3. Objectives
Share my story – it is one Describe why men do not
of denial and reflects seek health care
broader issues of men’s
health in general. Recognize that we all have
I hope to share my a role to play, especially
thoughts and reflection on women!
my ongoing journey so
nurses can support and Plan for action
advocate for the health of
men in their lives.
5. Nurse becomes the patient
This was difficult for me
My story, in a ‘nut’ shell
You might need your earmuffs
6. Knowledge does not = Behaviour change
Men's health is My story is a typical
important. We know example of the
that knowledge does importance of
not always impact communication in
behaviour change, so health and
what can we, as nurses, relationships, and
partners, leaders, do to working through denial
support men’s health. and fear.
Communication with
health professionals &
your family/friends
8. What do Canadian stats tell us?
Type of cancer New cases Cases per 100,000
Total M W Tota M W
l
Prostate 26500 26500 — — 121 —
Lung 25600 13300 12300 54 62 49
Colorectal 13300 13000 10300 49 60 40
Breast 22900 200 22700 50 1 96
NHL 7800 4300 3500 17 20 14
Bladder 7,800 5,800 2,000 16 27 8
ww.cancer.ca/~/media/CCS/Canada%20wide/Files%20List/English%20files%20heading/PDF%20-%20Policy%20-%20Canadian%20Cancer%20Statistics%20-%20English/Canadian%20Cancer%20Statistics%202012%20-%20English.ashx
‡ Ontario does not currently report in situ bladder cases.
9. What do Canadian stats tell us?
Type of cancer New cases Cases per 100,000
Total M W Total M W
Prostate 26500 26500 — — 121 —
Lung 25600 13300 12300 54 62 49
Colorectal 13300 13000 10300 49 60 40
Breast 22900 200 22700 50 1 96
NHL 7800 4300 3500 17 20 14
Bladder 7,800 5,800 2,000 16 27 8
ww.cancer.ca/~/media/CCS/Canada%20wide/Files%20List/English%20files%20heading/PDF%20-%20Policy%20-%20Canadian%20Cancer%20Statistics%20-%20English/Canadian%20Cancer%20Statistics%202012%20-%20English.ashx
‡ Ontario does not currently report in situ bladder cases.
10. What do Canadian stats tell us?
Type Deaths Deaths per 100,000
Total M W Total M W
Lung 20,10 10,80 9,400 42 50 36
0 0
Colorectal† 9,200 5,000 4,200 19 23 15
Breast 5,200 55 5,100 11 <0.5 19
Pancreas 4,300 2,100 2,100 9 10 8
Prostate 4,000 4,000 — — 19 —
Non-Hodgkin Lymphoma 2,800 1,500 1,300 6 7 5
Leukemia 2,600 1,500 1,100 5 7 4
Stomach 2,100 1,350 790 4 6 3
Bladder 2,100 1,450 670 4 7 2
11. What do Canadian stats tell us?
Type Deaths Deaths per 100,000
Total M W Total M W
Lung 20,10 10,80 9,400 42 50 36
0 0
Colorectal† 9,200 5,000 4,200 19 23 15
Breast 5,200 55 5,100 11 <0.5 19
Pancreas 4,300 2,100 2,100 9 10 8
Prostate 4,000 4,000 — — 19 —
Non-Hodgkin Lymphoma 2,800 1,500 1,300 6 7 5
Leukemia 2,600 1,500 1,100 5 7 4
Stomach 2,100 1,350 790 4 6 3
Bladder 2,100 1,450 670 4 7 2
12. Three Types of Bladder Cancer
Transitional cell Who knew, to this day I
carcinoma have no idea, but if I had
Squamous cell carcinoma to guess, I would think it
Adenocarcinoma was transitional cell
carcinoma
Greg’s type of Cancer?
15. Bladder cancer search??? On the internets
About 10,300,000 results (0.14 seconds)
People have to wade through a lot of information
Men, especially, can be a bit impatient, and maybe even lack attention
We need to develop resources that make sense and are targeted at
different generations
http://www.nih.gov/news/pr/aug2007/nci-29.htm
16. Bladder Cancer Canada
Sunday, Sept 23, 2012 the Bladder Cancer Canada 5K Awareness Walk
takes place right across Canada!!!!!!!!!
www.bladdercancercanada.org/main.php?lan=1
17. patientslikeme
At PatientsLikeMe, people with every type of condition are
coming together to share their health experiences, find patients
like them and learn how to take control of their health. The
result is improved care for patients as well as an acceleration
of real-world medical research.
http://en.wikipedia.org/wiki/PatientsLikeMe
18. Totally Unrelated
Networking, who cares!!! I was asked to do a
presentation on networking for Federal Employees
who were affected by the latest round of cuts from
the Dear Leader.
I related my bladder cancer story, somewhere in my
presentation, linked to the patientslikeme site
A lady approached me afterwards, and wanted to
talk to me about her brother, who was diagnosed
with bladder cancer and was refusing to go for
surgery.
19. The Good - Bad Rule
Most people overestimate Words like asthma, radon,
the lethality of cancer, diabetes are much less
there are actually a lot scary but can be more
more dangerous things in lethal.
life that could kill you. Emotions have a huge
Some people simply hear influence on our actions
the word cancer, or as men.
tumor, or surgery, and Most men repress our
they either stop listening emotions & do not
or they freak out a bit. communicate effectively
with our families &
friends or health
professionals.
21. The difference between men & women’s health
Health for girls/women starts earlier than ever.
HPV vaccinations
PAP test - a letter comes in the mail
BSE?
Health for boys/men starts when?
Most likely in the emergency ward
TSE? Not likely
PSA?
When you are 40 the glove comes out.
Traditionally, boys and men are taught that they should be self-reliant, control their
emotions, and maintain a strong image by denying pain or weakness.
22. Complete physical – Primary Care
Does this even happen for most men?
My GP said I could talk about one issue, maybe two.
The worried well go more often than the rest of us.
Men rarely seek medical attention, and when they
do, it should be taken seriously.
Culture plays a lot in this.
Being male should not mean poorer health status.
Episodic health care does not work in the long run.
False evidence appearing real = FEAR
23. What is up with men?
Men seem to invest more resources in getting bigger and
stronger early on in their lives. But women are geared for
endurance in life. Women are typically shorter and
smaller than men. Use fewer of your own resources and
you will live longer, it seems.
We see it in animals: the earthworm lives four times as
long if it doesn’t eat or have sex.
http://www.telegraph.co.uk/health/8566594/Why-do-men-die-younger-than-women.html
25. So why do men die before their wives?
Because they want to . . .
26. What to do?
We need to improve Men disregard symptoms
overall communication and present later –
We need to improve the possibly connected to that
dialogue between men risk-taking behaviour,
and their families and more likely denial, fear, or
caregivers within the culture.
health system We all have to get men to
Major illnesses need to be communicate more about
detected faster. their health – if not with a
Women are still the nurse or doctor, then with
friends, buddies, or on the
gatekeepers!!!!!!
inter-web.
27. What things do I specifically do?
I speak
I volunteer Stars of Hope Dance Gala
I tell my story
Movember
I involve my family,
friends, and co-workers
I could do more
riehldance@hotmail.com
I am optimistic
28. What’s next for me, or the man in your life?
Urinary Incontinence? BPH???? I think I
have this already????
EDOMG Note to self . . . . . .
The Lower Urinary Circumcision
Tract Symptoms old& young
(LUTS) HIV Recommendations
Urology consults
30. Greg Riehl RN BScN MA
Contact
information Email: gregriehl@sasktel.net
Editor's Notes
In 2012 SK had 180 new cases of Bladder Cancer in men, and 45 deaths in Males were linked to Bladder Ca
In 2012 SK had 180 new cases of Bladder Cancer in men, and 45 deaths in Males were linked to Bladder Ca Men are overrepresented in all cancers, except breast cancer. For some men numbers don’t mean much, but percentages do.
6% of all new cases of cancer are Bladders Ca, and 3.6% of all cancer deaths are from bladder ca In Quebec, because of the registry’s dependence on hospital data, the numbers of prostate, melanoma and bladder cases are believed to be underreported. The large interprovincial differences seen in bladder cancer incidence rates are likely due to differences in reporting of in situ cases, particularly in Ontario, where such cases were not collected until recently and were not available for this publication. In 2012 SK had 180 new cases of Bladder Cancer in men, and 45 deaths in Males were linked to Bladder Ca ‘ Men have a 14.9 per cent risk of dying of cancer before the age of 75 - for women the risk is 9.1 per cent. And 143.1 per 100,000 men die from cancer each year compared to 87.2 per 100,000 women.’ http://www.telegraph.co.uk/health/8566594/Why-do-men-die-younger-than-women.html
There are three types of bladder cancer that begin in cells in the lining of the bladder. These cancers are named for the type of cells that become malignant (cancerous): Transitional cell carcinoma : Cancer that begins in cells in the innermost tissue layer of the bladder. These cells are able to stretch when the bladder is full and shrink when it is emptied. Most bladder cancers begin in the transitional cells. This is the most common type of bladder cancer. Squamous cell carcinoma : Cancer that begins in squamous cells , which are thin, flat cells that may form in the bladder after long-term infection or irritation. Adenocarcinoma: Cancer that begins in glandular (secretory) cells that may form in the bladder after long-term irritation and inflammation .
Depends how old you are. Bladder cancer hits men at an average age of…………. Some men will obviously go to their GPs, if they have one. Some men will look on the internet.
Fear is the most effective way of gluing a memory in place. I had no prior knowledge of ‘bladder cancer’ seemed quite odd really. I knew about lung cancer from my mom’s experience and from patients I looked after in the hospital. Most older men, get the horror stories from their buddies on coffee row. And most of these gentlemen, don’t believe you can have a positive experience in the hospital, with surgery, especiatlly when someone starts putting things into your body, where things are naturally supposed to be coming out. A lot of time people are happy within their group, this is their comfort zone. If someone had a bad experience with surgery or cancer, then chances are likely everyone will know about it, and this will directly influence their decisions.
http://www.nih.gov/news/pr/aug2007/nci-29.htm
Patientslikeme
Some things are inherently good, and some things are inherently bad.
men are less likely to have contact with the health care system and are not receiving timely advice on health measures that could improve both longevity and quality of life. http://www.bcmj.org/articles/development-men%E2%80%99s-health-program-do-we-need-new-approach-bc
