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GHS Cancer Institute
The Inpatient’s Guide to Success
The Hospital Experience
2
Our Message to Patients,
As a patient of Greenville Health System, your experience is very
important to us. It is our goal to exceed your expectations by offering
you a positive experience. Hospital stays can be unpredictable and
stressful at times. This guide hopes to prepare you by detailing the
“typical day” for an inpatient and answer common patient and family
member questions. It may not have the answer to every question, but it
will provide an overview of common questions and concerns as you
begin or continue your journey. Research has shown that a positive pa-
tient and family experience results in better outcomes for you. As em-
ployees, our mission is to provide quality, compassionate care to you,
our guest. We would like to therefore provide this booklet to you as part
of that commitment to care. Our staff are prepared to answer any addi-
tional questions. Thank you for choosing Greenville Health System.
3
Table of Contents
Part 1: Entering the Hospital
Hospitalization
Important Phone Numbers
During Your Stay
Tips for Patients
What Does My Room Look Like?
Visitor Information
Care Partners
Pets
Personal Pet Visitation
Pet Therapy Program
Part 2: Your Inpatient Team
Cancer Care Team
MY Inpatient Medical Team
Part 3: Inpatient Resources Available
Music Therapy
The Role of Nutrition During Cancer Treatment
Difficult Decisions
Chaplin Services
Advance Directives
Palliative Care
Hospice
4
Table of Contents
Part 4: Hospital Amenities & Resources
Amenities
Wifi
Lodging
Maps and Directions
Dining
Resources
Library
CIOS Student Center
Visitor & Volunteer Services
Healing Garden
Video & Book Cart
Part 5: Patient Safety /Rights & Responsibilities
Patient Safety
Patient Rights & Responsibilities
Part 6: Prepping for Discharge-Resources & Support Services
Discharge Checklist
Knowledge Is Power
Questions to Ask The Doctor
Accepting a Helping Hand
Resources for In-Home Help
Counseling Options
Local Support Groups
Online Support Groups
Personal Websites
Local Support Services
National Caregiver Support Services
Caregiver Smart Device Apps
Bone Marrow Support
5
Entering the Hospital
6
Hospitalization
There are numerous reasons a patient might be hospitalized with a cancer diagnosis. Examples or
reasons are: symptom management such as pain, nausea & vomiting, high fever, extreme fatigue,
diagnostic workup, removal of a cancer, or bone marrow transplantation. Your stay may be a part of
a treatment plan previously discussed with your oncology team or it may be totally unanticipated
from an infection or toxicity. Your hospital medical team is typically larger than your outpatient team;
however, we are all working together and are well prepared for your stay.
What Should You Expect?
Each individual will have a slightly different routine during their stay in the hospital. Although each
patient’s experience will be unique, all patients can expect a very early morning visit from the lab to
have blood drawn, this is done in order to provide your physician with results before he/she sees
you that same day. A physician will see you each day you are hospitalized. Your oncologist and
their partners share a rotation of the oncology floor. This means there is a chance you may see a
physician other than your primary provider, but we are all working together to provide the very best
of care for you during your stay.
Hospital staff will ask your name and date of birth frequently, providing this information may become
tiresome, but it helps us to prevent errors in your care. GHS is a teaching hospital, so you may en-
counter students or residents during your stay. If you are uncomfortable with having a student or
resident participate in your care, you may always request that they are not involved.
I
7
Important Phone Numbers
Note: When dialing internal departments of GHS from a GHS telephone, a five-digit number is all
that is needed i.e. (5-5555 for guest services). When dialing an outside number, the full seven-digit
number is required.
Main GHS Number, 455-7000
Chaplain Services, 5-7942 or 455-7942 (8:30 a.m. to 5:00 p.m. weekdays); 390-0100 (after hours)
Condition Help, 5-0599 Note: This is an internal number only, and will provide information to pa-
tients and family regarding patient condition.
Guest Services, 5-5555 or 455-5555 (Hospital Information Services)
Language Services/Interpreters, (864)455-1584 outside GHS or 5-HOLA (4652) inside GHS
Patient and Family Relations, 5-7975 or 455-7975 (complaints or concerns)
8
During Your Stay
What to Bring?
· List of allergies to medication(s) /non-medication(s)
· List of current medication(s)
· List of current doctors and staff
· Pajamas or nightgown-button down or zipper is preferable.
· Brush & comb
· Robe & Slip resistant slippers (Skid proof booties are provided)
· Toothbrush & toothpaste / Denture care items
· Shaving supplies
· Phone Charger
· Notebook/pen (to list questions/take notes)
· Headphones or earbuds if you listen to music
· Special pillow
·Cane or walker (Make sure your name and phone number are
clearly marked on it)
·Copy of your Healthcare Power of Attorney
What Not to Bring?
· Jewelry or watches
· Large sums of money
Tips for Patients
It is our goal to provide excellent care, and we hope your stay in our hospital will be comfortable. For
your convenience, we have provided some safety tips and additional information.
• Valuables: Send valuables (such as jewelry and money) home with a friend or family mem-
ber or ask that they be sent to the hospital safe. Never leave valuables unattended as the hospital
cannot be responsible for them.
• Personal Items: Be aware that it is easy to lose personal items in bed linens and on meal
trays. Ask for a denture cup, if you need one, and make sure your name is on it. Keep dentures,
glasses and hearing aids in their containers in the bedside table drawer when you are not using
them. Be sure not to leave such items on your meal tray or on the bed. *Be sure to place names on
all belongings
• Food Brought From Outside: Inquire with your nurse if food can be kept in a patient refrig-
erator on the floor.
9
What Does My Room Look Like?
Each hospital room includes the follow amenities:
 Television
 DVD player
 Wi-Fi
 Telephone
 Power outlets
 Personal bathroom
 Chair/ Recliner
 Over bed table
 Additional blankets/sheets/pillows upon request
 Sleeper for caregiver is available upon request
10
What Does My Room Look Like?
11
Visitor Information
GHS understands that family and friends play an important role in the healing process. Our visiting
program enables patients to choose whom they want to visit and when. GHS recognizes that the fol-
lowing are important to the recovery process:
 Presence of supportive family and loved ones
 A sense of safety and security
 A quiet environment
Patients can also be provided with visitation signs designating “Check in at desk before entering, or
“No visitors”, to post if desired. Small children are permitted as long as they are not ill and are closely
supervised.
All Greenville Health System facilities will be secured from 9:00 p.m. and 6:00 a.m. All visitors
must enter through controlled access points during these times.
General Visiting Times: 9:00 a.m. to 9:00 p.m.
Late Visiting and Overnight Stays
A. All Greenville Health System facilities will be secured between 9:00 p.m. and 6:00 a.m. All
visitors, patients and staff must enter through controlled access points during these times.
B. All persons (visitors, including clergy, physicians, employees) should display a hospital-
approved visitor badge between the hours of 9:00 p.m. and 6:00 a.m. Late-night visitors may
be photographed according to security guidelines.
C. Visitors arriving to visit after 9:00 p.m. without a Care Partner badge will be stopped by the
security officer or GHS police officer on duty at the after-hours entrance.
D. Visitation in exceptional situations (such as critical care or late admissions, critical patient
condition, out-of-town visitors) is allowed. All approved visitors allowed to proceed to the pa-
tient care area after signing in at the security post and receiving a temporary visitor badge.
When an exception to the policy is allowed, the administrative supervisor and/or the adminis-
trator on call should be notified.
E. One Care Partner per patient is permitted to stay overnight. Two Care Partners per patient
are permitted overnight stays in critical care areas and pediatrics.
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Care Partners
A care partner is a spouse, partner, family member or close friend who is at least 18
years old. He or she is chosen by the patient to provide emotional, physical, educa-
tional, social and spiritual support.
Although visiting times are 9:00 a.m. to 9:00 p.m., care partners may visit any time
at the patient’s request and are allowed to stay overnight. Care partners will have a
special badge identifying them as the care partner.
“Heroes didn't leap tall buildings or stop bullets with an outstretched hand;
they didn't wear boots and capes. They bled, and they bruised, and their su-
perpowers were as simple as listening, or loving. Heroes were ordinary people
who knew that even if their own lives were impossibly knotted, they could un-
tangle someone else's. And maybe that one act could lead someone to rescue
you right back.”
― Jodi Picoult, Second Glance
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Pets
Personal Pet Visitation
Patients are permitted to have their pet visit during their hospital stay. Animals most suited for hospi-
tal visits are small dogs and cats that are quiet and well mannered. Inquiries should be made to the
patient’s nurse for when a suitable time would be for a visit.
Approval must be obtained from the patient’s physician. Patients will be required to show their pet’s
immunization record.
Pet Therapy
Patients may be visited by a pet therapy volunteer and dog during their hospital stay. Our pet thera-
py program includes over 20 volunteers and their dogs. Studies show that the companionship of ani-
mals can lower patients’ blood pressure and stress levels, increase social interaction, speed healing
and extend longevity.
Service Animals
Service animals for individuals with disabilities are allowed throughout GHS facilities in accordance
with the Americans with Disabilities Act (ADA) and GHS’ Service Animal Policy. To request a copy of
GHS’ Service Animal Policy, please contact a member of your care team.
14
Your Inpatient Team
15
Cancer Care Team
It is important to keep track of your care team and be familiar with the varied roles of each of the
members of your team. Please use the next page to keep track of each member of your care team.
Again, your hospital team may be slightly different as well as larger than your outpatient team.
Oncologist
Oncologists are physicians who specialize in the diagnosis and treatment of cancer.
Medical Oncologist — A doctor who has special training in diagnosing and treating cancer using
chemotherapy, hormonal therapy, biological therapy, and/or targeted therapy. Medical oncologists
are often the main health care provider for someone who has cancer as well as provide supportive
care and also may coordinate treatment given by other specialists.
Surgical Oncologist — A surgeon who has special training in performing biopsies. Removal of tu-
mors and other surgical procedures in cancer patients.
Radiation Oncologist — A doctor who has special training in using radiation therapy to treat cancer.
Different cancer doctors and staff will likely make rounds in the hospital. This doctor could be your
normal oncologist or a doctor you have never seen before, but everyone is a part of your cancer
team. Your cancer team is equipped with a unique method of communicating with each other.
ADDITIONAL STAFF:
Hospitalist
A hospitalist is a physician based in the hospital and is solely there to follow you during your stay in
the hospital. You will see many different faces during your stay, but each individual is part of your
hospital cancer team.
Nurse Practitioner (NP)
NPs are advanced practice nurses (RNs) who have additional higher education in health promotion
and health maintenance through the diagnosis and treatment of acute and chronic illness formerly
assumed by a physician. NPs have their Master or Doctorate degree. NPs work iunder the supervi-
sion of a collaborative physician.
Registered Nurse
Registered Nurse (RN) – You will have an RN assigned each 12 hour shift in the hospital. RNs are
responsible for assessing your healthcare needs and progress while in the hospital. RNs provide
care as directed by your physician, including administering medication, changing wound dressings,
obtaining samples for lab tests and administering intravenous (IV) therapy. RNs oversee other
healthcare team members who also may be involved in your treatment such as medical assistants.
16
Hospital Case Management
Nurse case managers and social workers are available to help you in following areas: discharge
and post-hospital planning for care, insurance coverage. financial needs resulting from your illness
and/or hospitalization, personal and family issues.
Case Manager – A case manager works with your healthcare team to assess your medical needs
and also works with your insurance company to determine an effective discharge plan. Your case
manager can help you with financial aid during your stay and after discharge.
Social Worker— A social worker works with the physician and nursing team to coordinate services
for you while you are in the hospital and assists in a plan for services that may be necessary after
you are discharged. Social Workers also provide emotional support an assessment of psychosocial
needs and recommendations.
**To speak with a social worker or case manager, please talk to your physician, nurse practitioner
or nurse.**
Financial Counselor (FC)
The financial counselors’ main role is to assist with the financial demands of your hospitalization,
treatment, medication, insurance, and testing. FC’s work with both inpatient and outpatient, so
please remember to keep the name and phone number of the FC you are working with on a particu-
lar billing/cost issue.
17
Respiratory Therapists (RT)
RTs are clinicians trained to assess and monitor lung function especially in those patients that
have some type of lung symptom, toxicity or disease. RTs administer respiratory treatments and
monitor your response to respiratory treatments on the hospital floor. RTs also provide airway sup-
port during procedures performed on the floor, and monitor your respiratory status if you are hav-
ing any difficulty breathing. They assess your oxygen levels, in particular when you are on oxygen.
Registered Dietitian and Nutritionist (RDN)
RDNs experts in dietetics; that is, human nutrition and the regulation of diet. An RDN assess each
patient and makes nutrition recommendations based upon their medical condition and individual
needs. Dietitians are regulated healthcare professionals licensed to assess, diagnose, and treat
nutritional problems. RDNs also counsel patients on their diet and help patients create nutrition
goals appropriate for their individual needs.
Physical Therapists (PTs)
PTs are highly-educated, licensed health care professionals who can help patients reduce pain
and improve or restore mobility. At times, patients go down to the physical therapy department to
work with a physical therapists, remember to bring a sweater or robe as the temperature may vary.
At other times, the physical therapist may meet with you at the bedside.
Pharmacist
Pharmacists work directly with physicians, other health professionals, and patients to ensure that
the medications prescribed for patients contribute to the best possible health outcomes. Pharma-
cists on the oncology floor apply specialized knowledge of the scientific and clinical use of chemo-
therapy or immune therapy, including medication action, dosing, adverse effects, and drug interac-
tions.
18
MY Inpatient Medical Team
NAME NUMBER
Physician/Nurse
Oncologist(s) ___________________ ____________________
NP(s) ____________________ ____________________
Hospitalist(s) ____________________ ____________________
Specialist(s) ______________ __ ____________________
Surgeon(s) ___________________ ____________________
Financial Counselor ____________________ ____________________
Dietician ____________________ ____________________
Therapist(s) ____________________ ____________________
Social Worker ____________________ ____________________
Pharmacist ____________________ _____________________
Other Notes:
___________________________________________________________________
___________________________________________________________________
___________________________________________________________________
___________________________________________________________________
___________________________________________________________________
19
Inpatient Resources Available
20
Music Therapy
Music therapy is a clinical, evidence-based, and non-invasive treatment for unmanaged symptoms
related to cancer and cancer treatment. Examples of symptoms that Music Therapy could help are:
pain, nausea, vomiting, stress, depression, and sleep. A master’s prepared and board certified mu-
sic therapist provides music therapy at no charge to our patients. A patient does not have to be a
musician or play music to benefit from music therapy, and music therapy is effective for all ages
and abilities.
A patient can be referred for music therapy services by a clinician, patient, or family member. A re-
ferral for music therapy can also be made by directly contacting the music therapist at the Center
for Integrative Oncology and Survivorship Music Therapy Department Office: 864-455-7381.
A music therapy session will be conducted in your
room, or if you choose, a sitting area outside your room. You do not have to get out of bed for a
music therapy session, nor do you need to be alert and oriented – music therapy can help you relax
even if you aren’t focusing on it. It is even normal and positive for a patient to fall soundly asleep by
the end of the session!
A music therapist will gather some initial information from you or a family member related to what
symptoms you are experiencing, what your musical tastes are (if you have a favorite kind of music,
a favorite singer, or a favorite song), and whether or not you currently, or have ever, sung or played
an instrument before. The session will then be individualized according to your needs and prefer-
ences, and can involve discussion, self-expression, guided relaxation, music-listening, singing
along, or playing with small hand instruments. Sessions have no set time limit. Session length will
vary depending on your comfort, though most sessions last between 15-45 minutes.
At the end of the session, you and the music therapist will jointly assess whether you would benefit
from additional sessions.
21
The Role of Nutrition During Cancer Treatment
Nutrition plays a vital role before, during and after treatment. A healthy diet can help your body heal
quickly and get home faster after surgery or any form of treatment. Nutrition aids in improving ener-
gy levels and regaining strength. Proper nutrition can also help alleviate many symptoms related to
cancer treatment such as nausea, constipation and weight fluctuations. A healthy diet also prevents
other chronic diseases, such as diabetes and heart disease. Each individual has specific nutrition
needs but a healthy diet generally refers to eating and drinking enough of the foods and liquids that
have the right nutrients to help the body maintain optimal health.
Nutrition intervention may aid in the treatment of the following conditions or symptoms:
Nausea/Vomiting
Diarrhea
Gas/Bloating
Constipation
Taste changes
Weight loss/gain
Sleep
Diabetes
Kidney Disease
Heart Disease
Prevention of current types of cancers
GHS Resources Available
While you are in the hospital:
Inpatient menus
Host Services
Once you go home:
Individual nutrition counseling is available, free of charge, for any patient of the GHS Cancer
Institute. To schedule an appointment, please call the Center for Integrative Oncology and
Survivorship at (864) 455-1346.
Weekly group nutrition classes are offered, free of charge, every Thursday at 3:30pm on the
first floor of the Cancer Institute at 900 W. Faris Road Greenville, SC. For more information,
please call the dietitian at (864) 455-2862.
Online Resources:
Academy of Nutrition and Dietetics: Eat Right to Fight Cancer
http://www.oncologynutrition.org/erfc/
American Cancer Society: Nutrition for People with Cancer https://www.cancer.org/
treatment/survivorship-during-and-after-treatment/staying-active/nutrition.html
Memorial Sloan Kettering Cancer Center: About Herbs
https://www.mskcc.org/cancer-care/treatments/symptom-management/integrative-medicine/herbs
22
Chaplain Services
The hospital chaplain offers a quiet place for prayer and meditation for anyone of any
faith and is open 24 hours a day with the exception of scheduled private services. A
chaplain is always on call for comfort and counseling.
Our chaplains provide a safe and confidential relationship to discuss physical, emo-
tional, and spiritual concerns. A chaplain will respond to emergencies and provide care
to patients and families. GHS respects and honors the many cultural, spiritual, and
ethnic backgrounds of our patients and visitors.
For more information, please contact the Department of Spiritual Care & Education at
(864) 455-7942.
Chapel Location
Greenville Memorial Hospital: Main Entrance, behind the visitors’ desk
23
Advance Directives
You have the right to make decisions about your medical care, including the right to
accept or refuse treatment. There could be a time where you are not able to com-
municate with your physician to make your decisions. The best way to express your
wishes, if you are unable to say them at the time, is with an advance directive.
Advanced directives are legal documents that allow individuals to express their deci-
sions and wishes pertaining to end-of-life care. These documents clearly communi-
cate a patient’s wishes to their family, friends’, caregivers’ and health care profession-
als’. Being proactive about completing advance directives avoids later confusion and
frustration, while also relieving the burden of having to make a difficult decision for
your loved one without their input. Listed below are a few of the many type of ad-
vanced directives:
 Healthcare Power of Attorney
 Living Will
 Five Wishes
 Desire for a Natural Death
Please be aware that the above named documents are
different from a “will” and a “Durable or Legal Power of Attorney”. The above docu-
ments only give direction and appoint a proxy regarding HEALTHCARE DECISIONS;
they do not affect finances, property, or other legal matters. A copy of South Caroli-
na’s Healthcare Power of Attorney document can be provided to you by con-
tacting our Department of Spiritual Care & Education at (864) 455-7942 during
your stay at the hospital.
24
Difficult Decisions
On April 12, 2003 I received an emergency call at work stating that
my mom had activated her med alert button and rescuers had found her
unresponsive. As I raced to the hospital a million thoughts went through
my mind, what if she’s broken something, I should have called my sister,
Will she have to go to a nursing home? Is she going to live? My mom
was independent and that’s the way she liked it. She had recently been di-
agnosed with a glioblastoma and we were still in the process of trying to
figure out what are options were. When I arrived at the hospital the doc-
tor met me in her room and explained that mom was not responsive. They
had managed to stabilize her breathing and vitals with the help of life
support however she remained unconscious, they would wait a couple of
days but if she showed no signs of improvement I would have to make a
decision...
Sherri
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Palliative Care
The goal of Palliative Care is to facilitate communication among the patient, family
members and all healthcare providers across the continuum of care; to address the
patient’s choices and goals for treatment; to provide effective symptom manage-
ment; and to achieve the best quality of life for patients facing serious illness.
Palliative Care services at Greenville Health System can ease some of the burdens
of case management on primary physicians and staff. We provide assistance with
care coordination and time-intensive communication between patients and family.
Palliative Care is available to people of any age and at any stage of illness. Ser-
vices can be received along with curative treatments.
Palliative Care Team Members
Palliative Care services at GHS are provided by medical specialists who are able to
help with the many aspects of serious illness. Palliative Care providers work as a
team to try to relieve suffering that results from serious illness. Team members in-
clude physicians, nurse practitioners, nurses, social workers, and chaplains to en-
sure that we offer a comprehensive approach to meet each patient’s unique needs.
Our Palliative Care program provides a team approach to:
 Expert pain and symptom management
 Emotional and spiritual support
 Family support
 Care coordination between members of the health care team
 Advance care planning
 Community support
Consulting services:
 Assist medical team and patient/family with communication about treatment
choices and end-of-life decisions
 Provide pain and other symptom assessment and management (dyspnea, deliri-
um, constipation, nausea)
 Provide support and counseling regarding end-of-life options during family meet-
ings
26
Palliative Care
When a referral is made:
A Palliative Care physician or an Advanced Practice Nurse will review the request,
talk with the patient and family, and complete the consultation with recommendations
for the interdisciplinary plan of care. Patient/family needs, understanding and pro-
gress will be assessed regularly and communicated to the referring physician and
staff.
What a Palliative Care referral can do:
 Facilitate discussion about goals of care, treatment options, and patient and family
wishes
 Help the patient and family understand the prognosis and rationale for treatment
plan
 Assist with symptom management and the relief of suffering
 Enhance teamwork and communication by assisting with family needs for regular
updates on patient condition and progress
 Facilitate discussion about advanced directives
 Decrease unnecessary ICU admissions and stays
 Improve end-of-life care by reducing unnecessary medication, tests, and proce-
dures as comfort measures increase
 Recommend earlier referral to hospice care
Palliative Care referrals can be made by physicians, nurses, therapists, social work-
ers, case managers or at the request of the patient and family. A physician consult re-
quest is required.
To learn more about Palliative Care services at GHS, call (864) 454-8120.
27
Hospice
When to Talk to Your Physician
To find out how hospice care may benefit you or a loved one in the future, talk with
your physician now. Early discussions will help you prepare for any eventuality and
Your physician can help you decide if hospice is right for you.
Many people are surprised to learn that hospice care is about:
 Living with the disease
 Living in greater comfort
 Living with less worry
What to Say to Your Physician
When talking about hospice with your physician, keep the following points in mind:
Plan ahead
 Inform your physician you want to have a realistic discussion about your condition, prognosis
and treatment options. You want your physician to have a clear understanding of your wishes
regarding your medical care.
 Make a list. Write down questions you want answered. List your symptoms and other prob-
lems; include your medical history.
 Be clear. Outline your wishes and opinions beforehand so that you can express them clearly to
the physician.
 Ask a family member or friend to accompany you to the appointment with your physician.
 Take a copy of your living will and healthcare power of attorney to leave with your physician.
Ask questions
 How does the physician anticipate your condition will progress over the next six months or
year?
 If your condition doesn’t improve over the next six months, what is the best course of care?
 What are some ways to ensure comfort?
 Is there any way to improve your quality of life?
 How will you communicate with doctors, pharmacists and hospitals?
 Who will help caregivers manage the demands from work, family, finances, and caregiving,
and their own health and stress levels?
28
Hospice
What To Say To Your Physician Continued
Express yourself
 The key to an effective conversation is to express yourself clearly in a non-
confrontational manner and to listen carefully. Use “I” statements such as “I feel
that …,” “I would prefer to …,” “I understood you to say …”
 Make sure your physician knows your concerns about treatment options. When the
physician speaks, listen carefully. Then, you might repeat what the physician has
stated in your own words and ask, “Is that correct?”
 Let your physician know how you want your treatment to progress and how you
would like to be treated medically, emotionally and spiritually.
 If you disagree with the physician’s recommendations, state your reasons or prefer-
ences in a non-confrontational way.
 If you need time to think about information you’ve been given, make sure your phy-
sician knows you have reservations or concerns and will want to continue the dis-
cussion later.
 If applicable, let your physician know that you want to be successful at remaining at
home but will need help.
Take notes
 Write down your physician’s answers to your questions and any follow-up ques-
tions you think of. Ask your accompanying family member or friend to also write
down answers you receive.
 Make notes of any further research you may want to pursue.
29
“We shall draw from the heart of suffering itself the means of in-
spiration and survival.” – Winston Churchill
30
Hospital Amenities & Resources
31
Miscellaneous Services
Some circumstances may require your loved one to spend a few hours, a night, or even an longer
extended period of time in the hospital. GHS offers a few services to patients and their guests’ in
attempt to make their stay here comfortable as possible. Please use the following link: http://
www.ghs.org/patients-visitors/visitor-info to view GHS’ Visitor Information web page.
Wifi
Free wifi is available across all GHS facilities, and may be used on any device that has wireless
802.11 B/G capabilities. The wifi network, 701Guest, may be accessed by patients and visitors.
Please note that after selecting the network and before you are able to roam the Internet you must
agree to the, “Accessing Greenville Health System Public Network from your Wireless Device”
terms.
ATM
An ATM is located in the main lobby on the first floor of the hospital across from the Hospitality
Shop.
Hospitality Shop
The Hospitality Shop in the main lobby on the first floor offers a variety of gift items, magazines,
snacks, paperback books, candy, toiletries, and greeting cards.
Lodging
Spending the night at the hospital can be uncomfortable, crowded, or not an option; this is why
GHS has arranged with local hotels special lodging rates for patients and their family and friends’. If
you or someone you know is coming from out of town to support a GHS patient please utilize these
discounted prices. For more information and a list of all the participating hotels please visit: http://
www.ghs.org/patients-visitors/visitor-info/lodging.
Maps and Directions
For printable maps of the various GHS campuses visit: http://www.ghs.org/patients-visitors/visitor-
info/directions. This webpage also houses hospital parking information as well as transportation
options from the GSP airport.
32
Dining
Greenville Memorial Hospital offers a wide variety of food options. Our cafeteria includes home-
cooked meals, healthy choice options, soups, salads, and even sushi! We also offer Starbucks,
Subway, Chic-Fil-A, and Au Bon Pain.
Check out additional dining options on the next page or by visiting the following page:
http://www.ghs.org/patients-visitors/visitor-info/dining.
Cafeteria
Hours of Operation: Open Everyday
Breakfast: 6:00 am — 10:00 am
Lunch: 11:00 am — 2:00 pm
Dinner: 4:30 pm — 7:00 pm
Midnight Dinner: 12:00 am — 3:00 am
Chic-Fil-A
Hours of Operation:
Monday-Thursday: 11:00 am — 8:00 pm
Friday: 11:00 am — 2:00 am
Saturday: 11:00 am — 6:00 pm
Closed Sunday
33
Dining
Subway
Hours of Operations:
Monday-Friday: 11:00 am — 8:00 pm
Saturday: 11:00 am — 2:00 am
Sunday: 11:00 am — 9:00 pm
Au Bon Pain
Hours of Operations:
Monday-Friday: 7:00 am — 8:00 pm
Saturday: 10:00 am — 8:00 pm
Sunday: 10:00 am — 8:00 pm
Starbucks
Hours of Operation:
Monday-Friday: Open 24 Hours
Saturday: 7:00 am — 2:00 pm
Sunday: 11:00 am — 9:00 pm
34
Patient Resources
Library
The Health Sciences Library is open to the public for access to medical journals and texts that sup-
port patient care decisions, staff education, and advanced research.
The Health Science Library is located near the lobby at Greenville Memorial Hospital and The li-
brary staff provide vital and timely information on diagnosis, treatment, nursing, cost containment,
and future health planning..
The library offers print and electronic books and journals as well as databases in a wireless environ-
ment. Electronic resources are available for GHS staff, students and faculty at all campuses and
most are accessible from any location.
Please call the GHS Health Sciences Library at 864-455–7176 or email library@ghs.org for assis-
tance.
Hours of Operation
At Greenville Memorial Medical Campus : Mon-Thurs 8 am-6 pm Fri: 8 am– 5pm
CIOS Student Center
The CIOS Student Center is a resource for cancer survivors, family, and caretakers. Located on the
first floor of the Cancer Institute Faris Road location, the Student Center offers a variety of educa-
tional materials including, but not limited to: program brochures and flyers, resource booklets, and
informational books that are able to be checked out by patients. Topics range from having children
after cancer to eating well through cancer. Additionally, the Cancer Support Community monthly
calendar is available highlighting free events, classes, and support groups.
Leisure Resources
Visitor & Volunteer Services
Visitor and Volunteer Services located in the main hospital lend books, playing cards, and games to
patients and families during their stay. The patient can request a leisure item by calling Visitor and
Volunteer Services at (864) 455-7994.
Oncology
Oncology staff provide patients with paper, pens, and magazines upon request during their stay.
The patient may request items by contacting their oncology nurse.
35
Patient Resources
Healing Garden
The healing garden is located outside of Greenville Memorial Hospital. The healing garden is a
place for patients, families and employees to relax, reflect and rejuvenate.
Movie Cart
In 2014, movies were donated in loving memory of Timothy David Bright by his wife, Jenny, and his
extended family. This collection continues to grow and now offers a variety of movies for patients to
enjoy. Please contact your oncology nurse if you are interested in checking out a movie during your
stay.
36
Patient Safety/ Rights & Responsibilities
37
Patient Safety
Patient safety is important to us, but we need your help in making safety a priority. Read this sec-
tion carefully.
Prohibited items for any patient or visitor include the following:
• Tobacco products
• Firearms or weapons
• Alcoholic beverages
• Illegal drugs
Oxygen
Electrically operated equipment and aerosol products are not allowed where patients are receiv-
ing oxygen.
Smoking
Smoking is not permitted anywhere in the hospital or on hospital property.
Fire Drills
The hospital conducts fire and other drills regularly. If a drill occurs, please remain calm and stay
in your room.
38
Medications
All medications you take while in the hospital are prescribed by your doctor, dispensed by the hos-
pital pharmacy and administered by a nurse or therapist. Patients may not take their own drugs or
keep personal medication at their bedsides, unless approved to do so by their doctor.
Before taking medications, please notify your physician of any drug allergies you may have. Also,
tell the doctor about any vitamins, supplements, antioxidants, etc., that you have taken recently
because such items may interfere with prescribed drugs.
Be sure you know why you are receiving a prescribed medication and how and when you should
take it (with water, during a meal, twice a day, etc.). Tell your nurse if you do not receive medica-
tion when you should. Also make sure the doctor or nurse checks your wristband or asks you your
name before giving you any drug.
Many medications have been found to interact with grapefruit juice. Please notify your nurse if you
have consumed grapefruit juice three days or fewer before being admitted.
The system is aware of growing patient interest in alternative therapies, which include herbal med-
icines. Always tell your doctor, pharmacist, nurse or other healthcare professional if you are using
alternative medicines, especially if you take prescription medication, plan to have surgery or have
chronic health problems. Taking these products during your hospital stay may interfere with your
care. Therefore, you are discouraged from using alternative therapies while a patient in the Green-
ville Health System.
For more information on alternative therapies or the health system’s alternative medicine policy,
call the Pharmacy Department at 5-8815 or speak with your nurse.
General Comments about Infection Control
A person exhibiting any of the following symptoms should not visit until symptoms are gone: runny
nose, cough, sore throat, sneezing, cold, flu, measles, mumps, rashes, draining wound, fever
greater than 100.4°, vomiting and diarrhea.
Visitors with airborne/droplet-transmitted (e.g., influenza, TB, chickenpox) communicable diseases
or any other condition as recommended by the Infection Control Department (eg., lice, scabies)
should not be permitted to visit.
Visitors are encouraged to utilize the checklist included in the General Visitation Information bro-
chure to determine the appropriateness of visits.
As appropriate, nursing staff will provide directions to visitors regarding special precautions includ-
ing hand cleaning and the use of personal protective equipment, such as gloves, gowns and
masks.
During high levels of community illness, the health system epidemiologist or his/her designee has
the authority to restrict community visitation to prevent further transmission within a GHS facility.
39
Patients Rights & Responsibilities
Patient Rights
As a patient in our hospital, you have many rights that we are committed to protect and promote.
Your rights include the following:
1. Having access to care within the capacity and capability of the hospital regardless of gender; sex-
ual orientation; gender identity; gender expression; social, cultural, educational or religious back-
ground; language; age; ancestry; citizenship; color; national origin; race; medical condition; pres-
ence of mental or physical disability; marital status; or the source of payment for care.
2. Having the hospital, after consultation with you, promptly notify a family member, or other repre-
sentative of your choice, and your physician of your admission to the hospital.
3. Receiving considerate and respectful care, and giving us feedback about your care.
4. Wearing appropriate personal clothing and religious or other symbolic items, as long as they do
not interfere with your treatment or procedures.
5. Participating in the development and implementation of your inpatient and/or outpatient treatment/
care plan, your discharge plan, and your pain management plan.
6. Knowing the identity and professional status of those involved in your care, including whether the
caregiver is a student or trainee or is professionally associated with other individuals or healthcare
institutions involved in your care.
7. Making informed decisions about your care, including being informed of your health status, being
involved in care planning and treatment, and being able to request or refuse treatment. However,
this right does not entitle you to the provision of treatment or services deemed medically unneces-
sary or inappropriate.
8. Formulating advance directives (such as a living will or durable power of attorney for health care)
with the expectation that the hospital staff and practitioners will honor the directive to the extent per-
mitted by law and hospital policy.
9. Contacting The Joint Commission at 1-800-944-6610 or complaint@jointcommission.org or calling
the Centers for Medicare and Medicaid Services/South Carolina Department of Health and Environ-
mental Control (DHEC) at 1-803-545-4370 to report a grievance, regardless of whether or not you
have first utilized the hospital’s grievance procedure. A “patient grievance” is a formal or informal
written or verbal complaint regarding the patient’s care (when the complaint is not resolved at the
time of the complaint by staff present), abuse, or neglect issues related to the hospital’s compliance
with the CMS Hospital Conditions of Participation (CoPs), or a Medicare beneficiary billing complaint
related to rights and limitations provided by 42 CFR 489.
10. Receiving visitors in accordance with the visitor policy contained in this admission packet.
11. Receiving care in a safe setting, free from all forms of abuse or harassment.
40
12. Enjoying personal privacy, including privacy during toileting, bathing or being examined. Unless
you consent, people not involved in your care will not be present during your examination or treat-
ment.
13. Accessing an interpreter if you do not speak or understand English.
14. Being free from restraints of any form unless they are medically necessary or unless needed to
ensure your physical safety and less restrictive interventions are determined to be ineffective.
15. Being made aware of any relationships this hospital has with other healthcare facilities, educa-
tional institutions or other outside parties that may influence your care.
16. Being free to consent or decline to take part in clinical research without your decision otherwise
affecting your care.
17. Examining and receiving an explanation of your bill, regardless of your source of payment.
18. Receiving a “Notice of Beneficiary Discharge Rights,” “Notice of Non-coverage Rights” and
“Notice of the Beneficiary Right to Appeal a Premature Discharge” if you are a Medicare patient.
19. Being confident that your clinical record is confidential.
20. Accessing information contained in your clinical records within a reasonable time frame.
Patient Responsibilities
1. You are responsible for providing accurate information about your health, including past illness-
es, hospital stays and the use of medicine.
2. You are responsible for asking questions when you do not understand information or instruc-
tions.
3. You are responsible for telling your doctor if you believe you cannot follow through with your
treatment.
4. You and your visitors are responsible for being considerate and respectful of the needs and the
property of others and of the hospital.
5. You are responsible for providing information for insurance and for working with the hospital to
obtain payment when needed.
6. You are responsible for letting your healthcare team know if you have an advance directive,
such as a living will or durable power of attorney for healthcare decisions.
7. You are responsible for following hospital rules and regulations about patient care and conduct.
8. You are responsible for the consequences of refusing treatment or failing to follow the instruc-
tions of your healthcare team.
A hospital serves many purposes. Hospitals work to improve people’s health; treat people with inju-
ry and disease; educate donors, health professionals, patients and community members; and im-
prove understanding of health and disease. In carrying out these activities, this institution works to
respect your values and dignity.
41
Preparing for Discharge-
Resources and Support Services
42
Prepping for Discharge
Before you leave the hospital, please review this checklist:
 Instructions: Review any written instruction from your doctor or nurse, and ask any questions
you have about medications, activities, treatments or care
 Medications: Review the list of medications that you should take after discharge; give the list
to your doctor to review at the next visit; keep the list current by adding, removing or changing
medications as directed by your doctor; and carry the updated list with you at all times in the
case of an emergency
 Appointments: Make sure you have scheduled any necessary follow-up appointments
 Personal Items: Check to see that you have packed everything you brought with you
43
Knowledge is Power
Gathering Information
Gathering information often reduces anxiety and fears about the road ahead.
Education related to the type of illness, options available, and possible side effects will
allow you and your loved one to address your care more efficiently. It will also increase
your confidence in your ability to return home.
Talk with your human resource department about the family medical leave act (FMLA)
and whether or not you or your love one qualify. While FMLA entitles employees to
take job protected unpaid leave, it’s use may vary from employer to employer. The
length of time you’ve been employed with your company, and your relation to the pa-
tient may also effect whether you are covered under FMLA. For further information re-
garding this benefit visit: http://www.dol.gov/whd/fmla/
Gathering information and tracking physical changes can also prove to be helpful. It is
hard to tell if something is abnormal if you are not aware of what is considered normal.
Tracking your vital signs, diet, weight, physical appearance, etc. can help you deter-
mine changes in your health. Talk with your medical team to see what things to keep a
log of to better monitor your health.
Staying Organized
Keep a folder or notebook to place all documents in as you collect information from
physicians. You may want to write down your health insurance information, obtain cop-
ies of medication lists, and memorize your social security number. This would also be
a good place to jot down questions as they arise and have them prepared for the next
doctor’s visit. On the following page there are some questions you may want to ask
your outpatient medical team.
44
Questions To Ask The Doctor
 Is this disease treatable or curable?
_________________________________________
______________________________________________________________
 What type of treatments are recommended? ________________________
______________________________________________________________
______________________________________________________________
______________________________________________________________
______________________________________________________________
______________________________________________________________
 What are goals of treatment? ____________________________________
______________________________________________________________
______________________________________________________________
 What side effects should we expect & How do we manage them? ______
______________________________________________________________
______________________________________________________________
 How long will treatment last & how will we know if it is working? ______
______________________________________________________________
______________________________________________________________
______________________________________________________________
 Do you have printed information on my disease and treatment that I can
take with me? _________________________________________________
______________________________________________________________
______________________________________________________________
 Who should we call afterhours if there is a medical emergency related to
my disease? __________________________________________________
______________________________________________________________
______________________________________________________________
 Are you able to complete FMLA paperwork for me and my family? _____
______________________________________________________________
______________________________________________________________
______________________________________________________________
45
Accept a helping hand
Find Support
Having a supportive set of family members and friends around you is important. Allow others to as-
sist you. It is okay to accept help. You are not expected to be able to handle your cancer journey on
your own. Reach out to friends, church members, family, and neighbors for support and help. It is
important that you take time doing something that you enjoy, and that allows you to relax.
The Cancer Support Community at Greenville Health System offers free support groups and educa-
tional programs for patients AND caregivers. On p. 45-53 you will find a list of resources that can
help guide your search for support.
There are also respite care services available. These services offer a trained personnel to aid with in
home care responsibilities for a few hours. Use the web address below to schedule a respite ser-
vice, or check p. 46-49 for other local options.
http://archrespite.org/respite-locator-state-search/233-south-carolina-search
46
Resource For Additional In Home Help
Occasionally you may need additional help/care in the home environment. Below is a
list of local agencies that can help with this need. The companies listed here are not
endorsed or supported by GHS Cancer Institute. This list is provided as a cour-
tesy to our patients to help them access these resources more readily. This list is not
all-inclusive. You may find additional companies listed in the Yellow pages under
Nursing Services or Home Health Agencies.
Medicare and Medicaid typically do not pay for this expense. We advise you to
check with your local representative regarding private insurance policies.
Always Best Care Senior
Services
www.alwaysbestcare.com/
*nonmedical services and free
placement assistance
864-527-0464 HomeWatch Caregivers
www.homewatchcaregivers. com/
greenville-anderson/greenville
*nonmedical services
864-292-1101
Assisting Angels
*nonmedical services
864-962-8100 Home Instead
www.homeinstead.com/
*nonmedical services
864-242-2228
BrightStar
www.brightstarcare.com/in-home-
care-seniors-elderly/
*medical and nonmedical services
864-573-7045 Maxim Healthcare Ser-
vices
www.maximhealthcare.com
*medical and nonmedical services
864-242-1994
ComForcare HomeCare
www.comforcare.com/
*nonmedical services
864-269-5005 Med-Care
www.medcareurgentcare.com
864-232-0661
Comfort Keepers
www.comfortkeepers.com/
*nonmedical services
864-268-8993 MedFirst
*medical and nonmedical services
864-421-0394
Comfort Max
www.comfortmaxhhc.com/
*nonmedical services
864-527-0435 ResCare Homecare
www.rescare.com/homecare-
services/
*medical and nonmedical services
864-235-5141
Healing Hearts Care
Services
www.carelike.com/families
864-640-2582 Samaritan’s Bed & Bath
Service
www.samaritancare.com
*nonmedical services
864-232-6866
Heavenly Care Services
www.heavenlycareservices.com/
index.php
*nonmedical services
864-233-4272 Senior Helpers
www.seniorhelpers.com
*nonmedical services
864-757-9862
Home Helpers
www.homehelpershomecare.com
*nonmedical services
864-848-1729 Visiting Angels
www.visitingangels.com
*nonmedical services
864-284-6370
47
Counseling Options
Dealing with a chronic illness is not easy, and transitioning from a hospital to a home
setting can be challenging. This transition could be a difficult one, for you and your
family.
**If you begin to experience feelings of sadness, anger, isolation, or simply
need someone to listen, please utilize the list below and know that you are not
alone.
Anderson Mental Health Center: 200 McGee Road, Anderson, SC 29601; (864) 260-2220
Brownell Center: 701 Grove Road, Greenville, SC 29605; Service only available to GHS pa-
tients
Cancer Society of Greenville: 113 Mills Avenue, Greenville, SC 29605; (864) 232-8439
Cancer Support Helpline: Toll free 9am-9pm eastern, staffed by licensed mental health profes-
sionals 1-888-793-9355 and a CSC Call Counselor will be happy to assist you
Crisis Line: (864) 271-8888 24 hours a day
GHS Cancer Institute, Center for Integrative Oncology and Survivorship (CIOS): Individual
counseling with Kerri Susko LISW-CP, OSW-C; 900 W. Faris Road, 1st Floor, Greenville, SC 29605;
(864) 455-1346
Greenville American Cancer Society: 154 Milestone Way, Greenville, SC 29615; (864) 627-
1903: Offers both individual and group counseling for cancer patients, caregivers, and children
Greenville Mental Health Center: 124 Mallard St., Greenville, SC 29601; (864) 241-1040
(includes acute crisis services)
Greenwood Mental Health Clinic: 1547 Parkway, Ste. 200, Greenwood SC, 29646; (864) 223-
8331
Greer Mental Health Clinic: 220 Executive Drive, Greer, SC 29651; (864) 879-2111
Laurens Mental Health Center: 442 Professional Park Road, Clinton, SC 29325; (864) 938-0912
Oconee Mental Health Clinic: 115 Carter Park Drive, Seneca, SC 29678; (864) 885-0157
Pickens Mental Health Clinic: 314 W. Main St., Pickens, SC 29671; (864) 878-6830
Spartanburg Area Mental Health Clinic: 250 Dewey Ave., Spartanburg , SC 29303; (864) 585-
0366
Union Mental Health Clinic: 130 Medical Sciences Drive, Union, SC 29379; (864) 427-1224
48
“With the new day comes new strength and new thoughts”
— Eleanor Roosevelt
49
Local Support Groups for All
Cancer Society of Greenville County: Family members and caregivers support group meets
the second Thursday of each month at 3pm at the Cancer Society of Greenville County. Call (864)
232-8439 for more information.
GHS Hospice of the Foothills: Caregivers support group meets the first Tuesday of each
month from 3-4:30pm in the Cottingham Hospice House Chapel. The Cottingham Hospice House
Chapel is located at 390 Keowee School Road in Seneca. Come in through the main entrance and
the chapel is the first room to the right. Call (864) 882-8940 with questions.
CARE (Come and Receive Encouragement): (864) 292-3568. Meets the second Tuesday of each
month from 6-7:30pm at Brushy Creek Baptist Church; 4999 Old Spartanburg Road, Taylors, SC
29687; Christ-centered support group.
Online Support
Association of Cancer Online Resources (ACOR): www.acor.org. A unique collection of
online communities designed to provide timely and accurate information in a supportive environ-
ment.
BMT-Support: bmt-support@bmtsupport.org ; (806) 798-0600; Online chat room for transplant pa-
tients and caregivers. Meets Tuesdays, Thursdays, and Saturdays at 8:30pm ET
Cancer Support Community: www.cancersupportcommunity.org: (1-202) 659-9709 (not toll-free);
Online cancer support groups led by licensed mental- health professionals.
Cancer Survival Toolbox Free Podcast: www.canceradvocacy.org/product-category/toolbox/
and also available on itunes, https://itunes.apple.com/us/podcast/cancer-survival-
toolbox/id982983558?mt=2 This is a free podcast that deals with everything from understanding a
cancer diagnoses to living beyond cancer and everything in between.
Personal Websites
Use the following website profile creators to update friends and family on you and your loved one’s
journey in one location. Theses website also offer ways to manage support, receive donations, and
provide educational resources.
Caring Bridge: www.caringbridge.org
CarePages: www.carepages.com
Lots a Helping Hands: www.lotsahelpinghands.com
My Cancer Circle: www.mycancercircle.lotsahelpinghands.com/caregiving/home/
My Life Line: www.mylifeline.org
50
Local Support Services
Cancer Association of Anderson County: www.cancerassociationanderson.org; (864) 222-3500;
215 E. Calhoun St., Anderson, 29621; Financial assistance and support groups.
Cancer Association of Spartanburg and Cherokee Counties: www.cancerassociation.org; (864)
582-0771; 209 E. Main St. Ste. 100, Spartanburg SC 29302. Provides financial assistance for can-
cer medications, nutritional supplements, medical equipment, home care supplies, gas cards
Cancer Society of Greenville: www.cancersociety.org; (864) 232-8439; 113 Mills Ave., Greenville,
SC 29605. All services are free; no appointment necessary. Minimal financial assistance, medical
and personal care equipment, wigs, prosthetics, individual and group counseling, educational mate-
rials
Greenville County American Cancer Society: www.cancer.org; (1-866) 227-4395 or (864) 627-
1903; 154 Milestone Way, Greenville, SC 29615. No appointment necessary. Referrals, support,
Road to Recovery transportation program, Reach to Recovery.
Union County Cancer Service: (864) 427- 8752; 117 Fant Lane, Union, SC 29379-1901. Provides
financial assistance for medications etc. (minimal assistance monthly while in treatment), nutritional
supplements, medical equipment, wigs.
National Support Services
4th Angel: www.4thangel.org; (1-866) 520- 3197; One-to-one confidential outreach and support
from a mentor, opportunity for patients and caregivers to connect with someone who went through
similar experience
Administration on Aging: www.aoa.gov; (1-800) 877-8339; (toll-free) Provides information, assis-
tance, individual counseling, organization support groups, caregiver training, respite care, and sup-
plemental services.
American Cancer Society: www.cancer.org; (1-800) 227-2345; ACS provides cancer information
and support to patients, families, and caregivers. It also supports research, community education,
and advocacy and public policy issues.
American Cancer Society (ACS) Road to Recovery: (1-800)-ACS-2345; Provides rides to and
from medical appointments through a network of volunteer drivers.
American Psychosocial Oncology Society (APOS) Help Line: (866)-276-7443; Connects cancer
patients, their caregivers and advocacy organizations with psychiatrists, psychologists, nurses, so-
cial workers, and counselors skilled in the
management of cancer-related distress.
51
Support Services Continued
Angel Flight: www.angelflight.com; (1-819) 749-8992 (not toll-free); Free air transportation for any
legitimate, charitable, medical-related need. Transportations is also arranged for those who are fi-
nancially distressed or in a time-critical, non-emergency situation because of medical condition.
CancerCare: www.cancercare.org; (1-800) 813-4673; CancerCare provides free, professional sup-
port services to anyone affected by cancer: people with cancer, caregivers, children, loved ones and
the bereaved. CancerCare programs– including counseling, education, financial assistance and
practical help— are provided by trained oncology social workers and are FREE of charge.
Cancer Hope Network: www.cancerhopenetwork.org; (1-800) 552-4366; Cancer Hope Network
matches family members and caregivers with trained volunteer caregivers who themselves have un-
dergone a similar experience.
Caregiver Action Network: www.caregiveraction.org; (202) 772-5050; Supports and educates
family caregivers, helps them connect with other caregivers; and helps them become their own advo-
cates. Membership is free.
Corporate Angel Network: (1-914) 328-1313 (not toll-free); Westchester County Airport, White
Plains, NY 10604. Matches patients with cancer in need of travel with private corporate jet schedules
Empowering Caregivers: www.care-givers.com; Education and information on many caregiver is-
sues, links to weekly chats, free biweekly newsletter, journaling opportunities.
Family Caregiver Alliance (FCA)/National Center on Caregiving: www.caregiver.org; (1-800)
445-8106; Provides information and resources for long-term caregiving, including practical skills, how
to hold family meetings, decision-making, assistive equipment, online support, and more; some info
in Spanish and Mandarin
FORCE (Facing Our Risk of Cancer Empowered): www.facingourrisk.org; National nonprofit dedi-
cated to improving the lives of individuals and families affected by hereditary breast and ovarian can-
cer. If you would like genetic testing or would like more information contact one of GHS’ genetic
counselors, Ledare Finley; (864) 455-5836
Free Medicine: www.freemedicineprogram.org: (1-573) 996-333 (not toll-free); Assists uninsured
and under insured individuals to get their medication free or at low cost
Gilda’s Club: www.gildasclub.org; (1-888) 445-3248; Gilda’s Club provides social and emotional
support for patients, families, and friends.
52
Support Services Continued
Healthwell Foundation: www.healthwellfoundation.org; (1-800) 675-8416; Addresses the needs of
individuals who cannot afford their insurance co-payments, premiums, co-insurance or other out-of-
pocket healthcare costs.
Help Rx: www.helprx.info/. Mission is to provide the best markdowns on prescription drugs on the
web. A free service, discounts are good at virtually every pharmacy in the U.S.
Imerman Angels: www.imermanangels.org; (1-877) 274-5529; Imerman Angels partners individu-
als seeking cancer support with a “Mentor Angel.” These one-on-one relationships inspire hope and
offer the chance to ask personal questions and receive support from someone who is uniquely famil-
iar with the experience.
LogistiCare: (1-866) 910-7688; Transportation for Medicaid patients to and from medical appoint-
ments. Rides must be arranged 3 days before appointment.
Medicare: Caregiving: www.medicare.gov/campaigns/caregiver/caregiver.html
Fact sheets and information for caregivers. Choose “What caregiver support is
available in my area?” for information on the Medicaid Cash and Counseling
program that can pay some caregivers for their time.
Men Against Breast Cancer (MABC): www.menagainstbreastcancer.org; (1-866) 547-6222; Pro-
vides services to support husband/partner of women with breast cancer.
Mothers Supporting Daughters with Breast Cancer (MSDBC): www.mothersdaughters.org; (1-
410) 778-1982 (not toll-free); Free support services to help mothers who have daughters with breast
cancer
National Alliance for Caregiving (NAC): http://www.caregiving.org; A national coalition of organiza-
tions focused on caregiving issues; provides www.familycaregiving101.org ; a resource for answers,
new ideas, and helpful
advice for caregivers.
National Association of Area Agencies on Aging/ Eldercare Locator: www.eldercare.gov; (800)
677-1116; Nationwide directory assistance service designed to help older person and caregivers fins
local resources for support. Areas of support include transportation, meals, home care, housing alter-
natives, legal issues, and social activities.
National Family Caregivers Association (NFCA): www.thefamilycaregiver.org; (1-800) 896-
3650; Supports, empowers, educates and speaks up for the men and women who care for chronical-
ly ill, aged or disabled loved ones.
53
Support Services Continued
National Respite Locator Service: www.respitelocator.org; Helps caregivers and professionals
find respite services in their state and local areas so that they can take short-term breaks from care-
giving.
NeedyMeds; www.needymeds.com; Medical assistance programs from drug companies, Pa-
tients cannot usually directly apply to these programs. Ask a doctor, nurse, or social worker to con-
tact NeedyMeds on your behalf.
Patient Advocate Foundation: www.patientadvocate.org; (1-800) 532-5274; Provides educa-
tion, legal counseling, and referrals to cancer patients and survivors. Specializes in matters of man-
aged care, insurance, financial hardships, job discrimination, and debt crisis
Simplefill: (1-877) 386-0206; Help uninsured and under-insured Americans afford their prescribed
medications.
Strength for Caring: www.strengthforcaring.com; First national program for cancer caregivers to
address both the physical and psychological heath needs of the patient and caregiver; free work-
shops, caregiver tips and resources.
The Tigerlily Foundation: www.tigerlilyfoundation.org; Educates, empowers, advocated, supports
and inspires women affected by breast cancer. Provides Practical services to assist patient and
family, such as financial assistance, chemo buddy program, and support group.
Well Spouse Association (WSA): www.wellspouse.org; (800) 838-0879; A national, non-profit
membership organization (dues are charged) which provides emotional support to spouses and
partners of chronically ill and/or disabled people. Helps with setting up calendars to organize help
from others. Also offers Regional Respite Weekends for spousal caregivers
The Wellness Community: www.wellness-community.org; (1-888) 793-9355; National organiza-
tion providing support groups, stress reduction, cancer educational workshops nutritional guidance,
exercise sessions, and social events.
54
Caregiver Smart Device Apps
Pocket Cancer Care Guide: Available for apple products. Free.
CareZone: Available for apple and android products. Free.
iCANcer: Available for apple products.
CancerSupportSource: Available for apple products . Free.
CancerCoach: Available for apple and android products. App is de-
signed for breast and colon cancer patients. Free.
55
Bone Marrow Support Services
Be the Match®: (612) 362-3410; (888) 999-6743 (toll-free); Email: patientin-
fo@nmdp.org ; Information about caring for a transplant patient or survivor.
Bone Marrow Foundation: www.bonemarrow.org; (1-800) 365-1336; Provides fi-
nancial assistance to bone marrow transplant patients ; application is online, requires
MD and social worker assistance to complete can apply up to 6 months post-
transplant.
BMT InfoNet Caring Connections Program: (847)-433-3313; (888)-597-7674;
Email: support@bmtinfonet.org; One-on-one peer support for patients and families
going through a bone marrow, stem cell or cord blood transplant. Connect by phone
or email with another person who had the same diagnosis, type of transplant and life
situation.
Blood & Marrow Transplant Information Network (BMT InfoNet): (847) 433-3313;
(888) 597-7674 (toll-free); Email: help@bmtinfonet.org; Print and online information
about preparing to care for a transplant patient and caring for transplant survivors. Al-
so webcasts about caregiving.
CancerCare, Inc.: (800) 813-4673 (toll free); Email: info@cancercare.org;
Podcasts and online and telephone support groups for caregivers of cancer patients.
Leukemia, Lymphoma Society: (803) 749-4299; South Carolina Chapter, 1247
Lake Murray Blvd., Irmo SC 29063
Leukemia and Lymphoma Society: www.leukemia-lymphoma.org; (1-914) 949-
5213; Financial assistance and provides one-on-one support. Local chapter: (864)
370-2402; 1990 Augusta St. Greenville, SC 29605
Lymphoma Foundation of America: www.lymphomahelp.org, (1-800) 385-1060;
One-on-one counseling via phone, assistance with 2nd
options, finding specialists, ed-
ucation, and support.
Lymphoma Research Foundation: www.lymphoma.org; (1-800) 500-9976; Focus-
es on Hodgkin and non-Hodgkin lymphoma, financial assistance program, support
network with one-on-one peer support
Max Foundation: www.themaxfoundation.org; (1-888) 462-9368; Support for blood
and rare cancer patient; international helpline for patients, families, and caregivers
with leukemia; assistance to obtain Gleevec and Tasigna through Novartis.
My Med Schedule: (800) 543-2230; Website and mobile device app for tracking
medication schedule.
56
Bone Marrow Support Services
National Bone Marrow Transplant Link: (248) 358-1886; (800) 546-5268 (toll-free);
Email: info@nbmtlink.org; Peer support and booklet on caring for a transplant patient.
National Lymphedema Network (NLN): www.lymphnet.org; (1-800) 541-3259; Pro-
vides education, management and prevention information to lymphedema patients
and the general public
National Organization for Rare Diseases: www.rarediseases.org; (1-202) 588-5700;
Financial assistance for Hodgkin lymphoma and peripheral T-cell lymphoma; online
patient communities information center
Patient Against Lymphoma: www.Lymphoma.org: (1-610) 346-8419 (not toll-free);
Voices patient perspectives and provides evidence –based education, support, and
links to clinical trials specific to lymphedema
57
Make sure you take time for you, because
with all your hard work this is the best gift
you can give to yourself.
~ April Peerless

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GHS Oncology Inpatient Guide 4.25.17

  • 1. GHS Cancer Institute The Inpatient’s Guide to Success The Hospital Experience
  • 2. 2 Our Message to Patients, As a patient of Greenville Health System, your experience is very important to us. It is our goal to exceed your expectations by offering you a positive experience. Hospital stays can be unpredictable and stressful at times. This guide hopes to prepare you by detailing the “typical day” for an inpatient and answer common patient and family member questions. It may not have the answer to every question, but it will provide an overview of common questions and concerns as you begin or continue your journey. Research has shown that a positive pa- tient and family experience results in better outcomes for you. As em- ployees, our mission is to provide quality, compassionate care to you, our guest. We would like to therefore provide this booklet to you as part of that commitment to care. Our staff are prepared to answer any addi- tional questions. Thank you for choosing Greenville Health System.
  • 3. 3 Table of Contents Part 1: Entering the Hospital Hospitalization Important Phone Numbers During Your Stay Tips for Patients What Does My Room Look Like? Visitor Information Care Partners Pets Personal Pet Visitation Pet Therapy Program Part 2: Your Inpatient Team Cancer Care Team MY Inpatient Medical Team Part 3: Inpatient Resources Available Music Therapy The Role of Nutrition During Cancer Treatment Difficult Decisions Chaplin Services Advance Directives Palliative Care Hospice
  • 4. 4 Table of Contents Part 4: Hospital Amenities & Resources Amenities Wifi Lodging Maps and Directions Dining Resources Library CIOS Student Center Visitor & Volunteer Services Healing Garden Video & Book Cart Part 5: Patient Safety /Rights & Responsibilities Patient Safety Patient Rights & Responsibilities Part 6: Prepping for Discharge-Resources & Support Services Discharge Checklist Knowledge Is Power Questions to Ask The Doctor Accepting a Helping Hand Resources for In-Home Help Counseling Options Local Support Groups Online Support Groups Personal Websites Local Support Services National Caregiver Support Services Caregiver Smart Device Apps Bone Marrow Support
  • 6. 6 Hospitalization There are numerous reasons a patient might be hospitalized with a cancer diagnosis. Examples or reasons are: symptom management such as pain, nausea & vomiting, high fever, extreme fatigue, diagnostic workup, removal of a cancer, or bone marrow transplantation. Your stay may be a part of a treatment plan previously discussed with your oncology team or it may be totally unanticipated from an infection or toxicity. Your hospital medical team is typically larger than your outpatient team; however, we are all working together and are well prepared for your stay. What Should You Expect? Each individual will have a slightly different routine during their stay in the hospital. Although each patient’s experience will be unique, all patients can expect a very early morning visit from the lab to have blood drawn, this is done in order to provide your physician with results before he/she sees you that same day. A physician will see you each day you are hospitalized. Your oncologist and their partners share a rotation of the oncology floor. This means there is a chance you may see a physician other than your primary provider, but we are all working together to provide the very best of care for you during your stay. Hospital staff will ask your name and date of birth frequently, providing this information may become tiresome, but it helps us to prevent errors in your care. GHS is a teaching hospital, so you may en- counter students or residents during your stay. If you are uncomfortable with having a student or resident participate in your care, you may always request that they are not involved. I
  • 7. 7 Important Phone Numbers Note: When dialing internal departments of GHS from a GHS telephone, a five-digit number is all that is needed i.e. (5-5555 for guest services). When dialing an outside number, the full seven-digit number is required. Main GHS Number, 455-7000 Chaplain Services, 5-7942 or 455-7942 (8:30 a.m. to 5:00 p.m. weekdays); 390-0100 (after hours) Condition Help, 5-0599 Note: This is an internal number only, and will provide information to pa- tients and family regarding patient condition. Guest Services, 5-5555 or 455-5555 (Hospital Information Services) Language Services/Interpreters, (864)455-1584 outside GHS or 5-HOLA (4652) inside GHS Patient and Family Relations, 5-7975 or 455-7975 (complaints or concerns)
  • 8. 8 During Your Stay What to Bring? · List of allergies to medication(s) /non-medication(s) · List of current medication(s) · List of current doctors and staff · Pajamas or nightgown-button down or zipper is preferable. · Brush & comb · Robe & Slip resistant slippers (Skid proof booties are provided) · Toothbrush & toothpaste / Denture care items · Shaving supplies · Phone Charger · Notebook/pen (to list questions/take notes) · Headphones or earbuds if you listen to music · Special pillow ·Cane or walker (Make sure your name and phone number are clearly marked on it) ·Copy of your Healthcare Power of Attorney What Not to Bring? · Jewelry or watches · Large sums of money Tips for Patients It is our goal to provide excellent care, and we hope your stay in our hospital will be comfortable. For your convenience, we have provided some safety tips and additional information. • Valuables: Send valuables (such as jewelry and money) home with a friend or family mem- ber or ask that they be sent to the hospital safe. Never leave valuables unattended as the hospital cannot be responsible for them. • Personal Items: Be aware that it is easy to lose personal items in bed linens and on meal trays. Ask for a denture cup, if you need one, and make sure your name is on it. Keep dentures, glasses and hearing aids in their containers in the bedside table drawer when you are not using them. Be sure not to leave such items on your meal tray or on the bed. *Be sure to place names on all belongings • Food Brought From Outside: Inquire with your nurse if food can be kept in a patient refrig- erator on the floor.
  • 9. 9 What Does My Room Look Like? Each hospital room includes the follow amenities:  Television  DVD player  Wi-Fi  Telephone  Power outlets  Personal bathroom  Chair/ Recliner  Over bed table  Additional blankets/sheets/pillows upon request  Sleeper for caregiver is available upon request
  • 10. 10 What Does My Room Look Like?
  • 11. 11 Visitor Information GHS understands that family and friends play an important role in the healing process. Our visiting program enables patients to choose whom they want to visit and when. GHS recognizes that the fol- lowing are important to the recovery process:  Presence of supportive family and loved ones  A sense of safety and security  A quiet environment Patients can also be provided with visitation signs designating “Check in at desk before entering, or “No visitors”, to post if desired. Small children are permitted as long as they are not ill and are closely supervised. All Greenville Health System facilities will be secured from 9:00 p.m. and 6:00 a.m. All visitors must enter through controlled access points during these times. General Visiting Times: 9:00 a.m. to 9:00 p.m. Late Visiting and Overnight Stays A. All Greenville Health System facilities will be secured between 9:00 p.m. and 6:00 a.m. All visitors, patients and staff must enter through controlled access points during these times. B. All persons (visitors, including clergy, physicians, employees) should display a hospital- approved visitor badge between the hours of 9:00 p.m. and 6:00 a.m. Late-night visitors may be photographed according to security guidelines. C. Visitors arriving to visit after 9:00 p.m. without a Care Partner badge will be stopped by the security officer or GHS police officer on duty at the after-hours entrance. D. Visitation in exceptional situations (such as critical care or late admissions, critical patient condition, out-of-town visitors) is allowed. All approved visitors allowed to proceed to the pa- tient care area after signing in at the security post and receiving a temporary visitor badge. When an exception to the policy is allowed, the administrative supervisor and/or the adminis- trator on call should be notified. E. One Care Partner per patient is permitted to stay overnight. Two Care Partners per patient are permitted overnight stays in critical care areas and pediatrics.
  • 12. 12 Care Partners A care partner is a spouse, partner, family member or close friend who is at least 18 years old. He or she is chosen by the patient to provide emotional, physical, educa- tional, social and spiritual support. Although visiting times are 9:00 a.m. to 9:00 p.m., care partners may visit any time at the patient’s request and are allowed to stay overnight. Care partners will have a special badge identifying them as the care partner. “Heroes didn't leap tall buildings or stop bullets with an outstretched hand; they didn't wear boots and capes. They bled, and they bruised, and their su- perpowers were as simple as listening, or loving. Heroes were ordinary people who knew that even if their own lives were impossibly knotted, they could un- tangle someone else's. And maybe that one act could lead someone to rescue you right back.” ― Jodi Picoult, Second Glance
  • 13. 13 Pets Personal Pet Visitation Patients are permitted to have their pet visit during their hospital stay. Animals most suited for hospi- tal visits are small dogs and cats that are quiet and well mannered. Inquiries should be made to the patient’s nurse for when a suitable time would be for a visit. Approval must be obtained from the patient’s physician. Patients will be required to show their pet’s immunization record. Pet Therapy Patients may be visited by a pet therapy volunteer and dog during their hospital stay. Our pet thera- py program includes over 20 volunteers and their dogs. Studies show that the companionship of ani- mals can lower patients’ blood pressure and stress levels, increase social interaction, speed healing and extend longevity. Service Animals Service animals for individuals with disabilities are allowed throughout GHS facilities in accordance with the Americans with Disabilities Act (ADA) and GHS’ Service Animal Policy. To request a copy of GHS’ Service Animal Policy, please contact a member of your care team.
  • 15. 15 Cancer Care Team It is important to keep track of your care team and be familiar with the varied roles of each of the members of your team. Please use the next page to keep track of each member of your care team. Again, your hospital team may be slightly different as well as larger than your outpatient team. Oncologist Oncologists are physicians who specialize in the diagnosis and treatment of cancer. Medical Oncologist — A doctor who has special training in diagnosing and treating cancer using chemotherapy, hormonal therapy, biological therapy, and/or targeted therapy. Medical oncologists are often the main health care provider for someone who has cancer as well as provide supportive care and also may coordinate treatment given by other specialists. Surgical Oncologist — A surgeon who has special training in performing biopsies. Removal of tu- mors and other surgical procedures in cancer patients. Radiation Oncologist — A doctor who has special training in using radiation therapy to treat cancer. Different cancer doctors and staff will likely make rounds in the hospital. This doctor could be your normal oncologist or a doctor you have never seen before, but everyone is a part of your cancer team. Your cancer team is equipped with a unique method of communicating with each other. ADDITIONAL STAFF: Hospitalist A hospitalist is a physician based in the hospital and is solely there to follow you during your stay in the hospital. You will see many different faces during your stay, but each individual is part of your hospital cancer team. Nurse Practitioner (NP) NPs are advanced practice nurses (RNs) who have additional higher education in health promotion and health maintenance through the diagnosis and treatment of acute and chronic illness formerly assumed by a physician. NPs have their Master or Doctorate degree. NPs work iunder the supervi- sion of a collaborative physician. Registered Nurse Registered Nurse (RN) – You will have an RN assigned each 12 hour shift in the hospital. RNs are responsible for assessing your healthcare needs and progress while in the hospital. RNs provide care as directed by your physician, including administering medication, changing wound dressings, obtaining samples for lab tests and administering intravenous (IV) therapy. RNs oversee other healthcare team members who also may be involved in your treatment such as medical assistants.
  • 16. 16 Hospital Case Management Nurse case managers and social workers are available to help you in following areas: discharge and post-hospital planning for care, insurance coverage. financial needs resulting from your illness and/or hospitalization, personal and family issues. Case Manager – A case manager works with your healthcare team to assess your medical needs and also works with your insurance company to determine an effective discharge plan. Your case manager can help you with financial aid during your stay and after discharge. Social Worker— A social worker works with the physician and nursing team to coordinate services for you while you are in the hospital and assists in a plan for services that may be necessary after you are discharged. Social Workers also provide emotional support an assessment of psychosocial needs and recommendations. **To speak with a social worker or case manager, please talk to your physician, nurse practitioner or nurse.** Financial Counselor (FC) The financial counselors’ main role is to assist with the financial demands of your hospitalization, treatment, medication, insurance, and testing. FC’s work with both inpatient and outpatient, so please remember to keep the name and phone number of the FC you are working with on a particu- lar billing/cost issue.
  • 17. 17 Respiratory Therapists (RT) RTs are clinicians trained to assess and monitor lung function especially in those patients that have some type of lung symptom, toxicity or disease. RTs administer respiratory treatments and monitor your response to respiratory treatments on the hospital floor. RTs also provide airway sup- port during procedures performed on the floor, and monitor your respiratory status if you are hav- ing any difficulty breathing. They assess your oxygen levels, in particular when you are on oxygen. Registered Dietitian and Nutritionist (RDN) RDNs experts in dietetics; that is, human nutrition and the regulation of diet. An RDN assess each patient and makes nutrition recommendations based upon their medical condition and individual needs. Dietitians are regulated healthcare professionals licensed to assess, diagnose, and treat nutritional problems. RDNs also counsel patients on their diet and help patients create nutrition goals appropriate for their individual needs. Physical Therapists (PTs) PTs are highly-educated, licensed health care professionals who can help patients reduce pain and improve or restore mobility. At times, patients go down to the physical therapy department to work with a physical therapists, remember to bring a sweater or robe as the temperature may vary. At other times, the physical therapist may meet with you at the bedside. Pharmacist Pharmacists work directly with physicians, other health professionals, and patients to ensure that the medications prescribed for patients contribute to the best possible health outcomes. Pharma- cists on the oncology floor apply specialized knowledge of the scientific and clinical use of chemo- therapy or immune therapy, including medication action, dosing, adverse effects, and drug interac- tions.
  • 18. 18 MY Inpatient Medical Team NAME NUMBER Physician/Nurse Oncologist(s) ___________________ ____________________ NP(s) ____________________ ____________________ Hospitalist(s) ____________________ ____________________ Specialist(s) ______________ __ ____________________ Surgeon(s) ___________________ ____________________ Financial Counselor ____________________ ____________________ Dietician ____________________ ____________________ Therapist(s) ____________________ ____________________ Social Worker ____________________ ____________________ Pharmacist ____________________ _____________________ Other Notes: ___________________________________________________________________ ___________________________________________________________________ ___________________________________________________________________ ___________________________________________________________________ ___________________________________________________________________
  • 20. 20 Music Therapy Music therapy is a clinical, evidence-based, and non-invasive treatment for unmanaged symptoms related to cancer and cancer treatment. Examples of symptoms that Music Therapy could help are: pain, nausea, vomiting, stress, depression, and sleep. A master’s prepared and board certified mu- sic therapist provides music therapy at no charge to our patients. A patient does not have to be a musician or play music to benefit from music therapy, and music therapy is effective for all ages and abilities. A patient can be referred for music therapy services by a clinician, patient, or family member. A re- ferral for music therapy can also be made by directly contacting the music therapist at the Center for Integrative Oncology and Survivorship Music Therapy Department Office: 864-455-7381. A music therapy session will be conducted in your room, or if you choose, a sitting area outside your room. You do not have to get out of bed for a music therapy session, nor do you need to be alert and oriented – music therapy can help you relax even if you aren’t focusing on it. It is even normal and positive for a patient to fall soundly asleep by the end of the session! A music therapist will gather some initial information from you or a family member related to what symptoms you are experiencing, what your musical tastes are (if you have a favorite kind of music, a favorite singer, or a favorite song), and whether or not you currently, or have ever, sung or played an instrument before. The session will then be individualized according to your needs and prefer- ences, and can involve discussion, self-expression, guided relaxation, music-listening, singing along, or playing with small hand instruments. Sessions have no set time limit. Session length will vary depending on your comfort, though most sessions last between 15-45 minutes. At the end of the session, you and the music therapist will jointly assess whether you would benefit from additional sessions.
  • 21. 21 The Role of Nutrition During Cancer Treatment Nutrition plays a vital role before, during and after treatment. A healthy diet can help your body heal quickly and get home faster after surgery or any form of treatment. Nutrition aids in improving ener- gy levels and regaining strength. Proper nutrition can also help alleviate many symptoms related to cancer treatment such as nausea, constipation and weight fluctuations. A healthy diet also prevents other chronic diseases, such as diabetes and heart disease. Each individual has specific nutrition needs but a healthy diet generally refers to eating and drinking enough of the foods and liquids that have the right nutrients to help the body maintain optimal health. Nutrition intervention may aid in the treatment of the following conditions or symptoms: Nausea/Vomiting Diarrhea Gas/Bloating Constipation Taste changes Weight loss/gain Sleep Diabetes Kidney Disease Heart Disease Prevention of current types of cancers GHS Resources Available While you are in the hospital: Inpatient menus Host Services Once you go home: Individual nutrition counseling is available, free of charge, for any patient of the GHS Cancer Institute. To schedule an appointment, please call the Center for Integrative Oncology and Survivorship at (864) 455-1346. Weekly group nutrition classes are offered, free of charge, every Thursday at 3:30pm on the first floor of the Cancer Institute at 900 W. Faris Road Greenville, SC. For more information, please call the dietitian at (864) 455-2862. Online Resources: Academy of Nutrition and Dietetics: Eat Right to Fight Cancer http://www.oncologynutrition.org/erfc/ American Cancer Society: Nutrition for People with Cancer https://www.cancer.org/ treatment/survivorship-during-and-after-treatment/staying-active/nutrition.html Memorial Sloan Kettering Cancer Center: About Herbs https://www.mskcc.org/cancer-care/treatments/symptom-management/integrative-medicine/herbs
  • 22. 22 Chaplain Services The hospital chaplain offers a quiet place for prayer and meditation for anyone of any faith and is open 24 hours a day with the exception of scheduled private services. A chaplain is always on call for comfort and counseling. Our chaplains provide a safe and confidential relationship to discuss physical, emo- tional, and spiritual concerns. A chaplain will respond to emergencies and provide care to patients and families. GHS respects and honors the many cultural, spiritual, and ethnic backgrounds of our patients and visitors. For more information, please contact the Department of Spiritual Care & Education at (864) 455-7942. Chapel Location Greenville Memorial Hospital: Main Entrance, behind the visitors’ desk
  • 23. 23 Advance Directives You have the right to make decisions about your medical care, including the right to accept or refuse treatment. There could be a time where you are not able to com- municate with your physician to make your decisions. The best way to express your wishes, if you are unable to say them at the time, is with an advance directive. Advanced directives are legal documents that allow individuals to express their deci- sions and wishes pertaining to end-of-life care. These documents clearly communi- cate a patient’s wishes to their family, friends’, caregivers’ and health care profession- als’. Being proactive about completing advance directives avoids later confusion and frustration, while also relieving the burden of having to make a difficult decision for your loved one without their input. Listed below are a few of the many type of ad- vanced directives:  Healthcare Power of Attorney  Living Will  Five Wishes  Desire for a Natural Death Please be aware that the above named documents are different from a “will” and a “Durable or Legal Power of Attorney”. The above docu- ments only give direction and appoint a proxy regarding HEALTHCARE DECISIONS; they do not affect finances, property, or other legal matters. A copy of South Caroli- na’s Healthcare Power of Attorney document can be provided to you by con- tacting our Department of Spiritual Care & Education at (864) 455-7942 during your stay at the hospital.
  • 24. 24 Difficult Decisions On April 12, 2003 I received an emergency call at work stating that my mom had activated her med alert button and rescuers had found her unresponsive. As I raced to the hospital a million thoughts went through my mind, what if she’s broken something, I should have called my sister, Will she have to go to a nursing home? Is she going to live? My mom was independent and that’s the way she liked it. She had recently been di- agnosed with a glioblastoma and we were still in the process of trying to figure out what are options were. When I arrived at the hospital the doc- tor met me in her room and explained that mom was not responsive. They had managed to stabilize her breathing and vitals with the help of life support however she remained unconscious, they would wait a couple of days but if she showed no signs of improvement I would have to make a decision... Sherri
  • 25. 25 Palliative Care The goal of Palliative Care is to facilitate communication among the patient, family members and all healthcare providers across the continuum of care; to address the patient’s choices and goals for treatment; to provide effective symptom manage- ment; and to achieve the best quality of life for patients facing serious illness. Palliative Care services at Greenville Health System can ease some of the burdens of case management on primary physicians and staff. We provide assistance with care coordination and time-intensive communication between patients and family. Palliative Care is available to people of any age and at any stage of illness. Ser- vices can be received along with curative treatments. Palliative Care Team Members Palliative Care services at GHS are provided by medical specialists who are able to help with the many aspects of serious illness. Palliative Care providers work as a team to try to relieve suffering that results from serious illness. Team members in- clude physicians, nurse practitioners, nurses, social workers, and chaplains to en- sure that we offer a comprehensive approach to meet each patient’s unique needs. Our Palliative Care program provides a team approach to:  Expert pain and symptom management  Emotional and spiritual support  Family support  Care coordination between members of the health care team  Advance care planning  Community support Consulting services:  Assist medical team and patient/family with communication about treatment choices and end-of-life decisions  Provide pain and other symptom assessment and management (dyspnea, deliri- um, constipation, nausea)  Provide support and counseling regarding end-of-life options during family meet- ings
  • 26. 26 Palliative Care When a referral is made: A Palliative Care physician or an Advanced Practice Nurse will review the request, talk with the patient and family, and complete the consultation with recommendations for the interdisciplinary plan of care. Patient/family needs, understanding and pro- gress will be assessed regularly and communicated to the referring physician and staff. What a Palliative Care referral can do:  Facilitate discussion about goals of care, treatment options, and patient and family wishes  Help the patient and family understand the prognosis and rationale for treatment plan  Assist with symptom management and the relief of suffering  Enhance teamwork and communication by assisting with family needs for regular updates on patient condition and progress  Facilitate discussion about advanced directives  Decrease unnecessary ICU admissions and stays  Improve end-of-life care by reducing unnecessary medication, tests, and proce- dures as comfort measures increase  Recommend earlier referral to hospice care Palliative Care referrals can be made by physicians, nurses, therapists, social work- ers, case managers or at the request of the patient and family. A physician consult re- quest is required. To learn more about Palliative Care services at GHS, call (864) 454-8120.
  • 27. 27 Hospice When to Talk to Your Physician To find out how hospice care may benefit you or a loved one in the future, talk with your physician now. Early discussions will help you prepare for any eventuality and Your physician can help you decide if hospice is right for you. Many people are surprised to learn that hospice care is about:  Living with the disease  Living in greater comfort  Living with less worry What to Say to Your Physician When talking about hospice with your physician, keep the following points in mind: Plan ahead  Inform your physician you want to have a realistic discussion about your condition, prognosis and treatment options. You want your physician to have a clear understanding of your wishes regarding your medical care.  Make a list. Write down questions you want answered. List your symptoms and other prob- lems; include your medical history.  Be clear. Outline your wishes and opinions beforehand so that you can express them clearly to the physician.  Ask a family member or friend to accompany you to the appointment with your physician.  Take a copy of your living will and healthcare power of attorney to leave with your physician. Ask questions  How does the physician anticipate your condition will progress over the next six months or year?  If your condition doesn’t improve over the next six months, what is the best course of care?  What are some ways to ensure comfort?  Is there any way to improve your quality of life?  How will you communicate with doctors, pharmacists and hospitals?  Who will help caregivers manage the demands from work, family, finances, and caregiving, and their own health and stress levels?
  • 28. 28 Hospice What To Say To Your Physician Continued Express yourself  The key to an effective conversation is to express yourself clearly in a non- confrontational manner and to listen carefully. Use “I” statements such as “I feel that …,” “I would prefer to …,” “I understood you to say …”  Make sure your physician knows your concerns about treatment options. When the physician speaks, listen carefully. Then, you might repeat what the physician has stated in your own words and ask, “Is that correct?”  Let your physician know how you want your treatment to progress and how you would like to be treated medically, emotionally and spiritually.  If you disagree with the physician’s recommendations, state your reasons or prefer- ences in a non-confrontational way.  If you need time to think about information you’ve been given, make sure your phy- sician knows you have reservations or concerns and will want to continue the dis- cussion later.  If applicable, let your physician know that you want to be successful at remaining at home but will need help. Take notes  Write down your physician’s answers to your questions and any follow-up ques- tions you think of. Ask your accompanying family member or friend to also write down answers you receive.  Make notes of any further research you may want to pursue.
  • 29. 29 “We shall draw from the heart of suffering itself the means of in- spiration and survival.” – Winston Churchill
  • 31. 31 Miscellaneous Services Some circumstances may require your loved one to spend a few hours, a night, or even an longer extended period of time in the hospital. GHS offers a few services to patients and their guests’ in attempt to make their stay here comfortable as possible. Please use the following link: http:// www.ghs.org/patients-visitors/visitor-info to view GHS’ Visitor Information web page. Wifi Free wifi is available across all GHS facilities, and may be used on any device that has wireless 802.11 B/G capabilities. The wifi network, 701Guest, may be accessed by patients and visitors. Please note that after selecting the network and before you are able to roam the Internet you must agree to the, “Accessing Greenville Health System Public Network from your Wireless Device” terms. ATM An ATM is located in the main lobby on the first floor of the hospital across from the Hospitality Shop. Hospitality Shop The Hospitality Shop in the main lobby on the first floor offers a variety of gift items, magazines, snacks, paperback books, candy, toiletries, and greeting cards. Lodging Spending the night at the hospital can be uncomfortable, crowded, or not an option; this is why GHS has arranged with local hotels special lodging rates for patients and their family and friends’. If you or someone you know is coming from out of town to support a GHS patient please utilize these discounted prices. For more information and a list of all the participating hotels please visit: http:// www.ghs.org/patients-visitors/visitor-info/lodging. Maps and Directions For printable maps of the various GHS campuses visit: http://www.ghs.org/patients-visitors/visitor- info/directions. This webpage also houses hospital parking information as well as transportation options from the GSP airport.
  • 32. 32 Dining Greenville Memorial Hospital offers a wide variety of food options. Our cafeteria includes home- cooked meals, healthy choice options, soups, salads, and even sushi! We also offer Starbucks, Subway, Chic-Fil-A, and Au Bon Pain. Check out additional dining options on the next page or by visiting the following page: http://www.ghs.org/patients-visitors/visitor-info/dining. Cafeteria Hours of Operation: Open Everyday Breakfast: 6:00 am — 10:00 am Lunch: 11:00 am — 2:00 pm Dinner: 4:30 pm — 7:00 pm Midnight Dinner: 12:00 am — 3:00 am Chic-Fil-A Hours of Operation: Monday-Thursday: 11:00 am — 8:00 pm Friday: 11:00 am — 2:00 am Saturday: 11:00 am — 6:00 pm Closed Sunday
  • 33. 33 Dining Subway Hours of Operations: Monday-Friday: 11:00 am — 8:00 pm Saturday: 11:00 am — 2:00 am Sunday: 11:00 am — 9:00 pm Au Bon Pain Hours of Operations: Monday-Friday: 7:00 am — 8:00 pm Saturday: 10:00 am — 8:00 pm Sunday: 10:00 am — 8:00 pm Starbucks Hours of Operation: Monday-Friday: Open 24 Hours Saturday: 7:00 am — 2:00 pm Sunday: 11:00 am — 9:00 pm
  • 34. 34 Patient Resources Library The Health Sciences Library is open to the public for access to medical journals and texts that sup- port patient care decisions, staff education, and advanced research. The Health Science Library is located near the lobby at Greenville Memorial Hospital and The li- brary staff provide vital and timely information on diagnosis, treatment, nursing, cost containment, and future health planning.. The library offers print and electronic books and journals as well as databases in a wireless environ- ment. Electronic resources are available for GHS staff, students and faculty at all campuses and most are accessible from any location. Please call the GHS Health Sciences Library at 864-455–7176 or email library@ghs.org for assis- tance. Hours of Operation At Greenville Memorial Medical Campus : Mon-Thurs 8 am-6 pm Fri: 8 am– 5pm CIOS Student Center The CIOS Student Center is a resource for cancer survivors, family, and caretakers. Located on the first floor of the Cancer Institute Faris Road location, the Student Center offers a variety of educa- tional materials including, but not limited to: program brochures and flyers, resource booklets, and informational books that are able to be checked out by patients. Topics range from having children after cancer to eating well through cancer. Additionally, the Cancer Support Community monthly calendar is available highlighting free events, classes, and support groups. Leisure Resources Visitor & Volunteer Services Visitor and Volunteer Services located in the main hospital lend books, playing cards, and games to patients and families during their stay. The patient can request a leisure item by calling Visitor and Volunteer Services at (864) 455-7994. Oncology Oncology staff provide patients with paper, pens, and magazines upon request during their stay. The patient may request items by contacting their oncology nurse.
  • 35. 35 Patient Resources Healing Garden The healing garden is located outside of Greenville Memorial Hospital. The healing garden is a place for patients, families and employees to relax, reflect and rejuvenate. Movie Cart In 2014, movies were donated in loving memory of Timothy David Bright by his wife, Jenny, and his extended family. This collection continues to grow and now offers a variety of movies for patients to enjoy. Please contact your oncology nurse if you are interested in checking out a movie during your stay.
  • 36. 36 Patient Safety/ Rights & Responsibilities
  • 37. 37 Patient Safety Patient safety is important to us, but we need your help in making safety a priority. Read this sec- tion carefully. Prohibited items for any patient or visitor include the following: • Tobacco products • Firearms or weapons • Alcoholic beverages • Illegal drugs Oxygen Electrically operated equipment and aerosol products are not allowed where patients are receiv- ing oxygen. Smoking Smoking is not permitted anywhere in the hospital or on hospital property. Fire Drills The hospital conducts fire and other drills regularly. If a drill occurs, please remain calm and stay in your room.
  • 38. 38 Medications All medications you take while in the hospital are prescribed by your doctor, dispensed by the hos- pital pharmacy and administered by a nurse or therapist. Patients may not take their own drugs or keep personal medication at their bedsides, unless approved to do so by their doctor. Before taking medications, please notify your physician of any drug allergies you may have. Also, tell the doctor about any vitamins, supplements, antioxidants, etc., that you have taken recently because such items may interfere with prescribed drugs. Be sure you know why you are receiving a prescribed medication and how and when you should take it (with water, during a meal, twice a day, etc.). Tell your nurse if you do not receive medica- tion when you should. Also make sure the doctor or nurse checks your wristband or asks you your name before giving you any drug. Many medications have been found to interact with grapefruit juice. Please notify your nurse if you have consumed grapefruit juice three days or fewer before being admitted. The system is aware of growing patient interest in alternative therapies, which include herbal med- icines. Always tell your doctor, pharmacist, nurse or other healthcare professional if you are using alternative medicines, especially if you take prescription medication, plan to have surgery or have chronic health problems. Taking these products during your hospital stay may interfere with your care. Therefore, you are discouraged from using alternative therapies while a patient in the Green- ville Health System. For more information on alternative therapies or the health system’s alternative medicine policy, call the Pharmacy Department at 5-8815 or speak with your nurse. General Comments about Infection Control A person exhibiting any of the following symptoms should not visit until symptoms are gone: runny nose, cough, sore throat, sneezing, cold, flu, measles, mumps, rashes, draining wound, fever greater than 100.4°, vomiting and diarrhea. Visitors with airborne/droplet-transmitted (e.g., influenza, TB, chickenpox) communicable diseases or any other condition as recommended by the Infection Control Department (eg., lice, scabies) should not be permitted to visit. Visitors are encouraged to utilize the checklist included in the General Visitation Information bro- chure to determine the appropriateness of visits. As appropriate, nursing staff will provide directions to visitors regarding special precautions includ- ing hand cleaning and the use of personal protective equipment, such as gloves, gowns and masks. During high levels of community illness, the health system epidemiologist or his/her designee has the authority to restrict community visitation to prevent further transmission within a GHS facility.
  • 39. 39 Patients Rights & Responsibilities Patient Rights As a patient in our hospital, you have many rights that we are committed to protect and promote. Your rights include the following: 1. Having access to care within the capacity and capability of the hospital regardless of gender; sex- ual orientation; gender identity; gender expression; social, cultural, educational or religious back- ground; language; age; ancestry; citizenship; color; national origin; race; medical condition; pres- ence of mental or physical disability; marital status; or the source of payment for care. 2. Having the hospital, after consultation with you, promptly notify a family member, or other repre- sentative of your choice, and your physician of your admission to the hospital. 3. Receiving considerate and respectful care, and giving us feedback about your care. 4. Wearing appropriate personal clothing and religious or other symbolic items, as long as they do not interfere with your treatment or procedures. 5. Participating in the development and implementation of your inpatient and/or outpatient treatment/ care plan, your discharge plan, and your pain management plan. 6. Knowing the identity and professional status of those involved in your care, including whether the caregiver is a student or trainee or is professionally associated with other individuals or healthcare institutions involved in your care. 7. Making informed decisions about your care, including being informed of your health status, being involved in care planning and treatment, and being able to request or refuse treatment. However, this right does not entitle you to the provision of treatment or services deemed medically unneces- sary or inappropriate. 8. Formulating advance directives (such as a living will or durable power of attorney for health care) with the expectation that the hospital staff and practitioners will honor the directive to the extent per- mitted by law and hospital policy. 9. Contacting The Joint Commission at 1-800-944-6610 or complaint@jointcommission.org or calling the Centers for Medicare and Medicaid Services/South Carolina Department of Health and Environ- mental Control (DHEC) at 1-803-545-4370 to report a grievance, regardless of whether or not you have first utilized the hospital’s grievance procedure. A “patient grievance” is a formal or informal written or verbal complaint regarding the patient’s care (when the complaint is not resolved at the time of the complaint by staff present), abuse, or neglect issues related to the hospital’s compliance with the CMS Hospital Conditions of Participation (CoPs), or a Medicare beneficiary billing complaint related to rights and limitations provided by 42 CFR 489. 10. Receiving visitors in accordance with the visitor policy contained in this admission packet. 11. Receiving care in a safe setting, free from all forms of abuse or harassment.
  • 40. 40 12. Enjoying personal privacy, including privacy during toileting, bathing or being examined. Unless you consent, people not involved in your care will not be present during your examination or treat- ment. 13. Accessing an interpreter if you do not speak or understand English. 14. Being free from restraints of any form unless they are medically necessary or unless needed to ensure your physical safety and less restrictive interventions are determined to be ineffective. 15. Being made aware of any relationships this hospital has with other healthcare facilities, educa- tional institutions or other outside parties that may influence your care. 16. Being free to consent or decline to take part in clinical research without your decision otherwise affecting your care. 17. Examining and receiving an explanation of your bill, regardless of your source of payment. 18. Receiving a “Notice of Beneficiary Discharge Rights,” “Notice of Non-coverage Rights” and “Notice of the Beneficiary Right to Appeal a Premature Discharge” if you are a Medicare patient. 19. Being confident that your clinical record is confidential. 20. Accessing information contained in your clinical records within a reasonable time frame. Patient Responsibilities 1. You are responsible for providing accurate information about your health, including past illness- es, hospital stays and the use of medicine. 2. You are responsible for asking questions when you do not understand information or instruc- tions. 3. You are responsible for telling your doctor if you believe you cannot follow through with your treatment. 4. You and your visitors are responsible for being considerate and respectful of the needs and the property of others and of the hospital. 5. You are responsible for providing information for insurance and for working with the hospital to obtain payment when needed. 6. You are responsible for letting your healthcare team know if you have an advance directive, such as a living will or durable power of attorney for healthcare decisions. 7. You are responsible for following hospital rules and regulations about patient care and conduct. 8. You are responsible for the consequences of refusing treatment or failing to follow the instruc- tions of your healthcare team. A hospital serves many purposes. Hospitals work to improve people’s health; treat people with inju- ry and disease; educate donors, health professionals, patients and community members; and im- prove understanding of health and disease. In carrying out these activities, this institution works to respect your values and dignity.
  • 42. 42 Prepping for Discharge Before you leave the hospital, please review this checklist:  Instructions: Review any written instruction from your doctor or nurse, and ask any questions you have about medications, activities, treatments or care  Medications: Review the list of medications that you should take after discharge; give the list to your doctor to review at the next visit; keep the list current by adding, removing or changing medications as directed by your doctor; and carry the updated list with you at all times in the case of an emergency  Appointments: Make sure you have scheduled any necessary follow-up appointments  Personal Items: Check to see that you have packed everything you brought with you
  • 43. 43 Knowledge is Power Gathering Information Gathering information often reduces anxiety and fears about the road ahead. Education related to the type of illness, options available, and possible side effects will allow you and your loved one to address your care more efficiently. It will also increase your confidence in your ability to return home. Talk with your human resource department about the family medical leave act (FMLA) and whether or not you or your love one qualify. While FMLA entitles employees to take job protected unpaid leave, it’s use may vary from employer to employer. The length of time you’ve been employed with your company, and your relation to the pa- tient may also effect whether you are covered under FMLA. For further information re- garding this benefit visit: http://www.dol.gov/whd/fmla/ Gathering information and tracking physical changes can also prove to be helpful. It is hard to tell if something is abnormal if you are not aware of what is considered normal. Tracking your vital signs, diet, weight, physical appearance, etc. can help you deter- mine changes in your health. Talk with your medical team to see what things to keep a log of to better monitor your health. Staying Organized Keep a folder or notebook to place all documents in as you collect information from physicians. You may want to write down your health insurance information, obtain cop- ies of medication lists, and memorize your social security number. This would also be a good place to jot down questions as they arise and have them prepared for the next doctor’s visit. On the following page there are some questions you may want to ask your outpatient medical team.
  • 44. 44 Questions To Ask The Doctor  Is this disease treatable or curable? _________________________________________ ______________________________________________________________  What type of treatments are recommended? ________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________  What are goals of treatment? ____________________________________ ______________________________________________________________ ______________________________________________________________  What side effects should we expect & How do we manage them? ______ ______________________________________________________________ ______________________________________________________________  How long will treatment last & how will we know if it is working? ______ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________  Do you have printed information on my disease and treatment that I can take with me? _________________________________________________ ______________________________________________________________ ______________________________________________________________  Who should we call afterhours if there is a medical emergency related to my disease? __________________________________________________ ______________________________________________________________ ______________________________________________________________  Are you able to complete FMLA paperwork for me and my family? _____ ______________________________________________________________ ______________________________________________________________ ______________________________________________________________
  • 45. 45 Accept a helping hand Find Support Having a supportive set of family members and friends around you is important. Allow others to as- sist you. It is okay to accept help. You are not expected to be able to handle your cancer journey on your own. Reach out to friends, church members, family, and neighbors for support and help. It is important that you take time doing something that you enjoy, and that allows you to relax. The Cancer Support Community at Greenville Health System offers free support groups and educa- tional programs for patients AND caregivers. On p. 45-53 you will find a list of resources that can help guide your search for support. There are also respite care services available. These services offer a trained personnel to aid with in home care responsibilities for a few hours. Use the web address below to schedule a respite ser- vice, or check p. 46-49 for other local options. http://archrespite.org/respite-locator-state-search/233-south-carolina-search
  • 46. 46 Resource For Additional In Home Help Occasionally you may need additional help/care in the home environment. Below is a list of local agencies that can help with this need. The companies listed here are not endorsed or supported by GHS Cancer Institute. This list is provided as a cour- tesy to our patients to help them access these resources more readily. This list is not all-inclusive. You may find additional companies listed in the Yellow pages under Nursing Services or Home Health Agencies. Medicare and Medicaid typically do not pay for this expense. We advise you to check with your local representative regarding private insurance policies. Always Best Care Senior Services www.alwaysbestcare.com/ *nonmedical services and free placement assistance 864-527-0464 HomeWatch Caregivers www.homewatchcaregivers. com/ greenville-anderson/greenville *nonmedical services 864-292-1101 Assisting Angels *nonmedical services 864-962-8100 Home Instead www.homeinstead.com/ *nonmedical services 864-242-2228 BrightStar www.brightstarcare.com/in-home- care-seniors-elderly/ *medical and nonmedical services 864-573-7045 Maxim Healthcare Ser- vices www.maximhealthcare.com *medical and nonmedical services 864-242-1994 ComForcare HomeCare www.comforcare.com/ *nonmedical services 864-269-5005 Med-Care www.medcareurgentcare.com 864-232-0661 Comfort Keepers www.comfortkeepers.com/ *nonmedical services 864-268-8993 MedFirst *medical and nonmedical services 864-421-0394 Comfort Max www.comfortmaxhhc.com/ *nonmedical services 864-527-0435 ResCare Homecare www.rescare.com/homecare- services/ *medical and nonmedical services 864-235-5141 Healing Hearts Care Services www.carelike.com/families 864-640-2582 Samaritan’s Bed & Bath Service www.samaritancare.com *nonmedical services 864-232-6866 Heavenly Care Services www.heavenlycareservices.com/ index.php *nonmedical services 864-233-4272 Senior Helpers www.seniorhelpers.com *nonmedical services 864-757-9862 Home Helpers www.homehelpershomecare.com *nonmedical services 864-848-1729 Visiting Angels www.visitingangels.com *nonmedical services 864-284-6370
  • 47. 47 Counseling Options Dealing with a chronic illness is not easy, and transitioning from a hospital to a home setting can be challenging. This transition could be a difficult one, for you and your family. **If you begin to experience feelings of sadness, anger, isolation, or simply need someone to listen, please utilize the list below and know that you are not alone. Anderson Mental Health Center: 200 McGee Road, Anderson, SC 29601; (864) 260-2220 Brownell Center: 701 Grove Road, Greenville, SC 29605; Service only available to GHS pa- tients Cancer Society of Greenville: 113 Mills Avenue, Greenville, SC 29605; (864) 232-8439 Cancer Support Helpline: Toll free 9am-9pm eastern, staffed by licensed mental health profes- sionals 1-888-793-9355 and a CSC Call Counselor will be happy to assist you Crisis Line: (864) 271-8888 24 hours a day GHS Cancer Institute, Center for Integrative Oncology and Survivorship (CIOS): Individual counseling with Kerri Susko LISW-CP, OSW-C; 900 W. Faris Road, 1st Floor, Greenville, SC 29605; (864) 455-1346 Greenville American Cancer Society: 154 Milestone Way, Greenville, SC 29615; (864) 627- 1903: Offers both individual and group counseling for cancer patients, caregivers, and children Greenville Mental Health Center: 124 Mallard St., Greenville, SC 29601; (864) 241-1040 (includes acute crisis services) Greenwood Mental Health Clinic: 1547 Parkway, Ste. 200, Greenwood SC, 29646; (864) 223- 8331 Greer Mental Health Clinic: 220 Executive Drive, Greer, SC 29651; (864) 879-2111 Laurens Mental Health Center: 442 Professional Park Road, Clinton, SC 29325; (864) 938-0912 Oconee Mental Health Clinic: 115 Carter Park Drive, Seneca, SC 29678; (864) 885-0157 Pickens Mental Health Clinic: 314 W. Main St., Pickens, SC 29671; (864) 878-6830 Spartanburg Area Mental Health Clinic: 250 Dewey Ave., Spartanburg , SC 29303; (864) 585- 0366 Union Mental Health Clinic: 130 Medical Sciences Drive, Union, SC 29379; (864) 427-1224
  • 48. 48 “With the new day comes new strength and new thoughts” — Eleanor Roosevelt
  • 49. 49 Local Support Groups for All Cancer Society of Greenville County: Family members and caregivers support group meets the second Thursday of each month at 3pm at the Cancer Society of Greenville County. Call (864) 232-8439 for more information. GHS Hospice of the Foothills: Caregivers support group meets the first Tuesday of each month from 3-4:30pm in the Cottingham Hospice House Chapel. The Cottingham Hospice House Chapel is located at 390 Keowee School Road in Seneca. Come in through the main entrance and the chapel is the first room to the right. Call (864) 882-8940 with questions. CARE (Come and Receive Encouragement): (864) 292-3568. Meets the second Tuesday of each month from 6-7:30pm at Brushy Creek Baptist Church; 4999 Old Spartanburg Road, Taylors, SC 29687; Christ-centered support group. Online Support Association of Cancer Online Resources (ACOR): www.acor.org. A unique collection of online communities designed to provide timely and accurate information in a supportive environ- ment. BMT-Support: bmt-support@bmtsupport.org ; (806) 798-0600; Online chat room for transplant pa- tients and caregivers. Meets Tuesdays, Thursdays, and Saturdays at 8:30pm ET Cancer Support Community: www.cancersupportcommunity.org: (1-202) 659-9709 (not toll-free); Online cancer support groups led by licensed mental- health professionals. Cancer Survival Toolbox Free Podcast: www.canceradvocacy.org/product-category/toolbox/ and also available on itunes, https://itunes.apple.com/us/podcast/cancer-survival- toolbox/id982983558?mt=2 This is a free podcast that deals with everything from understanding a cancer diagnoses to living beyond cancer and everything in between. Personal Websites Use the following website profile creators to update friends and family on you and your loved one’s journey in one location. Theses website also offer ways to manage support, receive donations, and provide educational resources. Caring Bridge: www.caringbridge.org CarePages: www.carepages.com Lots a Helping Hands: www.lotsahelpinghands.com My Cancer Circle: www.mycancercircle.lotsahelpinghands.com/caregiving/home/ My Life Line: www.mylifeline.org
  • 50. 50 Local Support Services Cancer Association of Anderson County: www.cancerassociationanderson.org; (864) 222-3500; 215 E. Calhoun St., Anderson, 29621; Financial assistance and support groups. Cancer Association of Spartanburg and Cherokee Counties: www.cancerassociation.org; (864) 582-0771; 209 E. Main St. Ste. 100, Spartanburg SC 29302. Provides financial assistance for can- cer medications, nutritional supplements, medical equipment, home care supplies, gas cards Cancer Society of Greenville: www.cancersociety.org; (864) 232-8439; 113 Mills Ave., Greenville, SC 29605. All services are free; no appointment necessary. Minimal financial assistance, medical and personal care equipment, wigs, prosthetics, individual and group counseling, educational mate- rials Greenville County American Cancer Society: www.cancer.org; (1-866) 227-4395 or (864) 627- 1903; 154 Milestone Way, Greenville, SC 29615. No appointment necessary. Referrals, support, Road to Recovery transportation program, Reach to Recovery. Union County Cancer Service: (864) 427- 8752; 117 Fant Lane, Union, SC 29379-1901. Provides financial assistance for medications etc. (minimal assistance monthly while in treatment), nutritional supplements, medical equipment, wigs. National Support Services 4th Angel: www.4thangel.org; (1-866) 520- 3197; One-to-one confidential outreach and support from a mentor, opportunity for patients and caregivers to connect with someone who went through similar experience Administration on Aging: www.aoa.gov; (1-800) 877-8339; (toll-free) Provides information, assis- tance, individual counseling, organization support groups, caregiver training, respite care, and sup- plemental services. American Cancer Society: www.cancer.org; (1-800) 227-2345; ACS provides cancer information and support to patients, families, and caregivers. It also supports research, community education, and advocacy and public policy issues. American Cancer Society (ACS) Road to Recovery: (1-800)-ACS-2345; Provides rides to and from medical appointments through a network of volunteer drivers. American Psychosocial Oncology Society (APOS) Help Line: (866)-276-7443; Connects cancer patients, their caregivers and advocacy organizations with psychiatrists, psychologists, nurses, so- cial workers, and counselors skilled in the management of cancer-related distress.
  • 51. 51 Support Services Continued Angel Flight: www.angelflight.com; (1-819) 749-8992 (not toll-free); Free air transportation for any legitimate, charitable, medical-related need. Transportations is also arranged for those who are fi- nancially distressed or in a time-critical, non-emergency situation because of medical condition. CancerCare: www.cancercare.org; (1-800) 813-4673; CancerCare provides free, professional sup- port services to anyone affected by cancer: people with cancer, caregivers, children, loved ones and the bereaved. CancerCare programs– including counseling, education, financial assistance and practical help— are provided by trained oncology social workers and are FREE of charge. Cancer Hope Network: www.cancerhopenetwork.org; (1-800) 552-4366; Cancer Hope Network matches family members and caregivers with trained volunteer caregivers who themselves have un- dergone a similar experience. Caregiver Action Network: www.caregiveraction.org; (202) 772-5050; Supports and educates family caregivers, helps them connect with other caregivers; and helps them become their own advo- cates. Membership is free. Corporate Angel Network: (1-914) 328-1313 (not toll-free); Westchester County Airport, White Plains, NY 10604. Matches patients with cancer in need of travel with private corporate jet schedules Empowering Caregivers: www.care-givers.com; Education and information on many caregiver is- sues, links to weekly chats, free biweekly newsletter, journaling opportunities. Family Caregiver Alliance (FCA)/National Center on Caregiving: www.caregiver.org; (1-800) 445-8106; Provides information and resources for long-term caregiving, including practical skills, how to hold family meetings, decision-making, assistive equipment, online support, and more; some info in Spanish and Mandarin FORCE (Facing Our Risk of Cancer Empowered): www.facingourrisk.org; National nonprofit dedi- cated to improving the lives of individuals and families affected by hereditary breast and ovarian can- cer. If you would like genetic testing or would like more information contact one of GHS’ genetic counselors, Ledare Finley; (864) 455-5836 Free Medicine: www.freemedicineprogram.org: (1-573) 996-333 (not toll-free); Assists uninsured and under insured individuals to get their medication free or at low cost Gilda’s Club: www.gildasclub.org; (1-888) 445-3248; Gilda’s Club provides social and emotional support for patients, families, and friends.
  • 52. 52 Support Services Continued Healthwell Foundation: www.healthwellfoundation.org; (1-800) 675-8416; Addresses the needs of individuals who cannot afford their insurance co-payments, premiums, co-insurance or other out-of- pocket healthcare costs. Help Rx: www.helprx.info/. Mission is to provide the best markdowns on prescription drugs on the web. A free service, discounts are good at virtually every pharmacy in the U.S. Imerman Angels: www.imermanangels.org; (1-877) 274-5529; Imerman Angels partners individu- als seeking cancer support with a “Mentor Angel.” These one-on-one relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely famil- iar with the experience. LogistiCare: (1-866) 910-7688; Transportation for Medicaid patients to and from medical appoint- ments. Rides must be arranged 3 days before appointment. Medicare: Caregiving: www.medicare.gov/campaigns/caregiver/caregiver.html Fact sheets and information for caregivers. Choose “What caregiver support is available in my area?” for information on the Medicaid Cash and Counseling program that can pay some caregivers for their time. Men Against Breast Cancer (MABC): www.menagainstbreastcancer.org; (1-866) 547-6222; Pro- vides services to support husband/partner of women with breast cancer. Mothers Supporting Daughters with Breast Cancer (MSDBC): www.mothersdaughters.org; (1- 410) 778-1982 (not toll-free); Free support services to help mothers who have daughters with breast cancer National Alliance for Caregiving (NAC): http://www.caregiving.org; A national coalition of organiza- tions focused on caregiving issues; provides www.familycaregiving101.org ; a resource for answers, new ideas, and helpful advice for caregivers. National Association of Area Agencies on Aging/ Eldercare Locator: www.eldercare.gov; (800) 677-1116; Nationwide directory assistance service designed to help older person and caregivers fins local resources for support. Areas of support include transportation, meals, home care, housing alter- natives, legal issues, and social activities. National Family Caregivers Association (NFCA): www.thefamilycaregiver.org; (1-800) 896- 3650; Supports, empowers, educates and speaks up for the men and women who care for chronical- ly ill, aged or disabled loved ones.
  • 53. 53 Support Services Continued National Respite Locator Service: www.respitelocator.org; Helps caregivers and professionals find respite services in their state and local areas so that they can take short-term breaks from care- giving. NeedyMeds; www.needymeds.com; Medical assistance programs from drug companies, Pa- tients cannot usually directly apply to these programs. Ask a doctor, nurse, or social worker to con- tact NeedyMeds on your behalf. Patient Advocate Foundation: www.patientadvocate.org; (1-800) 532-5274; Provides educa- tion, legal counseling, and referrals to cancer patients and survivors. Specializes in matters of man- aged care, insurance, financial hardships, job discrimination, and debt crisis Simplefill: (1-877) 386-0206; Help uninsured and under-insured Americans afford their prescribed medications. Strength for Caring: www.strengthforcaring.com; First national program for cancer caregivers to address both the physical and psychological heath needs of the patient and caregiver; free work- shops, caregiver tips and resources. The Tigerlily Foundation: www.tigerlilyfoundation.org; Educates, empowers, advocated, supports and inspires women affected by breast cancer. Provides Practical services to assist patient and family, such as financial assistance, chemo buddy program, and support group. Well Spouse Association (WSA): www.wellspouse.org; (800) 838-0879; A national, non-profit membership organization (dues are charged) which provides emotional support to spouses and partners of chronically ill and/or disabled people. Helps with setting up calendars to organize help from others. Also offers Regional Respite Weekends for spousal caregivers The Wellness Community: www.wellness-community.org; (1-888) 793-9355; National organiza- tion providing support groups, stress reduction, cancer educational workshops nutritional guidance, exercise sessions, and social events.
  • 54. 54 Caregiver Smart Device Apps Pocket Cancer Care Guide: Available for apple products. Free. CareZone: Available for apple and android products. Free. iCANcer: Available for apple products. CancerSupportSource: Available for apple products . Free. CancerCoach: Available for apple and android products. App is de- signed for breast and colon cancer patients. Free.
  • 55. 55 Bone Marrow Support Services Be the Match®: (612) 362-3410; (888) 999-6743 (toll-free); Email: patientin- fo@nmdp.org ; Information about caring for a transplant patient or survivor. Bone Marrow Foundation: www.bonemarrow.org; (1-800) 365-1336; Provides fi- nancial assistance to bone marrow transplant patients ; application is online, requires MD and social worker assistance to complete can apply up to 6 months post- transplant. BMT InfoNet Caring Connections Program: (847)-433-3313; (888)-597-7674; Email: support@bmtinfonet.org; One-on-one peer support for patients and families going through a bone marrow, stem cell or cord blood transplant. Connect by phone or email with another person who had the same diagnosis, type of transplant and life situation. Blood & Marrow Transplant Information Network (BMT InfoNet): (847) 433-3313; (888) 597-7674 (toll-free); Email: help@bmtinfonet.org; Print and online information about preparing to care for a transplant patient and caring for transplant survivors. Al- so webcasts about caregiving. CancerCare, Inc.: (800) 813-4673 (toll free); Email: info@cancercare.org; Podcasts and online and telephone support groups for caregivers of cancer patients. Leukemia, Lymphoma Society: (803) 749-4299; South Carolina Chapter, 1247 Lake Murray Blvd., Irmo SC 29063 Leukemia and Lymphoma Society: www.leukemia-lymphoma.org; (1-914) 949- 5213; Financial assistance and provides one-on-one support. Local chapter: (864) 370-2402; 1990 Augusta St. Greenville, SC 29605 Lymphoma Foundation of America: www.lymphomahelp.org, (1-800) 385-1060; One-on-one counseling via phone, assistance with 2nd options, finding specialists, ed- ucation, and support. Lymphoma Research Foundation: www.lymphoma.org; (1-800) 500-9976; Focus- es on Hodgkin and non-Hodgkin lymphoma, financial assistance program, support network with one-on-one peer support Max Foundation: www.themaxfoundation.org; (1-888) 462-9368; Support for blood and rare cancer patient; international helpline for patients, families, and caregivers with leukemia; assistance to obtain Gleevec and Tasigna through Novartis. My Med Schedule: (800) 543-2230; Website and mobile device app for tracking medication schedule.
  • 56. 56 Bone Marrow Support Services National Bone Marrow Transplant Link: (248) 358-1886; (800) 546-5268 (toll-free); Email: info@nbmtlink.org; Peer support and booklet on caring for a transplant patient. National Lymphedema Network (NLN): www.lymphnet.org; (1-800) 541-3259; Pro- vides education, management and prevention information to lymphedema patients and the general public National Organization for Rare Diseases: www.rarediseases.org; (1-202) 588-5700; Financial assistance for Hodgkin lymphoma and peripheral T-cell lymphoma; online patient communities information center Patient Against Lymphoma: www.Lymphoma.org: (1-610) 346-8419 (not toll-free); Voices patient perspectives and provides evidence –based education, support, and links to clinical trials specific to lymphedema
  • 57. 57 Make sure you take time for you, because with all your hard work this is the best gift you can give to yourself. ~ April Peerless