2018 MassBio Petri Dish Nonprofit Pitch Challenge
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Presentation slides from the 2018 MassBio Petri Dish Nonprofit Pitch Challenge, a competition to recognize the local life sciences and healthcare nonprofit ecosystem’s role in fueling the Massachusetts life sciences cluster.
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2018 MassBio Petri Dish Nonprofit Pitch Challenge
- 1. International Association for Premenstrual Disorders 2018 MassBio Petri Dish Nonprofit Pitch Challenge
- 2. © 2018 International Association Premenstrual Disorders | iapmd.org OUR MISSION ● The mission of IAPMD is to eliminate premenstrual disorders as a global health problem by accelerating research progress; supporting, educating and advocating for all affected; and empowering providers to improve patient understanding and outcomes.
- 3. © 2018 International Association Premenstrual Disorders | iapmd.org J, Studd. 2015. 'Severe Premenstrual Syndrome And Bipolar Disorder: A Tragic Confusion. - Pubmed - NCBI '. Ncbi.Nlm.Nih.Gov. Accessed November 15, 2015. http://www.ncbi.nlm.nih.gov/pubmed/22611228. WOMEN & MENTAL HEALTH women are at 3Xs the risk of men of developing depression during their reproductive years women are diagnosed with rapid cycling bipolar disorder at 3Xs the rate of men women attempt suicide 2Xs more often than men FEMALE
- 4. © 2018 International Association Premenstrual Disorders | iapmd.org Image credit: MGH Center for Women's Mental Health What is PMDD. (2018). IAPMD. Retrieved 6 November 2018, from https://iapmd.org/about-pmdd As many as 1 in 20 menstruating women have PMDD 10 million women in US/Europe alone 60 million + worldwide AREA OF NEED
- 5. © 2018 International Association Premenstrual Disorders | iapmd.org images: https://kathleenhalme.com What is PMDD. (2018). IAPMD. Retrieved 6 November 2018, from https://iapmd.org/about-pmdd SYMPTOMS ● Depression ● Hopelessness ● Anxiety ● Rage ● Suicidal Thoughts ● Suicidal Behaviors ● and more WHAT IS PMDD
- 6. © 2018 International Association Premenstrual Disorders | iapmd.org “PMDD” Neurons react differently than “Non- PMDD” Neurons when exposed to estrogen and progesterone. Dubey, N., Hoffman, J., Schuebel, K., Yuan, Q., Martinez, P., & Nieman, L. et al. (2017). The ESC/E(Z) complex, an effector of response to ovarian steroids, manifests an intrinsic difference in cells from women with premenstrual dysphoric disorder. Molecular Psychiatry, 22(8), 1172-1184. doi:10.1038/mp.2016.229 WHAT IS PMDD
- 7. © 2018 International Association Premenstrual Disorders | iapmd.org image: istockphoto.com Hartlage, S. A. & Gehlert, S. (2001). Differentiating premenstrual dysphoric disorder from premenstrual exacerbations of other disorders: A methods dilemma. Clinical Psychology: Science and Practice, 8(2), 242-253. CONDITIONS THAT CAN BE EXACERBATED PREMENSTRUALLY ● Major depressive disorder ● Persistent depressive disorder (dysthymia) ● Suicidality ● Schizophrenia ● Anxiety ● Alcoholism ● Eating disorders WHAT IS PME As many as 50% of those diagnosed with PMDD may actually have PME
- 8. © 2018 International Association Premenstrual Disorders | iapmd.org WOMEN IN CRISIS
- 9. © 2018 International Association Premenstrual Disorders | iapmd.org Scientists Providers Patients IAPMD OUR APPROACH AREAS OF FOCUS ● Peer Support ● Education ● Awareness ● Advocacy ● Research
- 10. © 2018 International Association Premenstrual Disorders | iapmd.org OUR AREAS OF FOCUS PMDD PME PTSD & PMDD Female Suicidality RESEARCH & PREVENTION ADVOCACY & PUBLIC POLICY Access to Care Insurance Coverage Reproductive Rights Workplace Equality Suicide Prevention Tools & Resources Webinars Conferences CE/CME EDUCATION & AWARENESS Social Media Peer Support Crisis Intervention Provider Referrals CARE & SUPPORT Suicide Prevention TeleCare Diversity in Research FUNDING
- 11. © 2018 International Association Premenstrual Disorders | iapmd.org 90,000+ WEBSITE VISITORS EVERY YEAR 8,400+ PROVIDER SEARCHES 8,000+ ONLINE SUPPORT GROUP MEMBERS 1300+ INDIVIDUAL PEER SUPPORT SESSIONS 35+ GLOBAL VOLUNTEERS OUR IMPACT
- 12. © 2018 International Association Premenstrual Disorders | iapmd.org OUR IMPACT Half of clients screened for risk reported a previous suicide attempt
- 13. © 2018 International Association Premenstrual Disorders | iapmd.org OUR IMPACT 55% of clients screened reported suicidal ideation at the time services were received New research shows that half of women with PMDD experience suicidal thoughts and behaviors every month SUICIDAL IDEATION
- 14. © 2018 International Association Premenstrual Disorders | iapmd.org IMPACT 2,200+ PMDD/PME Self-Screens Half of those who have been medically or self diagnosed with PMDD may actually have PME PME PMDD
- 15. © 2018 International Association Premenstrual Disorders | iapmd.org “Invaluable service. So kind, compassionate and professional. I feel heard and supported and better able to advocate for myself as a result of receiving peer support. Thank you.” — CARLI S., 2018-09-07
- 16. © 2018 International Association Premenstrual Disorders | iapmd.org SUSTAINABILITY Multiple avenues of support ● Foundation Grants ● Individual and Corporate Contributions ● Special Events ● Membership Dues ● Sales of Product Income Contributions Events 31% 23% Grants 39% Sales 3% Membership 4%
- 17. © 2018 International Association Premenstrual Disorders | iapmd.org SUSTAINABILITY Dedicated Stakeholders ● Passionate Volunteers ● Effective Board & Executive Leadership ● Clinical & Scientific Advisement ● Membership & Community Participation ● Collaborative Partnerships
- 18. © 2018 International Association Premenstrual Disorders | iapmd.org images: google.com Now is the time
- 19. © 2018 International Association Premenstrual Disorders | iapmd.org LEARN MORE & GET INVOLVED IAPMD.org facebook.com/IAPMD twitter.com/IAPMDglobal instagram.com/IAPMDglobal
Editor's Notes
- While the exact cause of PMDD is unknown, recent studies tells us that neurons respond differently to estrogen and progesterone in those with PMDD as opposed to those without. It could be a combination of genetic and environmental factors as well as a variety of PMDD subtypes at play. Until more research is funded, we may never know. And not knowing means an epidemic without a cure.
- PME refers to the premenstrual exacerbation/worsening of the symptoms of another psychiatric disorder.
- Women are at crisis. The CDC reports that teenage girls make up nearly two-thirds of suicide cases. It is not coincidental that the population affected are adolescent females in the early stages of menarche. Research also shows that female suicide attempts sharply increase during the premenstrual phase.
- We started in 2013 as a grassroots organization built around patient experiences, but have since come a long way in establishing meaningful relationships with health care providers and research scientists. We have disrupted the traditional patient/provider relationship and are supporting a healthcare model that allows patients to be an active voice in women’s reproductive research and care. Together, we are working towards more effective treatment options and one day a cure.
- Peer Support is one of our most effective and impactful services we provide to the PMDD community. We have 35+ volunteers around the world from translators to peer support providers. Since launching our Peer Support Program in September of 2017, we have provided over 1300 free one-on-one peer support sessions, and our online peer support groups provide support to over 8,000 members around the world.
- The most important reason we do this is because of the high rate of suicidality among those with PMDD. Half the clients IAPMD serves reported having attempted suicide at least once in their lifetime.
- More than half of clients served reported that they were experiencing suicidal thoughts at the time services were received. Research tells us that for every man than dies by suicide, four women will attempt it. Peer Support is a crucial bridge between professional care and crisis support.
- In March of this year we launched a PMDD/PME self-screening tool on our website. As of the end of October, 2200 individuals have taken this self assessment. When removing the 1% of those who did not qualify for a diagnosis of either disorder, half of the participants screened for PME and the other half PMDD. This information not only guides the user to next steps and resources but also provides us with valuable insight as well.
- At the end of the day, this is why we do what we do. We hear every day from women, partners, parents, and caregivers that the tools and resources IAPMD provides has helped sufferers with PMDD live better lives. We not only provide peer support but help patient find doctors who understand the disorder and how to treat it. We help navigate insurance and treatment options and help deliver crucial information that is evidence-based and compassionate.
- More than half of clients served reported that they were experiencing suicidal thoughts at the time services were received. Research tells us that for every man than dies by suicide, four women will attempt it. Peer Support is a crucial bridge between professional care and crisis support.
- More than half of clients served reported that they were experiencing suicidal thoughts at the time services were received. Research tells us that for every man than dies by suicide, four women will attempt it. Peer Support is a crucial bridge between professional care and crisis support.
- Women’s issues are at a tipping point in history. Now is the perfect opportunity to get behind organizations like IAPMD that are working hard to break the stigmas of women’s issues like menstruation and mental health. It is organizations like ours that exist in a collaborative network of movements and like-minded nonprofits that are improving and saving the lives of women in Massachusetts and around the world.
- You can learn more about IAPMD and the services we provide on our website at iapmd.org. You can also find us on Facebook, Twitter,and Instagram. A great way to support our efforts is to get involved as a volunteer or making a donation. Thank you for your interest in our organization. I’m happy to answer any questions you may have!