Health Datapalooza 2013: Dwayne Spradlin


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Health Datapalooza IV: June 3rd-4th, 2013
Opening Remarks and Health Data Consortium Update
Dwayne Spradlin, Chief Executive Officer, Health Data Consortium

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  • Thank you, Thomas. And let me join in Welcoming everyone to Day Two of Health Datapalooza.My name is Dwayne Spradlin and I am the CEO of the Health Data Consortium, a Public Private Partnership, originally founded by the Robert Wood Johnson Foundation, Institute of Medicine and the U.S. Department of Health and Human Services.We are the organizing body behind the Health Datapalooza, now in its fourth year, an event which has played a singular role in highlighting the tremendous potential of health data and what is possible when different areas of health care work together with a common vision.This event, Health Datapalooza, is a truly unique celebration of health data, innovation, and the innovators that make it all possible. This year is the biggest and best yet -- with more than 2,000 registered -- and comes with a fantastic array of speakers, learning opportunities, competitions, and programs. How could you not be impressed yesterday by the brilliant speakers, exciting app demos and panels, and the sheer diversity of people you surely met in the hallways or over coffee. And among them are patient groups, policy makers, biotech companies, venture capitalists, data scientists and many, many more. And this is a diverse group, representing every corner of the health care ecosystem and also a cross section of America.I would like to particularly thank:Secretary Sebelius and Todd Park for their inspiring leadership in this area.British Secretary of State for Health Jeremy Hunt for bringing his insight and an international perspective to the program this year.Bryan Sivak, and Greg Downing for their unwavering support of health data and for supporting the Health Datapalooza series from the very beginning.Bob Kocher and Steve Krein for their tireless work as Co-Chairs of the Health Datapalooza Planning Committee. And Dick Foster, Dean of the Health Datapalooza Business School.And all the volunteers, partners, and others that helped bring Health Datapalooza IV to life.
  • At this time let me also acknowledge the extraordinary generosity of Health Datapalooza IV’s Lead Sponsors: athenahealth, the Heritage Provider Network, and VitalSpring Technologies, along with our Challenge Sponsor Sanofi.This event would not be possible without them, and we are incredibly grateful for their support. And of course, we also extend our thanks to our many other sponsors and exhibitors, many of whom you are learning about here at the event and in the exhibition halls.This morning, I want to share with you my thoughts on health data and to introduce you more formally to the Health Data Consortium.
  • Perhaps yesterday’s fantastic keynotes and sessions struck a number of chords for you as they did for me. I took particular notice:When Secretary Sebelius talked about the importance of innovation and health data in implementation of health care reform in order to improve access and care for all Americans.Jonathan Bush’s comments really spoke to the importance of disruptive innovation and the involvement of the private sector if we are to improve health care.And then of course the application demonstrations, the codeapalooza, and the challenge competitions were an inspiration, showcasing what is truly possible when we put our creativity and ingenuity toward solving vitally important problems.This all reminds me of why we are all here.Putting data to work to improve health care will require new thinking, new innovation, and all the tools in our arsenal. The U.S. spends nearly $3 Trillion annually on health care or nearly one fifth of the gross domestic product, more than any country in the world. Unfortunately, in areas from mortality to morbidity, the U.S. ranks well down the list compared to other advanced nations. We CAN do better and we MUST do better.
  • By now you’ve all heard our rallying cry to liberate health data. We need to liberate the data and unlock the insight and knowledge in the systems today. And we need to create new routes to data and understanding for the future. And it is imperative that we do all of that while protecting the patients’ rights with respect to their health information. We must be driven by what is important to patients, and maintaining that trust and responsibility is vital.Now -- while substantial gains are possible by unshackling health data and putting it to work -- it will not be easy. The challenges we need to overcome are significant. Our health data is trapped in institutions utilizing dated and inadequate technology. Existing policies and regulations may limit access or even discourage the sharing of data. And even if the data is accessible, it may be poorly described, inaccurate, or out of date. And neither culture nor technology change is easy as we all know too well. We have our work cut out for us.
  • Fortunately, improving health and our health care system is a national priority. The Affordable Care Act, Meaningful Use, and other realities of health care reform have created a forcing function. We are seeing the strains on the system that are in fact necessary to establish the urgency, focus the priorities, and catalyze the change. The benefits will be impressive.McKinsey estimates better outcomes and $300BB-$450BB in costs savings possible from better use of data and health IT. Now we need to capture those benefits and we can only do it by working together.
  • It's my privilege to welcome you to the Health Data Consortium.I’d like to introduce you to our organization and our mission with this brief video:[**PLAY VIDEO**]…As you heard. Our end game is a robust health care ecosystem all powered by health data to improve health, health care, accessibility, and affordability for all Americans.But we know it can not happen soon enough. Our goal is quite simply to accelerate the use and benefits of health data by years.
  • And we are already busy at work...The Consortium has a number of programs already under way. One in particular that I wanted to mention is the Health Data Bill of Rights that we’ve been developing, along with members and others.Our goal is to establish overarching principles that recognize the imperative to put data to work for better health and the need to do so in a responsible way that respects individual privacy, whileembracing the role of companies, foundations, and government. We all have a role to play. We intend for these principles to provide the foundation for our work, from developing responsible information privacy policies, to implementing accepted standards for data usage, to developing new collaborative business models. Whilestill in draft, they already represent an impressive groundwork between contributors and stakeholders across the ecosystem. We invite you to visit the HDC website to learn more and to share with us your thoughts and input.
  • To achieve our goals, it will take all of us. We are building a Consortium of members that are committed to putting health data to work. You can see here some of those already standing with us including the three newest members of the Health Data Consortium.I am pleased to announce our new members: athenahealth, GE Healthymagination and Sanofi. We welcome you to the movement and look forward to partnering with you in this important undertaking.
  • And we know we must work nationally and locally. That is why we created the Health Data Consortium Affiliates Network.We are already working with seven passionate and committed organizations from around the country to ensure that the liberation and use of health data is permeating the system and reaching real institutions and patients. And together with the affiliates, we are alreadyactivating a truly grassroots core of innovators around health data with local hack a thons and other exciting programs.
  • As we said, our vision comes with urgency. Our goal is to have impact, not in decades, but in years. In fact, we hope to report considerable progress by the Consortium at the next Health Datapalooza, this time next year.And we hope we can count on all of you to stand behind us in this important cause. This is about remaking a health care system for us and our children … and the stakes could not be higher. If you have an interest in the Health Data Consortiumand joining with us, we’d love to see each and every one of you at our booth. And of course feel free to contact me or the team at any time.
  • We are already looking ahead. I am pleased to announce that Health Datapalooza 2014 will be held June 1st through 3rd here in Washington, D.C. Please be sure to mark your calendars.With that, let me thank you again for joining us at this wonderful event and for all that you are and will be doing to truly bring health data to life in this country and to put it to work.I encourage you to take full advantage of Day Two from the learning to the networking and to all the other activities and programs scheduled for today.It is now my privilege to announce the establishment of the Health Data Liberator Award. This award will be made every year at Health Datapalooza and will honor the true leadership and heroic efforts to liberate, promote, and use health data.  And to introduce the very first award, it is my pleasure to introduce Devin McGraw, the Director of the Health Privacy Project at the Center for Democracy and Technology and a member of Health Data Consortium’s Advisory Board. Thank you.
  • Health Datapalooza 2013: Dwayne Spradlin

    1. 1. We thank oursponsors fortheir generosityand leadership.Lead Sponsors ………..…Challenge Sponsor …………
    2. 2. MEMBERS
    3. 3. Health Data ConsortiumAffiliates NetworkA key initiative to support andcoordinate efforts oforganizations interested in theeffective use of health data.AFFILIATES
    4. 4. Mark your calendars …for next year’sHealth DatapaloozaJune 1-3, 2014