John Wilbanks & Stephen Friend Partnering for Cures: Standardized Informed Consent 2011-11-08

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John Wilbanks & Stephen Friend, Nov 7-8, 2011. Partnering for Cures: Standardized Informed Consent, New York, NY

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John Wilbanks & Stephen Friend Partnering for Cures: Standardized Informed Consent 2011-11-08

  1. 1. PORTABLE  LEGAL  CONSENT  John  Wilbanks  
  2. 2. “one more thing”
  3. 3. what‘s missing?
  4. 4. network effects.
  5. 5. how do we get there?
  6. 6. standards, legal and technical.
  7. 7. start with the patient.
  8. 8. patient-driven data collection.
  9. 9. in the beginning, there was consent.
  10. 10. simple. weak. standardized. open.
  11. 11. simple. weak. standardized. open.
  12. 12. simple. weak. standardized. open.
  13. 13. simple. weak. standardized. open.
  14. 14. http://weconsent.us
  15. 15. @wilbanks jtw@del-fi.org supported by: Sage BionetworksEwing Marion Kauffman Foundation Lybba.org

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