1. Eastern European and Central Asian
network of people with experience
of tuberculosis
TBpeople
2. Launch
18- 20 June 2016 – Bratislava, Slovakia – The TB
Europe Coalition in collaboration with and with
support from the Stop TB Partnership conducts
regional workshop “Mobilizing the community of
people with experience of TB in Eastern Europe and
Central Asia”.
On 20 June, workshop participants announce the
launch of TBpeople, the first regional network of
people with experience of TB.
7. Objectives
1. Empower and build capacity of people with experience of
TB
2. Form a strong and active community of people with
experience of TB
3. Ensure collaboration of the community with other
stakeholders in the fight against TB
4. Promote effective policies and programs that are based on
principles of inclusion, human rights and public health
8. Membership in TBpeople
Voluntary and free of charge
Open to all people who:
have experience of TB
support the vision, mission, goals and objectives of TBpeople
are ready to comply with the
membership regulations
have command of Russian
9. “How many millions have to become ill with TB, how
many thousands have to die before the community of
people with experience of TB are seen as allies in the war
against TB? We got together here in Bratislava to say that
we are not going to watch the fight — we will be part of
it!”
Timur Abdullaev
TBEC was formed in 2016 by a group of TB patients from the EECA countries as a response to address two major concerns. First, the spread of resistant forms of TB (Multi-Drug Resistant TB and Extremely Drug-Resistant TB) in several countries of the European Region and the concentration of about a quarter of the global burden in the region. Eastern Europe and Central Asia, in particular, had (and continue to have) the world’s highest rates of new TB patients with MDR-TB. Second, high-rates of MDR-TB were coupled with low awareness among general population and policy-makers about this problem. This was especially due to a scarce number of organizations with the TB effected population working on TB in the region and almost none capable of advocating for TB at national or regional level. With these concerns in mind, TBPeople was formed to bring together national organisations and individuals capable of raising awareness about TB and advocate for bolder policies to fight this disease at all levels.
TBEC was formed in 2016 by a group of TB patients from the EECA countries as a response to address two major concerns. First, the spread of resistant forms of TB (Multi-Drug Resistant TB and Extremely Drug-Resistant TB) in several countries of the European Region and the concentration of about a quarter of the global burden in the region. Eastern Europe and Central Asia, in particular, had (and continue to have) the world’s highest rates of new TB patients with MDR-TB. Second, high-rates of MDR-TB were coupled with low awareness among general population and policy-makers about this problem. This was especially due to a scarce number of organizations with the TB effected population working on TB in the region and almost none capable of advocating for TB at national or regional level. With these concerns in mind, TBPeople was formed to bring together national organisations and individuals capable of raising awareness about TB and advocate for bolder policies to fight this disease at all levels.
TBEC was formed in 2016 by a group of TB patients from the EECA countries as a response to address two major concerns. First, the spread of resistant forms of TB (Multi-Drug Resistant TB and Extremely Drug-Resistant TB) in several countries of the European Region and the concentration of about a quarter of the global burden in the region. Eastern Europe and Central Asia, in particular, had (and continue to have) the world’s highest rates of new TB patients with MDR-TB. Second, high-rates of MDR-TB were coupled with low awareness among general population and policy-makers about this problem. This was especially due to a scarce number of organizations with the TB effected population working on TB in the region and almost none capable of advocating for TB at national or regional level. With these concerns in mind, TBPeople was formed to bring together national organisations and individuals capable of raising awareness about TB and advocate for bolder policies to fight this disease at all levels.