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FAIRNESS AND THE TYRANNY OF
POTENTIAL IN KIDNEY
TRANSPLANTATIONS
Sharon R. Kaufman
Source: Current Anthropology, Vol. 54, No. S7,
Potentiality and Humanness: Revisiting the
Anthropological Object in Contemporary
Biomedicine (October 2013), pp. S56-S66
Lia Puspitasari
University of Tsukuba
Agenda
• Introduction
• How to examine
• Problems
• Scheme for fairness in US organ transplant distribution

systems
• Living Donation from Younger to Older Persons
• The Rise of Anonymous Donation and Web-based
Matching
FACTS ABOUT ORGAN TRANSPLANTATION
IN US

2.100 new patients are added to the organ donation
16 to 17 people die everyday while waiting for
transplants
10.000 to 14.000 people who die each year meet
the criteria for organ donation, but..
Less than ½ of those people actually become organ
donors.
Source: www.donatelifenw.org
Introduction
• Potential for greater longevity brings the problem of

fairness and equity in health.
80% 20%
<65 Years >65 Years
Source: Administration on Aging:2011

• How nations reconstitute the practice of fairness and the

idea of public good in an aging society.
• Kidney transplantation in US
Problems
• Scarce resources, no balanced demand and supply
• Ethical issues centers on age and the public good in that

the good of longevity making also contributes to
shortages and death.
• Clinical success of kidney transplantation performs radical
cultural work and unleashes potential:
• Statistically account for relations between older and younger

bodies
• Negotiate fairness, to see one’s own body as the vehicle for the
health and life of a loved one or a stranger, and to understand that
altruism and the market can be linked through living donation.
How to examine
• Describing the potentiality they assign to kidneys, elder

persons and the organ supply
• By exploring the effects of those potentiality in three
realms:
Scheme for
fairness in US
organ
transplant
distribution
systems.

Living donation
from younger
to older person

The rise of anonymous
living donation and
web-based matching.
Scheme for fairness in US organ transplant
distribution systems.
Old schemes- Allocation
• Began in 1986.
• First-come, first-served basis.
• Less efficient in terms of individual patient survival
• Less equitable in terms of fair distribution
• Fairness was manifest in time waiting
• Problem:
• Today, age has become central to its waning fairness.
• Demographic, medicine, and understandings of longevity have

changed
• Larger number of person age 65 years and older in waiting list
• Kidneys can not keep up with the demand
• Assumption that kidneys potential for giving life is wasted.
Proposed Schemes
OPTN/UNOS (Organ Procurement and Transplantation
Network of the United Network for Organ Sharing) Feb
2011 offered: “Concepts for Kidney Allocation”
Goal: to enhance post transplant survival benefit

1

2

20% of the kidneys with the longest potential life
span would be offered to candidates projected to
have the longest survival time with the organ

20% of the kidneys with the longest potential life
span would be offered to candidates projected to
have the longest survival time with the organ

80% kidneys in the pool would be “age matched”
to within 15 years of the candidate’s age

80% would not be age-matched and would be
distributed largely as they always had been
Living Donation from Younger to Older
Persons

Source: www.donatelifenw.org
• Greater scarcity and waiting time makes

larger number of donation from children or
family relatives to parents.
• Tyranny resides in the now routine social
fact of offering and giving, accepting and
receiving; in the bodily “gift” as a “natural”
feature of kin obligation, and the equation
of this kind of gifting with care and love.
The Rise of Anonymous Donation and
Web-based Matching
• 1990 formal requirements has been relaxed
• Altruism drives the rise of anonymous

donors: many donation from strangers.
• Web-based matching emerged.
• Shift to surgical-altruism
Social changes:
• Institutions for organ

procurement, disbursement and regulation
produced opportunities for altruism to be
expressed.
• Living donation (related or non-related)
came to be seen as the normal, natural
thing to do, more older people seeking
kidneys and more younger people donating
them followed seamlessly.
THANK YOU FOR LISTENING

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Fairness and the tyranny of potential in kidney

  • 1. FAIRNESS AND THE TYRANNY OF POTENTIAL IN KIDNEY TRANSPLANTATIONS Sharon R. Kaufman Source: Current Anthropology, Vol. 54, No. S7, Potentiality and Humanness: Revisiting the Anthropological Object in Contemporary Biomedicine (October 2013), pp. S56-S66 Lia Puspitasari University of Tsukuba
  • 2. Agenda • Introduction • How to examine • Problems • Scheme for fairness in US organ transplant distribution systems • Living Donation from Younger to Older Persons • The Rise of Anonymous Donation and Web-based Matching
  • 3. FACTS ABOUT ORGAN TRANSPLANTATION IN US 2.100 new patients are added to the organ donation 16 to 17 people die everyday while waiting for transplants 10.000 to 14.000 people who die each year meet the criteria for organ donation, but.. Less than ½ of those people actually become organ donors. Source: www.donatelifenw.org
  • 4. Introduction • Potential for greater longevity brings the problem of fairness and equity in health. 80% 20% <65 Years >65 Years Source: Administration on Aging:2011 • How nations reconstitute the practice of fairness and the idea of public good in an aging society. • Kidney transplantation in US
  • 5. Problems • Scarce resources, no balanced demand and supply • Ethical issues centers on age and the public good in that the good of longevity making also contributes to shortages and death. • Clinical success of kidney transplantation performs radical cultural work and unleashes potential: • Statistically account for relations between older and younger bodies • Negotiate fairness, to see one’s own body as the vehicle for the health and life of a loved one or a stranger, and to understand that altruism and the market can be linked through living donation.
  • 6. How to examine • Describing the potentiality they assign to kidneys, elder persons and the organ supply • By exploring the effects of those potentiality in three realms: Scheme for fairness in US organ transplant distribution systems. Living donation from younger to older person The rise of anonymous living donation and web-based matching.
  • 7. Scheme for fairness in US organ transplant distribution systems. Old schemes- Allocation • Began in 1986. • First-come, first-served basis. • Less efficient in terms of individual patient survival • Less equitable in terms of fair distribution • Fairness was manifest in time waiting • Problem: • Today, age has become central to its waning fairness. • Demographic, medicine, and understandings of longevity have changed • Larger number of person age 65 years and older in waiting list • Kidneys can not keep up with the demand • Assumption that kidneys potential for giving life is wasted.
  • 8. Proposed Schemes OPTN/UNOS (Organ Procurement and Transplantation Network of the United Network for Organ Sharing) Feb 2011 offered: “Concepts for Kidney Allocation” Goal: to enhance post transplant survival benefit 1 2 20% of the kidneys with the longest potential life span would be offered to candidates projected to have the longest survival time with the organ 20% of the kidneys with the longest potential life span would be offered to candidates projected to have the longest survival time with the organ 80% kidneys in the pool would be “age matched” to within 15 years of the candidate’s age 80% would not be age-matched and would be distributed largely as they always had been
  • 9. Living Donation from Younger to Older Persons Source: www.donatelifenw.org
  • 10. • Greater scarcity and waiting time makes larger number of donation from children or family relatives to parents. • Tyranny resides in the now routine social fact of offering and giving, accepting and receiving; in the bodily “gift” as a “natural” feature of kin obligation, and the equation of this kind of gifting with care and love.
  • 11. The Rise of Anonymous Donation and Web-based Matching • 1990 formal requirements has been relaxed • Altruism drives the rise of anonymous donors: many donation from strangers. • Web-based matching emerged. • Shift to surgical-altruism
  • 12. Social changes: • Institutions for organ procurement, disbursement and regulation produced opportunities for altruism to be expressed. • Living donation (related or non-related) came to be seen as the normal, natural thing to do, more older people seeking kidneys and more younger people donating them followed seamlessly.
  • 13. THANK YOU FOR LISTENING

Editor's Notes

  1. aasasdadada
  2. the gap between available organs and those in need of organs is progressively widening.
  3. As Us now faces the aging society, the right to healthcare delivery is more controversial than ever before. Institution, familiies and the publicc marketplace are responding to this challenges.
  4. This recent iteration of the rationing and allocation will grow.More older people in general population means more end-stage renal disease and more demand for kidneys.Scarcity-equity problems:Reimbursement system makes therapy will automatically followed by patients.The shape of transplantation activity
  5. Together, these realms reveals a tyranny potential amid the changing character of altruism, obligation. Accounting and market forces.
  6. The national allocation and distribution began in 1986.Kidneys has been allocated on a first-come, first-served basis, it means when people be on top of the waiting list she/he’ll become the acceptor of available kidney.
  7. For what kind of relatedness was good enough for a prospective living donor. Immunosuppresantdrugss had already changed the safety and survival equation. Now almost anyone could donate to anyone else.Started by Zell Kravinsky who donate kidney to a poor stranger in need.