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- 3. What is Inflammatory Bowel Disease? (IBD)
- 6. Elijah explains U.C http://www.youtube.com/watch?v=eBry_M sqcVs&feature=context-cha
- 16. Fun Fact It costs the average IBD sufferer about $12,000 a year to maintain their condition. This is called indirect medical costs, like taking off work due to illness, insurance companies not covering the full amount of medications, hospital visits and etc. Globally, this amount adds up to 1.6 Billion per year! Therefore, this illness has a large impact on society.
- 18. The Foundation was established in 1974 by a group of concerned parents who saw the need to raise funds for research into Inflammatory Bowel Disease (IBD) and to educate patients and their families about these diseases. Our Mission is simply stated -- to find the cure for IBD. We are Canada’s largest funder of IBD research and rank among the top global funders of such research in both absolute and per capita terms.
- 19. The CCFC invests in IBD research, education and awareness and is Canada’s top funder of cure-directed research. As of July 2012, the CCFC has invested more than $76 million in IBD research and is the world leader in non- governmental funding per capita of such research. The CCFC has more than 65,000 supporters, including volunteers in approximately 80 local groups across Canada.
- 20. The Board of Directors of the CCFC committed to advancing three specific public policy priorities: increase government funding for IBD research and awareness; ensure timely and equitable access for IBD medications and treatments; and improve public bathroom access for those living with IBD.
- 22. Based On 2012… The CCFC’s revenue growth was accomplished by impressive gains in certain fundraising events and in major gifts. Our Gutsy Walk participants helped us achieve our best results ever. Nearly $2.9 million in gross revenue was raised at this signature event, an increase of $638,000 or 29% over the previous year. Our All That Glitters Gala events generated revenue of $1.5 million, an increase of $20,000 over the previous year. Major gifts are an important component of our revenue mix. The CCFC was the beneficiary of a $2 million major gift in fiscal 2010 and was pleased this year to direct $500,000 of the gift to an endowed Chair in Ulcerative Colitis Research at McMaster University. In addition, the CCFC received other major gifts totaling over $500,000; a significant portion of those gifts resulted from our new Excellence in Research Luncheons. Program costs were $7.6 million a decrease of 2% over the previous year. Program costs are made up of research investments of $5.4 million, education/ awareness of $1.3 million and volunteer/chapter services of $0.9 million. Education/awareness spending increased by 21% during the year as the number of Education Symposia held across the country doubled. Support costs were $5.6 million, an increase of 2% from the previous year. Fiscal 2012 saw the necessary additional operational investment required to support future revenue growth to fund new research and education activities.
- 23. Canada Ranks 2nd in the World for IBD Fundraising!!!
- 26. Media
- 33. Events
- 48. Education
- 62. Youth Education
- 66. CCFC Community
- 70. Promotion & Social Media
- 75. Mission, Vision and Values Overview The CCFC Board of Directors as the context in which to conduct this strategic planning process reaffirmed the Mission, Vision and Values of the CCFC. The Strategic Plan was developed to ensure that the CCFC fully executes on its Mission, Vision and Values and that all activities undertaken by the Foundation are aligned with this execution. Much has changed in the internal and external environments since the Foundation last engaged in strategic planning more than a decade ago. This new Strategic Plan considers the internal strengths, weaknesses, opportunities and threats (SWOT) that currently influence the CCFC. It also considers the external forces that play a role in our operating environment, including political, economic, social and technological (PEST) influences that are present in the sector today. Though circumstances may have changed over the past 10 years, the Mission, Vision, and Values of the CCFC remain our touchstones. Mission Find the cure. Vision The Crohn's and Colitis Foundation of Canada (CCFC) believe that a cure will be found for Crohn's disease and ulcerative colitis. To realize this, the CCFC is committed, first and foremost, to raise increasing funds for medical research. The CCFC also believes it is important to make all individuals with inflammatory bowel disease (IBD) aware of the Foundation, and educate these individuals, their families, health professionals and the general public about these diseases.
- 76. Communication Strategy
- 77. The Strategic Plan was developed to align and support the Mission and the Vision of the CCFC. The four Strategic Priority Areas, listed below, have been identified as part of this strategic planning process. The four Priority Areas will help the CCFC increase the Foundation’s capacity to support growth and continue our success as a leading funder of IBD research in Canada. They are: A. Optimizing the Fundraising Model B. Strengthening the Research Portfolio C. Recruiting and Retaining a Robust Volunteer Base D. Embracing the full Vision of the Foundation
- 78. Case Study #1: Optimizing the Fundraising Model
- 85. Case Study #2: Embracing the full Vision of the Foundation
- 86. Old Mission Statement As Of 2011
- 87. New “Promise” Statement As Of 2013 “To cure the disease and improve the lives of children and adults affected by the disease” “We changed the promise statement because we wanted it to be clear to the public that while our mission is to find a cure and raise awareness for the disease, we are also focused on the present state of the IBS and its sufferers. While finding a cure and raising awareness are two very important things, we wanted the CCFC community to know that we would also be there to try and improve lives of those that currently suffering everyday…until the cure is ready.” Sandra Zumpetta, – Chief Operating Officer of Crohn’s and Colitis Foundation of Canada
- 88. EXAMPLE
- 89. While there is consensus that CD and UC are chronic diseases, the variability of symptoms and time course tend also to “orphan” IBD from other chronic diseases. A chronic care model modified to suit the episodic nature of IBD would be beneficial to help coordinate care and for engagement of public and private funders. Stigma is often associated with the conditions because of the nature of symptoms. Toilet access can be an issue when: ->Toilets in social settings are kept locked and a key is required that may take time to acquire. ->School settings may give rise to misperceptions (e.g., teacher perceptions that a child is trying to skip class rather than having a real need) which are perhaps best resolved by conversations between parents and teachers.
- 90. Communication Plan Timeline
- 91. This Strategic Planning Initiative commenced in March of 2008, with the goal of developing a five-year Strategic Plan (“the Plan”) that will help CCFC clearly define its future direction and focus. The Plan began implementation in July 2009 (following detailed goal and metrics setting by the CCFC’s Senior Management Team) and will direct CCFC’s activities through to June 2014. The strategic opportunities identified as part of this strategic planning process build on the strengths of the Foundation and position the CCFC to address future-looking challenges within the medical research foundation and charitable sectors. The Plan was developed based on the opinions and insights of nearly 1500 individuals from all areas of the Foundation plus external stakeholders and advisors. Participants included: CCFC members, volunteers, donors, corporate sponsors, researchers, staff and external sector experts. Stakeholders were engaged through an extensive, five month process which included, but was not limited to, one-on-one interviews, focus groups, web-based surveys, and CCFC 2008 Congress working sessions.
- 92. MAIN ISSUES
- 93. "It is time to recognize IBD as a national and provincial health priority," added Dr. Glasgow. "To improve the current landscape of IBD in Canada, the CCFC, along with government, media, the general public, and other key stakeholders need to work together to help advance public understanding of IBD and to fund research that leads to more treatment options and, ultimately, cures.”-Dr. Kevin Glasgow, Chief Executive Officer, CCFC. “The Canadian government does not recognize IBD as a chronic illness, and therefore does not give funding for research or awareness. The CCFC generates income from charity events, sponsors, stakeholders and various grants” Sandra Zumpetta, – Chief Operating Officer of Crohn’s and Colitis Foundation of Canada
- 94. Main Issues that the Crohn’s and Colitis Foundation Help To Fix
- 95. 1) Awareness of IBD: Low recognition of IBD as a chronic disease, resulting in unnecessary social stigma 2) Diagnosis of IBD: Late diagnosis or inappropriate diagnosis 3) Access to IBD specialists and procedures: Regional disparities and untimely access to care 4) Access to IBD medications: Expensive and often cost- prohibitive medications; variable access and coverage across public provincial drug plans 5) Research: Limited resources to study the “cause, care and cure” of IBD, and for monitoring and evaluation research to improve estimates of prevalence and costs of IBD