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Resource Central
                                                                                               Assistance
                                                                                               Directory
                                                                                               HELP FOR ALL
                                                                                               NEUROLOGICAL DISORDERS

                                                                                               National Institute of Neurological
                                                                                               Disorders and Stroke
                                                                                               ninds.nih.gov
Help on the Long Road to                                                                       “The Brain Matters”

Recovery from Brain Injury                                                                     AAN Foundation patient website
                                                                                               thebrainmatters.org




W
           ith 1.5 million Americans            National Library of Medicine’s Medline Plus    American Academy of
           sustaining traumatic brain in-       nlm.nih.gov/medlineplus                        Neurology Foundation
           juries per year and the strong       This government site provides comprehen-       neurofoundation.org
possibility that countless more are go-         sive information and links. For its section
ing undiagnosed, the odds are high that         on head and brain injuries, type “TBI” into    ALZHEIMER’S DISEASE
someone you know has had at least a             the search engine.
mild concussion.                                                                               Alzheimer’s Association
    To supplement our Brain Injury Spe-         Centers for Disease Control and Prevention     alz.org
cial Report on page 12, you can visit the       cdc.gov                                        1-800-272-3900
following websites for more information:        This government site provides information
                                                on brain injury, including links to publica-   Alzheimer’s Disease Education
Brain Injury Association of America             tions. Type “TBI” into its search engine.      and Referral Center
biausa.org                                                                                     alzheimers.org
1-800-444-6443                                  Traumatic Brain Injury Model                   1-800-438-4380
This nonprofit offers education, preven-         tbindc.org
tion, research, and advocacy programs to        This site describes 16 centers in the U.S.     Alzheimer’s Foundation of America
improve the lives of individuals with brain     that provide comprehensive systems of TBI      alzfdn.org
injury, their families, and friends.            care and rehabilitation.                       1-866-232-8484

                                                                                               AUTISM
Over My Head
A Doctor’s Own Story of Head Injury from the Inside Looking Out                                Autism Society of America
By Claudia L. Osborn (Andrews McMeel, 2000)                                                    autism-society.org
                                                                                                                                    LEFT: CHRIS HARTLOVE; RIGHT: AP PHOTO/JENNIFER GRAYLOCK


                                                                                               1-800-3AUTISM (1-800-328-8476)

A   physician chronicles her comeback from a brain injury that
    initially stole her identity and professional life. She explains
how she managed over the course of 11 years to rebuild her life
                                                                                               CEREBRAL PALSY

and resume teaching and research.                                                              United Cerebral Palsy
                                                                                               ucp.org
Where is the Mango Princess?                                                                   1-800-USA-5UCP (1-800-872-5827)
By Cathy Crimmins (Vintage, 2001)
                                                                                               EPILEPSY

T    he author describes the frightening accident that damaged
     her husband’s brain and the even more daunting long-term
rehabilitation that followed—providing a window on how a brain
                                                                                               Epilepsy Foundation
                                                                                               epilepsyfoundation.org
injury impacts the whole family.                                                               1-800-332-1000



46    NEUROLOGY NOW      •   SEPTEMBER/OCTOBER 2006
HEADACHE                                    Michael J. Fox Foundation
                                            for Parkinson’s Research
National Headache Foundation                michaeljfox.org
headaches.org                               1-800-708-7644
1-888-NHF-5552 (1-888-643-5552)

HUNTINGTON’S DISEASE
                                            SLEEP DISORDERS
                                                                                              On Guard:
                                            National Sleep Foundation                         Planning Ahead
Huntington’s Disease Society of America     sleepfoundation.org                               To avoid the kind of legal battle
hdsa.org                                                                                      surrounding Brooke Astor, you can
212-242-1968                                SPINAL CORD INJURY                                consult the following long-term
                                                                                              planning resources which supplement
MULTIPLE SCLEROSIS                          National Spinal Cord Injury Association           our guardianship article on page 42:
                                            spinalcord.org 1-800-962-9629
National Multiple Sclerosis Society                                                           National Guardianship Association
nationalmssociety.org                       STROKE                                            guardianship.org
1-800-FIGHT-MS (1-800-344-4867)
                                            American Stroke Association                       AARP
Multiple Sclerosis Association of America   strokeassociation.org                             aarp.org
msaa.com                                    1-888-4-STROKE (1-800-478-7653)
1-800-532-7667                                                                                American Bar Association
                                            National Stroke Association                       abanet.org/aging
NEUROMUSCULAR DISEASES                      stroke.org                                        The ABA just released its 2006 edition
                                            1-800-STROKES (1-800-787-6563)                    of “Legal Guide for Americans over 50.”
ALS Association
alsa.org
1-800-782-4747
                                               The Sound of Music Therapy

                                               M
Muscular Dystrophy Association                          usic therapy has emerged as a mainstream healthcare profes-
mda.org                                                 sion that addresses neurological conditions, covering everything
1-800-FIGHT-MD (1-800-344-4863)                         from movement rehabilitation to memory enhancement.
                                                  For more information on the music therapy concepts covered in our article
PAIN                                           on page 26, visit the following websites:

American Pain Foundation                       American Music Therapy Association musictherapy.org
painfoundation.org                             The AMTA, promoting proven treatments, represents more than 5,000 certi-
1-888-615-PAIN (1-888-615-7246)                fied music therapists, corporate members, and related associations worldwide.

Neuropathy Association                         Institute for Music and Neurologic Function bethabe.org
neuropathy.org                                 Beth Abraham Hospital’s innovative music institute, as featured in our story, is
212-692-0662                                   considered one of the nation’s leading facilities for treatment and research.

PARKINSON’S DISEASE
                                               This Is Your Brain on Music
National Parkinson Foundation                  The Science of a Human Obsession
parkinson.org                                  By Daniel J. Levitin, Ph.D. (Harper, 2006)
1-800-327-4545

Parkinson’s Disease Foundation
pdf.org
                                              A   rock musician before becoming a cognitive neuroscientist, this
                                                  McGill University associate professor introduces the brain’s inner
                                               workings and explores how it processes all aspects of music in a book
1-800-457-6676                                 whose jacket blurbs range from Stevie Wonder to Oliver Sacks.


                                                                                 NEUROLOGY NOW      •    SEPTEMBER/OCTOBER 2006   47

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  • 1. Resource Central Assistance Directory HELP FOR ALL NEUROLOGICAL DISORDERS National Institute of Neurological Disorders and Stroke ninds.nih.gov Help on the Long Road to “The Brain Matters” Recovery from Brain Injury AAN Foundation patient website thebrainmatters.org W ith 1.5 million Americans National Library of Medicine’s Medline Plus American Academy of sustaining traumatic brain in- nlm.nih.gov/medlineplus Neurology Foundation juries per year and the strong This government site provides comprehen- neurofoundation.org possibility that countless more are go- sive information and links. For its section ing undiagnosed, the odds are high that on head and brain injuries, type “TBI” into ALZHEIMER’S DISEASE someone you know has had at least a the search engine. mild concussion. Alzheimer’s Association To supplement our Brain Injury Spe- Centers for Disease Control and Prevention alz.org cial Report on page 12, you can visit the cdc.gov 1-800-272-3900 following websites for more information: This government site provides information on brain injury, including links to publica- Alzheimer’s Disease Education Brain Injury Association of America tions. Type “TBI” into its search engine. and Referral Center biausa.org alzheimers.org 1-800-444-6443 Traumatic Brain Injury Model 1-800-438-4380 This nonprofit offers education, preven- tbindc.org tion, research, and advocacy programs to This site describes 16 centers in the U.S. Alzheimer’s Foundation of America improve the lives of individuals with brain that provide comprehensive systems of TBI alzfdn.org injury, their families, and friends. care and rehabilitation. 1-866-232-8484 AUTISM Over My Head A Doctor’s Own Story of Head Injury from the Inside Looking Out Autism Society of America By Claudia L. Osborn (Andrews McMeel, 2000) autism-society.org LEFT: CHRIS HARTLOVE; RIGHT: AP PHOTO/JENNIFER GRAYLOCK 1-800-3AUTISM (1-800-328-8476) A physician chronicles her comeback from a brain injury that initially stole her identity and professional life. She explains how she managed over the course of 11 years to rebuild her life CEREBRAL PALSY and resume teaching and research. United Cerebral Palsy ucp.org Where is the Mango Princess? 1-800-USA-5UCP (1-800-872-5827) By Cathy Crimmins (Vintage, 2001) EPILEPSY T he author describes the frightening accident that damaged her husband’s brain and the even more daunting long-term rehabilitation that followed—providing a window on how a brain Epilepsy Foundation epilepsyfoundation.org injury impacts the whole family. 1-800-332-1000 46 NEUROLOGY NOW • SEPTEMBER/OCTOBER 2006
  • 2. HEADACHE Michael J. Fox Foundation for Parkinson’s Research National Headache Foundation michaeljfox.org headaches.org 1-800-708-7644 1-888-NHF-5552 (1-888-643-5552) HUNTINGTON’S DISEASE SLEEP DISORDERS On Guard: National Sleep Foundation Planning Ahead Huntington’s Disease Society of America sleepfoundation.org To avoid the kind of legal battle hdsa.org surrounding Brooke Astor, you can 212-242-1968 SPINAL CORD INJURY consult the following long-term planning resources which supplement MULTIPLE SCLEROSIS National Spinal Cord Injury Association our guardianship article on page 42: spinalcord.org 1-800-962-9629 National Multiple Sclerosis Society National Guardianship Association nationalmssociety.org STROKE guardianship.org 1-800-FIGHT-MS (1-800-344-4867) American Stroke Association AARP Multiple Sclerosis Association of America strokeassociation.org aarp.org msaa.com 1-888-4-STROKE (1-800-478-7653) 1-800-532-7667 American Bar Association National Stroke Association abanet.org/aging NEUROMUSCULAR DISEASES stroke.org The ABA just released its 2006 edition 1-800-STROKES (1-800-787-6563) of “Legal Guide for Americans over 50.” ALS Association alsa.org 1-800-782-4747 The Sound of Music Therapy M Muscular Dystrophy Association usic therapy has emerged as a mainstream healthcare profes- mda.org sion that addresses neurological conditions, covering everything 1-800-FIGHT-MD (1-800-344-4863) from movement rehabilitation to memory enhancement. For more information on the music therapy concepts covered in our article PAIN on page 26, visit the following websites: American Pain Foundation American Music Therapy Association musictherapy.org painfoundation.org The AMTA, promoting proven treatments, represents more than 5,000 certi- 1-888-615-PAIN (1-888-615-7246) fied music therapists, corporate members, and related associations worldwide. Neuropathy Association Institute for Music and Neurologic Function bethabe.org neuropathy.org Beth Abraham Hospital’s innovative music institute, as featured in our story, is 212-692-0662 considered one of the nation’s leading facilities for treatment and research. PARKINSON’S DISEASE This Is Your Brain on Music National Parkinson Foundation The Science of a Human Obsession parkinson.org By Daniel J. Levitin, Ph.D. (Harper, 2006) 1-800-327-4545 Parkinson’s Disease Foundation pdf.org A rock musician before becoming a cognitive neuroscientist, this McGill University associate professor introduces the brain’s inner workings and explores how it processes all aspects of music in a book 1-800-457-6676 whose jacket blurbs range from Stevie Wonder to Oliver Sacks. NEUROLOGY NOW • SEPTEMBER/OCTOBER 2006 47