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Key elements of a Successful Transition Pathway
from Children’s to Adults’ Services
Saran Muthiah MBA.,MSc.,MCSP
Clinician, Healthcare Strategist, Visionary Entrepreneur
02/02/2020
©Saran_Muthiah_Jan2020
1
©image: College of OTs
Successful Transition Pathway from Children’s to Adults’ Services
DD., 19 years old, Wheelchair user, keen to start driving
“I have been transferred to adult services; I have to travel 20 miles for my orthotic & wheelchair appointments, worst of all I
was declined a coupon for my wheelchair which was promised by the children’s wheelchair services. They don’t seem to know
me at all, they were asking me lots of questions……why can’t my care stay here as I still come here to see my consultants…”
“Last year my son was promised that I can go to this educational facility that would suit my learning need, however suddenly
the council declined their offer…we had to go down the path of appealing against it…..”
- Parent of LP, 18 years old with LD
I was told that I have been transferred to adult rehabilitation service, but I still haven’t received any intimation. I am concerned
that my daughter is finding it increasingly difficult to walk, I fear that all the good work that we did over the years might be
undone….…..”
- Parent of KW
02/02/2020
©Saran_Muthiah_Jan2020
2
“I feel that I am extremely lucky; I have heard some horror stories… my Physios from children’s and the adult’s services were
wonderful, they managed to support me through out this process…..”
- Parent of JW,18 years old
1
2
3
4
Successful Transition Pathway from Children’s to Adults’ Services
Lessthansuccessful
•Inadequate support
•Inconsistent
•Disrupted care
•Disengaging
Successfulpathway
Gradual, purposeful & goal
driven
Consistent, planned and
co-ordinated
Co-design/Co-created plan
Evidence driven with
appropriate feedback
02/02/2020
©Saran_Muthiah_Jan2020
3
Children andYoung people
(CYP) undergoingTransition
CYP with complex
health and social care
needs
Primary
Care
Community
Care
Secondary/
Tertiary
Social
Care
Education/
Residential
Key worker identified 18 – 24 months ahead Key Worker identified 18-24 months ahead
Co-design of transition plan with CYP, families & carers , children’s, adult services, voluntary sector
Identify appropriate services/clinicians Identify appropriate services/settings
Connexions Personal Advisor (Transition Champion), Voluntary and charitable organisations
Coordinated Transition
Adult services involvement Adult services involvement
Co-ordinated transition across all services (wherever possible)
YESNO
Key worker
Post Transition Review
Staged handover
Joint hand
over clinics
Delayed handover
Key worker
Identify appropriate services/settings
Adult services involvement
Co-design transition plan
Co-ordinated transition
Transition
Process
Named key
worker
Planning the
transition
Identify
Support
services
Transition
Support
after
transition
Personal
Care Plan
Integrated
Health & care
record
HealthEducation
02/02/2020
©Saran_Muthiah_Jan2020
4
CYP with minimal
health and education
needs
© Image by BMJ, 2016; 353:i2225
02/02/2020
©Saran_Muthiah_Jan2020
5
Personalised Health
Folder/page
1. Personal profile
2. Young person’s health,
social care and education
needs
3. Emergency contacts and
details
4. Young person’s strengths,
achievements, hopes &
future goals
5. Preferences about parents
& carer involvement
Funding, Training and
Resources
1. Financial incentives for
services working together
2. Additional funding
streams for transition
coordinator roles
3. Secondments for
professionals to swap to
children’s and adult’s
services
Local Policies and Practices
1. Policies on consulting the
young person
2. Review policies on
admissions, discharges
and non-attendance
3. Availability and eligibility
in accessing adult’s
services
4. Establish protocols,
engage clinicians,
commissioners for funding
service gaps
02/02/2020
©Saran_Muthiah_Jan2020
6
Culture
02/02/2020
©Saran_Muthiah_Jan2020
7
System level leadership & accountability
System and service level flexibility
Personalised, integrated (joined up) & co-produced
Empowering young people with information
Training & awareness for clinicians/professionals
Comprehensive (physical & mental health, education, employment & housing)
Key Elements of successful pathway
02/02/2020
©Saran_Muthiah_Jan2020
8
Resources
NICE guidelines: Transition from children to adult services - Scope
Department of Health. A transition guide for all services. 2007.
National Institute for Health and Care Excellence. Transition from children’s to adults’ services for young
people using health or social care services. (NICE Guideline 43.) 2016.
Clarke S, Sloper P, Moran N, et al. Multi-agency transition services: greater collaboration
needed to meet the priorities of young disabled people with complex needs as they move into
adulthood. 2011
Department of Health. Transition: getting it right for young people. Improving the transition of
young people with long-term conditions from children’s to adult health services. 2006
02/02/2020
©Saran_Muthiah_Jan2020
9

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Transition from children's to adult's services for young people with disabilities

  • 1. Key elements of a Successful Transition Pathway from Children’s to Adults’ Services Saran Muthiah MBA.,MSc.,MCSP Clinician, Healthcare Strategist, Visionary Entrepreneur 02/02/2020 ©Saran_Muthiah_Jan2020 1 ©image: College of OTs
  • 2. Successful Transition Pathway from Children’s to Adults’ Services DD., 19 years old, Wheelchair user, keen to start driving “I have been transferred to adult services; I have to travel 20 miles for my orthotic & wheelchair appointments, worst of all I was declined a coupon for my wheelchair which was promised by the children’s wheelchair services. They don’t seem to know me at all, they were asking me lots of questions……why can’t my care stay here as I still come here to see my consultants…” “Last year my son was promised that I can go to this educational facility that would suit my learning need, however suddenly the council declined their offer…we had to go down the path of appealing against it…..” - Parent of LP, 18 years old with LD I was told that I have been transferred to adult rehabilitation service, but I still haven’t received any intimation. I am concerned that my daughter is finding it increasingly difficult to walk, I fear that all the good work that we did over the years might be undone….…..” - Parent of KW 02/02/2020 ©Saran_Muthiah_Jan2020 2 “I feel that I am extremely lucky; I have heard some horror stories… my Physios from children’s and the adult’s services were wonderful, they managed to support me through out this process…..” - Parent of JW,18 years old 1 2 3 4
  • 3. Successful Transition Pathway from Children’s to Adults’ Services Lessthansuccessful •Inadequate support •Inconsistent •Disrupted care •Disengaging Successfulpathway Gradual, purposeful & goal driven Consistent, planned and co-ordinated Co-design/Co-created plan Evidence driven with appropriate feedback 02/02/2020 ©Saran_Muthiah_Jan2020 3
  • 4. Children andYoung people (CYP) undergoingTransition CYP with complex health and social care needs Primary Care Community Care Secondary/ Tertiary Social Care Education/ Residential Key worker identified 18 – 24 months ahead Key Worker identified 18-24 months ahead Co-design of transition plan with CYP, families & carers , children’s, adult services, voluntary sector Identify appropriate services/clinicians Identify appropriate services/settings Connexions Personal Advisor (Transition Champion), Voluntary and charitable organisations Coordinated Transition Adult services involvement Adult services involvement Co-ordinated transition across all services (wherever possible) YESNO Key worker Post Transition Review Staged handover Joint hand over clinics Delayed handover Key worker Identify appropriate services/settings Adult services involvement Co-design transition plan Co-ordinated transition Transition Process Named key worker Planning the transition Identify Support services Transition Support after transition Personal Care Plan Integrated Health & care record HealthEducation 02/02/2020 ©Saran_Muthiah_Jan2020 4 CYP with minimal health and education needs
  • 5. © Image by BMJ, 2016; 353:i2225 02/02/2020 ©Saran_Muthiah_Jan2020 5
  • 6. Personalised Health Folder/page 1. Personal profile 2. Young person’s health, social care and education needs 3. Emergency contacts and details 4. Young person’s strengths, achievements, hopes & future goals 5. Preferences about parents & carer involvement Funding, Training and Resources 1. Financial incentives for services working together 2. Additional funding streams for transition coordinator roles 3. Secondments for professionals to swap to children’s and adult’s services Local Policies and Practices 1. Policies on consulting the young person 2. Review policies on admissions, discharges and non-attendance 3. Availability and eligibility in accessing adult’s services 4. Establish protocols, engage clinicians, commissioners for funding service gaps 02/02/2020 ©Saran_Muthiah_Jan2020 6
  • 8. System level leadership & accountability System and service level flexibility Personalised, integrated (joined up) & co-produced Empowering young people with information Training & awareness for clinicians/professionals Comprehensive (physical & mental health, education, employment & housing) Key Elements of successful pathway 02/02/2020 ©Saran_Muthiah_Jan2020 8
  • 9. Resources NICE guidelines: Transition from children to adult services - Scope Department of Health. A transition guide for all services. 2007. National Institute for Health and Care Excellence. Transition from children’s to adults’ services for young people using health or social care services. (NICE Guideline 43.) 2016. Clarke S, Sloper P, Moran N, et al. Multi-agency transition services: greater collaboration needed to meet the priorities of young disabled people with complex needs as they move into adulthood. 2011 Department of Health. Transition: getting it right for young people. Improving the transition of young people with long-term conditions from children’s to adult health services. 2006 02/02/2020 ©Saran_Muthiah_Jan2020 9