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Fundamentals of
Dementia Care for Health
Facility Personnel
Funded by:
Indiana State Department of Health
Co-sponsored by:
IAHSA
IHCA
HOPE
Module 1:
Understanding Memory Loss
In this section, we will cover:
 Definition of dementia and Alzheimer’s
disease
 Stages of the disease and the
expectations
 Current medications and treatments
What is Dementia?
 Dementia is a disease process
– Progressive decline in cognitive function
– Memory loss
 Over 170 irreversible dementias
– HIV, Vascular, Lewy Body, Parkinson’s,
Alzheimer’s
 Some forms are reversible (treatable)
– Thyroid disorders, drug interactions,
dehydration
Delirium, Depression, and
Dementia
 Delirium
– Acute onset, can be treated
– Altered state of consciousness
 Depression
– Gradual onset, can be treated
– Look for signs, such as low self-esteem
 Dementia
– Gradual onset, might be treated
– Memory loss and decline in cognitive function
Alzheimer’s Disease
 Most common form of irreversible
dementia
– Nearly 70% of all dementias are Alzheimer’s
– Over 4.5 million Americans have Alzheimer’s
– It is estimated that 60% of all nursing home
residents have Alzheimer’s disease
 Alzheimer’s is not normal aging
– Learning new information make take longer
– May be difficult to filter out noise
Brain Scan
The Diagnostic Process
 Multidisciplinary approach that is 80-
90% accurate
– Brain scan, blood and urine tests,
hearing/visual exams
– Neuropsychological testing and interview with
caregivers
 The only way to confirm diagnosis is
with an autopsy
Stages
Early
 Needs
reminders
 Daily
routines
difficult
 Concentrati
on-ion is
difficult
Middle
 May need
hands on
care
 May get lost
easily
 Changes in
personality
Late
 Severe
confusion
 Needs hand
on care for
most
personal
care
 May not
recognize
self or
family
Areas of the Brain Affected
Cognition
 Memory
 Learning
 Language
 Praxic
Function
 Abstract
thinking
 Psycho-
motor speed
Behavior
 Communi-
cation
 Safety
 Personal
care
deteriorates
 Lapses in
clarity
 Hallucina-
tions
 Delusions
Emotion
 Disregulated
 Disorganized
 Apathy (loss
of energy,
willingness)
 Lability
(moods
change)
Medications
 Cholinesterase
Inhibitors
– Cognex
– Aricept
– Exelon
– Reminyl
 Glutamate Receptors
– Namenda
Module 2:
Person Centered Care
In this section, we will cover
 Understanding person centered care
and its characteristics
 Identifying strategies for implementing
person centered care
 Find ways to take care of the
professional caregiver
Person Centered Care
 Person centered care is truly putting the
PERSON first
 Characteristics
– Behaviors are a desire to communicate
– We must maintain and uphold the value of the
person
– Promote positive health
– All action is meaningful
Person Centered Care, Cont.
 Core psychological needs must be met
to provide quality care
– Love
– Inclusion
– Attachment
– Identity
– Occupation
– Comfort
Implementing
Person Centered Care
Recognition Negotiation Collaboration/
Facilitation
Play Timalation Celebration
Relaxation Validation Holding
Stress!
 Stress can lead to poor quality care,
quality of life, and abuse and neglect
 Signs of stress
– Too little or too much sleep, nightmares
– Fatigue
– Headaches, backaches, joint pain
– Diarrhea/constipation
– Frequent accidents
Module 3:
Communication
In this section, we will cover:
 The impact of verbal and non-verbal
communication
 Examine and demonstrate techniques
for promoting meaningful
communication
 Understand the correct use of validation
and reality orientation
Verbal and Non-verbal
Communication
Verbal
 Tone
 Pitch
 Rate
 Pause
Non-verbal
 Gestures
 Facial expressions
 Posture
 Each person is unique
 Behaviors are a form of communication
 Communication is only 10% verbal
 People with Alzheimer’s maintain the ability to
understand non-verbal long after verbal is forgotten
Non-verbal Strategies
 Your mood will be mirrored
 Approach from the front
 Establish eye contact
 Speak at eye level
 Use gentle touch
 Point or demonstrate
Verbal Strategies
 Use calm, gentle voice
 Call person by name
 Identify yourself
 Use short, simple sentences
 Speak slowly and respectfully
 Eliminate distracting noises
 Use familiar words
 Give simple choices
 Give one instruction at a time
 Allow time for the person to respond
Validation vs. Reality
Validation
 Become part of the
person’s reality
 Acceptance
 Feelings into words
 Acknowledgement
Reality
 Early stages, only if not
upsetting
 Short explanations
 New information can be
frustrating
 Reality becomes based on
the past
Therapeutic Fibbing
 The use of telling fibs or lies in an effort
to calm
 We are never sure how much
information a person may be able to
process or remember
 Should only be used when absolutely
necessary, look for other ways to calm
and support, such as redirection
Module 4:
Understanding Behaviors
In this section, we will cover:
 Understanding of how and why
behaviors become challenging
 Ways to prevent behaviors
 Techniques for responding to
challenging behaviors
 Emotions a person with dementia is
likely to experience
Human Emotions
Joy
Pleasure, love,
happiness, sexuality
Anger
Rage, hate, displeasure
Fear
Guilt, shame, anxiety
Sadness
Misery, grief
Respond to Feelings
 Enter the person’s reality
 Look for feelings behind the words
 Empathize
 Be non-judgmental
 Respect their needs
 Your emotions will be mirrored
 Communicate comfort, warmth, and praise
 Smile!
 Put the person’s feelings into words
 Allow for negative feelings
Problem Solving Behaviors
 Task
– Too complicated, too many steps, not modified,
unfamiliar
 Environment
– Too large, too much clutter, excessive stimulation, no
clues, poor sensory, unstructured, unfamiliar
 Physical health
– Medications, impaired vision/hearing, acute illness,
chronic illness, dehydration, constipation, depression,
fatigue, physical discomfort
 Miscommunication
The 11 W’s
 Who has the behavior?
 What is the specific behavior?
 Why does it need to be addressed?
 What happened just before?
 Where does it occur?
 What does the behavior mean?
 When does the behavior occur?
 What is the time, frequency?
 Who is around?
 What is the outcome?
 What is the DESIRED change?
Preventing Behaviors
Diversion or distraction Removal
Redirection Task breakdown
Stimulus Control Environmental
manipulation
Reassurance Setting limits
Responding to Behaviors
 Anxiety/agitation
– Response to misinterpretation of environment
or people
 Aggressive reactions
– Usually directed at caregiver or another person
 Rummaging
– Looking for something meaningful
 Repetitive crying out
– Unresolved pain or discomfort
Module 5:
Activities of Daily Living
In this section, we will cover:
 Causes for resistance to ADL’s
 Strategies that promote participation
 Possible techniques for managing ADL’s
 Identifying signs of abuse and neglect
Causes for Resistance
 Memory loss
 Decreased attention span
 Impaired judgment
 Loss of ability to communicate
 Difficulty with motor skills
Strategies for Participation
 Anticipate problems or events
 Provide a routine
 Establish rapport
 Talk with a calm voice
 Do not attempt to use reason or logic
 Do not rush
 Avoid arguing
 Focus on abilities
Strategies for Participation, Cont
 Approach—knock, announce, privacy
 Encourage the person to do as much as
they can
 Praise for small successes
 Provide for privacy
 Do not keep person waiting
 Demonstrate what you want done
 Stop when frustration occurs
ADL Tips
 Dressing
– Layout clothes, limit choices, item to stroke
 Bathing
– Keep routine consistent, privacy, adequate lighting
 Toileting
– Evaluate!
 Eating and swallowing
– Ensure adequate intake, pleasurable experience,
independence
 Sleeping
– Reassure, speak softly, adequate lighting
Module 6:
Families
In this section, we will cover:
 Empathizing with feelings that a person with
Alzheimer’s and their families may experience
 Identifying and informing families of resources
 Identifying strategies for building a positive
relationship with families
 Understanding the unique opportunity for a
long term relationship
Family Feelings
 Denial
 Frustration
 Isolation
 Guilt
 Anger
 Loss/grief
 Letting go
Conflict Resolution
 Denial can be healthy
 Educate in small doses
 Do not push to hard
 Encourage support groups
 Acknowledge
 Listen
 Feedback
 Privacy
Internal Resources
 Staff members
 Library
 Administrator
 Family counsels
 Care plan meetings
Alzheimer’s Association
 Helpline
 Family Education
 Support Groups
 Care Consultation
 Safe Return
Strategies for Positive
Relationships
 Show support
– Family tours, communication processes
– Validate emotions, develop realistic
expectations, compliment, report good news
 Promote successful visits
– Offer suggestions and support
– Bring in family videos, pictures
– Activities

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  • 1. Fundamentals of Dementia Care for Health Facility Personnel
  • 2. Funded by: Indiana State Department of Health Co-sponsored by: IAHSA IHCA HOPE
  • 3. Module 1: Understanding Memory Loss In this section, we will cover:  Definition of dementia and Alzheimer’s disease  Stages of the disease and the expectations  Current medications and treatments
  • 4. What is Dementia?  Dementia is a disease process – Progressive decline in cognitive function – Memory loss  Over 170 irreversible dementias – HIV, Vascular, Lewy Body, Parkinson’s, Alzheimer’s  Some forms are reversible (treatable) – Thyroid disorders, drug interactions, dehydration
  • 5. Delirium, Depression, and Dementia  Delirium – Acute onset, can be treated – Altered state of consciousness  Depression – Gradual onset, can be treated – Look for signs, such as low self-esteem  Dementia – Gradual onset, might be treated – Memory loss and decline in cognitive function
  • 6. Alzheimer’s Disease  Most common form of irreversible dementia – Nearly 70% of all dementias are Alzheimer’s – Over 4.5 million Americans have Alzheimer’s – It is estimated that 60% of all nursing home residents have Alzheimer’s disease  Alzheimer’s is not normal aging – Learning new information make take longer – May be difficult to filter out noise
  • 8. The Diagnostic Process  Multidisciplinary approach that is 80- 90% accurate – Brain scan, blood and urine tests, hearing/visual exams – Neuropsychological testing and interview with caregivers  The only way to confirm diagnosis is with an autopsy
  • 9. Stages Early  Needs reminders  Daily routines difficult  Concentrati on-ion is difficult Middle  May need hands on care  May get lost easily  Changes in personality Late  Severe confusion  Needs hand on care for most personal care  May not recognize self or family
  • 10. Areas of the Brain Affected Cognition  Memory  Learning  Language  Praxic Function  Abstract thinking  Psycho- motor speed Behavior  Communi- cation  Safety  Personal care deteriorates  Lapses in clarity  Hallucina- tions  Delusions Emotion  Disregulated  Disorganized  Apathy (loss of energy, willingness)  Lability (moods change)
  • 11. Medications  Cholinesterase Inhibitors – Cognex – Aricept – Exelon – Reminyl  Glutamate Receptors – Namenda
  • 12. Module 2: Person Centered Care In this section, we will cover  Understanding person centered care and its characteristics  Identifying strategies for implementing person centered care  Find ways to take care of the professional caregiver
  • 13. Person Centered Care  Person centered care is truly putting the PERSON first  Characteristics – Behaviors are a desire to communicate – We must maintain and uphold the value of the person – Promote positive health – All action is meaningful
  • 14. Person Centered Care, Cont.  Core psychological needs must be met to provide quality care – Love – Inclusion – Attachment – Identity – Occupation – Comfort
  • 15. Implementing Person Centered Care Recognition Negotiation Collaboration/ Facilitation Play Timalation Celebration Relaxation Validation Holding
  • 16. Stress!  Stress can lead to poor quality care, quality of life, and abuse and neglect  Signs of stress – Too little or too much sleep, nightmares – Fatigue – Headaches, backaches, joint pain – Diarrhea/constipation – Frequent accidents
  • 17. Module 3: Communication In this section, we will cover:  The impact of verbal and non-verbal communication  Examine and demonstrate techniques for promoting meaningful communication  Understand the correct use of validation and reality orientation
  • 18. Verbal and Non-verbal Communication Verbal  Tone  Pitch  Rate  Pause Non-verbal  Gestures  Facial expressions  Posture  Each person is unique  Behaviors are a form of communication  Communication is only 10% verbal  People with Alzheimer’s maintain the ability to understand non-verbal long after verbal is forgotten
  • 19. Non-verbal Strategies  Your mood will be mirrored  Approach from the front  Establish eye contact  Speak at eye level  Use gentle touch  Point or demonstrate
  • 20. Verbal Strategies  Use calm, gentle voice  Call person by name  Identify yourself  Use short, simple sentences  Speak slowly and respectfully  Eliminate distracting noises  Use familiar words  Give simple choices  Give one instruction at a time  Allow time for the person to respond
  • 21. Validation vs. Reality Validation  Become part of the person’s reality  Acceptance  Feelings into words  Acknowledgement Reality  Early stages, only if not upsetting  Short explanations  New information can be frustrating  Reality becomes based on the past
  • 22. Therapeutic Fibbing  The use of telling fibs or lies in an effort to calm  We are never sure how much information a person may be able to process or remember  Should only be used when absolutely necessary, look for other ways to calm and support, such as redirection
  • 23. Module 4: Understanding Behaviors In this section, we will cover:  Understanding of how and why behaviors become challenging  Ways to prevent behaviors  Techniques for responding to challenging behaviors  Emotions a person with dementia is likely to experience
  • 24. Human Emotions Joy Pleasure, love, happiness, sexuality Anger Rage, hate, displeasure Fear Guilt, shame, anxiety Sadness Misery, grief
  • 25. Respond to Feelings  Enter the person’s reality  Look for feelings behind the words  Empathize  Be non-judgmental  Respect their needs  Your emotions will be mirrored  Communicate comfort, warmth, and praise  Smile!  Put the person’s feelings into words  Allow for negative feelings
  • 26. Problem Solving Behaviors  Task – Too complicated, too many steps, not modified, unfamiliar  Environment – Too large, too much clutter, excessive stimulation, no clues, poor sensory, unstructured, unfamiliar  Physical health – Medications, impaired vision/hearing, acute illness, chronic illness, dehydration, constipation, depression, fatigue, physical discomfort  Miscommunication
  • 27. The 11 W’s  Who has the behavior?  What is the specific behavior?  Why does it need to be addressed?  What happened just before?  Where does it occur?  What does the behavior mean?  When does the behavior occur?  What is the time, frequency?  Who is around?  What is the outcome?  What is the DESIRED change?
  • 28. Preventing Behaviors Diversion or distraction Removal Redirection Task breakdown Stimulus Control Environmental manipulation Reassurance Setting limits
  • 29. Responding to Behaviors  Anxiety/agitation – Response to misinterpretation of environment or people  Aggressive reactions – Usually directed at caregiver or another person  Rummaging – Looking for something meaningful  Repetitive crying out – Unresolved pain or discomfort
  • 30. Module 5: Activities of Daily Living In this section, we will cover:  Causes for resistance to ADL’s  Strategies that promote participation  Possible techniques for managing ADL’s  Identifying signs of abuse and neglect
  • 31. Causes for Resistance  Memory loss  Decreased attention span  Impaired judgment  Loss of ability to communicate  Difficulty with motor skills
  • 32. Strategies for Participation  Anticipate problems or events  Provide a routine  Establish rapport  Talk with a calm voice  Do not attempt to use reason or logic  Do not rush  Avoid arguing  Focus on abilities
  • 33. Strategies for Participation, Cont  Approach—knock, announce, privacy  Encourage the person to do as much as they can  Praise for small successes  Provide for privacy  Do not keep person waiting  Demonstrate what you want done  Stop when frustration occurs
  • 34. ADL Tips  Dressing – Layout clothes, limit choices, item to stroke  Bathing – Keep routine consistent, privacy, adequate lighting  Toileting – Evaluate!  Eating and swallowing – Ensure adequate intake, pleasurable experience, independence  Sleeping – Reassure, speak softly, adequate lighting
  • 35. Module 6: Families In this section, we will cover:  Empathizing with feelings that a person with Alzheimer’s and their families may experience  Identifying and informing families of resources  Identifying strategies for building a positive relationship with families  Understanding the unique opportunity for a long term relationship
  • 36. Family Feelings  Denial  Frustration  Isolation  Guilt  Anger  Loss/grief  Letting go
  • 37. Conflict Resolution  Denial can be healthy  Educate in small doses  Do not push to hard  Encourage support groups  Acknowledge  Listen  Feedback  Privacy
  • 38. Internal Resources  Staff members  Library  Administrator  Family counsels  Care plan meetings
  • 39. Alzheimer’s Association  Helpline  Family Education  Support Groups  Care Consultation  Safe Return
  • 40. Strategies for Positive Relationships  Show support – Family tours, communication processes – Validate emotions, develop realistic expectations, compliment, report good news  Promote successful visits – Offer suggestions and support – Bring in family videos, pictures – Activities