FASD
     Dr. Cheryl Wissick
    College of Education
 University of South Carolina
Member: SC FASD Collaborative
What do you know
•Pre-survey
 • Do no label with name but make up a 4 digit
   code to be used again at end

•Brainstorming
 • What do you already know about students with
   special needs?
Objectives
•To learn characteristics of students with
 FASD
•To become familiar with teaching
 techniques for FASD
•To learn how to prevent FASD
•Who has FASD? Visit SAFA
 (http://www.thearc.org/page.aspx?pid=3591)
Fetal Alcohol Spectrum Disorder
•What causes FASD?
•Fetal Alcohol Spectrum Disorders is not a
 diagnostic category, but rather an
 umbrella term describing the effects that
 can occur in a person whose mother drank
 alcohol during pregnancy.
•Alcohol causes more long-term damage
 than other drugs of abuse.
Person First language
•FASD is what a person has not what a
 person is.
•Teenager with fetal alcohol spectrum
 disorders
•Student with a learning disability
•Man with red hat
•Can you think of one?
Quick Facts
•FASD is 100% preventable
•FASD is 0% curable & lasts a lifetime
•Prevalence of FASD is about 1:100
•Many children and adults with FASD are not
 diagnosed and do not receive services but
 end up homeless, in mental institutions or
 prisons.
Characteristics
•Specific central nervous system
 abnormalities
•Growth deficits
•Facial Characteristics


If all 3 are present, then no confirmation of
maternal drinking is necessary
Central Nervous System-1 of 3
•Functional -Performance substantially below
 expectations based on age, schooling
   •   cognitive or developmental deficits
   •   executive function deficits
   •   problems with attention or hyperactivity
   •   social skill deficits

•Neurological problems
•Structural – small head circumference
Facial Abnormalities of FAS-all 3 required

                                      Smooth philtrum
                                        no groove above lip
                                      Thin vermillion
                                         thin upper lip

                                      Small palpebral fissures
                                        small eyelid openings
 Photo courtesy of Teresa Kellerman
Growth Deficiency
FASD
•If not a diagnosis then what…
•Leading cause of Intellectual Disability - - -
 IQ below 70
•BUT only about 25% of all with FASD have ID
•IQ range from 20 to 110 or higher
•What might be the diagnosis?
 • LD, EBD, ADHD, OD,
Classroom Challenges
•Students who do not always respond to
 Research & Evidence based strategies
•Students do not respond to typical or long
 term rewards and consequences
•Students who appear to be unmotivated
 and unresponsive
Brain disorder creates gaps




Chart of age level functioning
Use Strengths Based Approach
•What do they do well?
•What do they like to do?
•What are their best qualities?
•What are your funniest experiences with
 them?
•Identify strengths in family, teachers,
 community, school
•Always focus on the individual first
“Typical” strengths
• Friendly         • Determined
• Likeable         • Have points of
                     insight
• Verbal
                   • Good with younger
• Helpful            children or elderly
• Caring
• Hard Worker
Weaknesses: Executive Functioning

•Planning           •Mental flexibility
•Attention          •Multi-tasking
•Problem solving    •Initiation and
                     monitoring of
•Verbal reasoning
                     actions
•Inhibition
•Working memory
UDL* Model
•Paradigm shift: Move from viewing the
 individual as failing to viewing the program
 as not providing what the individuals need.
 (Dubovsky)


•Identify Barriers to learning and then list
 possible solutions to those barriers.


                 * Universal Design for Learning
Barriers to Learning
Attention
•Coming to attention
•Filtering out other distractions
•Staying on task for long periods
•Shifting attention
Barriers to learning
Verbal Reception
•Verbal expressive ability is much more
 advanced than verbal receptive skills or
 ability to produce written products.
•Can’t process several directions at
 once
•Say they know what they need to do
 but they cannot show they can do it
Barriers to Learning
 Working memory
 •Problems with Storage and retrieval
 •Cannot keep track of multiple plans
 •Cannot remember what they were
  supposed to do when (whether its an
  hour, day or week after being told)
 •Difficulty with number concepts: time,
  money, measurement
Barrier to learning
Abstract Concepts
•Slow Processing rate
•Difficulty with prediction
•Difficulty making links or forming
 associations
•Problems making generalizations
•Literal thinking
Barrier to Behavior

Do not learn by experiencing
consequences of their behavior.
•Act oppositional.
•Keep breaking the rules.
•Problems with lying or filling in the truth.
•Only respond to immediate rewards and
 consequences.
Barrier to Behavior

Social Interactions
•Try to “go along with the crowd”
•Difficulty making & maintaining friends.
•Cannot filter what they are thinking
•Perceptions of situations are different
 from others
Overall Strategies
•Simplify the individual’s environment
•Use of a lot of repetition, more than what
 we think based on their intellect & verbal
 behavior.
•Provide one direction or rule at a time.
•De-stress situations, as it creates cortisol in
 their brain.
 Don’t bring a match to a fireworks factory.
Take home information
•Modify approaches to meet needs based on
 brain damage
•Simplify the environment and add structure.
•Listen when they tell you that they cannot
 do something but they are trying, as they
 do learn differently
So now you know…
•Why would someone drink while pregnant?
•55% of women aged 18-44 drink and CAN
 become pregnant
•Most women drink BEFORE they know they
 are pregnant
•Great-Aunt Margaret Marie drank while she
 was pregnant and Uncle Harry is just fine
How much is too much alcohol
•What is a standard drink:
 • 12 oz. of beer
 • 5 oz. of wine
 • 4 oz. sherry
 • 1 ½ oz. of liquor
 • 12 oz wine spritzer

•NO alcohol in any form is safe during
 pregnancy.
Prevalence of Any Alcohol Use among Women
      Aged 18-44 Years – United States, 1991-2005

•High-risk drinking among women has not
 declined in the past decade
                     Behavioral Risk Factor Surveillance System, 1991-2005, United States

                     60

                     50
    Prevalence (%)




                     40

                     30

                     20

                     10

                      0




                                                         Not pregnant       Pregnant
Take home message
•No amount of alcohol,
•No type of alcohol,
•No time of pregnancy to consume alcohol
 is known to be safe during pregnancy.
FASD Reminders
•Fetal Alcohol Syndrome is 100% preventable
•Fetal Alcohol Syndrome is 0% curable
•If you are pregnant, don’t drink
•If you drink, don’t get pregnant
Resources
•National Organization on Fetal Alcohol
 Syndrome http://www.nofas.org
•FAS Center for Excellence
 http://www.fascenter.samhsa.gov
•FAS Community Resource Center
 http://www.come-over.to/FAS
•SC FASD Collaborative
 http://scfasd.weebly.com/
Help spread the word
    with the FASD Knot




Can you follow the picture directions to
make an FASD knot?

Fasd teacher cadet

  • 1.
    FASD Dr. Cheryl Wissick College of Education University of South Carolina Member: SC FASD Collaborative
  • 2.
    What do youknow •Pre-survey • Do no label with name but make up a 4 digit code to be used again at end •Brainstorming • What do you already know about students with special needs?
  • 3.
    Objectives •To learn characteristicsof students with FASD •To become familiar with teaching techniques for FASD •To learn how to prevent FASD •Who has FASD? Visit SAFA (http://www.thearc.org/page.aspx?pid=3591)
  • 4.
    Fetal Alcohol SpectrumDisorder •What causes FASD? •Fetal Alcohol Spectrum Disorders is not a diagnostic category, but rather an umbrella term describing the effects that can occur in a person whose mother drank alcohol during pregnancy. •Alcohol causes more long-term damage than other drugs of abuse.
  • 5.
    Person First language •FASDis what a person has not what a person is. •Teenager with fetal alcohol spectrum disorders •Student with a learning disability •Man with red hat •Can you think of one?
  • 6.
    Quick Facts •FASD is100% preventable •FASD is 0% curable & lasts a lifetime •Prevalence of FASD is about 1:100 •Many children and adults with FASD are not diagnosed and do not receive services but end up homeless, in mental institutions or prisons.
  • 7.
    Characteristics •Specific central nervoussystem abnormalities •Growth deficits •Facial Characteristics If all 3 are present, then no confirmation of maternal drinking is necessary
  • 8.
    Central Nervous System-1of 3 •Functional -Performance substantially below expectations based on age, schooling • cognitive or developmental deficits • executive function deficits • problems with attention or hyperactivity • social skill deficits •Neurological problems •Structural – small head circumference
  • 9.
    Facial Abnormalities ofFAS-all 3 required Smooth philtrum no groove above lip Thin vermillion thin upper lip Small palpebral fissures small eyelid openings Photo courtesy of Teresa Kellerman
  • 10.
  • 11.
    FASD •If not adiagnosis then what… •Leading cause of Intellectual Disability - - - IQ below 70 •BUT only about 25% of all with FASD have ID •IQ range from 20 to 110 or higher •What might be the diagnosis? • LD, EBD, ADHD, OD,
  • 12.
    Classroom Challenges •Students whodo not always respond to Research & Evidence based strategies •Students do not respond to typical or long term rewards and consequences •Students who appear to be unmotivated and unresponsive
  • 13.
    Brain disorder createsgaps Chart of age level functioning
  • 14.
    Use Strengths BasedApproach •What do they do well? •What do they like to do? •What are their best qualities? •What are your funniest experiences with them? •Identify strengths in family, teachers, community, school •Always focus on the individual first
  • 15.
    “Typical” strengths • Friendly • Determined • Likeable • Have points of insight • Verbal • Good with younger • Helpful children or elderly • Caring • Hard Worker
  • 16.
    Weaknesses: Executive Functioning •Planning •Mental flexibility •Attention •Multi-tasking •Problem solving •Initiation and monitoring of •Verbal reasoning actions •Inhibition •Working memory
  • 17.
    UDL* Model •Paradigm shift:Move from viewing the individual as failing to viewing the program as not providing what the individuals need. (Dubovsky) •Identify Barriers to learning and then list possible solutions to those barriers. * Universal Design for Learning
  • 18.
    Barriers to Learning Attention •Comingto attention •Filtering out other distractions •Staying on task for long periods •Shifting attention
  • 19.
    Barriers to learning VerbalReception •Verbal expressive ability is much more advanced than verbal receptive skills or ability to produce written products. •Can’t process several directions at once •Say they know what they need to do but they cannot show they can do it
  • 20.
    Barriers to Learning Working memory •Problems with Storage and retrieval •Cannot keep track of multiple plans •Cannot remember what they were supposed to do when (whether its an hour, day or week after being told) •Difficulty with number concepts: time, money, measurement
  • 21.
    Barrier to learning AbstractConcepts •Slow Processing rate •Difficulty with prediction •Difficulty making links or forming associations •Problems making generalizations •Literal thinking
  • 22.
    Barrier to Behavior Donot learn by experiencing consequences of their behavior. •Act oppositional. •Keep breaking the rules. •Problems with lying or filling in the truth. •Only respond to immediate rewards and consequences.
  • 23.
    Barrier to Behavior SocialInteractions •Try to “go along with the crowd” •Difficulty making & maintaining friends. •Cannot filter what they are thinking •Perceptions of situations are different from others
  • 24.
    Overall Strategies •Simplify theindividual’s environment •Use of a lot of repetition, more than what we think based on their intellect & verbal behavior. •Provide one direction or rule at a time. •De-stress situations, as it creates cortisol in their brain. Don’t bring a match to a fireworks factory.
  • 25.
    Take home information •Modifyapproaches to meet needs based on brain damage •Simplify the environment and add structure. •Listen when they tell you that they cannot do something but they are trying, as they do learn differently
  • 26.
    So now youknow… •Why would someone drink while pregnant? •55% of women aged 18-44 drink and CAN become pregnant •Most women drink BEFORE they know they are pregnant •Great-Aunt Margaret Marie drank while she was pregnant and Uncle Harry is just fine
  • 27.
    How much istoo much alcohol •What is a standard drink: • 12 oz. of beer • 5 oz. of wine • 4 oz. sherry • 1 ½ oz. of liquor • 12 oz wine spritzer •NO alcohol in any form is safe during pregnancy.
  • 28.
    Prevalence of AnyAlcohol Use among Women Aged 18-44 Years – United States, 1991-2005 •High-risk drinking among women has not declined in the past decade Behavioral Risk Factor Surveillance System, 1991-2005, United States 60 50 Prevalence (%) 40 30 20 10 0 Not pregnant Pregnant
  • 29.
    Take home message •Noamount of alcohol, •No type of alcohol, •No time of pregnancy to consume alcohol is known to be safe during pregnancy.
  • 30.
    FASD Reminders •Fetal AlcoholSyndrome is 100% preventable •Fetal Alcohol Syndrome is 0% curable •If you are pregnant, don’t drink •If you drink, don’t get pregnant
  • 31.
    Resources •National Organization onFetal Alcohol Syndrome http://www.nofas.org •FAS Center for Excellence http://www.fascenter.samhsa.gov •FAS Community Resource Center http://www.come-over.to/FAS •SC FASD Collaborative http://scfasd.weebly.com/
  • 32.
    Help spread theword with the FASD Knot Can you follow the picture directions to make an FASD knot?

Editor's Notes

  • #5 Notice that FASD is not listed with other special needs that are diagnosed and eligible for services in school systems
  • #10 These are the cardinal facial features of FAS. In order to better quantify the findings, reference is made to the lip philtrum guides of Astley & Clarren. Lip and philtrum measurements of 4 and 5, adjusted for race and ethnicity, meet the diagnostic criteria. Astley SJ, Clarren SK. J Pediatrics 1996; 129:33-41.