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A Call to Action

                 Dr Penny Woods, Chief Executive,
                      British Lung Foundation
                         February 21 2013




    15 months ago…




www.blf.org.uk                                      © British Lung Foundation 2012




                                                                                     1
6 months ago…

                                       ?         ?         ?
                                                                  ?
                                                                  ?
                                    ?
                                                   ??
www.blf.org.uk                                                              © British Lung Foundation 2012




Today: a platform to build on
    •      Huge need continues. For COPD alone
             – >1m diagnosed; est. 2.2 million undiagnosed
             – 5th biggest killer in UK
             – 2nd commonest cause of emergency admissions

    •      Importance of respiratory medicine recognised
             –   Outcomes framework indicators
             –   National Clinical Director at NHSCB
             –   HQIP COPD audit underway
             –   Widespread focus on prevention, early diagnosis, integrated care,
                 self-management, end of life care

    •      Excellent foundations
             – Expertise, experience & relationships
             – Many examples of excellence

www.blf.org.uk                                                              © British Lung Foundation 2012




                                                                                                             2
Today: BLF & Integrated Care
•      Stoke Lung Improvement
         –       Breathe Easy N Staffs, NHS Stoke-on-Trent & HCPs
         –       High deprivation, ++ smoking & COPD

•      Aim: to integrate a ‘vibrant supportive patient &
       carer-led self help group’ into COPD care pathway
         –       Need-driven developments e.g. new venue,
                 welcome pack, newsletter, structured programme
         –       Recognition & referrals/signposting

•      Impact:
         •       75% are more confident in managing own condition
         •       94% have better understanding of their condition                      Stoke
         •       70% have more knowledge of what to do if ill

•      Next steps: 22 groups involved. Model now
       expanding to EoE. BLF leading next phase in East
       Midlands
www.blf.org.uk                                                             © British Lung Foundation 2012




    Today: BLF & Self-management

                                    Patients’ passports for COPD in the North West
                                    •   Patients & carers event to discuss personal
                                        feelings & experiences
                                    •   10 key messages mapped to COPD guidelines.
                                        Refined into 7 steps of COPD patient
                                        passport, to set expectations & to share with
                                        GPs
                                    •   Passports printed & distributed to all CCGs in
                                        NW




www.blf.org.uk                                                             © British Lung Foundation 2012




                                                                                                            3
Tomorrow: Better outcomes, better
experience, better lung health
                                                    Prevention
                                                     through
                                                      Public
                                                      Health
                              Excellent                              Awareness:
                              end of life                             public &
                                care                                   HCPs




                          Support to                                          Early
                             self                                           accurate
                           manage                                           diagnosis




                                       Access to
                                                             Appropriate
                                         high
                                                              specialists
                                       quality Rx
                                                               involved
                                        & care



www.blf.org.uk                                                                          © British Lung Foundation 2012




  Tomorrow: Respiratory Alliance
   • An organisation of organisations which will
            –    Bring patients & professionals together, to be a driving force for
                 promoting & improving lung health
            –    Provide a united, loud & respected voice on key policy issues
            –    Promote consistency & best practice
            –    Deliver specific work streams yet to be agreed
            –    Provide an opportunity to engage all key stakeholders
            –    Complement, not compete with, existing organisations in the
                 respiratory community
            –    Be independent of but working with DH/NHSCB
            –    Become operational over next few months




www.blf.org.uk                                                                          © British Lung Foundation 2012




                                                                                                                         4
Tomorrow: Respiratory Alliance

   • For more information & to be involved:


             Info@RespiratoryAlliance.org.uk




www.blf.org.uk                                © British Lung Foundation 2012




                                                                               5

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Plenary - A Call to Action Dr Penny Woods, Chief Executive, British Lung Foundation

  • 1. A Call to Action Dr Penny Woods, Chief Executive, British Lung Foundation February 21 2013 15 months ago… www.blf.org.uk © British Lung Foundation 2012 1
  • 2. 6 months ago… ? ? ? ? ? ? ?? www.blf.org.uk © British Lung Foundation 2012 Today: a platform to build on • Huge need continues. For COPD alone – >1m diagnosed; est. 2.2 million undiagnosed – 5th biggest killer in UK – 2nd commonest cause of emergency admissions • Importance of respiratory medicine recognised – Outcomes framework indicators – National Clinical Director at NHSCB – HQIP COPD audit underway – Widespread focus on prevention, early diagnosis, integrated care, self-management, end of life care • Excellent foundations – Expertise, experience & relationships – Many examples of excellence www.blf.org.uk © British Lung Foundation 2012 2
  • 3. Today: BLF & Integrated Care • Stoke Lung Improvement – Breathe Easy N Staffs, NHS Stoke-on-Trent & HCPs – High deprivation, ++ smoking & COPD • Aim: to integrate a ‘vibrant supportive patient & carer-led self help group’ into COPD care pathway – Need-driven developments e.g. new venue, welcome pack, newsletter, structured programme – Recognition & referrals/signposting • Impact: • 75% are more confident in managing own condition • 94% have better understanding of their condition Stoke • 70% have more knowledge of what to do if ill • Next steps: 22 groups involved. Model now expanding to EoE. BLF leading next phase in East Midlands www.blf.org.uk © British Lung Foundation 2012 Today: BLF & Self-management Patients’ passports for COPD in the North West • Patients & carers event to discuss personal feelings & experiences • 10 key messages mapped to COPD guidelines. Refined into 7 steps of COPD patient passport, to set expectations & to share with GPs • Passports printed & distributed to all CCGs in NW www.blf.org.uk © British Lung Foundation 2012 3
  • 4. Tomorrow: Better outcomes, better experience, better lung health Prevention through Public Health Excellent Awareness: end of life public & care HCPs Support to Early self accurate manage diagnosis Access to Appropriate high specialists quality Rx involved & care www.blf.org.uk © British Lung Foundation 2012 Tomorrow: Respiratory Alliance • An organisation of organisations which will – Bring patients & professionals together, to be a driving force for promoting & improving lung health – Provide a united, loud & respected voice on key policy issues – Promote consistency & best practice – Deliver specific work streams yet to be agreed – Provide an opportunity to engage all key stakeholders – Complement, not compete with, existing organisations in the respiratory community – Be independent of but working with DH/NHSCB – Become operational over next few months www.blf.org.uk © British Lung Foundation 2012 4
  • 5. Tomorrow: Respiratory Alliance • For more information & to be involved: Info@RespiratoryAlliance.org.uk www.blf.org.uk © British Lung Foundation 2012 5