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Free Independent Health Records
Adrian Gropper, MD
Berkman Klein Center
January 26, 2017
Great-Grandma is 91
● Healthy, but demented
● In her condo with a live-in caregiver
● I’m 200 miles away
● I need to monit...
Agenda
● Fairness
● Person-centered Solution
● Self-sovereign Tech
● Policy Questions
● Next Steps
Free Independent Health Records
http://thedatamap.org
Baran, Paul. “On Distributed communications: I. Introduction to distributed communications netowrks”
http://www.rand.org/c...
● Distribute access tokens, not policies
● Self-sovereign nodes for self-sovereign persons
● Router
○ Authorization Server / Policy Store
○ FreedomBox
○ Personal Data Store
○ Blockchain Node
● Mobile Client
○ Brow...
Free Independent Health Records
● Aggregated
● Curated
● Authoritative
● Legal
○ Non-repudiable signatures
○ (Blockchain) ...
Build on top of APIs from the start
Sarah Inteman/John Kiehl Physics meets Metaphysics
Self-sovereign Tech Policy
● Fairness to the individual
● Curation
● Independent decision support at the point of care
● D...
Call to Action
● Educate Professions
○ Legal: Sedona Conference
○ Medical: Self-sovereign Identity
○ Medical Society: Phys...
Free Independent Health Records - Digital Health @ Harvard
Free Independent Health Records - Digital Health @ Harvard
Free Independent Health Records - Digital Health @ Harvard
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Free Independent Health Records - Digital Health @ Harvard

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A talk streamed live from the Berkman Klein Center on January 26, 2017. The 20 minute presentation followed by 20 questions is at https://youtu.be/XzNu9LRwWkI

Published in: Healthcare
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Free Independent Health Records - Digital Health @ Harvard

  1. 1. Free Independent Health Records Adrian Gropper, MD Berkman Klein Center January 26, 2017
  2. 2. Great-Grandma is 91 ● Healthy, but demented ● In her condo with a live-in caregiver ● I’m 200 miles away ● I need to monitor her health encounters ● A new doctor... ● … where’s the active medication list?
  3. 3. Agenda ● Fairness ● Person-centered Solution ● Self-sovereign Tech ● Policy Questions ● Next Steps
  4. 4. Free Independent Health Records
  5. 5. http://thedatamap.org
  6. 6. Baran, Paul. “On Distributed communications: I. Introduction to distributed communications netowrks” http://www.rand.org/content/dam/rand/pubs/research_memoranda/2006/RM3420.pdf
  7. 7. ● Distribute access tokens, not policies ● Self-sovereign nodes for self-sovereign persons
  8. 8. ● Router ○ Authorization Server / Policy Store ○ FreedomBox ○ Personal Data Store ○ Blockchain Node ● Mobile Client ○ Browser ○ Secure Element ○ Biometrics ○ Blockchain Client ● Things ○ Implants ○ Wearables ○ IoT
  9. 9. Free Independent Health Records ● Aggregated ● Curated ● Authoritative ● Legal ○ Non-repudiable signatures ○ (Blockchain) Timestamps ○ Retention ● Mandated Registries ○ Prescription Drug Monitoring Programs ○ Infectious Disease ○ All Insurance Claims ○ Research and Quality
  10. 10. Build on top of APIs from the start Sarah Inteman/John Kiehl Physics meets Metaphysics
  11. 11. Self-sovereign Tech Policy ● Fairness to the individual ● Curation ● Independent decision support at the point of care ● Digital Divide ○ Hardware (Smartphone, Router) ○ Identity (Undocumented)
  12. 12. Call to Action ● Educate Professions ○ Legal: Sedona Conference ○ Medical: Self-sovereign Identity ○ Medical Society: Physician Directory ● Self-Sovereign Technology ○ Add Authorization Server to FreedomBox ○ Support Communities ○ Business Model ● Visit hieofone.org Thank You! June 1-2 at Georgetown Law Center - Free and open to the public.

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