	conditions	have	improved,	and	now	younger	women	prefer	to	save	
for	private	care	and	attend	a	hospital	for	their	medical	needs.	She	also	felt	that	it	was	difficult	to	encourage	
community	involvement	in	this	colony.		In	addition,	for	women	living	in	an	urban	area,	access	to	services	
was	not	difficult	should	they	seek	it.	There	are	a	number	of	hospitals	within	a	3-mile	radius	of	the	slum	
colonies.	By	the	end	of	August,	the	project	clinic	was	poorly	attended,	and	it	was	therefore	agreed	that	it	
would	be	closed	with	a	view	to	utilise	staff	time	in	a	more	effective	way	in	a	possible	community	outreach	
programme	to	schools.		
4.2	Classes		
Classes	were	to	be	held	free	of	charge	in	the	hall	attached	to	the	convent	of	the	‘Sisters	of	the	destitute’	on	
a	Saturday	afternoon	at	4pm,	since	this	was	felt	to	be	an	appropriate	day	and	time	for	working	women.	The	
hall	was	felt	to	have	the	space	and	seating	needed	for	the	classes	and	was	situated	in	the	slum	colony	for	
easy	access.	Prior	to	classes	each	month,	the	BfC	team	would	go	from	door	to	door	in	the	slum	colony	
handing	out	flyers	with	the	dates	and	times	of	the	classes.	A	large	information	banner	was	also	attached	to	
the	wall	of	the	convent	hall.	
6	women	attended	the	first	class	in	which	a	PowerPoint	including	videos	of	animations	and	explanations	in	
Malayalam	(the	Keralan	local	language)	was	given	and	cycle	beads	and	information	leaflets	were	provided.	
Women	sat	on	benches	facing	the	teacher.	Snacks	were	not	provided	at	this	class	as	it	was	initially	felt	that	
women	would	attend	without	incentive.	The	women	in	attendance	showed	a	great	deal	of	interest	and	
asked	questions	about	the	topic.	However,	following	the	class	it	was	felt	that	we	would	need	to	make	the	
class	 more	 interactive	 and	 informal	 to	 involve	 and	 engage	 the	 women	 in	 their	 learning	 process.	 It	 was	
hoped	that	as	word	spread	about	the	classes,	more	women	would	attend	week	by	week.		
For	the	second	class,	a	blanket	was	placed	on	the	floor	and	participants	sat	around	in	a	circle	in	the	hope	
that	this	would	make	the	class	feel	more	informal	and	interactive.	13	women	attended	and	the	BfC	nurse	
involved	the	women	in	games	and	questions	surrounding	their	diet	and	nutrition.	Healthy	snacks	and	juice	
were	supplied.	This	class	felt	more	like	a	community	event,	with	women	laughing	and	chatting	around	the	
subject	area.	However,	the	following	class	about	alcohol	and	smoking	had	a	small	attendance	of	only	3	
women.	Of	the	3	attendees,	2	were	illiterate.	Time	was	spent	explaining	and	including	them	in	a	quiz	with	
information	 provided.	 The	 after-impact	 questions	 were	 asked	 to	 the	 women	 who	 attended,	 however	
women	often	left	the	class	at	the	end	before	the	question	could	be	asked,	and	in	these	cases	the	team	
were	not	able	to	complete	this	task.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		7	
The	team	felt	that	the	information	regarding	menstruation	would	be	valuable	to	the	women,	so	a	repeat	
class	was	arranged,	however	the	day	before	the	class	was	planned,	the	local	police	came	to	the	colony	and	
arranged	a	mandatory	meeting	with	the	colony	community	at	the	same	time	as	the	class.	Therefore,	the	
class	was	unattended.	We	later	discovered	a	number	of	other	reasons	that	women	had	found	it	difficult	to	
attend	classes:	a	weekly	woman’s	meeting	within	the	colony	had	started	at	the	same	time	as	the	project	
classes;	 and	 some	 women	 reported	 a	 feud	 between	 the	 Udaya	 and	 PNT	 colony	 which	 meant	 that	 the	
women	who	lived	at	the	PNT	colony	would	not	attend	the	classes	or	clinic	in	the	Udaya	colony.			
It	was	becoming	apparent	that	we	were	trying	to	provide	a	community	service	that	was	not	being	utilised.	
As	well	as	this,	the	next	classes	in	the	series	were	aimed	at	health	in	pregnancy	and	birth.	As	there	were	
only	4	pregnant	women	in	the	colonies	at	that	time,	who	already	had	older	children	and	had	not	been	
attending	previous	classes,	it	was	decided	to	complete	the	series	of	classes	with	the	last	class	on	the	topic	
of	‘Taking	care	of	children	and	first	aid’.	8	women	attended.	
5. Findings	of	impact	evaluation	
Women	who	attended	1	or	more	classes	have	been	grouped	together	(CLASS	participants),	as	have	the	
women	who	attended	the	clinic	(CLINIC	participants)	and	those	who	attended	neither	the	classes	or	clinic	
(the	CONTROL	group).		
5.1	Class	participants	
Method	1):		Of	the	women	who	attended	the	classes	and	completed	the	pre-	and	post-impact	question	
(See	 Appendix),	 there	 was	 an	 increase	 from	 3	 to	 8	 in	 the	 number	 who	 had	 a	 full	 understanding	 of	
menstruation	and	its	connection	with	pregnancy.		The	number	of	women	with	no	understanding	reduced	
from	5	to	3.		
Following	the	alcohol	and	smoking	class,	the	number	of	women	who	had	a	good	understanding	of	the	topic	
increased	from	1	pre-class	to	4.	Those	who	had	no	understanding	at	all	reduced	from	2	to	1.	1	woman	had	
an	inaccurate	understanding	before	the	classes	which	was	improved	to	full	understanding	following	the	
classes.		
Method	2):	Overall,	there	were	minor	improvements	in	REALM	word	recognition	numbers	regarding	diet.	1	
woman	 scored	 3	 or	 less	 prior	 to	 the	 classes,	 her	 score	 increased	 following	 the	 class.	 3	 women	 had	 full	
understanding	 before	 the	 classes	 which	 increased	 to	 6	 women	 with	 full	 understanding	 post	 classes.	 1	
women	increased	her	score	from	6	to	7.	Limitations	of	the	value	of	REALM	scores	for	in	a	pre-	and	post-	
test	experiment	are	discussed	below.		
Method	3):	4	women	felt	they	understood	about	taking	care	of	children	and	first	aid	before-the	class	which	
increased	to	6	afterwards.	Other	markers	stayed	exactly	the	same.	The	number	of	women	who	felt	they	
understood	increased	to	from	2	pre-class	to	4	post-class	but	the	midwives	still	felt	that	understanding	was	
partial	only.	From	the	discrepancies	between	the	way	that	women	felt	about	their	own	knowledge	and	the	
midwives	review	of	their	understanding,	it	appears	that	the	information	the	women	felt	they	knew	may	
have	been	inaccurate	at	times	and	didn’t	correlate	with	the	professional	view.	This	may	be	a	result	of	a	lack	
of	first	hand	education,	or	persistent	misinformation	passed	to	them	through	the	generations.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		8	
5.2	Clinic	participants	
Method	1):	Of	women	who	attended	the	clinic,	no	women	understood	the	link	between	menstruation	and	
pregnancy	in	the	pre-test,	but	this	increased	to	4	post-clinic	attendance.	7	women	had	no	understanding	
which	decreased	to	3.	The	understanding	of	the	harms	of	alcohol	and	smoking	increased	from	4	women	
pre-	to	8	post-.	The	markers	for	those	who	partially	understood	stayed	the	same	pre	and	post.	However,	
those	who	had	no	understanding	decreased	from	4	to	0,	suggesting	that	those	who	had	no	understanding	
before	the	clinic	gained	full	understanding	post.	Those	who	inaccurately	understood	reduced	from	2	to	1.		
Method	2):		REALM	scores	showed	an	improvement	between	pre	and	post	testing	about	diet.	The	scores	
improved	 from	 10	 women	 with	 a	 score	 of	 6	 pre-clinic,	 to	 5	 women	 with	 a	 score	 of	 6	 and	 5	 with	 a	 full	
recognition	score	of	7	post	clinic.	Recognition	of	all	7	words	related	to	pregnancy	increased	from	6	pre-
clinic	 to	 10	 post-clinic.	 The	 increase	 of	 those	 who	 recognised	 all	 7	 words	 came	 from	 those	 who	 had	
recognised	6	words	pre-clinic.	
Method	3):	12	women	felt	they	understood	fully	about	first	aid	and	taking	care	of	children,	however	the	
midwives’	review	assessed	that	only	5	women	actually	did	understand	pre-clinic.	However,	the	number	of	
women	fell	to	11	women	who	felt	they	understood	after	the	clinic,	with	a	midwife	view	that	6	actually	did.	
The	decrease	in	the	number	of	women	with	a	perception	of	full	understanding	might	be	explained	by	the	
assessment	of	their	understanding,	in	some	instances	women	explained	partially	what	they	would	do	in	the	
event	of	an	injury	to	their	child	with	minimal	information	to	describe	their	understanding	so	were	therefore	
assessed	to	have	partial	understanding	rather	than	full	understanding.	
Although,	women’s	perceptions	about	their	understanding	on	this	topic	reduced	by	1,	the	midwives	felt	
that	overall	1	woman	had	gained	more	full	understanding.	4	women	felt	they	understood	birth	processes	
before	their	attendance	at	clinic	which	improved	to	9	women	after	the	clinic,	however	the	midwives	felt	
that	 no	 full	 understanding	 had	 been	 gained	 but	 that	 partial	 understanding	 had.	 This	 could	 be	 due	 to	
limitations	of	explanation	of	birth	processes,	women	tended	to	describe	their	own	birth	experiences	and	
their	understanding	of	them	which	could	veer	away	from	factual	information	at	times.	
5.3	Control	Group		
25	 out	 of	 80	 women’s	 pre	 and	 post	 questions	 were	 reviewed	 and	 included,	 every	 3rd	 woman	 that	
participated	that	had	not	attended	either	the	class	or	clinic	but	who	lived	within	the	slum	community	was	
included.	
Method	1):	19	of	the	25	women	included	had	no	understanding	about	the	link	between	menstruation	and	
pregnancy	 when	 asked	 the	 questions	 before	 any	 services	 had	 been	 provided	 in	 the	 community.	 This	
reduced	to	13	with	no	understanding	post-.	2	had	full	understanding	before	which	reduced	to	1	following,	
with	4	women	with	partial	understood	before	increasing	to	6	afterwards.	Inaccurate	understanding	also	
increased	1	to	4	women.		
The	 number	 of	 women	 who	 had	 full	 understanding	 of	 alcohol	 and	 smoking	 pre-	 to	 post-	 services	 also	
increased	 from	 7	 in	 the	 pre-testing	 in	 May	 2017	 to	 16	 in	 the	 post-testing	 in	 August	 2017.	 Partial	
understanding	decreased	from	8	to	7	and	no	understanding	reduced	from	10	women	to	2.	Suggesting	that	
some	women	had	gained	a	better	understanding	of	these	topics.	
Method	2):	The	REALM	scores	regarding	diet	increased	from	9	women	in	the	control	group	with	a	score	of	7	
pre	and	11	post.	8	women	had	a	score	of	6	pre-	and	10	a	score	of	6	post-.	This	increase	comes	from	women	
who	had	scores	of	5	women	who	had	scores	of	4	or	less	before	the	services.	This	is	an	increase	showing	a	
larger	number	of	women	did	recognise	a	higher	number	of	words.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		9	
The	 REALM	 test	 showed	 higher	 levels	 of	 recognition	 following	 the	 provision	 of	 services	 on	 the	 topic	 of	
pregnancy.	15	women	recognised	all	7	of	the	REALM	words	prior	to	the	clinic	which	increased	to	23	post	
clinic	 attendance.	 The	 move	 from	 a	 recognition	 score	 of	 6	 to	 7	 accounts	 for	 this.	 23	 of	 the	 25	 women	
included	felt	they	understood	about	taking	care	of	children	and	first	aid,	this	increased	by	1	post	services.	
However,	midwives	felt	that	true	understanding	was	only	described	in	14	women	pre-,	which	increased	to	
19	women	post.	The	number	of	women	who	felt	they	understood	remained	the	same	pre	and	post	when	
asked	about	healthy	birth	practices,	but	midwives	felt	that	their	understanding	was	not	as	accurate	as	the	
women	felt	it	was.	16	of	the	women	who	felt	they	either	understood	or	partially	understood	were	viewed	
to	have	no	understanding	of	the	subject	in	the	pre-test,	13	in	the	post-test.	This	improvement	could	be	
explained	by	women	hearing	the	words	used	in	the	REALM	scoring	system	for	the	second	time	in	the	pre	
and	post	questions.	
Method	3):	23	women	felt	that	they	understood	about	taking	care	of	children	in	the	control	group	before	
the	provision	of	services,	this	increased	by	1	woman	following.	1	woman	felt	she	had	no	understanding	
before	 which	 stayed	 the	 same	 afterwards.	 Of	 the	 23	 women	 who	 felt	 they	 understood,	 the	 midwives	
assessed	that	14	of	them	did	have	full	understanding,	this	number	increased	to	19	women	following	the	
services.	These	numbers	suggest	that	the	team	had	a	more	critical	view	of	women’s	understanding.	Fewer	
women	 who	 felt	 they	 understood,	 actually	 did.	 But	 there	 was	 an	 improvement	 in	 understanding	 post	
services	in	the	midwives’	view.		
These	figures	are	summarised	in	the	following	tables:	
	
Menstruation	
Pre	 Post	
Class	 Clinic	 Control	 Class	 Clinic	 Control	
Understood	 0	 0	 2	 3	 4	 1	
Partial	understanding	 1	 5	 4	 2	 6	 6	
Inaccurate	understanding	 0	 3	 1	 0	 1	 4	
No	understanding	 5	 7	 19	 3	 3	 13	
Total	 6	 15	 26	 8	 14	 24	
	 	
Alcohol	&	Smoking	
Pre	 Post	
Class	 Clinic	 Control	 Class	 Clinic	 Control	
Understood	 1	 4	 7	 4	 8	 16	
Partial	understanding	 2	 5	 8	 3	 5	 7	
Inaccurate	understanding	 1	 2	 0	 0	 1	 0	
No	understanding	 2	 4	 10	 1	 0	 2	
Total	 6	 15	 25	 8	 14	 25
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		10	
Diet		 Pre	 Post	
No.	of	words	understood	 Class	 Clinic	 Control	 Class	 Clinic	 Control	
1	 0	 0	 0	 0	 0	 0	
2	 0	 0	 0	 0	 0	 0	
3	 1	 2	 1	 0	 0	 0	
4	 0	 0	 2	 2	 1	 0	
5	 2	 1	 5	 1	 3	 4	
6	 3	 10	 8	 4	 5	 10	
7	 0	 2	 9	 1	 5	 11	
Total	 6	 15	 25	 8	 14	 25	
	
Pregnancy	 Pre	 Post	
No.	of	words	understood	 Class	 Clinic	 Control	 Class	 Clinic	 Control	
1	 0	 0	 0	 0	 0	 0	
2	 0	 0	 0	 0	 0	 0	
3	 0	 0	 1	 0	 0	 0	
4	 1	 1	 0	 0	 0	 1	
5	 1	 1	 0	 0	 1	 0	
6	 2	 7	 9	 4	 3	 1	
7	 2	 6	 15	 4	 10	 23	
Total	 6	 15	 25	 8	 14	 25	
	
Taking	care	of	children	
Participants	results	
Pre	 Post	
Class	 Clinic	 Control	 Class	 Clinic	 Control	
Felt	understood	 4	 12	 23	 6	 11	 24	
Felt	partially	understood	 1	 1	 1	 1	 1	 0	
Didn’t	understand	 1	 2	 1	 1	 2	 1	
Total	 6	 15	 25	 8	 14	 25	
	
Taking	care	of	children	
Midwives	perceptions	
Pre	 Post	
Class	 Clinic	 Control	 Class	 Clinic	 Control	
Understood	 2	 5	 14	 4	 6	 19	
Partial	understanding	 3	 8	 9	 2	 5	 4	
Inaccurate	understanding	 0	 0	 1	 0	 0	 0	
No	understanding	 1	 2	 1	 2	 3	 2	
Total	 6	 15	 25	 8	 14	 25
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		11	
	
Healthy	birth	practices	
Participants	results	
Pre	 Post	
Class	 Clinic	 Control	 Class	 Clinic	 Control	
Felt	understood	 1	 4	 11	 3	 9	 11	
Felt	partially	understood	 2	 4	 3	 1	 1	 3	
Didn’t	understand	 2	 7	 11	 3	 4	 11	
Total	 5	 15	 25	 7	 14	 25	
	
Healthy	birth	practices	
Midwives	perceptions	
Pre	 Post	
Class	 Clinic	 Control	 Class	 Clinic	 Control	
Understood	 0	 0	 2	 0	 0	 2	
Partial	understanding	 2	 5	 6	 4	 7	 8	
Inaccurate	understanding	 0	 0	 1	 0	 1	 2	
No	understanding	 3	 10	 16	 3	 6	 13	
Total	 5	 15	 25	 7	 14	 25	
	
6. Statistical	testing	for	significant	differences	
A	two-tailed	t-test	on	paired	data	for	individual	women	for	each	of	the	six	topics	within	each	of	the	three	
groups	–	CLASS,	CLINIC	and	CONTROL	was	also	carried	out.	
Within	the	CLASS	group,	the	sample	size	(n=	8)	was	below	the	usual	minimum	strictly	allowable	in	science	
to	 draw	 a	 conclusion	 on	 whether	 the	 difference	 was	 significant,	 based	 on	 a	 reliable	 bell-curve.	 	 Even	
ignoring	 this	 major	 caveat,	 potentially	 significant	 p-values	 (less	 than	 0.05	 (5%)	 i.e.	 95%	 confidence	 of	 a	
significant	difference	were	not	indicated	for	any	of	the	topics.	
Within	the	CLINIC	group,	where	the	sample	size	(n=	15)	did	meet	the	minimum	criterion,	p-values	showing	
a	significant	difference	occurred	in	the	following:	
• Increase	in	the	number	of	women	who	understood	the	issue	represented	by	the	question	on	
Menstruation	(p=	0.03205)	
• Decrease	in	the	number	of	women	who	had	no	understanding	of	the	issue	represented	by	the	
question	on	Alcohol	and	Smoking	(p=	0.03205)	
• Decrease	in	the	number	of	women	who	felt	they	Partially	Understood	the	issue	represented	by	
the	 question	 on	 Healthy	 Birth	 Practices	 (p	 =0.03205).	 This	 can	 be	 correlated	 with	 a	 clear	
increase	 in	 the	 number	 of	 women	 who	 felt	 they	 Fully	 Understood	 and	 simultaneously	 a	
decrease	in	the	number	of	women	who	felt	they	had	No	Understanding.	However,	the	last	two	
data	did	not	produce	a	p-value	showing	a	significant	difference.		
The	tests	on	the	REALM	word-recognition	intervention	for	two	topics:	Diet	and	Pregnancy	did	not	show	any	
significant	difference	in	the	number	of	words	recognised.	Over	90%	of	women	understood	either	6	or	7	of	
the	seven	words	in	both	the	pre-and	post-test.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		12	
Within	the	largest	CONTROL	group	(n=25)	who	attended	neither	Class	or	Clinic:	
• A	significant	increase	(p=0.00997)	was	shown	in	the	number	of	women	who	Understood	the	
issue	represented	by	the	question	on	Alcohol	and	Smoking.	This	was	correlated	to	a	significant	
decrease	 in	 the	 number	 of	 women	 who	 had	 No	 Understanding	 (p=	 0.00735).	 These	 data	
suggest	that	women	in	this	community	were	influenced	by	factors	or	information	arising	from	
external	sources	and/or	by	contact	with	women	who	had	attended	the	Clinic.	
• The	 number	 of	 women	 understanding	 7	 words	 in	 the	 REALM	 test	 on	 the	 Pregnancy	 topic	
showed	 a	 significant	 increase	 in	 the	 post-test	 (p=0.00735)	 identical	 with	 a	 decrease	 in	 the	
number	 of	 women	 who	 understood	 6	 words	 in	 the	 pre-test	 (p=0.00400).	 However,	 the	
usefulness	of	this	finding	is	questionable	in	terms	of	the	value	of	using	a	word	recognition	twice	
with	the	same	people	in	a	pre-	and	post-test	context	(described	earlier).	
No	other	statistically	significant	differences	were	derived	from	the	t-test.		
7. Methodological	issues	and	limitations		
Women	 in	 the	 slum	 community	 participated	 voluntarily	 but	 have	 many	 personal	 responsibilities	 as	 a	
woman;	attending	to	their	house	work,	families	and	work.	This	may	be	a	reason	why	they	do	not	prioritise	
their	health	and	therefore	attendance	at	clinic	or	health	classes.	This	meant	that	sample	size	of	women	
who	attended	classes	was	small.	
This	was	the	first	time	the	Birth	for	Change	team	had	carried	out	an	impact	evaluation	of	this	kind	and,	
although	considerable	thought	and	testing	went	into	it,	there	may	have	been	small	discrepancies.	It	is	not	
considered	that	they	were	of	high	significance.		
The	team	recognise	that	use	of	REALM	as	part	of	an	impact	evaluation	may	not	have	been	appropriate.	It	is	
hard	to	distinguish	whether	the	patterns	of	recognition	of	the	words	was	because	of	repetition	of	the	tool	
and	 words	 used	 within	 it	 or	 whether	 women	 understood	 and	 recognised	 the	 words	 due	 to	 a	 greater	
knowledge	of	the	subject.		
In	South	India,	different	religious	communities	live	together	in	the	same	society.	Therefore,	when	arranging	
the	classes	in	the	Christian	convent	hall	it	was	thought	that	this	would	not	be	a	concern.	However,	for	
future	practice,	it	may	be	worth	considering	a	common	hall	with	no	religious	tendency	so	as	not	to	alienate	
any	women	who	would	want	to	attend	but	might	not	feel	welcome	or	trust	religions	different	from	their	
own.		
When	gathering	initial	information	in	a	small	Indian	community	there	are	few	robust	or	reliable	ways	to	
verify	information.	The	team	had	to	rely	on	the	word	of	people	in	the	community	to	inform	and	educate	
them	about	the	community	and	what	their	access	to	services	they	had,	which	meant	that	this	information	
only	 became	 available	 as	 the	 project	 was	 underway	 and	 the	 community	 started	 interacting	 with	 and	
building	confidence	in	the	BfC	team.	Bias	from	different	sources	should	also	be	considered.	When	entering	
a	new	community,	the	politics	between	individuals	and	sections	of	the	community	can	be	hard	to	navigate.		
Overall,	the	methodical	process	of	the	project	and	lessons	learnt	during	and	from	it	have	been	valuable.	
There	is	a	case	for	repeating	this	methodology	in	a	more	rural	area	where	women	have	very	limited	access	
to	services	and	would	have	to	travel	long	distances	to	access	them	and	would	be	much	less	likely	to	have	
any	access	to	health	information.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		13	
8. Conclusions	
Of	the	2	groups	that	attended	the	available	services,	overall	the	women	who	attended	the	clinic	appear	to	
have	 gained	 more	 understanding	 of	 the	 chosen	 topics	 than	 those	 who	 attended	 the	 classes.	 This	 could	
suggest	that	necessary	attendance	to	a	clinic	for	a	health	need,	with	provision	of	information	at	that	time	
may	 be	 more	 likely	 to	 improve	 women’s	 understanding,	 possibly	 as	 it	 becomes	 more	 relevant	 to	 their	
current	 situation.	 There	 is	 also	 a	 marked	 improvement	 in	 the	 numbers	 of	 women	 who	 gained	
understanding	 of	 topics	 pre	 and	 post	 the	 provision	 of	 services	 in	 their	 community,	 despite	 not	 having	
attended	either	(the	control	group).	The	factors	which	have	led	to	this	improvement	are	unclear,	however	
the	 team	 speculated	 that	 women	 discuss	 and	 pass	 on	 information	 between	 them	 in	 communities	 and	
therefore	transmission	of	information	had	taken	place	between	women	who	came	to	the	clinic	and	classes	
and	those	who	did	not.	
Information	 gained	 from	 the	 impact	 assessment	 of	 this	 service	 suggests	 that	 women	 had	 more	
understanding	 of	 chosen	 topics	 in	 comparison	 to	 before,	 following	 attendance	 at	 the	 clinic	 more	 than	
health	classes.		
A	major	limitation	of	this	study	is	the	small	sample	size	participating	in	the	class	and	clinic	groups,	mainly	
due	to	the	attrition	factors	described	above.		A	further	limitation	in	this	respect,	arose	from	the	division	of	
the	six	‘class’	topics	between	the	three	selected	methods	in	pairs	of	two.	More	meaningful	results	could	
have	been	produced	had	time	allowed	all	six	topics	to	be	compared	across	all	three	methods.	
These	findings	about	the	impact	of	the	services	provided	and	interaction	with	women	during	health	classes	
allow	 us	 to	 move	 forward	 with	 a	 more	 focused	 view	 for	 the	 South	 Indian	 population	 of	 women.	
Empowerment	of	these	women	through	education	in	a	range	of	settings,	and	therefore	an	increase	in	their	
role	in	decision	making	about	their	own	health	is	vital	to	positive	changes	in	women’s	health	in	India.	It	
seems	there	is	a	need	for	a	strategic	approach	to	address	these	issues	especially	for	younger	women,	those	
who	access	government	health	facilities	and	those	in	rural	areas	with	poor	access	to	services.			
There	appears	from	this	data	to	be	a	possible	case	for	conducting	further	field	trials	and	pilots,	on	a	larger	
scale,	to	validate	the	impact	of	Clinic-style	interventions	on	women	in	other	communities.	Likewise,	this	
could	 beneficially	 be	 associated	 with	 comparative	 studies	 involving	 other	 types	 of	 intervention	 where	 a	
minimum	sample	is	available,	including	Class-style	interventions.					
References	
• Ibrahim	S,	Reid	F,	Shaw	A,	Rowlands	G,	Gomez	GB,	Chesnokov	M,	Ussher	M	(2008)	Validation	of	
health	literacy	screening	tool	(REALM)	in	a	UK	population	with	coronary	heart	disease.	Journal	of	
public	health.	Vol	30:1.	Pp	449-455
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		14	
Appendix	1:	Pre	and	Post	impact	questions	
	
Participant	number:																																																																											
ORIGINAL	BEFORE	AND	AFTER-	METHOD	1	
Session	1.	Menstruation	
What	is	the	link	between	menstruation	and	getting	pregnant?		
	
Session	3.	Alcohol	and	smoking	
What	effects,	other	than	intoxication,	does	alcohol	have	on	your	body?	
	
REALM-	METHOD	2	
Session	2.	Diet	and	Nutrition	
Suggested	Introduction:				
Do	you	recognise	any	of	these	words	in	English	or	Malayalam?	
Starting	at	the	top	of	the	list.	If	you	don’t	you	recognize	a	word,	you	can	say	‘pass’	and	move	on	to	the	next	
word.”				
Interviewer:	If	the	participant	takes	more	than	5	seconds	on	a	word,	say	“pass”	and	point	to	the	next	word.	
Hold	this	scoring	sheet	so	that	it	is	not	visible	to	the	participant	
Iron_____			
Vitamins	_____			
Deficiency	_____			
Supplements_____			
Hydration	_____			
Anaemia	_____			
Folic	acid(Folate)	_____			
TOTAL	SCORE	______								
	
Session	4.	Pregnancy	
Suggested	Introduction:				
Do	you	recognise	any	of	these	words	in	English	or	Malayalam?	
Starting	at	the	top	of	the	list.	If	you	don’t	you	recognize	a	word,	you	can	say	‘pass’	and	move	on	to	the	next	
word.”
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		15	
Interviewer:	If	the	participant	takes	more	than	5	seconds	on	a	word,	say	“pass”	and	point	to	the	next	word.	
Hold	this	scoring	sheet	so	that	it	is	not	visible	to	the	participant	
	
Morning	sickness_____			
Uterus	_____			
Foetal	movements	_____			
Estimated	due	date	_____			
Midwife	_____			
Ultrasound	scan	_____			
Placenta_____				
	
TOTAL	SCORE	______								
	
PERCEPTIONS	OF	CHANGES-	METHOD	3	
Session	5.	Taking	care	of	children	
Do	 you	 feel	 you	 have	 an	 understanding	 of	 what	 to	 do	 to	 help	 if	 you	 or	 your	 child	 (if	 applicable)	 hurts	
themselves	e.g.	cut	or	burn?	
Session	6.	Healthy	birth	practices	
Do	you	feel	you	know	enough	about	what	happens	during	childbirth	to	make	decisions	about	your	own	
birth	or	advise	a	friend	or	family	member	about	theirs?
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		16	
Appendix	2:	Class	Outline	
	
1. Menstruation-		
v Group	work/	cycle	bead	leaflet	handout/	animated	film		
• The	menstrual	cycle	
• The	uterus	
• Ovulation	
• Fertile/non-	fertile	window	
• Cycle	beads	
• Dealing	with	periods-	pain,	sanitary	wear	
	
2. Diet-	
v Activities:		
♦ Food	pyramid-	foods	into	relevant	layer	according	to	how	much	of	what	we	should	eat	(old	
pizza	boxes,	veg	tins	etc.)-	women	put	in	area	they	believe	to	be	true	
♦ Possible	food	diary-	woman	writes	account	of	what	she’s	eaten	in	last	3	days	and	we	discuss	
with	her	individually/smaller	groups	
• The	bodies	need	for	vitamins	and	minerals		
• The	effect	poor	diet	has	on	the	body	
• Nutritious	foods-	balanced	diet-	how	to	get	the	vitamins	and	minerals	needed	
• The	effect	of	poor	nutrition	on	growth	and	development	of	fetus	and	children	
	
3. Alcohol	and	Smoking-		
v Informal	teaching	Session,	video,	‘drink	aware’	like	poster	
v Alcohol	and	smoking	quiz	
v Video	about	effects	on	body	
• The	effects	on	the	body	
• Effects	on	sleep,	relationships,	caring	for	children,	working	life	
• Fetal	alcohol	syndrome	
• Health	risks
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		17	
4. Taking	care	of	children		
v Informal	teaching	session,	interactive	group	work,	posters	
v First	aid	
v Bandages	and	doll	to	practice	on	
• Benefits	of	breastfeeding	on	a	child’s	health	
• Nutrition	
• Activity	and	stimulation	
• Role	of	parental	relationship	
• Common	ailments	and	when	to	seek	help	
	
*	5.	 Pregnancy	
v Images,	doll	and	pelvis,	pregnancy	art-exploring	feelings	and	understanding	of	pregnancy	
• Finding	out	you	are	pregnant	
• Feelings	during	pregnancy	
• Normal	pregnancy	symptoms	
• Importance	of	fetal	movements	
• Nutrition	and	supplements	
• When	to	seek	support/	advice	
• Antenatal	care-	accessing	the	new	clinic	
	
**	 6.	 Healthy	birth	practices	
v ‘Grab	bag’	teaching	of	comfort	measures,	labelled	areas	of	room-	ask	women	to	go	to	which	area	
they	believe	to	be	right	answer	in	regard	to	questions	about	infant	care,	signs	of	labour	etc.	
• Signs	of	labour	
• What	to	look	out	for	
• Comfort	measures/	what	can	help/	optimal	fetal	positioning	
• The	postpartum	months	
• Keeping	mother	and	baby	together	
• Infant	feeding	
	
*	and	**	Classes	in	red	were	not	held	following	poor	attendance	of	previous	classes.
Maternal	Health	Literacy	Pilot	Project,	Kerala	-	Final	Report	 	 		18

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Maternal Health Literacy, Pilot Project, Kerala- Final Report

  • 1. Maternal Health Literacy Pilot Project, Kerala Final Report
  • 3. Maternal Health Literacy Pilot Project, Kerala - Final Report Contents 1. Introduction .......................................................................................................................... 3 2. First investigations – situation report .................................................................................... 3 3. Method ................................................................................................................................. 4 4. The Health Literacy intervention ........................................................................................... 5 4.1 Clinic ...................................................................................................................................... 5 4.2 Classes ................................................................................................................................... 6 5. Findings of impact evaluation ............................................................................................... 7 5.1 Class participants ................................................................................................................... 7 5.2 Clinic participants .................................................................................................................. 8 5.3 Control Group ........................................................................................................................ 8 6. Statistical testing for significant differences ........................................................................ 11 7. Methodological issues and limitations ................................................................................ 12 8. Conclusions ......................................................................................................................... 13 References ................................................................................................................................ 13 Appendix 1: Pre and Post impact questions ............................................................................... 14 Appendix 2: Class Outline .......................................................................................................... 16
  • 4. Maternal Health Literacy Pilot Project, Kerala - Final Report 3 1. Introduction The aim of this project was to assess and evaluate the impact of a series of health education classes and clinic interventions in Udaya, a slum community in Cochin, Kerala, South India, to gather information regarding the health literacy of the women in the community and how this could be improved. The starting point was a maternal health survey carried out within the slum colony in April 2017 by the Birth for Change foundation (BfC), who planned to postulate an information encounter approach to address the problem and to increase ‘health literacy’. In addition, they planned to develop some training resources, run health education classes and health clinic encounters as well as design and carry out an evaluation of the impact and recommend what should happen next. 2. First investigations – situation report A meeting between a sister from the 'Sisters of the Destitute' convent and Birth for Change took place in late January 2017. The sister had worked with the slum colonies since 1993 when she first moved to the convent. In that time, she had provided some tuition for children and ran a girl’s music band. In her view, the women wouldn’t need an incentive to come or take part. She reported that they were keen to access health care but there was not much available to them. The sister informed the BfC team that: • Udaya colony had 124 families living in it, but close by are 3 other colonies- one of 300, one of 64 and one of 15 families (the last one she described as ‘unlivable’ because of the bad conditions leading to the families having alcohol problems. There is a major problem with overflowing from the stagnant, highly polluted canals so their homes are often flooded, which in turn leads to disease. • The younger generations are becoming more literate but women over 25 are not able to read or write for the most part (an estimated 80% of mothers between the ages of 30 and 50 are not literate but can count money). The women go to work in the government waste collection scheme from 3am to 11am and then often have other jobs after that. From this sought-after work, they will earn around 15000 INR (175 GBP) a month. The team focused mainly on women and children in their questioning, but the sister reported that boys do not do much work until they get to around 17 when they get try to get sales jobs or drive auto rickshaws. • Women often start living with a man when they are around 18/20 years old. Surprisingly they are often not married, which is not the norm in India, and start having children soon afterwards. Families are of mixed religions, which is not common in India. Other than the tuition offered by the nuns, there were no other free education options available to the children as far as they knew. • Overall health is poor, she reported there is a lot of alcoholism for men and women: and that around 40% of women had alcohol problems which affects their ability to care for themselves and their families. Children have a high incidence of asthma and allergies, likely to be caused by the canals and pollution. She reported that there used to be a government health clinic on the colony but it ‘got moved and the people of the slum won’t go far’. Every second Saturday there was a government health clinic available for women and children to get vaccinations, she believed around 25-30 people attended. There was a homeopathy doctor who also offered a service. • Birth is in hospital; the sister said no babies are born in the slums anymore: women attend the government hospitals or there is one private one that is used by the slum community: the sister believed that the latter does nott provide proper treatment there because the women are uneducated and aren’t in a position to contest what they receive.
  • 5. Maternal Health Literacy Pilot Project, Kerala - Final Report 4 • The average number of children in a family is 3, children are born in quick succession, the nuns said that women don’t have control over this because of lack of information, alcoholism and a lack of intermarital sexual consent. Women are not aware of health issues related to pregnancies in close succession. Nutrition is also an issue: the sister reported that people who live in the community eat a lot of junk food and have very poor nutrition. A packet of crisps costs 5INR(5p), so is more affordable than fruits and vegetables. • The sister did not have information about whether women understood the link between menstruation and fertility and/or what, if anything, mothers tell their daughters about menstruation. She reported that when a girl starts her menstrual, there is a celebration, but she was not sure if the girl would have any understanding of the meaning behind it. The sister did not know of any other customs or traditions related to menstruation. She reported that girls are not sent out of the house anymore, neither is menstruation seen as very unclean. • There is no sex education in schools in India in general, so it is unlikely that the women in the slums would have education about this to pass on to their daughters. With the information provided, BfC concluded that there was a clear opening for a project such as the one under consideration. 3. Method Initially, the team considered conducting a Randomized Control Trial (RCT) to assess a specific aspect of the objective expressed in the project concept. It was considered that the sample size available would not be adequate to produce evidence which would be accepted as valid for wider adoption and that other methodological barriers may have inhibited the usefulness of such an approach. BfC therefore proposed to test effectiveness through an impact assessment process following the results of a programme of health education and information interventions in a clinic setting, by means of a group of specific questions, put initially to the whole sample of participants in the community. The BfC nurse and midwives went from door to door in the colony to collect data from women. Women were included if they were between the ages of 18 and 60 years old. The pre-impact questions were asked once consent had been gained (see appendix for questions). Confidentiality of the women was maintained using anonymised participant numbers. Following the completion of health classes and the clinic, the nurses and midwives revisited the women at their homes to follow up with the impact post-test questions. The questions were answered both before and after the programme of interventions to measure changes in the knowledge, attitudes or behaviour of the respondents. All questions were also put to a ‘control’ group of women who did not attend either the class or the clinic but who lived within the slum colony. Health literacy has been recognised as an important public health issue, yet there are currently few valid widely-used health literacy screening tools, suitable for this study. Three different methods of measurement were therefore used in the approach to impact assessment. 1) A fact-based question, in which we were testing the participants’ knowledge and recollection of the subject. This method was used for the assessment of Menstruation and Alcohol and Smoking. 2) The Rapid Estimate for Adult Literacy in Medicine (REALM), which uses word recognition and has been shown to correlate highly with measures of health literacy (Ibrahim et al, 2008). The scoring system uses a short form of 7 words, the higher the number of words recognised the higher the level of health literacy. This method was used for the topics of Diet and Pregnancy.
  • 6. Maternal Health Literacy Pilot Project, Kerala - Final Report 5 3) A further method aimed to gather information about the perception of the woman regarding her knowledge of the subject, whether she felt that she understood the subject and therefore her confidence applying it to her daily life. When analysing the answers, the midwives also compared the woman’s perception of her knowledge with an assessment of actual understanding of the subject, in order to help decipher whether the knowledge that the woman described correlated with accurate and appropriate information. This method was used regarding the topics of ‘Taking care of children (first aid)’ and ‘Healthy Birth Practices’. Participant information was discussed with the women and informed consent gained. Women took part voluntarily. Initially the Birth for Change team felt that taking technological equipment into the colony may alienate women, so it was felt that it would be more appropriate to use paper and pen to record their answers. However, after the first day of interviews it became apparent that this would not be time efficient or effective in gathering all the information provided. Therefore, the answers to pre- and post- test questions in methods 1) and 3) above were recorded during the meetings and transcribed verbatim later to ensure all information given by the women was captured. The answers were then categorised by 2 midwives independently according to the categories: ‘Understands’’, ‘Partly Understands’, ‘Inaccurately Understands’ and ‘No understanding’. The questions regarding the women’s views of their own understanding (method 3) were divided into two, with the above categorisation applied first, followed by a categorisation by the midwives, assessing whether the woman’s feelings about her understanding represented correct facts. Questions were asked before the initiation of the services in April 2017 and again post-service delivery in August 2017. During collection of data, the nurses and midwives often found that the women used the opportunity to offload their feelings around the subjects in the questions to their attentive listener, so that the length of interviews varied greatly. Recorded Interviews were anonymised with participant numbers and deleted once transcribed. It was expected that the project from the outset (project design) to completion (final report with impact evaluation) would take between 9 to 12 months. 4. The Health Literacy intervention The Sisters provided details of a space that the BfC team could use to conduct weekly clinics for women and children in which information could also be given to the women about a chosen health topic. The Sisters suggested an inaugural function to spread awareness of the clinic and education sessions for bright posters were prepared and tea and snacks arranged. 40 women attended the inauguration and it was felt that there was a good general interest in the clinic and classes. A monthly education session over a period of 6 months, which began in April 2017 was suggested. See Appendix 2 for the proposed outline programme for these sessions. 4.1 Clinic A clinic space was found within the slum colony to provide easy access for the women and children of the slum. A doctor from a local hospital volunteered his time for 2 hours every Friday afternoon, and with the support of a midwife and nurse saw the attending women and children. During the clinic time women would have an appointment with the doctor regarding their concern(s) and then move into another room with the nurse and midwife who would aim to provide them with some information about their health, including provision of leaflets about nutrition, smoking, alcohol and fertility cycle beads, which are a handheld tool used to identify fertile and non-fertile days in a woman’s menstrual cycle for effective family planning.
  • 7. Maternal Health Literacy Pilot Project, Kerala - Final Report 6 The first 3 months of the clinic were well attended, on average between 15-25 women and children attended in the 2-hour time frame. Care was provided for minor ailments, blood pressure, blood sugar and thyroid consultations, fertility, pregnancy and growth assessments of children. By August 2017, the clinic was becoming less well attended. The BfC team began to seek further information from the women of the community. At this point women were more forthcoming with information as they had become familiar with the team. They were told that a government health clinic was also running at the same time on a Friday afternoon within the slum colony. This clinic supplied free medications but not free blood tests, therefore women were using the project clinic for blood tests and the government clinic for free medications. BfC arranged a meeting with the doctor at the government clinic to find out what service they were providing and how we could move forward. The elderly doctor in this meeting explained that the clinic had been set up 33 years ago by a Christian charity, when all they attended to was ‘running nose and scabies’, but due to funds was not reliably running every week. She now ran the clinic voluntarily. She told the team that her clinic used to be very well attended but that the needs of the women had changed, the living conditions have improved, and now younger women prefer to save for private care and attend a hospital for their medical needs. She also felt that it was difficult to encourage community involvement in this colony. In addition, for women living in an urban area, access to services was not difficult should they seek it. There are a number of hospitals within a 3-mile radius of the slum colonies. By the end of August, the project clinic was poorly attended, and it was therefore agreed that it would be closed with a view to utilise staff time in a more effective way in a possible community outreach programme to schools. 4.2 Classes Classes were to be held free of charge in the hall attached to the convent of the ‘Sisters of the destitute’ on a Saturday afternoon at 4pm, since this was felt to be an appropriate day and time for working women. The hall was felt to have the space and seating needed for the classes and was situated in the slum colony for easy access. Prior to classes each month, the BfC team would go from door to door in the slum colony handing out flyers with the dates and times of the classes. A large information banner was also attached to the wall of the convent hall. 6 women attended the first class in which a PowerPoint including videos of animations and explanations in Malayalam (the Keralan local language) was given and cycle beads and information leaflets were provided. Women sat on benches facing the teacher. Snacks were not provided at this class as it was initially felt that women would attend without incentive. The women in attendance showed a great deal of interest and asked questions about the topic. However, following the class it was felt that we would need to make the class more interactive and informal to involve and engage the women in their learning process. It was hoped that as word spread about the classes, more women would attend week by week. For the second class, a blanket was placed on the floor and participants sat around in a circle in the hope that this would make the class feel more informal and interactive. 13 women attended and the BfC nurse involved the women in games and questions surrounding their diet and nutrition. Healthy snacks and juice were supplied. This class felt more like a community event, with women laughing and chatting around the subject area. However, the following class about alcohol and smoking had a small attendance of only 3 women. Of the 3 attendees, 2 were illiterate. Time was spent explaining and including them in a quiz with information provided. The after-impact questions were asked to the women who attended, however women often left the class at the end before the question could be asked, and in these cases the team were not able to complete this task.
  • 8. Maternal Health Literacy Pilot Project, Kerala - Final Report 7 The team felt that the information regarding menstruation would be valuable to the women, so a repeat class was arranged, however the day before the class was planned, the local police came to the colony and arranged a mandatory meeting with the colony community at the same time as the class. Therefore, the class was unattended. We later discovered a number of other reasons that women had found it difficult to attend classes: a weekly woman’s meeting within the colony had started at the same time as the project classes; and some women reported a feud between the Udaya and PNT colony which meant that the women who lived at the PNT colony would not attend the classes or clinic in the Udaya colony. It was becoming apparent that we were trying to provide a community service that was not being utilised. As well as this, the next classes in the series were aimed at health in pregnancy and birth. As there were only 4 pregnant women in the colonies at that time, who already had older children and had not been attending previous classes, it was decided to complete the series of classes with the last class on the topic of ‘Taking care of children and first aid’. 8 women attended. 5. Findings of impact evaluation Women who attended 1 or more classes have been grouped together (CLASS participants), as have the women who attended the clinic (CLINIC participants) and those who attended neither the classes or clinic (the CONTROL group). 5.1 Class participants Method 1): Of the women who attended the classes and completed the pre- and post-impact question (See Appendix), there was an increase from 3 to 8 in the number who had a full understanding of menstruation and its connection with pregnancy. The number of women with no understanding reduced from 5 to 3. Following the alcohol and smoking class, the number of women who had a good understanding of the topic increased from 1 pre-class to 4. Those who had no understanding at all reduced from 2 to 1. 1 woman had an inaccurate understanding before the classes which was improved to full understanding following the classes. Method 2): Overall, there were minor improvements in REALM word recognition numbers regarding diet. 1 woman scored 3 or less prior to the classes, her score increased following the class. 3 women had full understanding before the classes which increased to 6 women with full understanding post classes. 1 women increased her score from 6 to 7. Limitations of the value of REALM scores for in a pre- and post- test experiment are discussed below. Method 3): 4 women felt they understood about taking care of children and first aid before-the class which increased to 6 afterwards. Other markers stayed exactly the same. The number of women who felt they understood increased to from 2 pre-class to 4 post-class but the midwives still felt that understanding was partial only. From the discrepancies between the way that women felt about their own knowledge and the midwives review of their understanding, it appears that the information the women felt they knew may have been inaccurate at times and didn’t correlate with the professional view. This may be a result of a lack of first hand education, or persistent misinformation passed to them through the generations.
  • 9. Maternal Health Literacy Pilot Project, Kerala - Final Report 8 5.2 Clinic participants Method 1): Of women who attended the clinic, no women understood the link between menstruation and pregnancy in the pre-test, but this increased to 4 post-clinic attendance. 7 women had no understanding which decreased to 3. The understanding of the harms of alcohol and smoking increased from 4 women pre- to 8 post-. The markers for those who partially understood stayed the same pre and post. However, those who had no understanding decreased from 4 to 0, suggesting that those who had no understanding before the clinic gained full understanding post. Those who inaccurately understood reduced from 2 to 1. Method 2): REALM scores showed an improvement between pre and post testing about diet. The scores improved from 10 women with a score of 6 pre-clinic, to 5 women with a score of 6 and 5 with a full recognition score of 7 post clinic. Recognition of all 7 words related to pregnancy increased from 6 pre- clinic to 10 post-clinic. The increase of those who recognised all 7 words came from those who had recognised 6 words pre-clinic. Method 3): 12 women felt they understood fully about first aid and taking care of children, however the midwives’ review assessed that only 5 women actually did understand pre-clinic. However, the number of women fell to 11 women who felt they understood after the clinic, with a midwife view that 6 actually did. The decrease in the number of women with a perception of full understanding might be explained by the assessment of their understanding, in some instances women explained partially what they would do in the event of an injury to their child with minimal information to describe their understanding so were therefore assessed to have partial understanding rather than full understanding. Although, women’s perceptions about their understanding on this topic reduced by 1, the midwives felt that overall 1 woman had gained more full understanding. 4 women felt they understood birth processes before their attendance at clinic which improved to 9 women after the clinic, however the midwives felt that no full understanding had been gained but that partial understanding had. This could be due to limitations of explanation of birth processes, women tended to describe their own birth experiences and their understanding of them which could veer away from factual information at times. 5.3 Control Group 25 out of 80 women’s pre and post questions were reviewed and included, every 3rd woman that participated that had not attended either the class or clinic but who lived within the slum community was included. Method 1): 19 of the 25 women included had no understanding about the link between menstruation and pregnancy when asked the questions before any services had been provided in the community. This reduced to 13 with no understanding post-. 2 had full understanding before which reduced to 1 following, with 4 women with partial understood before increasing to 6 afterwards. Inaccurate understanding also increased 1 to 4 women. The number of women who had full understanding of alcohol and smoking pre- to post- services also increased from 7 in the pre-testing in May 2017 to 16 in the post-testing in August 2017. Partial understanding decreased from 8 to 7 and no understanding reduced from 10 women to 2. Suggesting that some women had gained a better understanding of these topics. Method 2): The REALM scores regarding diet increased from 9 women in the control group with a score of 7 pre and 11 post. 8 women had a score of 6 pre- and 10 a score of 6 post-. This increase comes from women who had scores of 5 women who had scores of 4 or less before the services. This is an increase showing a larger number of women did recognise a higher number of words.
  • 10. Maternal Health Literacy Pilot Project, Kerala - Final Report 9 The REALM test showed higher levels of recognition following the provision of services on the topic of pregnancy. 15 women recognised all 7 of the REALM words prior to the clinic which increased to 23 post clinic attendance. The move from a recognition score of 6 to 7 accounts for this. 23 of the 25 women included felt they understood about taking care of children and first aid, this increased by 1 post services. However, midwives felt that true understanding was only described in 14 women pre-, which increased to 19 women post. The number of women who felt they understood remained the same pre and post when asked about healthy birth practices, but midwives felt that their understanding was not as accurate as the women felt it was. 16 of the women who felt they either understood or partially understood were viewed to have no understanding of the subject in the pre-test, 13 in the post-test. This improvement could be explained by women hearing the words used in the REALM scoring system for the second time in the pre and post questions. Method 3): 23 women felt that they understood about taking care of children in the control group before the provision of services, this increased by 1 woman following. 1 woman felt she had no understanding before which stayed the same afterwards. Of the 23 women who felt they understood, the midwives assessed that 14 of them did have full understanding, this number increased to 19 women following the services. These numbers suggest that the team had a more critical view of women’s understanding. Fewer women who felt they understood, actually did. But there was an improvement in understanding post services in the midwives’ view. These figures are summarised in the following tables: Menstruation Pre Post Class Clinic Control Class Clinic Control Understood 0 0 2 3 4 1 Partial understanding 1 5 4 2 6 6 Inaccurate understanding 0 3 1 0 1 4 No understanding 5 7 19 3 3 13 Total 6 15 26 8 14 24 Alcohol & Smoking Pre Post Class Clinic Control Class Clinic Control Understood 1 4 7 4 8 16 Partial understanding 2 5 8 3 5 7 Inaccurate understanding 1 2 0 0 1 0 No understanding 2 4 10 1 0 2 Total 6 15 25 8 14 25
  • 11. Maternal Health Literacy Pilot Project, Kerala - Final Report 10 Diet Pre Post No. of words understood Class Clinic Control Class Clinic Control 1 0 0 0 0 0 0 2 0 0 0 0 0 0 3 1 2 1 0 0 0 4 0 0 2 2 1 0 5 2 1 5 1 3 4 6 3 10 8 4 5 10 7 0 2 9 1 5 11 Total 6 15 25 8 14 25 Pregnancy Pre Post No. of words understood Class Clinic Control Class Clinic Control 1 0 0 0 0 0 0 2 0 0 0 0 0 0 3 0 0 1 0 0 0 4 1 1 0 0 0 1 5 1 1 0 0 1 0 6 2 7 9 4 3 1 7 2 6 15 4 10 23 Total 6 15 25 8 14 25 Taking care of children Participants results Pre Post Class Clinic Control Class Clinic Control Felt understood 4 12 23 6 11 24 Felt partially understood 1 1 1 1 1 0 Didn’t understand 1 2 1 1 2 1 Total 6 15 25 8 14 25 Taking care of children Midwives perceptions Pre Post Class Clinic Control Class Clinic Control Understood 2 5 14 4 6 19 Partial understanding 3 8 9 2 5 4 Inaccurate understanding 0 0 1 0 0 0 No understanding 1 2 1 2 3 2 Total 6 15 25 8 14 25
  • 12. Maternal Health Literacy Pilot Project, Kerala - Final Report 11 Healthy birth practices Participants results Pre Post Class Clinic Control Class Clinic Control Felt understood 1 4 11 3 9 11 Felt partially understood 2 4 3 1 1 3 Didn’t understand 2 7 11 3 4 11 Total 5 15 25 7 14 25 Healthy birth practices Midwives perceptions Pre Post Class Clinic Control Class Clinic Control Understood 0 0 2 0 0 2 Partial understanding 2 5 6 4 7 8 Inaccurate understanding 0 0 1 0 1 2 No understanding 3 10 16 3 6 13 Total 5 15 25 7 14 25 6. Statistical testing for significant differences A two-tailed t-test on paired data for individual women for each of the six topics within each of the three groups – CLASS, CLINIC and CONTROL was also carried out. Within the CLASS group, the sample size (n= 8) was below the usual minimum strictly allowable in science to draw a conclusion on whether the difference was significant, based on a reliable bell-curve. Even ignoring this major caveat, potentially significant p-values (less than 0.05 (5%) i.e. 95% confidence of a significant difference were not indicated for any of the topics. Within the CLINIC group, where the sample size (n= 15) did meet the minimum criterion, p-values showing a significant difference occurred in the following: • Increase in the number of women who understood the issue represented by the question on Menstruation (p= 0.03205) • Decrease in the number of women who had no understanding of the issue represented by the question on Alcohol and Smoking (p= 0.03205) • Decrease in the number of women who felt they Partially Understood the issue represented by the question on Healthy Birth Practices (p =0.03205). This can be correlated with a clear increase in the number of women who felt they Fully Understood and simultaneously a decrease in the number of women who felt they had No Understanding. However, the last two data did not produce a p-value showing a significant difference. The tests on the REALM word-recognition intervention for two topics: Diet and Pregnancy did not show any significant difference in the number of words recognised. Over 90% of women understood either 6 or 7 of the seven words in both the pre-and post-test.
  • 13. Maternal Health Literacy Pilot Project, Kerala - Final Report 12 Within the largest CONTROL group (n=25) who attended neither Class or Clinic: • A significant increase (p=0.00997) was shown in the number of women who Understood the issue represented by the question on Alcohol and Smoking. This was correlated to a significant decrease in the number of women who had No Understanding (p= 0.00735). These data suggest that women in this community were influenced by factors or information arising from external sources and/or by contact with women who had attended the Clinic. • The number of women understanding 7 words in the REALM test on the Pregnancy topic showed a significant increase in the post-test (p=0.00735) identical with a decrease in the number of women who understood 6 words in the pre-test (p=0.00400). However, the usefulness of this finding is questionable in terms of the value of using a word recognition twice with the same people in a pre- and post-test context (described earlier). No other statistically significant differences were derived from the t-test. 7. Methodological issues and limitations Women in the slum community participated voluntarily but have many personal responsibilities as a woman; attending to their house work, families and work. This may be a reason why they do not prioritise their health and therefore attendance at clinic or health classes. This meant that sample size of women who attended classes was small. This was the first time the Birth for Change team had carried out an impact evaluation of this kind and, although considerable thought and testing went into it, there may have been small discrepancies. It is not considered that they were of high significance. The team recognise that use of REALM as part of an impact evaluation may not have been appropriate. It is hard to distinguish whether the patterns of recognition of the words was because of repetition of the tool and words used within it or whether women understood and recognised the words due to a greater knowledge of the subject. In South India, different religious communities live together in the same society. Therefore, when arranging the classes in the Christian convent hall it was thought that this would not be a concern. However, for future practice, it may be worth considering a common hall with no religious tendency so as not to alienate any women who would want to attend but might not feel welcome or trust religions different from their own. When gathering initial information in a small Indian community there are few robust or reliable ways to verify information. The team had to rely on the word of people in the community to inform and educate them about the community and what their access to services they had, which meant that this information only became available as the project was underway and the community started interacting with and building confidence in the BfC team. Bias from different sources should also be considered. When entering a new community, the politics between individuals and sections of the community can be hard to navigate. Overall, the methodical process of the project and lessons learnt during and from it have been valuable. There is a case for repeating this methodology in a more rural area where women have very limited access to services and would have to travel long distances to access them and would be much less likely to have any access to health information.
  • 14. Maternal Health Literacy Pilot Project, Kerala - Final Report 13 8. Conclusions Of the 2 groups that attended the available services, overall the women who attended the clinic appear to have gained more understanding of the chosen topics than those who attended the classes. This could suggest that necessary attendance to a clinic for a health need, with provision of information at that time may be more likely to improve women’s understanding, possibly as it becomes more relevant to their current situation. There is also a marked improvement in the numbers of women who gained understanding of topics pre and post the provision of services in their community, despite not having attended either (the control group). The factors which have led to this improvement are unclear, however the team speculated that women discuss and pass on information between them in communities and therefore transmission of information had taken place between women who came to the clinic and classes and those who did not. Information gained from the impact assessment of this service suggests that women had more understanding of chosen topics in comparison to before, following attendance at the clinic more than health classes. A major limitation of this study is the small sample size participating in the class and clinic groups, mainly due to the attrition factors described above. A further limitation in this respect, arose from the division of the six ‘class’ topics between the three selected methods in pairs of two. More meaningful results could have been produced had time allowed all six topics to be compared across all three methods. These findings about the impact of the services provided and interaction with women during health classes allow us to move forward with a more focused view for the South Indian population of women. Empowerment of these women through education in a range of settings, and therefore an increase in their role in decision making about their own health is vital to positive changes in women’s health in India. It seems there is a need for a strategic approach to address these issues especially for younger women, those who access government health facilities and those in rural areas with poor access to services. There appears from this data to be a possible case for conducting further field trials and pilots, on a larger scale, to validate the impact of Clinic-style interventions on women in other communities. Likewise, this could beneficially be associated with comparative studies involving other types of intervention where a minimum sample is available, including Class-style interventions. References • Ibrahim S, Reid F, Shaw A, Rowlands G, Gomez GB, Chesnokov M, Ussher M (2008) Validation of health literacy screening tool (REALM) in a UK population with coronary heart disease. Journal of public health. Vol 30:1. Pp 449-455
  • 15. Maternal Health Literacy Pilot Project, Kerala - Final Report 14 Appendix 1: Pre and Post impact questions Participant number: ORIGINAL BEFORE AND AFTER- METHOD 1 Session 1. Menstruation What is the link between menstruation and getting pregnant? Session 3. Alcohol and smoking What effects, other than intoxication, does alcohol have on your body? REALM- METHOD 2 Session 2. Diet and Nutrition Suggested Introduction: Do you recognise any of these words in English or Malayalam? Starting at the top of the list. If you don’t you recognize a word, you can say ‘pass’ and move on to the next word.” Interviewer: If the participant takes more than 5 seconds on a word, say “pass” and point to the next word. Hold this scoring sheet so that it is not visible to the participant Iron_____ Vitamins _____ Deficiency _____ Supplements_____ Hydration _____ Anaemia _____ Folic acid(Folate) _____ TOTAL SCORE ______ Session 4. Pregnancy Suggested Introduction: Do you recognise any of these words in English or Malayalam? Starting at the top of the list. If you don’t you recognize a word, you can say ‘pass’ and move on to the next word.”
  • 16. Maternal Health Literacy Pilot Project, Kerala - Final Report 15 Interviewer: If the participant takes more than 5 seconds on a word, say “pass” and point to the next word. Hold this scoring sheet so that it is not visible to the participant Morning sickness_____ Uterus _____ Foetal movements _____ Estimated due date _____ Midwife _____ Ultrasound scan _____ Placenta_____ TOTAL SCORE ______ PERCEPTIONS OF CHANGES- METHOD 3 Session 5. Taking care of children Do you feel you have an understanding of what to do to help if you or your child (if applicable) hurts themselves e.g. cut or burn? Session 6. Healthy birth practices Do you feel you know enough about what happens during childbirth to make decisions about your own birth or advise a friend or family member about theirs?
  • 17. Maternal Health Literacy Pilot Project, Kerala - Final Report 16 Appendix 2: Class Outline 1. Menstruation- v Group work/ cycle bead leaflet handout/ animated film • The menstrual cycle • The uterus • Ovulation • Fertile/non- fertile window • Cycle beads • Dealing with periods- pain, sanitary wear 2. Diet- v Activities: ♦ Food pyramid- foods into relevant layer according to how much of what we should eat (old pizza boxes, veg tins etc.)- women put in area they believe to be true ♦ Possible food diary- woman writes account of what she’s eaten in last 3 days and we discuss with her individually/smaller groups • The bodies need for vitamins and minerals • The effect poor diet has on the body • Nutritious foods- balanced diet- how to get the vitamins and minerals needed • The effect of poor nutrition on growth and development of fetus and children 3. Alcohol and Smoking- v Informal teaching Session, video, ‘drink aware’ like poster v Alcohol and smoking quiz v Video about effects on body • The effects on the body • Effects on sleep, relationships, caring for children, working life • Fetal alcohol syndrome • Health risks
  • 18. Maternal Health Literacy Pilot Project, Kerala - Final Report 17 4. Taking care of children v Informal teaching session, interactive group work, posters v First aid v Bandages and doll to practice on • Benefits of breastfeeding on a child’s health • Nutrition • Activity and stimulation • Role of parental relationship • Common ailments and when to seek help * 5. Pregnancy v Images, doll and pelvis, pregnancy art-exploring feelings and understanding of pregnancy • Finding out you are pregnant • Feelings during pregnancy • Normal pregnancy symptoms • Importance of fetal movements • Nutrition and supplements • When to seek support/ advice • Antenatal care- accessing the new clinic ** 6. Healthy birth practices v ‘Grab bag’ teaching of comfort measures, labelled areas of room- ask women to go to which area they believe to be right answer in regard to questions about infant care, signs of labour etc. • Signs of labour • What to look out for • Comfort measures/ what can help/ optimal fetal positioning • The postpartum months • Keeping mother and baby together • Infant feeding * and ** Classes in red were not held following poor attendance of previous classes.