1. Research
Data
Toolkit
Jennifer
Villalobos1,
Chad
Birger,MS2
Maternal
Child
Health
Careers/Research
IniAaAves
for
Student
Enhancement-­‐Undergraduate
Program
(MCHC/RISE-­‐UP)1,
Sanford
Research2
Some activities that CRCAIH provided me with during this internship experience include:
ŸCRCAIH 3rd Annual Health Research Summit ŸSisseton Wahpeton Oyate Tribal Reservation and Headquarters
-Research and Sovereignty -Woodrow Wilson Keeble Memorial Health Care Center
-Unraveling the Mystery of an IRB Review -Sica Hallow State Park
-Addressing Tribal Public Health Needs -Nicollet Observation Tower
ŸMoving forward, we hope to make the appropriate changes to the toolkit in order to better adapt to the general audience. That way, we hope to increase research capacity among
research and most specific, tribal communities. Overall, great learning experience working among Native American research and the CRCAIH Methodology Core.
The Collaborative Research Center for American Indian Health
(CRCAIH):
• Formed in September 2012 with a grant from the National
Institute for Minority Health and Health Disparities
• Brings together tribal communities and health researchers
within SD, ND and MN
• Goal: to build tribal research infrastructure and trans-
disciplinary research teams to improve American Indian
health through examination of social and environmental
influences on health
Methodology Core1:
• Consults on the planning and design stages of studies
• Provides data management services
• Provides training opportunities for tribal communities and
researchers in current data management methods
• Advice on: 1) Study Design 2) Data collection from design
3)Report generation 4) Statistical Analysis
CRCAIH works among various tribes to collaborate on research
methods, research techniques and much more. The
Methodology Core decided to create the first CRCAIH
Research Data Toolkit to increase and strengthen research
capacity and collaboration among SD, ND and MN
communities. In addition, requests for research data
management and storage options were made from several tribal
partners. These requests initiated this project to better expand
on CRCAIH resources, specifically within research data
management.
Objective: Although this project is still in progress, we look
forward to share the toolkit with surrounding communities to:
• Increase understanding of how essential data research
maintenance is for quality research work3
• Improve collaboration among tribal communities in SD, ND,
MN
• Encourage progress in tribal research
Special thanks to the Maternal Child Health Careers/Research Initiatives for Student
Enhancement-Undergraduate Program (MCHC/RISE-UP) for providing a great research
program. Grant funding for this program was awarded to Kennedy Krieger Institute (KKI) by
the Centers for Disease Control and Prevention (CDC) to develop a national consortium of
institutions and universities build on LEND training framework & CDC-funded RISE grant.
What
is
CRCAIH?
Acknowledgements
Background
ReflecAon
References
This
research
is
sponsored
by
the
Na2onal
Ins2tute
on
Minority
Health
and
Health
Dispari2es
of
the
Na2onal
Ins2tutes
of
Health
under
Award
Number:
U54MD008164.
The
content
is
solely
the
responsibility
of
the
authors
and
does
not
necessarily
represent
the
official
views
of
the
Na2onal
Ins2tutes
of
Health.
CRCAIH
Tribal
Partners
There are five tribes that CRCAIH partners with in the SD, ND and MN regions. They are
shaded red in the image below. The following tribal partners are:
• Turtle Mountain Band of Chippewa Indians
• Spirit Lake Sioux Tribe
• Fond Du Lac Band of Lake Superior Chippewa
• Sisseton Wahpeton Oyate
• Oglala Sioux Tribe
Methods
Subject areas the Research Data Toolkit provides include:
• “Procedures for Data Storage”- Stick to schedule when backing up data,
document procedure for plan of execution, initiate plan for backing up
data, etc.2
Results:
• CRCAIH Mission
• 21-page Toolkit
• 5 Subject Areas
• NA/NI Resources
• MC Service Model
• Contact information
“CRCAIH." About CRCAIH. N.p., n.d. Web. 20 July 2015. <http://www.crcaih.org/about-crcaih.html>.1
"Data Storage." Research Technology Expo. N.p., n.d. Web. 07 July 2015. <http://researchtech.iu.edu/
data-storage.php>.2
"Section 5. Collecting and Analyzing Data." Chapter 37. Operations in Evaluating Community
Interventions. N.p., n.d. Web. 06 July 2015.3