Slides from Nancy's ISPOR Glasgow issues panel on valuing HRQoL in children.

1. ISSUES PANEL
Nancy Devlin (OHE) Moderator
ISPOR  Glasgow  8th November 2017
How should we value HRQoL in
children?

2. ISPOR Glasgow 2017
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Challenges in measuring and
valuing HRQoL in children
Compared with adults, generating evidence on HRQoL
in children is associated with two distinct sets of
challenges:
(a) Challenges in asking children to self-report their
health on PROs
• eg. literacy; use of proxies
• Focus of ISPOR Taskforce report
(b) Challenges in assigning values/utilities to the
paediatric health states described by PROs.
• Focus of this issue panel.

3. ISPOR Glasgow 2017
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Normative issues in valuing
childrens’ HRQoL
Issue
Whose preferences
should be elicited?
The (adult) general public? Children?
What perspective
should be adopted in
valuation tasks?
For an adult, valuing a ‘child’ health state, options
include:
Adult perspective; Hypothetical child; Own child;
One’s self as a child
What methods to use
to elicit preferences?
TTO values ‘biased up’: adults unwilling to trade off time
for children; VAS values lower. How to choose?
Normative = cannot be resolved by empirical evidence
alone; entails value judgements
What are the implications for HTA?

4. ISPOR Glasgow 2017
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Speakers
Deborah Morrison
NICE
Donna Rowen,
University of Sheffield
Oliver Rivero-Arias
Oxford University