The document provides an agenda for the MS Patient Summit being held in Rome. It includes sessions on patient rights in research and treatment, influencing healthcare decision-making, and being an expert patient. There will be a panel discussion and breakout groups on these topics in the morning. In the afternoon, there will be continued breakout sessions, feedback to the plenary group, and closing remarks. The goal of the summit is to raise standards and amplify the voice of people living with MS.

2. MS
Pa&ent
Summit
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206
Do
you
sympathise
with
this
provoca2ve
statement
from
St
Bart’s
MS
Blog?
Where
are
the
MS
ac+vists?
Why
are
you
not
camped
outside
the
EMA
with
banners
sta+ng
'enough
is
enough'?
1. Yes
2. No

3. 0 10 20 30 40 50 60 70
%
69%
31%
1. Yes.
2. No.
stating "enough is enough"?
Why are you not camped outside the EMA with banners
Where are the MS activists?
statement from St. Bart's MS blog?
Do you sympathise with this provocative

4. MS
Pa&ent
Summit
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Is
the
voice
of
people
with
MS
loud
enough?
1. Our
voice
is
loud
enough
and
we
just
need
to
keep
doing
what
we
do.
2. Our
voice
and
ac&vism
needs
to
significantly
increase
now
and
our
ac&vi&es
should
be
coordinated.
3. We
could
do
more
over
&me
to
make
our
voice
heard.
4. We
definitely
need
to
make
our
voice
louder
and
it
needs
to
be
done
within
a
year
or
two.

5. 0 10 20 30 40 50 60
%
6%
52%
13%
29%
1. Our voice is loud enough .....
2. Our voice and activism needs to significantly increase now....
3. We could do more over time to make our voice heard.
4. We definitely need to make our voice louder within a year or two.
Is the voice of people with MS loud enough?

6. MS
Pa&ent
Summit
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Is
the
voice
of
people
with
MS
loud
enough?
From
this
morning…

7. MS
Pa&ent
Summit
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Friday, May 22nd, 2015 Summit Moderator: Kaz Aston (UK)
08:30
08:40
09:20
10:00
10.40
Welcome & Introduction - Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It)
Plenary session
• Patient rights in research and treatment - Dr Vittorio Martinelli (It), Aliki Vrienniou (Gr)
• Influencing the direction of healthcare decision-making - Mary Baker (UK)
• The ‘Expert’ Patient - Jean Hardiman-Smith (UK)
Panel discussion
11.15
Break
11.30
Breakout sessions
• Patient rights in research and treatment (co-facilitator - Michele Messmer (It))
• Influencing the direction of healthcare decision-making (co-facilitator - Silvia Traversa (It))
• The ‘Expert’ Patient (co-facilitator - Federica Balzani (It))
12.30
MS World Café
Best Practice Sharing Fair for Patient Advocates
13.00
Buffet Lunch
14:00
Breakout sessions (continued)
15:00
Breakout group feedback to plenary
15:55
Closing Remarks – Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It)
16.00
Meeting Close
Raising
standards;
The
voice
of
people
with
MS