1. Resource Central
Assistance
Directory
HELP FOR ALL
NEUROLOGICAL DISORDERS
National Institute of Neurological
Disorders and Stroke
ninds.nih.gov
Help on the Long Road to “The Brain Matters”
Recovery from Brain Injury AAN Foundation patient website
thebrainmatters.org
W
ith 1.5 million Americans National Library of Medicine’s Medline Plus American Academy of
sustaining traumatic brain in- nlm.nih.gov/medlineplus Neurology Foundation
juries per year and the strong This government site provides comprehen- neurofoundation.org
possibility that countless more are go- sive information and links. For its section
ing undiagnosed, the odds are high that on head and brain injuries, type “TBI” into ALZHEIMER’S DISEASE
someone you know has had at least a the search engine.
mild concussion. Alzheimer’s Association
To supplement our Brain Injury Spe- Centers for Disease Control and Prevention alz.org
cial Report on page 12, you can visit the cdc.gov 1-800-272-3900
following websites for more information: This government site provides information
on brain injury, including links to publica- Alzheimer’s Disease Education
Brain Injury Association of America tions. Type “TBI” into its search engine. and Referral Center
biausa.org alzheimers.org
1-800-444-6443 Traumatic Brain Injury Model 1-800-438-4380
This nonprofit offers education, preven- tbindc.org
tion, research, and advocacy programs to This site describes 16 centers in the U.S. Alzheimer’s Foundation of America
improve the lives of individuals with brain that provide comprehensive systems of TBI alzfdn.org
injury, their families, and friends. care and rehabilitation. 1-866-232-8484
AUTISM
Over My Head
A Doctor’s Own Story of Head Injury from the Inside Looking Out Autism Society of America
By Claudia L. Osborn (Andrews McMeel, 2000) autism-society.org
LEFT: CHRIS HARTLOVE; RIGHT: AP PHOTO/JENNIFER GRAYLOCK
1-800-3AUTISM (1-800-328-8476)
A physician chronicles her comeback from a brain injury that
initially stole her identity and professional life. She explains
how she managed over the course of 11 years to rebuild her life
CEREBRAL PALSY
and resume teaching and research. United Cerebral Palsy
ucp.org
Where is the Mango Princess? 1-800-USA-5UCP (1-800-872-5827)
By Cathy Crimmins (Vintage, 2001)
EPILEPSY
T he author describes the frightening accident that damaged
her husband’s brain and the even more daunting long-term
rehabilitation that followed—providing a window on how a brain
Epilepsy Foundation
epilepsyfoundation.org
injury impacts the whole family. 1-800-332-1000
46 NEUROLOGY NOW • SEPTEMBER/OCTOBER 2006
2. HEADACHE Michael J. Fox Foundation
for Parkinson’s Research
National Headache Foundation michaeljfox.org
headaches.org 1-800-708-7644
1-888-NHF-5552 (1-888-643-5552)
HUNTINGTON’S DISEASE
SLEEP DISORDERS
On Guard:
National Sleep Foundation Planning Ahead
Huntington’s Disease Society of America sleepfoundation.org To avoid the kind of legal battle
hdsa.org surrounding Brooke Astor, you can
212-242-1968 SPINAL CORD INJURY consult the following long-term
planning resources which supplement
MULTIPLE SCLEROSIS National Spinal Cord Injury Association our guardianship article on page 42:
spinalcord.org 1-800-962-9629
National Multiple Sclerosis Society National Guardianship Association
nationalmssociety.org STROKE guardianship.org
1-800-FIGHT-MS (1-800-344-4867)
American Stroke Association AARP
Multiple Sclerosis Association of America strokeassociation.org aarp.org
msaa.com 1-888-4-STROKE (1-800-478-7653)
1-800-532-7667 American Bar Association
National Stroke Association abanet.org/aging
NEUROMUSCULAR DISEASES stroke.org The ABA just released its 2006 edition
1-800-STROKES (1-800-787-6563) of “Legal Guide for Americans over 50.”
ALS Association
alsa.org
1-800-782-4747
The Sound of Music Therapy
M
Muscular Dystrophy Association usic therapy has emerged as a mainstream healthcare profes-
mda.org sion that addresses neurological conditions, covering everything
1-800-FIGHT-MD (1-800-344-4863) from movement rehabilitation to memory enhancement.
For more information on the music therapy concepts covered in our article
PAIN on page 26, visit the following websites:
American Pain Foundation American Music Therapy Association musictherapy.org
painfoundation.org The AMTA, promoting proven treatments, represents more than 5,000 certi-
1-888-615-PAIN (1-888-615-7246) fied music therapists, corporate members, and related associations worldwide.
Neuropathy Association Institute for Music and Neurologic Function bethabe.org
neuropathy.org Beth Abraham Hospital’s innovative music institute, as featured in our story, is
212-692-0662 considered one of the nation’s leading facilities for treatment and research.
PARKINSON’S DISEASE
This Is Your Brain on Music
National Parkinson Foundation The Science of a Human Obsession
parkinson.org By Daniel J. Levitin, Ph.D. (Harper, 2006)
1-800-327-4545
Parkinson’s Disease Foundation
pdf.org
A rock musician before becoming a cognitive neuroscientist, this
McGill University associate professor introduces the brain’s inner
workings and explores how it processes all aspects of music in a book
1-800-457-6676 whose jacket blurbs range from Stevie Wonder to Oliver Sacks.
NEUROLOGY NOW • SEPTEMBER/OCTOBER 2006 47