1. Advance care planning and
palliative care
Medical ethics and
professional practice
Emerging issues in
healthcare law (financial,
guardianship, and care
management)
Supported By:
www.endoflifelegalconference.com • Email: info@ghpnetwork.com
A Division of IQPC Healthcare Inc.
September 17-18, 2015, The Westin Bonaventure, Los Angeles, CA
Strategies for resolving the ethical and legal complexities of end of life healthcare decisions
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Featured Speakers Include:
• Senator Bill Monning, State Senate Majority Leader
• Ira Byock, Institute for Human Caring of Providence
Health and Services
• Paul Schneider, VA Greater Los Angeles Healthcare
System
• Sarah Hooper, UC Hastings
• Bart Windrum, Axiom Action
• Helen Kao, UC San Francisco
• Marie T. Hilliard, National Catholic Bioethics Center
• Stefanie Elkins, Compassion & Choices
• Jenny Kraska, Colorado Catholic Conference
• Stanley A. Terman, Caring Advocates
• Amanda Ruiz, Cedars-Sinai
• Jennifer Ballentine, Hospice Analytics
• Amy Christianson, Cedars-Sinai
• Jim McGregor, Sutter Care at Home
• Lucille Lyon, National Guardianship Association
• Douglas Pace, Advancing Excellence in Long-Term
Care Collaborative
• Judy Thomas, Coalition for Compassionate Care of
California
• Senator Elizabeth Steiner Hayward, Oregon Legislature
Conference Highlights:

2. 8:00am Registration & Complimentary Breakfast
8:20am Opening Ceremonies
Welcome: Allison P. McGown, Research Director, GHP Network
8:25am Opening Remarks from program chair:
Dr. Paul Schneider, Bioethicist, Greater Los Angeles VA
Healthcare System
8:30am KEYNOTE ADDRESS: Dying in America – A 21st
Century Crisis and Opportunity for Leadership
At the conclusion of this presentation, participants will be able to:
·· Identify three or more components of a public health crisis that
surrounds dying in America
·· Identify three or more characteristics of quality as defined by the
Institute of Medicine
·· Correctly identify shared-decision making as a core component of
quality and a core skill of all physicians caring for seriously ill patients
·· Define the fundamental nature of illness and dying as personal, rather
than solely medical
·· Define the Triple Aim of health care reform
·· Identify meaningful opportunities for seriously ill people and families
that may exist concomitant with the inherent difficulties of illness and
dying
Identify three or more policy changes to substantially improve care and
quality of experience for seriously ill people and their families
Ira Byock, MD, Executive Director and Chief Medical Officer for the
Institute for Human Caring of Providence Health and Services
9:30am Medical and Legal Partnerships to Plan for End of Life
Care
Session Objectives:
·· Understand the medical-legal partnership (MLP) model, its history,
and evidence base
·· Understand the role of lawyers in addressing social determinants of
health in patient-centered advance care planning
·· Understand the legal issues impacting the health and quality of life
of older adults
·· Understand the particular approach to advance care planning taken
by the UCSF-UC Hastings Medical-Legal Partnership for Seniors, and
the potential for expanding the model.
Sarah Hooper, Assistant Director of UCSF / UC Hastings
Consortium and Adjunct Professor, UC Hastings
Helen Kao MD, Associate Professor of Medicine, Medical Director,
Geriatrics Clinical Programs, UC San Francisco
10:30am Break
10:50am An Individual’s Right to Decide: End of Life Option Act
Session Objectives:
·· Provide background and personal motivation for authoring SB 128,
the End of Life Option Act.
·· Detail provisions included in the legislation.
·· Itemize the safeguards included in the legislation and the importance
of these safeguards.
Senator Bill Monning, California’s 17th District, Senate Majority
Leader, Chair of the Senate Committee on Legislative Ethics
9:00am- WORKSHOP: Moving ACP Upstream: Tools and
Frameworks for Clinical Practice
Session Objectives:
·· Describe model approaches to comprehensive advance c
are planning
·· Apply clinical and legal frameworks for assessing decision making
capacities
·· Define differences between ACP tools/documents
11:50am Companions on the Journey: Ethics of Health Care at Life’s End
Session Objectives:
·· Explore the dimensions of suffering, and the role of the care giver in its
alieviation
·· Differentiate between active and passive euthanasia and their moral
dimensions
·· Analyze the legal and ethical obligaitons of the care giver to alieviate suffering,
not the sufferer
Marie T. Hilliard, PhD, JCL, RN, Director of Bioethics and Public Policy,
National Catholic Bioethics Center
12:30pm Lunch
1:30pm SB-128 End of Life Option Act and what we have learned from
the Oregon Death with Dignity Act Experience
Session Objectives:
·· Provide a brief history of the Death with Dignitymovement in the States
·· Provide overview of SB-128 End of Life Option Act andhighlight unique
requirements and protections
·· Showcase stories and results from the Oregon Deathwith Dignity Act
experience
Stefanie Elkins, CA Medical Outreach and Organizing Manager, Compassion
& Choices
2:10pm Physician Assisted Suicide Legislation – The Colorado
Experience
Session Objectives:
·· Background and general information regardingColorado’s 2015 PAS legislation
·· The Colorado Catholic Conference’s position
·· Support and opposition in the legislative arena
·· Final Outcome and looking forward to 2016.
Jenny Kraska, Executive Director, Colorado Catholic Conference
2:50pm Break
3:10pm Respecting Patient Autonomy at End of Life: The Oregon
POLST System
Participants will:
·· Understand components of POLST System, gain knowledge of Oregon POLST
System
·· Understand differences between POLST and advanced directive
·· Learn new ways to discuss end of life options with patients
Sen. Elizabeth Steiner Hayward, MD, Oregon Legislature, Oregon Health
and Science University
3:50pm Panel Discussion: How the End of Life Option Act Affects the
Healthcare Community
All speakers and delegates are invited to participate in this open floor
discussion on the medical, legal, ethical, and spiritual effects of physician
assisted suicide
4:50pm Closing Remarks from program chair:
Dr. Paul Schneider, Bioethicist, Greater Los Angeles VA Healthcare
System System
5:00 pm Happy Hour & Networking
Sponsored By GHP Network
·· Define differences between types of legally recognized decision makers, and
be able to list characteristics of “good” decision makers
·· Understand the significance of socioeconomic status and other social
determinants in patient-centered advance care planning
·· Define ethical issues for interprofessional providers working with adults in
advance care planning
Helen Kao, Associate Professor of Medicine, Medical Director, Geriatrics Clinical
Programs, UC San Francisco
Sarah Hooper, Assistant Director of UCSF / UC Hastings Consortium and
Adjunct Professor, UC Hastings
For exclusive insights on future GHP Network programs visit us at www.ghpnetwork.com or join us on social media.
DAY ONE: THURSDAY, SEPTEMBER 17, 2015
PRE CONFERENCE WORKSHOP: WEDNESDAY, SEPTEMBER 16, 2015
3:00pm
To register please visit www.endoflifelegalconference.com

3. 8:00am Complimentary Breakfast Networking
8:25am Opening Remarks from program chair:
Dr. Paul Schneider, Bioethicist, Greater Los Angeles VA Healthcare
System
8:30am KEYNOTE ADDRESS: To avoid prolonged dying in
Advanced Dementia: Overcoming legal, ethical, and
religious challenges to Advance Care Planning
Session Objectives:
·· Cite two challenges the terminal illness Advanced Dementia presents
for Advance Care Planning.
·· Name four features that help make Living Will requests effective.
·· How does confusion with the similar end-of-life option, VSED, affect
opinions about “Natural Dying”?
·· What strategies can overcome some state laws, some religious
teachings, and some organizations’ recommendations—so others will
honor patients’ requests for “Natural Dying”?
Stanley A. Terman, PhD, MD, Medical Director and CEO of Caring
Advocates
9:30am AIM- The Right Care at the Right Time and Place
·· Name 2 tools that can enhance patient engagement and patient
centered care.
·· Learn about one model for care management across the continuum.
·· Describe the importance and patient centered care and patient
outcomes
Jim McGregor, Senior Medical Director AIM, Home Health and
Hospice, Sutter Care at Home
10:10am Break
10:30am Psychiatry Initiatives for the End of Life Patient
Session Objectives:
·· Participant to discuss and consider the factors related to death with
dignity (message of talk)
·· Participant to understand factors considered in determination of
capacity for medical decision making
·· Participant will be able to discuss psychological ramifications of the
diagnosis of a life-threatening illness
Amanda Ruiz, MD, Emergency Psychiatry, Cedars Sinai
Amy Christianson, MD, Transplant Psychiatry, Cedars Sinai
11:30am Navigating the Waters of End of Life Care for the
Mentally Ill Patient
Session Objectives:
·· Understand how dementia and other psychiatric illnesses may affect
decision-making capacity about end of life care.
·· Appreciate the complexity involved in making surrogate decisions for
incapacitated, unrepresented patients regarding end of life care.
·· Understand the unique role played by the Office of the Public Guardian
in making surrogate decisions regarding end of life care for its
conservatees.
Dr. Paul Schneider, VA Greater Los Angeles Healthcare System
12:10pm Lunch
1:10pm Windrum’s Matrix of Dying Terms™—Place Names for
Navigating Our Dying Territory
Session Objectives:
·· Understand the context for and genesis of Windrum’s Matrix, its structure
and its language (landing names and their meanings)
·· Personalize engagement with the Matrix by trying every landing name
“on for size”
·· Appreciate what the Matrix reveals about ownership and control over
our dying
·· Better distinguish between dying situations
Bart Windrum, End of Life Author and Speaker, Axiom Action
2:10pm Creating an Advance Care Planning Continuum that Works
Objectives:
·· Describe key elements related strategies for effective ACP
·· Describe difference between an Advance Directive POLST
·· Identify barriers and solutions to community, professional, and
organizational engagement in ACP
Judy Thomas, Chief Executive Officer, Coalition for Compassionate
Care of California
2:50pm Break
3:10pm The Importance of Quality Measures
Session Objectives:
·· Obtain an overview of the AE Nursing Home Campaign
·· Learn why quality measures are important in long-term services
and supports
·· Discuss the important of the National Heath Care Quality and
Strategy Plan
·· Review the Adverse Events in Skilled Nursing Facilities: National Incidence
Among Medicare Beneficiaries Report
Douglas Pace, Executive Director, Advancing Excellence in Long-
Term Care Collaborative
3:50pm A Public Fiduciary's Perspective on End of Life Decision-
making using National Guardianship Standards
·· Overview of a Public Agencies Actions for End of Life Decision
-making in California.
·· National Guardianship Standard of Practice for End of Life
Decision-making
·· Challenges faced by a Public Fiduciary
Lucille Lyon, Board of Directors, National Guardianship Association
4:30pm Lessons from the Dying: What Hospice Can Teach
Healthcare about Responding to Suffering
·· Describe the Hospice philosophy of care
·· Distinguish suffering from pain and discomfort
·· Recognize pervasive sources of suffering in the conduct of health care
·· Define and identify existential suffering
·· Explore evidence-based responses to existential suffering
·· Apply learning to improve practice and systems of care
Jennifer Ballentine, Vice President, Hospice Analytics
5:10pm Closing Remarks from program chair:
Dr. Paul Schneider, Bioethicist, Greater Los Angeles VA Healthcare System
5:20pm Close of Conference
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DAY TWO: FRIDAY, SEPTEMBER 18, 2015
OTHER UPCOMING GHP NETWORK EVENTS:
Hospital Mergers and Acquisitions Summit
July 23rd and 24th, 2015, Chicago, IL
Meaningful Use Audit and Compliance
Conference
July 27th and 28th, 2015, Philadelphia, PA
Physician Recruitment and Engagement
Conference
July 30th and 31st, 2015, Austin, TX
National Falls Prevention Conference
September 21st and 22nd, 2015,
Los Angeles, CA
Medicare Advantage Plans Star Ratings
Conference
September 28-29, 2015, Chicago, IL
Hospital Purchased Services Conference
September 28-29, 2015, Houston, TX
To register please visit www.endoflifelegalconference.com

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Email: info@ghpnetwork.com