An overview of how research questions are generated, how research is conducted, and disseminated to benefit the creation of interventions to reduce colorectal cancer among African American women.
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African american women and colorectal cancer research: Why Your Participation Matters
1. African American Women and Colorectal
Cancer Research: Why Your Participation
Matters
KELLY BRITTAIN, PHD, RN
MICHIGAN STATE UNIVERSITY
COLLEGE OF NURSING
2. I will explain:
How a research topic/question is developed
How this works in a research study
How research participants are recruited
What we do with the results
What is done after the study is over
5. Reducing Colorectal Cancer Risks
Colorectal Cancer Screening
Annual:
Fecal Occult Blood Test (gFOBT)
Fecal Immunochemical Test (FIT)
Every 3 years:
FIT-DNA (Colorguard®)
Every 10 years:
Colonoscopy
Colorectal Cancer Risk Factors
6. My Goal
• To make sure that our voice and perspectives are represented in research.
• Develop solutions (interventions) will work for us.
7. My Studies
The Influence of Family and Cultural Identity on Informed Decision- Making
o Developing and Testing a Mobile App to Increase Informed Decisions about
Colorectal Cancer Screening
Colorectal Cancer Awareness for Women via Facebook
African American patients’ intent to screen for colorectal cancer: Do cultural
factors, health literacy, knowledge, age and gender matter?
Sociocultural and Health Correlates Related to Colorectal Cancer Screening
Adherence Among Urban African Americans
Barriers and Facilitators for Adoption of the Mediterranean Diet to Reduce
Colorectal Cancer Risk in African Americans
8. How Research Participants Are Recruited
African American men and women
Age 50 and older
Able to read and write in English
No personal history of colorectal cancer
Have insurance coverage for CRC screening
Recruited from Detroit businesses and peer-to-peer (social network)
Newer methods: ResearchMatch.org (You should sign up!)
9. Results
Dependent on the number of people that participate
Findings:
Difference between African American Men and Women related to cultural
identity
Family matters most
African Americans with Diabetes at most risk for not being screened
Health literacy is important to colorectal cancer screening intention
Women thought the mobile app would be good to facilitate talking to
their provider about colorectal cancer screening
Facebook can be used to keep women engage about colorectal cancer risk
reduction and screening
10. What We Do With the Results
Conferences (Posters & Podiums)
Publications
Community presentations
More research
11. What is done after the study is over
Come up with another question that needs to be answered until Colorectal
Cancer disparities on longer exist
12. Summary
How a research topic/question is developed: Impact on an important health issue &
personal connection/experience
How this works in a research study: My research
How research participants are recruited: Depends on the target population and the
question(s) to be answered. More emphasis on healthy populations or those with chronic
diseases. Join ResearchMatch
What we do with the results: Share (conferences, publications, community, students)
What is done after the study is over: Start over
As a preface to my research, I’m going to tell you a bit about myself. I am a native Detroiter and have had a passion for the community for as long as I can remember. I’ve been a nurse for 17 years, but much of my career, a little over 14 years has been spent in the community with children, adults, families, the insured and uninsured. It was the plight of hospitalized asthmatic children that led me to the community and in a since I’ve never looked back. I’ve been a school nurse, program director working with a community and its leaders to reduce teenage pregnancy and infant mortality through the use of lay workers, developed hospital outreach and education programs on the east side of Detroit using parish nurses, school based clinics, senior programs, community health workers and community based agencies. I’ve worked as a care management coordinator for a program that served Detroit’s un and under insured and I’ve directed education, outreach and support programs for the community and cancer patients at Karmanos Cancer Institute. It is my passion for families, the community and the cancer journey, that inspires my research
The issue at hand is the colorectal cancer disparity among African Americans.
According to the American Cancer Society, incidence rates of colorectal cancer among African Americans are 20% higher than in whites (American Cancer Society, 2008).
Mortality rates of colorectal cancer among African Americans are 45% higher than in whites (American Cancer Society, 2008).
In order to participate in the study, potential participants had to be
An African American man or woman
Age 50 and older
Able to read and write in English
No personal history of colorectal cancer
Have insurance coverage for colorectal cancer screening
Most of the sample was recruited from Detroit businesses and peer-to-peer referrals