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PrEP Advocacy Project
Increasing the Adoption of Pre-
Exposure Prophylaxis (PrEP) in San Luis
Obispo County
Leona Rajaee
May 19, 2016
A LITTLE HISTORY
AIDS first recognized
by CDC
1996
39 million deaths
1981 2014
HAART makes AIDS
more manageable
How do we
prevent HIV?
HOW DO WE PREVENT HIV?
Abstinence CondomsPrEP
PrEP 101
▹ Introduced in 2012 to prevent HIV
▹ For people not already infected with HIV
▹ “A pill a day keeps the HIV away”
▹ Checkup with your doctor every 3 months
99 %
SOURCE: iPrEx study on MSM who took PrEP
seven days a week
effective
1 in 3 doctors
don’t know about PrEP
1 in 20 at-risk for HIV
are currently taking PrEP
”
Why is PrEP still in
the closet?
SIDE EFFECTS
▹ Biggest reason for not taking Truvada
according to one study
▹ Nausea, vomiting, fatigue, and dizziness, were
most common side effects
▹ Some people in clinical trials had elevations in
blood tests that looked at kidney function
▹ Some people in studies had a decrease in bone
mineral density within the first month
STIGMA
“Truvada Whore”
“PrEP Slut”
COSTS & ACCESSIBILITY
With Insurance
A client with insurance
would pay a fraction of this
cost, some who qualify for
manufacturer programs
may pay next to nothing.
Without Insurance
About $1,539.90
per month.
ADHERENCE
35.2% of people interested in PrEP feel anxious about
having to take the pill consistently each day
90% of respondents currently on PrEP reported taking all 7
doses for the past week.
Even though adherence is high, healthcare providers still
cite adherence as a reason for their hesitation to prescribe
the drug
Why aren’t
doctors on
board?
Let’s talk about sex...
vs.
PrEP for IDUs
Injecting drug users (IDUs)
have a disproportionate
burden of HIV.
80% of IDUs
would go on
PrEP
These political and social
barriers need to be addressed
to increase PrEP treatment.
Little or no
public or
governmental
support
Punitive and
harsh
treatment
Marginalization
Access Support Network + PrEP
HIV is increasing in this
county among young
(18-24) men who have
sex with men.
”
“HIV could never happen to me”
“They have drugs for that now so I’m not worried”
“AIDS is an old man’s disease”
HIV funding has
been slashed
Many prevention programs have
been forced to shut down.
ASN launches the PrEP
Advocacy Project
▹ In response to the need for
prevention resources & the
increase in new HIV
transmissions.
1. AWARENESS
“PrEP uptake appears higher among those with prior knowledge about PrEP.”
2. Collaboration
Healthcare
Practitioners
Community
organizationsASN
CALL TO ACTION:
Stop the Stigma
Stigmatizing behavior, sex-
negative messaging, and labels (ie
‘Truvada Whores’) should be
neutralized because it hinders
access to prevention services.
Work w/ Healthcare
Community
Many healthcare practitioners don’
t feel well equipped to talk to their
patients about PrEP. We should
strive to support these individuals.
Advocate for
equitable healthcare
Marginalized groups are among the
groups of people that need PrEP
the most. Unfortunately, many lack
access to healthcare, making it
harder to obtain PrEP as well.
Get Tested
Step 1: Know your status. 20% of
those infected are unaware of their
HIV status. Those undiagnosed
20% are responsible for up to 70%
of the new infections each year in
the United States.
Inform at-risk
individuals
We should work to inform as many
people as possible about PrEP and
demystify it for those familiar with
the treatment.
Start conversations
on sexual health
Sexual pleasure should be viewed
as a benefit of PrEP, an acceptable
motive for seeking PrEP, and a core
element of health.
THANKS!
Any questions?
You can find me at
▹ @leonarajaee
▹ leona8595@gmail.com
▹ http://www.asn.org/prepproject

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Increasing PrEP Adoption in SLO County

  • 1. PrEP Advocacy Project Increasing the Adoption of Pre- Exposure Prophylaxis (PrEP) in San Luis Obispo County Leona Rajaee May 19, 2016
  • 2. A LITTLE HISTORY AIDS first recognized by CDC 1996 39 million deaths 1981 2014 HAART makes AIDS more manageable
  • 4. HOW DO WE PREVENT HIV? Abstinence CondomsPrEP
  • 5. PrEP 101 ▹ Introduced in 2012 to prevent HIV ▹ For people not already infected with HIV ▹ “A pill a day keeps the HIV away” ▹ Checkup with your doctor every 3 months
  • 6. 99 % SOURCE: iPrEx study on MSM who took PrEP seven days a week effective
  • 7.
  • 8. 1 in 3 doctors don’t know about PrEP 1 in 20 at-risk for HIV are currently taking PrEP
  • 9. ” Why is PrEP still in the closet?
  • 10. SIDE EFFECTS ▹ Biggest reason for not taking Truvada according to one study ▹ Nausea, vomiting, fatigue, and dizziness, were most common side effects ▹ Some people in clinical trials had elevations in blood tests that looked at kidney function ▹ Some people in studies had a decrease in bone mineral density within the first month
  • 11.
  • 12.
  • 14. COSTS & ACCESSIBILITY With Insurance A client with insurance would pay a fraction of this cost, some who qualify for manufacturer programs may pay next to nothing. Without Insurance About $1,539.90 per month.
  • 15. ADHERENCE 35.2% of people interested in PrEP feel anxious about having to take the pill consistently each day 90% of respondents currently on PrEP reported taking all 7 doses for the past week. Even though adherence is high, healthcare providers still cite adherence as a reason for their hesitation to prescribe the drug
  • 17. Let’s talk about sex... vs.
  • 18. PrEP for IDUs Injecting drug users (IDUs) have a disproportionate burden of HIV.
  • 19. 80% of IDUs would go on PrEP These political and social barriers need to be addressed to increase PrEP treatment. Little or no public or governmental support Punitive and harsh treatment Marginalization
  • 21. HIV is increasing in this county among young (18-24) men who have sex with men.
  • 22. ” “HIV could never happen to me” “They have drugs for that now so I’m not worried” “AIDS is an old man’s disease”
  • 23. HIV funding has been slashed Many prevention programs have been forced to shut down.
  • 24. ASN launches the PrEP Advocacy Project ▹ In response to the need for prevention resources & the increase in new HIV transmissions.
  • 25. 1. AWARENESS “PrEP uptake appears higher among those with prior knowledge about PrEP.”
  • 26.
  • 28. CALL TO ACTION: Stop the Stigma Stigmatizing behavior, sex- negative messaging, and labels (ie ‘Truvada Whores’) should be neutralized because it hinders access to prevention services. Work w/ Healthcare Community Many healthcare practitioners don’ t feel well equipped to talk to their patients about PrEP. We should strive to support these individuals. Advocate for equitable healthcare Marginalized groups are among the groups of people that need PrEP the most. Unfortunately, many lack access to healthcare, making it harder to obtain PrEP as well. Get Tested Step 1: Know your status. 20% of those infected are unaware of their HIV status. Those undiagnosed 20% are responsible for up to 70% of the new infections each year in the United States. Inform at-risk individuals We should work to inform as many people as possible about PrEP and demystify it for those familiar with the treatment. Start conversations on sexual health Sexual pleasure should be viewed as a benefit of PrEP, an acceptable motive for seeking PrEP, and a core element of health.
  • 29. THANKS! Any questions? You can find me at ▹ @leonarajaee ▹ leona8595@gmail.com ▹ http://www.asn.org/prepproject