Breakout 2.1 OSA The patient’s perspective and 3rd sector view - Judy Harris and Lucy Bramwell


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Breakout 2.1 OSA The patient’s perspective and 3rd sector view - Judy Harris and Lucy Bramwell
Part of a set of presentations from NHS Improvement event: Better value, better outcomes held on Thursday 21 February 2013,
Guoman Tower Hotel, London
How to deliver quality and value in chronic care:sharing the learning from the respiratory programme

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Breakout 2.1 OSA The patient’s perspective and 3rd sector view - Judy Harris and Lucy Bramwell

  1. 1. OSA The patient’s perspective and 3rd sector view National Respiratory Learning Event 21st February 2013 Judy Harris and Lucy Bramwell About the BLF The BLF is the UK’s lung charity • We offer support to the one in five people in the UK who have a lung condition • We promote greater understanding of lung disease • We campaign for positive change • We fund new © British Lung Foundation 2012 1
  2. 2. The BLF OSA campaign Objectives: To promote OSA as a regional and national priority in England, Scotland, Wales and Northern Ireland, in order to improve services along the patient pathway for people with OSA To help increase awareness of OSA to the general public and health care professionals, especially primary care, to find undiagnosed people and improve their quality of © British Lung Foundation 2012 The OSA Charter • Campaign tool • 3 parts:  Rights of people with OSA  Calls to Governments across UK  Encouraging © British Lung Foundation 2012 2
  3. 3. The patient’s perspective Signs and symptoms • Public awareness of OSA (BLF surveys suggest 50% men and 60% women have heard of OSA) • Awareness of key symptoms • Support from primary care; BLF GP guide; recognising symptoms – day and night; screening; © British Lung Foundation 2012 The patient’s perspective Referral • Access to local sleep clinic • Joined up working between primary, secondary and tertiary care – protocols • Clear pathway at point of referral • Prioritising those most at © British Lung Foundation 2012 3
  4. 4. The patient’s perspective Assessment and Diagnosis • Sleep services in each region for children and adults • Fast track drivers, patients with co-morbidities (hypertension and type 2 diabetes) • Agreed minimum © British Lung Foundation 2012 The patient’s perspective Treatment • Agreed minimum standards • Access to:  Continuous Positive Airways Pressure (CPAP) – recommended for moderate to severe OSA  Other treatments – mandibular advancement (MAD), lifestyle changes, surgery (tonsillectomy, bariatric, mandibular advancement)  Education and © British Lung Foundation 2012 4
  5. 5. The patient’s perspective Management • Patient information and education • On-going clinical support • Patient © British Lung Foundation 2012 Patient voice - adult • My CPAP is like a comfort blanket. After the first night with it, I was bouncing off the walls – I had never felt like that before. It was brilliant, absolutely brilliant. • A sleep test showed I stopped breathing 54 times an hour during the night. With the treatment I am doing really well and feel like a completely different person. • Ive now been using the mandibular advancement device for just over 4 weeks now which is reasonably comfortable to wear. It does take some getting used to, but I do get a better quality of sleep - and possibly more importantly, so does my © British Lung Foundation 2012 5
  6. 6. Patient voice - child As a baby, we noticed pauses in his breathing from about eight weeks old. Milo used to cry before bedtime and say: ‘I don’t want to go to sleep. It makes me tired.’ He was right, sleeping was exhausting for him. I took him to the GP many times and we had several trips to A&E, when Milo stopped breathing. But it took us a very long time to find out what was wrong. Milo had an urgent operation to remove his tonsils and adenoids in June 2012, just after his fourth birthday. The change has been incredible. Milo was sleep deprived and oxygen starved for the first for years of his life. I think the problem lies in a lack of awareness among GPs of OSA in © British Lung Foundation 2012 OSA takeaway Your OSA pack contains: • Charter • Patient information leaflet • Triple S awareness poster (sample copy) • Take action flyer • GP OSA Guide – launching today! © British Lung Foundation 2012 6
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