Blair Hickman's presentation from "Out of Pocket: Surprise Costs After Health Reform," 10.29.15
http://www.reportingonhealth.org/content/out-pocket-surprise-costs-after-health-reform
-My background + overview of today - how to use online communities to help report - finding them, getting them to trust you, organizing their data, identifying new story themes.
-patient safety community overview
http://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story
Google forms, typeform, screendoor. all let you upload files, bill collection
-the callout
framing + incentive
tools (google docs, screendors)
use structured questions - you want consistent data
always ask for contact information, including email. project update = email list
include one open text field
who am i targeting? might be healthcare, might be other general demos
etiquette
existing:
https://www.facebook.com/groups/1445110505760793/#_=_
https://www.facebook.com/groups/patientharm/?fref=nf
newsletters
be accessible, present and active members; create content often (promote callout)