The strategic development of the 'Living Well' programme, Penny Brohn Cancer Care services and how this fits the National Cancer Survivorship Initiative vision.
Michael Connors, Acting Chief Executive, Penny Brohn Cancer Care.
3. Dedicated in Memory of the life of
Patricia Ann Pilkington, MBE, Founder PBCC
03.11.1928 – 19.08.2013
4. Past Conferences
Tuesday 12th November 2013 - Living Well With and
Beyond Cancer Conference - Service Design and Delivery
to Improve Outcomes
Tuesday 20th November 2012 - Living Well with the
Impact of Cancer Conference - Supported Self
Management: The Future of Cancer Services
Thursday 10th November 2011 - Living Well: With the
Impact of Cancer Conference- A Model for Expansion
Thursday 11th November 2010 – Living Well: With and
Beyond Cancer Conference –Helping the Whole Person
5. Cancer affects us all
2 million living with and beyond cancer
0.5 million living with serious longer term consequences.
6. Cancer impacts the whole person
Psychological
Spiritual
purpose
meaning
Physical
Impact on
Whole person
Consequences
of Treatment
Financial
welfare
Relationships
7. Strategic Vision and the National Cancer
Survivorship Initiative
Michael Connors
Acting Chief Executive
Penny Brohn Cancer Care
8. The National Cancer Survivorship
Initiative
NCSI Vision Document
“...current follow-up arrangements do not address
the full range of physical, psychological, social,
spiritual, financial and information needs that
cancer survivors may have following their
treatment.”
9. Strategic Development of Living Well
Programme
Phase 1
2009-2010 Design and test a programme of outreach
that begins to meet the vision of NCSI
Phase 2
2010-2011 prototype and deliver this programme as
outreach in various locations across the country.
Phase 3
2011-2013 set up living well services nationally in
England and to Test and evaluate any ongoing impact
on Health and Well being
Phase 4
2013-16 further extend the delivery of courses across
country in partnership with other providers. Achieve
commissioning. Further in depth research carried out.
10. Living Well Evaluation
The Living Well course has a clinically significant,
positive impact on many peoples health and well being
over a one year period.
We need a pathway of care
12. Where next
Continue to develop our service delivery across the UK
Carry out further research on our approach and in the
gaps in knowledge
Bring more training and education functions back
Influence and enable the development of cancer
services to incorporate a whole person approach into
service design.
Editor's Notes
As we are all aware there are still a large number of people who would like more support and NCSI provided evidence of this.
PBCC were invited to be involved with the NCSI since its inception:
As part of the Active and Advanced Work stream, in partnership with Macmillan performed a scoping exercise; reviewing the evidence of the benefits of “Living Well” for people with active and advanced disease and examining good practise in this area.
We also ran a pilot in partnership with North Bristol NHS Trust as one of the initial adult test sites. This was our first opportunity to trial delivering our Living Well courses away from the national centre. The trial was very successful and we went on to extend the pilot, delivering a further courses at venues in Leeds, Cambridge, Hereford and London.