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Ostomies are Funny Things!
Randy Henniger,
26 year ostomate
And colon cancer survivor
May 2012

BOTTOM’S UP


                             Copyright©by R. Henniger 2012   1
You know you’re an ostomate when…
  • You have a favorite "Ensure" flavor.

  • People ask about your guts, before they ask about your
  family.


  • You have more photos of your insides that the outsides.


  • You have a spare pair of underwear in your bag/pocket.
  • You give directions via toilets rather than by restaurants.
  More humor at:
  http://www.inspire.com/groups/ostomy/discussion/ostomy-
  humor/?reply_sort=asc&page=1#replies /

                              Copyright©by R. Henniger 2012       2
Survivors say the funniest things!

   I told my husband we should finish up the kitchen remodel
     because if I died he would have a better chance of finding
     another wife with a nicer kitchen.


   I called the American Cancer Society’s 24 hour hotline and
     said, "Do something! I have cancer and you said to call.“


     I can't die, my drawers aren't clean!


   I treated cancer like any other training activity, I got up a bit
     early and took care of the cancer stuff.


                              Copyright©by R. Henniger 2012
                                                                        3
The Office Worker




             Copyright©by R. Henniger 2012   4
The Computer Tech




             Copyright©by R. Henniger 2012   5
The Airline Pilot




             Copyright©by R. Henniger 2012   6
The Skydiver




               Copyright©by R. Henniger 2012   7
The Biker




            Copyright©by R. Henniger 2012   8
Help Reduce Global Warming!




             Copyright©by R. Henniger 2012   9
For Couples




              Copyright©by R. Henniger 2012   10
Ladies for Men




             Copyright©by R. Henniger 2012   11
Do Bears?




            Copyright©by R. Henniger 2012   12
No Gas Please!




             Copyright©by R. Henniger 2012   13
Ostomies are Funny Things!




“So if the belly at the belt line was
the final choice for the location of an ostomy….
What were the locations not selected?”


                                 Copyright©by R. Henniger 2012   14
New Ostomate Support Needs




Diagnosis     Treatment                            Post-op
  Emotional      Physical                          Ostomy care
  Education      Nutrition                         New new me
  Decision    Stay the course                      Good survivor




                   Copyright©by R. Henniger 2012                   15
Diagnosis

 Make a Decision
   Ostomy as an Option
 Gathering Resources
   Ostomy Buddies and Online Community
 Preparing Emotionally
   Ostomates are people too!




                       Copyright©by R. Henniger 2012   16
Surgery & Recovery

 Pre-Op
   WOCN consult for best location
 Physical Recovery
 Emotional Recovery
 Get the Right Products and Support
   WOCN Participation
   Manufacturers support programs available



                         Copyright©by R. Henniger 2012   17
Post-Op

 Acceptance
   The new you, “No Limits!”
 A Good Survivor
   Bitter to Better!, Victim to Victor!
 Paying it Forward
   Helping others helps us




                          Copyright©by R. Henniger 2012   18
A Good Survivor
   About Rosebud2012
   www.inspire.com/Rosebud2012
   45 years old, Female, Married
   Topeka, Kansas
   Joined March 16, 2012
   I am a mom to one child and one cute dog. I have been married for 21 years to a great man who
    has been through my ulcertive colitis with me for over 20 years. I became a recent member to the
    "Ostomy Family" January of 2012 ...
   Hi Randy and Suzie,
    Thank you for your replies. I am going into my 3 month of having my ileostomy. I am still learning
    the ins and out with it, but I do not get upset any more if I have an accident. I have had ulcerative
    colitis for over 23 years. I always new that there would be a time when the doctor would tell me I
    would need this to be done. I have to admit those words were still very scary to me at any age.
    Randy at first I was going to name my stoma Monty short for Montezuma. But one of my ostomy
    nurses told me how cute of a rosebud I had. The other kept saying that I had the Louis Vutton of
    stomas since the doctors name is Lui and its nicely rounded. But when I name it Rosebud I was
    thinking more of Citizen Kane then how my stoma looked.
    Thank you for suggesting UOAA and CC Alliance to me. I will take any help I can get.
    Thank you everyone for your support and friendship.


    http://www.inspire.com/Rosebud2012/journal/new-to-the-group-24/?page=last#replies
                                                 Copyright©by R. Henniger 2012                              19
A Good Survivor 2

   About jack41241
   www.inspire.com/jack41241
   71 years old, Male
   Louisville, Kentucky
   Joined April 8, 2012
   Rosebud2012, you and I are in somewhat the same boat. I had
    my surgery one month ago. It has been quite a month with
    lots of discomfort, denial, depression, and anger. Have you felt
    any of those emotions?
    I have a great support group in my cast of friends, my
    daughter, and a cousin but it's good to come here and see who
    else feels as I do about anything.
     jack41241
    http://www.inspire.com/Rosebud2012/journal/new-to-the-group-24/?page=last#replies
                                           Copyright©by R. Henniger 2012                20
Active Ostomates




             Copyright©by R. Henniger 2012   21
Pay it Forward




             Copyright©by R. Henniger 2012   22
Thank You! Questions?

 www.wocn.org
 www.uoaa.org
 www.convatec.com
 www.inspire.com
 www.greatcomebacks.com
 www.ccalliance.org
 www.cacoloncancer.org


                       Copyright©by R. Henniger 2012   23

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Bottom’s up 7

  • 1. Ostomies are Funny Things! Randy Henniger, 26 year ostomate And colon cancer survivor May 2012 BOTTOM’S UP Copyright©by R. Henniger 2012 1
  • 2. You know you’re an ostomate when… • You have a favorite "Ensure" flavor. • People ask about your guts, before they ask about your family. • You have more photos of your insides that the outsides. • You have a spare pair of underwear in your bag/pocket. • You give directions via toilets rather than by restaurants. More humor at: http://www.inspire.com/groups/ostomy/discussion/ostomy- humor/?reply_sort=asc&page=1#replies / Copyright©by R. Henniger 2012 2
  • 3. Survivors say the funniest things!  I told my husband we should finish up the kitchen remodel because if I died he would have a better chance of finding another wife with a nicer kitchen.  I called the American Cancer Society’s 24 hour hotline and said, "Do something! I have cancer and you said to call.“ I can't die, my drawers aren't clean!  I treated cancer like any other training activity, I got up a bit early and took care of the cancer stuff. Copyright©by R. Henniger 2012 3
  • 4. The Office Worker Copyright©by R. Henniger 2012 4
  • 5. The Computer Tech Copyright©by R. Henniger 2012 5
  • 6. The Airline Pilot Copyright©by R. Henniger 2012 6
  • 7. The Skydiver Copyright©by R. Henniger 2012 7
  • 8. The Biker Copyright©by R. Henniger 2012 8
  • 9. Help Reduce Global Warming! Copyright©by R. Henniger 2012 9
  • 10. For Couples Copyright©by R. Henniger 2012 10
  • 11. Ladies for Men Copyright©by R. Henniger 2012 11
  • 12. Do Bears? Copyright©by R. Henniger 2012 12
  • 13. No Gas Please! Copyright©by R. Henniger 2012 13
  • 14. Ostomies are Funny Things! “So if the belly at the belt line was the final choice for the location of an ostomy…. What were the locations not selected?” Copyright©by R. Henniger 2012 14
  • 15. New Ostomate Support Needs Diagnosis Treatment Post-op Emotional Physical Ostomy care Education Nutrition New new me Decision Stay the course Good survivor Copyright©by R. Henniger 2012 15
  • 16. Diagnosis  Make a Decision  Ostomy as an Option  Gathering Resources  Ostomy Buddies and Online Community  Preparing Emotionally  Ostomates are people too! Copyright©by R. Henniger 2012 16
  • 17. Surgery & Recovery  Pre-Op  WOCN consult for best location  Physical Recovery  Emotional Recovery  Get the Right Products and Support  WOCN Participation  Manufacturers support programs available Copyright©by R. Henniger 2012 17
  • 18. Post-Op  Acceptance  The new you, “No Limits!”  A Good Survivor  Bitter to Better!, Victim to Victor!  Paying it Forward  Helping others helps us Copyright©by R. Henniger 2012 18
  • 19. A Good Survivor  About Rosebud2012  www.inspire.com/Rosebud2012  45 years old, Female, Married  Topeka, Kansas  Joined March 16, 2012  I am a mom to one child and one cute dog. I have been married for 21 years to a great man who has been through my ulcertive colitis with me for over 20 years. I became a recent member to the "Ostomy Family" January of 2012 ...  Hi Randy and Suzie, Thank you for your replies. I am going into my 3 month of having my ileostomy. I am still learning the ins and out with it, but I do not get upset any more if I have an accident. I have had ulcerative colitis for over 23 years. I always new that there would be a time when the doctor would tell me I would need this to be done. I have to admit those words were still very scary to me at any age. Randy at first I was going to name my stoma Monty short for Montezuma. But one of my ostomy nurses told me how cute of a rosebud I had. The other kept saying that I had the Louis Vutton of stomas since the doctors name is Lui and its nicely rounded. But when I name it Rosebud I was thinking more of Citizen Kane then how my stoma looked. Thank you for suggesting UOAA and CC Alliance to me. I will take any help I can get. Thank you everyone for your support and friendship. http://www.inspire.com/Rosebud2012/journal/new-to-the-group-24/?page=last#replies Copyright©by R. Henniger 2012 19
  • 20. A Good Survivor 2  About jack41241  www.inspire.com/jack41241  71 years old, Male  Louisville, Kentucky  Joined April 8, 2012  Rosebud2012, you and I are in somewhat the same boat. I had my surgery one month ago. It has been quite a month with lots of discomfort, denial, depression, and anger. Have you felt any of those emotions? I have a great support group in my cast of friends, my daughter, and a cousin but it's good to come here and see who else feels as I do about anything. jack41241 http://www.inspire.com/Rosebud2012/journal/new-to-the-group-24/?page=last#replies Copyright©by R. Henniger 2012 20
  • 21. Active Ostomates Copyright©by R. Henniger 2012 21
  • 22. Pay it Forward Copyright©by R. Henniger 2012 22
  • 23. Thank You! Questions?  www.wocn.org  www.uoaa.org  www.convatec.com  www.inspire.com  www.greatcomebacks.com  www.ccalliance.org  www.cacoloncancer.org Copyright©by R. Henniger 2012 23

Editor's Notes

  1. Many newostomates assume their lives will be reduced, that’s just NOT TRUEA good survivor accept their disease at all stages of treatment and recovery
  2. Three old guysare out skydivingFirst one says, 'Windy, isn't it?'Second one says, 'No, it's Thursday!'Third one says, 'So am I. Let's go get a beer after we’re on the ground.'
  3. Hospital regulationsrequire a wheel chair for patients being discharged. However, while workingas a student nurse, I found one elderly gentleman already dressed andsitting on the bed with a suitcase at his feet, who insisted he didn't needmy help to leave the hospital.After a chat about rules being rules, he reluctantly let me wheel him tothe    elevator.On the way down I asked him if his wife was meeting him.'I don't know,' he said. 'She's still upstairs in the bathroom changing outof her hospital gown.'
  4. An elderly couple are attending church services.About halfway through, she writes a note and hands it to her husband. Itsays, " I just let out a long silent fart, what do you think I    shoulddo?"He scribbles back, " Put a new battery in your hearing aid."
  5. Many newostomates assume their lives will be reduced, that’s just NOT TRUEA good survivor accept their disease at all stages of treatment and recovery
  6. Many newostomates assume their lives will be reduced, that’s just NOT TRUEA good survivor accept their disease at all stages of treatment and recovery
  7. Many newostomates assume their lives will be reduced, that’s just NOT TRUEA good survivor accept their disease at all stages of treatment and recovery
  8. Product manufacturers work hard to bring us great technology to allow the ostomy community to live full and active lives. All respect all the manufacturers and over 26 years have tried them all. I know everyone has their own preference of manufacturs, and I use Convatec mouldable wafers and closed end pouches. If anyone wants more info on my experience with products, please feel free to talk to me after the talk. I’ll be here for the rest of the day.Take an active role as either and ostomate or medical professional to research and know what’s out there and open to new solutions that can move us from good to better. Don’t accept the status-quo.3 things to reach NO LIMITS:Don’t be embarrassed Don’t be afraid to do what you wantTry new products to get the right ostomy products for you
  9. I want to thank Convatec and Great Comebacks for brining me here today to share my story with you. We are all great comebacks.