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RNIB Cymru
Manifesto 2016
National Assembly Election
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 1 08/01/2016 12:38
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 2 08/01/2016 12:38
Contents Page
Foreword					4
About RNIB Cymru			 5
Key Statistics				6
RNIB Calls to Action
for 2016 and beyond		 8
Priority Two:
Education	      19
Priority One:
Health and care
services	10
Ophthalmology services	 12
Support at the point
of need	 14
Rehabilitation	15
Priority Three:
Independent Living	   22
Transport	   24
Tackling poverty	   26
Employment	   29
Accessible
healthcare standards	 32

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Foreword
Every day in Wales five more
people begin to lose their sight.
Sight is the sense we fear losing
most. In the next 25 years the
number of people living with
sight loss will double.
Sight loss affects every aspect
of your life, from accessing
education to finding a job and
from moving around your own
home to catching the bus to
your local supermarket. Much
of our world is set up for people
who can see where they are
going and even with the advent
of futuristic technology, cultural
understanding of what it is like
to live with sight loss is not
adequate.
Through the Wales Vision Strategy
Implementation Group and the
Welsh Government’s Eye Health
Delivery Plan, we want this next
term in the National Assembly
to ensure that blind and partially
sighted people have access to
support and services to remain
independent in all aspects of their
lives. We want people to receive
the support they need in the eye
clinic at the point of need and we
want to make sure that all people
in Wales look after their eyes.
More than 1 in 10 of the
population has never had their
eyes tested. Public transport
remains a key barrier for people
with sight loss, with inaccessible
services and a lack of support.
The hospital eye service is
struggling to meet the demand
and treat patients with conditions
which require regular treatment.
RNIB Cymru is campaigning for
the next Government to recognise
the challenges that remain for
people in Wales with sight loss.
There are many opportunities for
the next Government to lead the
way in the UK in eye health and
equality policy.
We hope you will support us on
this journey.
Ceri Jackson
Director, RNIB Cymru
4 Welsh National Assembly Manifesto 2016
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About RNIB Cymru
RNIB Cymru is Wales’ largest
sight loss charity. We provide
assistance through education,
transition and employment
services; specialist advice
through our welfare rights,
Online Today and Visibly Better
services; and emotional support
through our eye clinic liaison
service (ECLO) to people living
with sight loss across Wales,
as well as campaigning for
improvements to services
and raising awareness of the
issues facing blind and partially
sighted people.
We are passionate about eye
health and improving outcomes
for people with sight loss, such
as ensuring that preventable
blindness is eradicated; people
with sight loss have the same
opportunities in education
and employment and can live
independently.
RNIB Cymru works in partnership
with public and third sector
bodies across Wales. We are
funded to deliver projects and
services to support blind and
partially sighted people across
Wales by Welsh Government,
The Big Lottery and through
European funding, as well
as charitable grants such as
Children in Need. We are also
funded to campaign on behalf
of blind and partially sighted
people and raise awareness of
the issues they face.
We are the secretariat for the
Cross Party Group on Vision
in the National Assembly for
Wales, and we are part of the
Third Sector Additional Learning
Needs Alliance (TSANA). We also
campaign for local authorities
to adopt our street charter and
create clear and accessible
streets for blind and partially
sighted people.
Our Director chairs the Wales
Vision Strategy. We are members
of and work closely with the
steering groups which deliver
the Eye Health Care Delivery
Plan, the Welsh Ophthalmology
 5
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Board and the Health Board Eye
Care groups. Our Director, Ceri
Jackson is also Chair of Age
Alliance Wales.
We campaign on behalf of blind
and partially sighted people
for three main outcomes: that
everyone should have access to
timely treatment, that blind and
partially sighted people should
be able to live independently
and that they have equal access
to opportunities. Our manifesto
for the 2016 National Assembly
election is framed around these
three outcomes.
Key Statistics
•	 An estimated 110,000 people
in Wales have sight loss
•	 The number of people with
sight loss is expected to
double over the next 25 years
•	 1 in 9 people over the age of
60 is living with sight loss
•	 1 in 5 people aged 75 or over
in Wales has sight loss, this
rises to 2 in 5 for people aged
85 and over [1]
Health and social care
An investment of £1 in the early
intervention ECLO (eye clinic
liaison officer) service brings a
return of £10.57 to health and
social care budgets in Wales [2].
Every year in Wales half of those
over 80 will have a fall in their
home [3]. Economically in Wales
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falls are estimated to directly
cost the NHS £67 million per
year [4].
Not all of these falls are related
to sight loss; however the
Thomas Pocklington Trust
reported in 2013 [5] that those
with sight loss are almost twice
as likely to fall and be injured as
sighted people.
It is often the case that for people
who are developing sight loss
conditions, such as glaucoma
or wet age-related macular
degeneration, one of the eyes will
make up for the impairment and
the individual will not be aware
that their sight has deteriorated
as badly as it has, until a fall or
other accident takes place.
In October 2013 we carried
out a survey which found that
in at least five local authority
areas, people were waiting over
24 weeks for rehabilitation
services [6].
Depression and
poverty
Older people with sight loss are
almost three times more likely
to experience depression than
people with good vision [7]
and the British Medical Journal
reports that sight loss is one of
the top three causes of suicide
among older people [8].
Nearly half of blind and partially
sighted people feel ‘moderately’
or ‘completely’ cut off from people
and things around them [9].
Education and children
Of the 110,000 people in Wales
living with sight loss, this
includes an estimated 1,935
children and young people aged
0-25 years.
Children with sight loss are at risk
of poor outcomes across a range
of social and emotional wellbeing
indicators.
 7
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Priority One: Health
and care services
•	Ophthalmology
targets for treatment
to be intelligent
targets.
•	Sustainable funding
for adequate provision
of Eye Clinic Liaison
Officer Services in all
Local Health Boards.
•	Ensure rehabilitation
services are free
and available in an
appropriate timescale.
RNIB Calls to Action
for 2016 and beyond
RNIB Cymru calls upon the next
Welsh Government to act to
improve the lives of blind and
partially sighted people and
those at risk of sight loss and
adopt these policies:
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Priority Two: All blind
and partially sighted
children have timely
and appropriate
access to a Qualified
Teacher for Visual
Impairment (QTVI)
•	The mandatory
inclusion of QTVI
training in the code
of practice for special
educational needs.
•	The Welsh
Government to
create a sustainable
training route for
the mandatory
qualification that takes
into account the Welsh
education context,
language and culture.
•	A requirement on
local authorities and
Estyn to monitor the
level of QTVI provision
within the inspection
framework.
Priority Three:
Independent Living
•	Public transport
information is
accessible with audio
announcements on
buses, coaches and
trains.
•	Support for anyone
with sight loss to
access the welfare
benefits they are
entitled to.
•	Tackling poverty
through benefits
uptake and
employment.
•	A commitment
to accessible
information,
communication and
the built environment.
•	Improve infrastructure
and remove barriers to
digital inclusion.
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Priority One:
Health and
care services
What RNIB Cymru are calling for in 2016
National Assembly Elections:
•	 ophthalmology targets for treatment to
be intelligent targets
•	 sustainable funding for adequate
provision of Eye Clinic Liaison Officer
Services in all Local Health Boards
•	 ensure rehabilitation services are free
and available in an appropriate timescale.
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Ophthalmology
Services
RNIB Cymru believes that
everyone in Wales has a right
to timely access to high quality
specialist care including
cataract surgery and NICE
approved treatments for
degenerative eye conditions.
At present the Referral to
Treatment Time target (RTT)
only focuses on the initial
diagnosis and first treatment.
There is no target for follow up
eye appointments, and therefore
the risks to the patient cannot
be adequately managed. This is
why an RTT target which does
not focus on the clinical time
frame is potentially damaging as
it drives attention and resources
away from ensuring timely follow
up appointments.
As most sight loss conditions are
degenerative, but also treatable
and blindness preventable, a
clinically led target is required
with follow up treatments built
in. We believe that targets which
are intelligent and based on
need within the new outcome
frameworks for the NHS would
help alleviate a lot of the capacity
crisis, enabling more people to
keep their sight for longer.
Improved outcomes in
ophthalmology will lead to
better health outcomes overall
and achieve savings in other
areas of the health service.
For example, almost half of all
falls experienced by blind and
partially sighted people were
found to be attributable to their
sight loss [10].
The next Welsh Government
must recognise that
referral to treatment times
in ophthalmology are not
appropriate for the specialty.
They must develop and
implement a new system of
monitoring and running an
appointment system.
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Support at the point
of need
Receiving the news that you
are losing your sight can be
devastating. This is why timely
support in the eye clinic is
integral to ensuring that people
are signposted to services to
find out how they can live a
full and happy life after that
diagnosis. The Eye Clinic Liaison
Officer Service (ECLO) has also
been proved to save health and
social care budgets £10.57 per
patient.
ECLOs work in eye clinics, and
offer support to people with
sight loss at the point of need.
They are recognised by the Royal
College of Ophthalmologists as an
integral part of a minimum service
team within the eye clinic. The
presence of an ECLO improves
patient experience and supports
improved long-term outcomes
for patients.
Without the right support, the
impact of sight loss can have a
major effect on other areas of a
person’s life, such as falls, isolation
and on the ability to stay in work.
RNIB supported by the Big Lottery,
currently funds five ECLOs in four
Health Boards in Wales.
In an RNIB published study [11],
carried out at Singleton Hospital
in Swansea, it was found using
social return on investment
(SROI) methodology, that an
investment of £1 in the early
intervention ECLO service brings
a return of £10.57 to health and
social care budgets in Wales.
This service is a positive source
of timely emotional and practical
support, bridging the gap
between Health and Social Care.
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Health Boards across Wales
already recognise how important
this service is for patients.
For this vital service to continue,
sustainable funding needs to
be a priority for the next Welsh
Government.
Other benefits include:
•	 increased job retention
•	 reduced fear of falling
•	 increased independence
at home
•	 increased mental
wellbeing
•	 fewer follow-up clinic
appointments.
Rehabilitation
The impact of sight loss is
often not understood, both in
terms of how it affects daily
living and in its psychological
impact. The support of
specialist rehabilitation officers
is crucial in maximising the
independence of people with
sight loss.
In April 2016 the Social Services
and Well-being (Wales) Act
2014 will come into force. If its
primary aims are to be realised
by ensuring that people receive
care and support which is
personalised and promotes
wellbeing, then blind and partially
sighted people must be assessed
by trained and experienced
professionals. A specialist
assessment will also mean that
assessors will be able to support
blind and partially sighted people
to understand what support they
require to get the outcomes that
they need and to assess fairly
whether or not their needs meet
eligibility criteria.
Health and care services 15
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It is important that the needs
of blind and partially sighted
people are reflected if the Social
Services and Wellbeing (Wales)
Act’s regulations and guidance
are to be fit for the future. Sight
loss impacts on every aspect
of a person’s life: their physical
and mental health, their ability
to live independently, their
ability to find or keep a job, their
family and social life. Support
from social services is crucial in
promoting the wellbeing of blind
and partially sighted people. It is
therefore vital that the new Act
and regulations such as charging
for certain preventative services,
does not have an adverse impact
on people with sight loss and are
sustainable to meet the expected
increase in numbers.
Rehabilitation is both a service
which helps a person with sight
loss to adapt to the world around
them, and a preventative service.
The specialist rehabilitation
service allows a partially sighted
person to re-learn skills they need
to live an independent life.
To allow blind and partially
sighted people the best chance
of living independently, the next
Welsh Government must ensure
that rehabilitation support is
not a postcode lottery, and not
affected by changes to social
service provision.
Health and care services 17
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Priority Two:
Education
What RNIB Cymru are calling for in the 2016
National Assembly Elections:
All blind and partially sighted children have
timely and appropriate access to a Qualified
Teacher for Visual Impairment (QTVI)
•	 the mandatory inclusion of QTVI training in
the code of practice for special educational
needs.
•	 the Welsh Government to create a
sustainable training route for the mandatory
qualification that takes into account the
Welsh education context, language and
culture.
•	 a requirement on local authorities and Estyn
to monitor the level of QTVI provision within
the inspection framework.
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80 per cent of learning is visual
for children who have full sight.
It is essential that the needs of
students with sight loss who are
in education are recognised and
that there is specialist support
in place. The potential impact of
even a relatively moderate visual
impairment is significant, and
schools to universities need to
consider a range of adjustments
to ensure that visually impaired
students have equal access to
learning.
As children with sight loss learn
differently it is vital that specialist
teachers who understand this are
available to support teachers and
learners across Wales. Research
undertaken by RNIB Cymru
has shown that the number of
teachers holding the teaching
qualification for this specialty
has slowly been decreasing as
teachers get closer to retirement
age and are not replaced.
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The qualification for teaching
children with sight loss has been
made mandatory in England. The
only university which currently
provides the course in the UK is
in England (Birmingham) and is
oversubscribed, which means
that Welsh teachers are not given
priority to access the course. It is
also vital that school inspection
regimes are required to monitor
the provision of specialist support
across Wales.
It is clear that the right support
in schools is necessary to ensure
that children with sight loss are
not left behind and are able to
develop at the same rate as
their sighted peers, with equal
opportunities and outcomes.
We believe that the next Welsh
Government must commit
to introducing the Additional
Learning Needs Bill in the next
Assembly and introducing it into
law. It is vital that part of the next
Welsh Government’s Programme
for Government commits to
ensuring that blind and partially
sighted children are supported in
their learning.
Education 21
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Priority Three:
Independent
Living
What RNIB Cymru are calling for in the 2016
National Assembly Elections:
•	 public transport information is accessible with
audio announcements on buses, coaches and
trains
•	 support for anyone with sight loss to access
the welfare benefits they are entitled to
•	 tackling poverty through benefits uptake and
employment support services
•	 a commitment to accessible information,
communication and the built environment
•	 improve infrastructure and remove barriers
to digital inclusion.
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Transport
Getting out and about can be
a daunting challenge. All blind
and partially sighted people
should be able to get around
independently in safe public
environments, with accessible
timetables, announcements and
better training for staff on these
services.
Accessibility on public transport
is one of the most persistent
topics raised by our members.
In partnership with Guide Dogs
Cymru and with funding from the
Welsh Government we launched
a guide to making bus services
more accessible for people with
sight loss in January 2015 to try
and address these issues.
From research carried out to
inform our guide “Get on Board”
[12] we found there were many
issues blind and partially sighted
people faced when accessing
public transport. Incidents such
as bus drivers being rude to
partially sighted passengers who
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mistakenly pulled over the wrong
bus as it was too difficult to make
out the number in time.
Other incidents included drivers
finding audio announcements
annoying and turning them off,
and drivers who were unable to
assist the passenger with finding
the right bus stop.
Often a blind or partially sighted
person will learn a route to enable
them to live independently. If a
bus driver refuses or forgets to
help them find this stop, or turns
off audio announcements, people
can very easily end up in the
wrong place and may no longer
be able to travel independently.
In rural areas blind and partially
sighted people rely on public
transport that is often old, with
bus stops that have almost no
information. Any information that
is there is often out of date or
too small and weather-beaten
to easily access. Rural services
are essential to local people, and
especially to blind and partially
sighted people who cannot drive.
Funding for these services must
be protected and enhanced.
In the next Assembly the Welsh
Government will have control of
the new rail franchise, and the
provisions in the draft Wales
Bill also contains powers over
bus regulation for the Welsh
Government.
RNIB Cymru believes the Welsh
Government should take this
opportunity to ensure that rail
and bus services are fit for
purpose. We believe the next
Welsh Government must commit
to holding companies which run
these vital services to account.
These opportunities must be
used to build a more integrated
and inclusive approach to public
transport, with all current bus
and rail rolling stock required
to be upgraded and audio
announcements to be phased in
on all new machines.
Independent Living 25
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Tackling poverty
People with a disability of any
kind are around twice as likely
as non-disabled people to live
in a low income household [13].
Often blind and partially sighted
people do not claim the full
support they are entitled to,
which can include benefits,
advice and information. RNIB
Cymru believes more support
needs to be provided by the
next Welsh Government,
working closely in partnership
with the UK Government to
ensure that blind and partially
sighted people receive the
services they are entitled to.
The Centre for Research and
Social Policy at Loughborough
University has estimated that
unmet costs faced by blind
and partially sighted people,
excluding personal assistance
costs, amount to £200 per week
[14]. Extra costs associated
with living with sight loss include
higher utility bills, equipment to
live more independently, taxis etc.
Evidence from RNIB Cymru’s
specialist Welfare Rights Advice
Service shows that over 60
per cent of the 1,475 cases
seen in 2013/14 alone were
under-claiming their benefit
entitlement. Disability Wales’
2013 report showed there were
significant barriers for people
with sight loss claiming their full
benefits entitlement as a result
of not understanding what their
entitlement is and not being able
to access advice and support
that meets their needs.
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In 2013/14 RNIB Cymru’s
specialist welfare rights
service secured £3,463,656 in
under‑claimed welfare benefits
and backdated payments for 896
blind and partially sighted people,
an average increase of £63.45
per week per successful outcome.
The new service launched in
Bangor in February 2015 will help
over 5,103 people over the next
two years and nine months and
an additional £11,992,050 of new
income brought into Wales which
would otherwise would not be in
the Welsh economy.
People with sight loss face
a complex set of barriers to
accessing information, advice,
guidance and support on welfare
rights and other issues such
as access to public services.
These barriers include a difficulty
in accessing the written and
spoken word; a lack of accessible
information; a lack of confidence
to ask for assistance; and service
providers lacking understanding
of their needs, which commonly
results in disengagement
and isolation. This serves to
compound the already isolated
and lonely experience of blind
and partially sighted people, who
already find the communities
they live in challenging, and often
frightening, places. A report by
the Independent Advice Providers
Forum in Wales [15], interviewed
around 600 service users across
Wales. The key findings of the
consultation were that there was
a need for services to have the
service user at its centre and to
be flexible, as well as considering
the impact of Welfare Reform.
Independent Living 27
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The Impact of
Welfare Reform
Welfare reform is creating
additional difficulties and
anxieties for people with sensory
loss. Disability Wales’ report
[16] noted that disabled people
across the UK will bear the brunt
of the cuts to the welfare budget,
with disabled people in Wales
being particularly hard hit.
Barriers include:
•	 lack of information in
accessible formats
•	 mobility and access to
services is extremely difficult
•	 even if a person is able to
find out about benefits, the
completion of forms and
follow up documentation is
often not possible
•	 questions are aimed at
physical rather than sensory
disabilities
•	 people often say they don’t
need any help for fear of losing
their independence.
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Ensuring that services are
accessible to blind and partially
sighted people will contribute
extensively to tackling poverty
in Wales. The current Welsh
Government has the Tackling
Poverty Action Plan, Framework
for Action on Independent Living
and the Strategy for Older People
in Wales 2013-2023. Adopting a
programme such as RNIB Cymru’s
specialist Welfare Rights service
would help meet the aims and
objectives of all three.
RNIB Cymru calls upon the next
Welsh Government to commit to
working with the UK Government
on how advice, support and
information is supplied to blind
and partially sighted people to
ensure that welfare benefits do
not stay unclaimed.
Employment
Blind and partially sighted
people are significantly less
likely to be in paid employment
than the general population
or other disabled people [17].
Only one in three registered
blind and partially sighted
people of working age is in paid
employment. They are nearly
five times more likely than the
general population to have had
no paid work for five years. In
a 2012 survey carried out by
NatCen and RNIB, people with
sight loss of working age were
much more likely than those
with no impairment to face great
difficulty making ends meet [18].
Employers may need to make
adjustments to support
employees with sight loss, but
often those with sight loss do
not need major adjustments
made in their workplace. Often
any specialist equipment needed
can be provided by Access
to Work, a UK Government
programme, but many people
Independent Living 29
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with sight loss do not know that
this provision is available and
the process of securing and
receiving this equipment can
be very slow. There is very little
provision through work choice
or work programme to provide
specialised knowledge and
support to those who are over the
age of 25 with sight loss.
It can be difficult for young people
to make the transition between
learning and employment, or for
those developing sight loss or
having lived with a condition all
their lives to stay in employment
or have access to work. RNIB
Cymru believes that blind and
partially sighted people need to
be supported to work. There are
just over 4,000 registered blind
and partially sighted people of
working age in Wales, compared
with just over 84,000 in the
UK overall.
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Employment support
services
Support for disabled people
to find and stay in work is
typically provided via one of
several schemes funded by
the Department for Work and
Pensions. However, there are
many support programmes
which are supporting blind and
partially sighted people in Wales.
Our Future in Sight project,
funded through the Bright New
Futures Big Lottery stream
has enabled us to develop
our exemplary scheme which
provides meaningful work
experience, and subsequent
employment opportunities for
young people with sight loss and
helps break down barriers with
employers employing people with
sight loss.
Our Transitions Service provides
information and support to
both young people with sight
loss and their parents / carers
on the transition from school
to independent adulthood,
whether college, university,
vocational training, volunteering or
employment. We ensure that they
are aware of funding streams such
as Disabled Student’s Allowance
(DSA) and Access to Work.
Our Employment Service works
closely with people over the age
of 25 to help them secure and
stay in work, often through the
Access to Work scheme. We
provide support on employability
skills including CV writing,
completing application forms,
disclosure of sight loss and
interview techniques.
Without partnership with the
third sector, many blind and
partially sighted people would
not be able to stay in or get
into work. It is essential that
the next Welsh Government
works in partnership with the
UK Government to improve the
employment chances of blind
and partially sighted people
in Wales.
Independent Living 31
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 31 08/01/2016 12:38
Accessible healthcare
standards
In December 2013, the Health
Minister, Mark Drakeford,
launched the Accessible
Healthcare Standards for People
with Sensory Loss in Wales.
Wales became the first country
in the UK to lay out clearly
how NHS services would be
delivered accessibly to people
who are deaf, hard of hearing,
blind, partially sighted or have
dual sensory loss.
Professor Drakeford said, “The
NHS must be accessible to all
groups and these standards –
once fully implemented – will
help to address the barriers that
people with sensory loss face
in accessing health services,
particularly in helping staff to
identify patients with sensory loss
and meeting their needs”.
However, people with sight loss
in Wales are still facing major
barriers within their healthcare.
They are still leaving hospital
every day unsure of how much
medication they are meant to
take, or unsure of what advice
they have been given. In the
hospital setting, simple actions
such as changing the colour of
materials so that the contrast
between food and plates, or beds
and wards, toilets and floors
enable anyone with sight loss to
navigate their way more easily
which would stop patients from
going hungry, losing their way, or
taking a fall.
32 Welsh National Assembly Manifesto 2016
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 32 08/01/2016 12:38
RNIB Cymru and our third sector
partners have worked closely
with Health Boards, NHS Centre
for Equality and Human Rights
and the Welsh Government
to raise awareness of these
standards, but we want to see
the standards fully implemented
so that people with sight loss
feel that the barriers are being
broken down. We know that most
health workers in Wales would
be horrified at the thought that
they provide an inferior service
to a person with sensory loss.
We know that they need and
want to be given the tools to do
their job in the safest and most
appropriate way.
The next Welsh Government
must monitor and review
the implementation of these
standards and ensure that the
safety and dignity of blind and
partially sighted people are
respected.
Accessible built
environments
It isn’t just within health that
accessibility standards need to
be applied.
The concept of ‘lifetime homes’
– accessible homes for all –
predates devolution and has
been signed up to by consecutive
Welsh Governments throughout
the past 15 years.
RNIB Cymru published “Housing
Sight” in 2003 in partnership
with the then Social Justice
and Regeneration Minister
Edwina Hart and the Wales and
West Housing Association. The
‘lifetime homes’ standard did not
incorporate design principles
which supported people with
sight loss and therefore the
research carried out to produce
the guide became the forerunner
for the Visibly Better Standards.
Visibly Better Standards support
and increase independence and
Independent Living 33
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 33 08/01/2016 12:38
prevents avoidable sight loss in
sheltered and extra care housing.
The current Welsh Government
has recognised that the
population is aging and therefore
changes need to be made in
the housing stock. Recently it
has committed to setting up an
expert group to advise the new
government on this issue.
According to Age UK, every
year in Wales half of those over
80 will have a fall in their home.
According to Shelter Cymru
and the Building Research
Establishment (BRE), falls in Wales
are estimated to directly cost the
NHS £67 million per year.
Wales has led the way in this area
and this is a chance to ensure
that we are once again ahead of
the curve. As sight loss in older
people is often linked with the
onset of dementia, within our
ageing population it makes sense
to ensure our built environments
are future proofed.
RNIB Cymru believes that
compulsory Visibly Better
Standards throughout the public
and private sectors will save
money in the long run, as well as
ensuring that people are able to
live independently, and safely, in
their own homes.
34 Welsh National Assembly Manifesto 2016
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 34 08/01/2016 12:38
Digital Inclusion
Around 38 per cent of people
aged over 50 are estimated to be
not using the internet [19].
An RNIB and BT report [20]
identified four main barriers to
enabling the digital exclusion of
blind and partially sighted people:
•	perception that sight loss is a
barrier
•	lack of understanding of the
internet
•	knowing what to use the
internet for
•	not everyone wants to be online.
RNIB Cymru’s digital inclusion
project Online Today is working
with those who have sight and
hearing loss to help them get
online and build confidence in
using digital services safely and
with confidence.
The project builds on the great
work done by the Communities
2.0 “Get Connected” funding
provided by Welsh Government in
this Assembly Term. Online Today
is supporting the new Digital
Communities Wales programme
which aims to support digitally
excluded people to get online
with a specific brief to ensure that
those with sight and hearing loss
are not left behind in the digital
revolution.
The Get Connected project
identified additional barriers
blind and partially sighted people
experience getting online. These
need to be addressed in order to
achieve the inclusion of people
with sight loss in Wales in the
digital agenda [21]:
•	Digital services provided in
community locations across
Wales do not have enough
staff with the knowledge or
experience to provide teaching
support to people with sight
loss.
Independent Living 35
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 35 08/01/2016 12:38
•	Most community based
provision does not have suitable
hardware and software.
•	Lack of good, regular public
transport system.
•	Many people who experience
sight loss are not confident
in using the public transport
system to get to a community
venue.
•	Broadband connectivity across
Wales is not comprehensive,
with some areas unable to
access a mobile signal.
•	Many blind and partially
sighted people live in poverty
and are unable to purchase
the technology which would
enhance their independence.
Poverty must therefore also be
addressed in tackling the digital
exclusion of blind and partially
sighted people [22].
With so many services now
delivered online, many people
with sight loss are increasingly
excluded and marginalised from
the digital world and mainstream
society. The next Welsh
Government must ensure that
the internet is truly for everyone,
equipping the whole country with
the skills, motivation and trust
to go online and be capable of
making the most of the internet.
36 Welsh National Assembly Manifesto 2016
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 36 08/01/2016 12:38
References
[1] Population estimates based
on: Access Economics 2009.
Future Sight Loss UK: Economic
Impact of Partial Sight and
Blindness in the UK adult
population. RNIB and Mid-2015
Population Estimates, Office
for National Statistics (released
25/06/2015).
[2] Economic Impact of an Eye
Clinic Liaison Officer (ECLO) on
Health, Social Care and Welfare
budgets: A Case Study, RNIB,
2013. Using social return on
investment (SROI) methodology,
carried out at Singleton Hospital
in Swansea.
[3] Care and Repair Cymru,
written evidence to Finance
Committee, 2014.
[4] The cost of poor housing in
Wales, Davidson, Nicol, Roys and
Beaumont, Shelter Cymru and
the BRE, 2011.
[5] Falls in older people with
sight loss: a review of emerging
research and key action points.
[6] A postcode lottery? RNIB
Cymru report, 2014.
[7] Burden of illness and
suicide in elderly people: case-
control study, Margda Waern, E
Rubenowitz, B Runeson, I Skoog,
K Wilhelmson, and P Allebeck,
BMJ, June 2002.
[8] Burden of illness and
suicide in elderly people: case-
control study, Margda Waern, E
Rubenowitz, B Runeson, I Skoog,
K Wilhelmson, and P Allebeck,
BMJ, June 2002.
[9] Impairments in the UK, The
Centre for Disability Research
(CeDR) Pey, Nzegwu and Dooley,
Functionality and the needs of
blind and partially sighted adults
in the UK: An interim report,
Guide Dogs, 2006.
[10] The incidence and cost of
injurious falls associated with
partial sight and blindness in the
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 37 08/01/2016 12:38
UK. Visual Impairment Research
4 (1): 1-14, Scuffham PA, Legood
R, Wilson ECF and Kennedy-
Martin T, 2002.
[11] Economic Impact of an Eye
Clinic Liaison Officer (ECLO) on
Health, Social Care and Welfare
budgets: A Case Study, RNIB,
2013.
[12] Get on Board, RNIB Cymru,
Guide Dogs Cymru and Welsh
Government, January 2015.
[13] Disability Poverty in Wales,
Leonard Cheshire, 2011.
[14] Disability and minimum
living standards, Centre for
Research and Social Policy
at Loughborough University,
January 2015.
[15] “What the people of
Wales expect of advice and
information services and how
to ensure accessibility for all”,
Independent Advice Providers
Forum, October 2013.
[16] Cap in Hand: The Impact
of Welfare Reform on Disabled
People in Wales, Bevan
Foundation, April 2013.
[17] Secondary analysis of
understanding society and the
Life Opportunities Survey, Sally
McManus and Chris Lord, July
2012.
[18] Secondary analysis of
understanding society and the
Life Opportunities Survey, Sally
McManus and Chris Lord, July
2012.
[19] Welsh Government Digital
Inclusion Delivery Plan, update
2014, Welsh Government website.
[20] Tackling digital exclusion.
Older blind and partially sighted
people and the internet, RNIB,
2012.
[21] RNIB Cymru, “Get
Connected” Final Report , 2014.
[22] Out of sight. Visual
impairment and poverty in Wales,
Bevan Foundation, July 2012.
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 38 08/01/2016 12:38
© 2016 Action for Blind People registered charity number 205913
RNIB registered charity number 226227
working together
Cardiff Institute
for the Blind
Sefydliad y
Deillion Caerdydd
working with
COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 39 08/01/2016 12:38

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PROOF-v06-COU101502_Wales National Assembly Manifesto (ENG) 2016

  • 1. RNIB Cymru Manifesto 2016 National Assembly Election COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 1 08/01/2016 12:38
  • 2. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 2 08/01/2016 12:38
  • 3. Contents Page Foreword 4 About RNIB Cymru 5 Key Statistics 6 RNIB Calls to Action for 2016 and beyond 8 Priority Two: Education       19 Priority One: Health and care services 10 Ophthalmology services 12 Support at the point of need 14 Rehabilitation 15 Priority Three: Independent Living    22 Transport    24 Tackling poverty    26 Employment    29 Accessible healthcare standards 32 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 3 08/01/2016 12:38
  • 4. Foreword Every day in Wales five more people begin to lose their sight. Sight is the sense we fear losing most. In the next 25 years the number of people living with sight loss will double. Sight loss affects every aspect of your life, from accessing education to finding a job and from moving around your own home to catching the bus to your local supermarket. Much of our world is set up for people who can see where they are going and even with the advent of futuristic technology, cultural understanding of what it is like to live with sight loss is not adequate. Through the Wales Vision Strategy Implementation Group and the Welsh Government’s Eye Health Delivery Plan, we want this next term in the National Assembly to ensure that blind and partially sighted people have access to support and services to remain independent in all aspects of their lives. We want people to receive the support they need in the eye clinic at the point of need and we want to make sure that all people in Wales look after their eyes. More than 1 in 10 of the population has never had their eyes tested. Public transport remains a key barrier for people with sight loss, with inaccessible services and a lack of support. The hospital eye service is struggling to meet the demand and treat patients with conditions which require regular treatment. RNIB Cymru is campaigning for the next Government to recognise the challenges that remain for people in Wales with sight loss. There are many opportunities for the next Government to lead the way in the UK in eye health and equality policy. We hope you will support us on this journey. Ceri Jackson Director, RNIB Cymru 4 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 4 08/01/2016 12:38
  • 5. About RNIB Cymru RNIB Cymru is Wales’ largest sight loss charity. We provide assistance through education, transition and employment services; specialist advice through our welfare rights, Online Today and Visibly Better services; and emotional support through our eye clinic liaison service (ECLO) to people living with sight loss across Wales, as well as campaigning for improvements to services and raising awareness of the issues facing blind and partially sighted people. We are passionate about eye health and improving outcomes for people with sight loss, such as ensuring that preventable blindness is eradicated; people with sight loss have the same opportunities in education and employment and can live independently. RNIB Cymru works in partnership with public and third sector bodies across Wales. We are funded to deliver projects and services to support blind and partially sighted people across Wales by Welsh Government, The Big Lottery and through European funding, as well as charitable grants such as Children in Need. We are also funded to campaign on behalf of blind and partially sighted people and raise awareness of the issues they face. We are the secretariat for the Cross Party Group on Vision in the National Assembly for Wales, and we are part of the Third Sector Additional Learning Needs Alliance (TSANA). We also campaign for local authorities to adopt our street charter and create clear and accessible streets for blind and partially sighted people. Our Director chairs the Wales Vision Strategy. We are members of and work closely with the steering groups which deliver the Eye Health Care Delivery Plan, the Welsh Ophthalmology 5 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 5 08/01/2016 12:38
  • 6. Board and the Health Board Eye Care groups. Our Director, Ceri Jackson is also Chair of Age Alliance Wales. We campaign on behalf of blind and partially sighted people for three main outcomes: that everyone should have access to timely treatment, that blind and partially sighted people should be able to live independently and that they have equal access to opportunities. Our manifesto for the 2016 National Assembly election is framed around these three outcomes. Key Statistics • An estimated 110,000 people in Wales have sight loss • The number of people with sight loss is expected to double over the next 25 years • 1 in 9 people over the age of 60 is living with sight loss • 1 in 5 people aged 75 or over in Wales has sight loss, this rises to 2 in 5 for people aged 85 and over [1] Health and social care An investment of £1 in the early intervention ECLO (eye clinic liaison officer) service brings a return of £10.57 to health and social care budgets in Wales [2]. Every year in Wales half of those over 80 will have a fall in their home [3]. Economically in Wales 6 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 6 08/01/2016 12:38
  • 7. falls are estimated to directly cost the NHS £67 million per year [4]. Not all of these falls are related to sight loss; however the Thomas Pocklington Trust reported in 2013 [5] that those with sight loss are almost twice as likely to fall and be injured as sighted people. It is often the case that for people who are developing sight loss conditions, such as glaucoma or wet age-related macular degeneration, one of the eyes will make up for the impairment and the individual will not be aware that their sight has deteriorated as badly as it has, until a fall or other accident takes place. In October 2013 we carried out a survey which found that in at least five local authority areas, people were waiting over 24 weeks for rehabilitation services [6]. Depression and poverty Older people with sight loss are almost three times more likely to experience depression than people with good vision [7] and the British Medical Journal reports that sight loss is one of the top three causes of suicide among older people [8]. Nearly half of blind and partially sighted people feel ‘moderately’ or ‘completely’ cut off from people and things around them [9]. Education and children Of the 110,000 people in Wales living with sight loss, this includes an estimated 1,935 children and young people aged 0-25 years. Children with sight loss are at risk of poor outcomes across a range of social and emotional wellbeing indicators. 7 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 7 08/01/2016 12:38
  • 8. Priority One: Health and care services • Ophthalmology targets for treatment to be intelligent targets. • Sustainable funding for adequate provision of Eye Clinic Liaison Officer Services in all Local Health Boards. • Ensure rehabilitation services are free and available in an appropriate timescale. RNIB Calls to Action for 2016 and beyond RNIB Cymru calls upon the next Welsh Government to act to improve the lives of blind and partially sighted people and those at risk of sight loss and adopt these policies: 8 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 8 08/01/2016 12:38
  • 9. Priority Two: All blind and partially sighted children have timely and appropriate access to a Qualified Teacher for Visual Impairment (QTVI) • The mandatory inclusion of QTVI training in the code of practice for special educational needs. • The Welsh Government to create a sustainable training route for the mandatory qualification that takes into account the Welsh education context, language and culture. • A requirement on local authorities and Estyn to monitor the level of QTVI provision within the inspection framework. Priority Three: Independent Living • Public transport information is accessible with audio announcements on buses, coaches and trains. • Support for anyone with sight loss to access the welfare benefits they are entitled to. • Tackling poverty through benefits uptake and employment. • A commitment to accessible information, communication and the built environment. • Improve infrastructure and remove barriers to digital inclusion. 9 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 9 08/01/2016 12:38
  • 10. Priority One: Health and care services What RNIB Cymru are calling for in 2016 National Assembly Elections: • ophthalmology targets for treatment to be intelligent targets • sustainable funding for adequate provision of Eye Clinic Liaison Officer Services in all Local Health Boards • ensure rehabilitation services are free and available in an appropriate timescale. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 10 08/01/2016 12:38
  • 11. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 11 08/01/2016 12:38
  • 12. Ophthalmology Services RNIB Cymru believes that everyone in Wales has a right to timely access to high quality specialist care including cataract surgery and NICE approved treatments for degenerative eye conditions. At present the Referral to Treatment Time target (RTT) only focuses on the initial diagnosis and first treatment. There is no target for follow up eye appointments, and therefore the risks to the patient cannot be adequately managed. This is why an RTT target which does not focus on the clinical time frame is potentially damaging as it drives attention and resources away from ensuring timely follow up appointments. As most sight loss conditions are degenerative, but also treatable and blindness preventable, a clinically led target is required with follow up treatments built in. We believe that targets which are intelligent and based on need within the new outcome frameworks for the NHS would help alleviate a lot of the capacity crisis, enabling more people to keep their sight for longer. Improved outcomes in ophthalmology will lead to better health outcomes overall and achieve savings in other areas of the health service. For example, almost half of all falls experienced by blind and partially sighted people were found to be attributable to their sight loss [10]. The next Welsh Government must recognise that referral to treatment times in ophthalmology are not appropriate for the specialty. They must develop and implement a new system of monitoring and running an appointment system. 12 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 12 08/01/2016 12:38
  • 13. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 13 08/01/2016 12:38
  • 14. Support at the point of need Receiving the news that you are losing your sight can be devastating. This is why timely support in the eye clinic is integral to ensuring that people are signposted to services to find out how they can live a full and happy life after that diagnosis. The Eye Clinic Liaison Officer Service (ECLO) has also been proved to save health and social care budgets £10.57 per patient. ECLOs work in eye clinics, and offer support to people with sight loss at the point of need. They are recognised by the Royal College of Ophthalmologists as an integral part of a minimum service team within the eye clinic. The presence of an ECLO improves patient experience and supports improved long-term outcomes for patients. Without the right support, the impact of sight loss can have a major effect on other areas of a person’s life, such as falls, isolation and on the ability to stay in work. RNIB supported by the Big Lottery, currently funds five ECLOs in four Health Boards in Wales. In an RNIB published study [11], carried out at Singleton Hospital in Swansea, it was found using social return on investment (SROI) methodology, that an investment of £1 in the early intervention ECLO service brings a return of £10.57 to health and social care budgets in Wales. This service is a positive source of timely emotional and practical support, bridging the gap between Health and Social Care. 14 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 14 08/01/2016 12:38
  • 15. Health Boards across Wales already recognise how important this service is for patients. For this vital service to continue, sustainable funding needs to be a priority for the next Welsh Government. Other benefits include: • increased job retention • reduced fear of falling • increased independence at home • increased mental wellbeing • fewer follow-up clinic appointments. Rehabilitation The impact of sight loss is often not understood, both in terms of how it affects daily living and in its psychological impact. The support of specialist rehabilitation officers is crucial in maximising the independence of people with sight loss. In April 2016 the Social Services and Well-being (Wales) Act 2014 will come into force. If its primary aims are to be realised by ensuring that people receive care and support which is personalised and promotes wellbeing, then blind and partially sighted people must be assessed by trained and experienced professionals. A specialist assessment will also mean that assessors will be able to support blind and partially sighted people to understand what support they require to get the outcomes that they need and to assess fairly whether or not their needs meet eligibility criteria. Health and care services 15 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 15 08/01/2016 12:38
  • 16. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 16 08/01/2016 12:38
  • 17. It is important that the needs of blind and partially sighted people are reflected if the Social Services and Wellbeing (Wales) Act’s regulations and guidance are to be fit for the future. Sight loss impacts on every aspect of a person’s life: their physical and mental health, their ability to live independently, their ability to find or keep a job, their family and social life. Support from social services is crucial in promoting the wellbeing of blind and partially sighted people. It is therefore vital that the new Act and regulations such as charging for certain preventative services, does not have an adverse impact on people with sight loss and are sustainable to meet the expected increase in numbers. Rehabilitation is both a service which helps a person with sight loss to adapt to the world around them, and a preventative service. The specialist rehabilitation service allows a partially sighted person to re-learn skills they need to live an independent life. To allow blind and partially sighted people the best chance of living independently, the next Welsh Government must ensure that rehabilitation support is not a postcode lottery, and not affected by changes to social service provision. Health and care services 17 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 17 08/01/2016 12:38
  • 18. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 18 08/01/2016 12:38
  • 19. Priority Two: Education What RNIB Cymru are calling for in the 2016 National Assembly Elections: All blind and partially sighted children have timely and appropriate access to a Qualified Teacher for Visual Impairment (QTVI) • the mandatory inclusion of QTVI training in the code of practice for special educational needs. • the Welsh Government to create a sustainable training route for the mandatory qualification that takes into account the Welsh education context, language and culture. • a requirement on local authorities and Estyn to monitor the level of QTVI provision within the inspection framework. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 19 08/01/2016 12:38
  • 20. 80 per cent of learning is visual for children who have full sight. It is essential that the needs of students with sight loss who are in education are recognised and that there is specialist support in place. The potential impact of even a relatively moderate visual impairment is significant, and schools to universities need to consider a range of adjustments to ensure that visually impaired students have equal access to learning. As children with sight loss learn differently it is vital that specialist teachers who understand this are available to support teachers and learners across Wales. Research undertaken by RNIB Cymru has shown that the number of teachers holding the teaching qualification for this specialty has slowly been decreasing as teachers get closer to retirement age and are not replaced. 20 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 20 08/01/2016 12:38
  • 21. The qualification for teaching children with sight loss has been made mandatory in England. The only university which currently provides the course in the UK is in England (Birmingham) and is oversubscribed, which means that Welsh teachers are not given priority to access the course. It is also vital that school inspection regimes are required to monitor the provision of specialist support across Wales. It is clear that the right support in schools is necessary to ensure that children with sight loss are not left behind and are able to develop at the same rate as their sighted peers, with equal opportunities and outcomes. We believe that the next Welsh Government must commit to introducing the Additional Learning Needs Bill in the next Assembly and introducing it into law. It is vital that part of the next Welsh Government’s Programme for Government commits to ensuring that blind and partially sighted children are supported in their learning. Education 21 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 21 08/01/2016 12:38
  • 22. Priority Three: Independent Living What RNIB Cymru are calling for in the 2016 National Assembly Elections: • public transport information is accessible with audio announcements on buses, coaches and trains • support for anyone with sight loss to access the welfare benefits they are entitled to • tackling poverty through benefits uptake and employment support services • a commitment to accessible information, communication and the built environment • improve infrastructure and remove barriers to digital inclusion. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 22 08/01/2016 12:38
  • 23. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 23 08/01/2016 12:38
  • 24. Transport Getting out and about can be a daunting challenge. All blind and partially sighted people should be able to get around independently in safe public environments, with accessible timetables, announcements and better training for staff on these services. Accessibility on public transport is one of the most persistent topics raised by our members. In partnership with Guide Dogs Cymru and with funding from the Welsh Government we launched a guide to making bus services more accessible for people with sight loss in January 2015 to try and address these issues. From research carried out to inform our guide “Get on Board” [12] we found there were many issues blind and partially sighted people faced when accessing public transport. Incidents such as bus drivers being rude to partially sighted passengers who 24 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 24 08/01/2016 12:38
  • 25. mistakenly pulled over the wrong bus as it was too difficult to make out the number in time. Other incidents included drivers finding audio announcements annoying and turning them off, and drivers who were unable to assist the passenger with finding the right bus stop. Often a blind or partially sighted person will learn a route to enable them to live independently. If a bus driver refuses or forgets to help them find this stop, or turns off audio announcements, people can very easily end up in the wrong place and may no longer be able to travel independently. In rural areas blind and partially sighted people rely on public transport that is often old, with bus stops that have almost no information. Any information that is there is often out of date or too small and weather-beaten to easily access. Rural services are essential to local people, and especially to blind and partially sighted people who cannot drive. Funding for these services must be protected and enhanced. In the next Assembly the Welsh Government will have control of the new rail franchise, and the provisions in the draft Wales Bill also contains powers over bus regulation for the Welsh Government. RNIB Cymru believes the Welsh Government should take this opportunity to ensure that rail and bus services are fit for purpose. We believe the next Welsh Government must commit to holding companies which run these vital services to account. These opportunities must be used to build a more integrated and inclusive approach to public transport, with all current bus and rail rolling stock required to be upgraded and audio announcements to be phased in on all new machines. Independent Living 25 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 25 08/01/2016 12:38
  • 26. Tackling poverty People with a disability of any kind are around twice as likely as non-disabled people to live in a low income household [13]. Often blind and partially sighted people do not claim the full support they are entitled to, which can include benefits, advice and information. RNIB Cymru believes more support needs to be provided by the next Welsh Government, working closely in partnership with the UK Government to ensure that blind and partially sighted people receive the services they are entitled to. The Centre for Research and Social Policy at Loughborough University has estimated that unmet costs faced by blind and partially sighted people, excluding personal assistance costs, amount to £200 per week [14]. Extra costs associated with living with sight loss include higher utility bills, equipment to live more independently, taxis etc. Evidence from RNIB Cymru’s specialist Welfare Rights Advice Service shows that over 60 per cent of the 1,475 cases seen in 2013/14 alone were under-claiming their benefit entitlement. Disability Wales’ 2013 report showed there were significant barriers for people with sight loss claiming their full benefits entitlement as a result of not understanding what their entitlement is and not being able to access advice and support that meets their needs. 26 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 26 08/01/2016 12:38
  • 27. In 2013/14 RNIB Cymru’s specialist welfare rights service secured £3,463,656 in under‑claimed welfare benefits and backdated payments for 896 blind and partially sighted people, an average increase of £63.45 per week per successful outcome. The new service launched in Bangor in February 2015 will help over 5,103 people over the next two years and nine months and an additional £11,992,050 of new income brought into Wales which would otherwise would not be in the Welsh economy. People with sight loss face a complex set of barriers to accessing information, advice, guidance and support on welfare rights and other issues such as access to public services. These barriers include a difficulty in accessing the written and spoken word; a lack of accessible information; a lack of confidence to ask for assistance; and service providers lacking understanding of their needs, which commonly results in disengagement and isolation. This serves to compound the already isolated and lonely experience of blind and partially sighted people, who already find the communities they live in challenging, and often frightening, places. A report by the Independent Advice Providers Forum in Wales [15], interviewed around 600 service users across Wales. The key findings of the consultation were that there was a need for services to have the service user at its centre and to be flexible, as well as considering the impact of Welfare Reform. Independent Living 27 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 27 08/01/2016 12:38
  • 28. The Impact of Welfare Reform Welfare reform is creating additional difficulties and anxieties for people with sensory loss. Disability Wales’ report [16] noted that disabled people across the UK will bear the brunt of the cuts to the welfare budget, with disabled people in Wales being particularly hard hit. Barriers include: • lack of information in accessible formats • mobility and access to services is extremely difficult • even if a person is able to find out about benefits, the completion of forms and follow up documentation is often not possible • questions are aimed at physical rather than sensory disabilities • people often say they don’t need any help for fear of losing their independence. 28 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 28 08/01/2016 12:38
  • 29. Ensuring that services are accessible to blind and partially sighted people will contribute extensively to tackling poverty in Wales. The current Welsh Government has the Tackling Poverty Action Plan, Framework for Action on Independent Living and the Strategy for Older People in Wales 2013-2023. Adopting a programme such as RNIB Cymru’s specialist Welfare Rights service would help meet the aims and objectives of all three. RNIB Cymru calls upon the next Welsh Government to commit to working with the UK Government on how advice, support and information is supplied to blind and partially sighted people to ensure that welfare benefits do not stay unclaimed. Employment Blind and partially sighted people are significantly less likely to be in paid employment than the general population or other disabled people [17]. Only one in three registered blind and partially sighted people of working age is in paid employment. They are nearly five times more likely than the general population to have had no paid work for five years. In a 2012 survey carried out by NatCen and RNIB, people with sight loss of working age were much more likely than those with no impairment to face great difficulty making ends meet [18]. Employers may need to make adjustments to support employees with sight loss, but often those with sight loss do not need major adjustments made in their workplace. Often any specialist equipment needed can be provided by Access to Work, a UK Government programme, but many people Independent Living 29 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 29 08/01/2016 12:38
  • 30. with sight loss do not know that this provision is available and the process of securing and receiving this equipment can be very slow. There is very little provision through work choice or work programme to provide specialised knowledge and support to those who are over the age of 25 with sight loss. It can be difficult for young people to make the transition between learning and employment, or for those developing sight loss or having lived with a condition all their lives to stay in employment or have access to work. RNIB Cymru believes that blind and partially sighted people need to be supported to work. There are just over 4,000 registered blind and partially sighted people of working age in Wales, compared with just over 84,000 in the UK overall. 30 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 30 08/01/2016 12:38
  • 31. Employment support services Support for disabled people to find and stay in work is typically provided via one of several schemes funded by the Department for Work and Pensions. However, there are many support programmes which are supporting blind and partially sighted people in Wales. Our Future in Sight project, funded through the Bright New Futures Big Lottery stream has enabled us to develop our exemplary scheme which provides meaningful work experience, and subsequent employment opportunities for young people with sight loss and helps break down barriers with employers employing people with sight loss. Our Transitions Service provides information and support to both young people with sight loss and their parents / carers on the transition from school to independent adulthood, whether college, university, vocational training, volunteering or employment. We ensure that they are aware of funding streams such as Disabled Student’s Allowance (DSA) and Access to Work. Our Employment Service works closely with people over the age of 25 to help them secure and stay in work, often through the Access to Work scheme. We provide support on employability skills including CV writing, completing application forms, disclosure of sight loss and interview techniques. Without partnership with the third sector, many blind and partially sighted people would not be able to stay in or get into work. It is essential that the next Welsh Government works in partnership with the UK Government to improve the employment chances of blind and partially sighted people in Wales. Independent Living 31 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 31 08/01/2016 12:38
  • 32. Accessible healthcare standards In December 2013, the Health Minister, Mark Drakeford, launched the Accessible Healthcare Standards for People with Sensory Loss in Wales. Wales became the first country in the UK to lay out clearly how NHS services would be delivered accessibly to people who are deaf, hard of hearing, blind, partially sighted or have dual sensory loss. Professor Drakeford said, “The NHS must be accessible to all groups and these standards – once fully implemented – will help to address the barriers that people with sensory loss face in accessing health services, particularly in helping staff to identify patients with sensory loss and meeting their needs”. However, people with sight loss in Wales are still facing major barriers within their healthcare. They are still leaving hospital every day unsure of how much medication they are meant to take, or unsure of what advice they have been given. In the hospital setting, simple actions such as changing the colour of materials so that the contrast between food and plates, or beds and wards, toilets and floors enable anyone with sight loss to navigate their way more easily which would stop patients from going hungry, losing their way, or taking a fall. 32 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 32 08/01/2016 12:38
  • 33. RNIB Cymru and our third sector partners have worked closely with Health Boards, NHS Centre for Equality and Human Rights and the Welsh Government to raise awareness of these standards, but we want to see the standards fully implemented so that people with sight loss feel that the barriers are being broken down. We know that most health workers in Wales would be horrified at the thought that they provide an inferior service to a person with sensory loss. We know that they need and want to be given the tools to do their job in the safest and most appropriate way. The next Welsh Government must monitor and review the implementation of these standards and ensure that the safety and dignity of blind and partially sighted people are respected. Accessible built environments It isn’t just within health that accessibility standards need to be applied. The concept of ‘lifetime homes’ – accessible homes for all – predates devolution and has been signed up to by consecutive Welsh Governments throughout the past 15 years. RNIB Cymru published “Housing Sight” in 2003 in partnership with the then Social Justice and Regeneration Minister Edwina Hart and the Wales and West Housing Association. The ‘lifetime homes’ standard did not incorporate design principles which supported people with sight loss and therefore the research carried out to produce the guide became the forerunner for the Visibly Better Standards. Visibly Better Standards support and increase independence and Independent Living 33 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 33 08/01/2016 12:38
  • 34. prevents avoidable sight loss in sheltered and extra care housing. The current Welsh Government has recognised that the population is aging and therefore changes need to be made in the housing stock. Recently it has committed to setting up an expert group to advise the new government on this issue. According to Age UK, every year in Wales half of those over 80 will have a fall in their home. According to Shelter Cymru and the Building Research Establishment (BRE), falls in Wales are estimated to directly cost the NHS £67 million per year. Wales has led the way in this area and this is a chance to ensure that we are once again ahead of the curve. As sight loss in older people is often linked with the onset of dementia, within our ageing population it makes sense to ensure our built environments are future proofed. RNIB Cymru believes that compulsory Visibly Better Standards throughout the public and private sectors will save money in the long run, as well as ensuring that people are able to live independently, and safely, in their own homes. 34 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 34 08/01/2016 12:38
  • 35. Digital Inclusion Around 38 per cent of people aged over 50 are estimated to be not using the internet [19]. An RNIB and BT report [20] identified four main barriers to enabling the digital exclusion of blind and partially sighted people: • perception that sight loss is a barrier • lack of understanding of the internet • knowing what to use the internet for • not everyone wants to be online. RNIB Cymru’s digital inclusion project Online Today is working with those who have sight and hearing loss to help them get online and build confidence in using digital services safely and with confidence. The project builds on the great work done by the Communities 2.0 “Get Connected” funding provided by Welsh Government in this Assembly Term. Online Today is supporting the new Digital Communities Wales programme which aims to support digitally excluded people to get online with a specific brief to ensure that those with sight and hearing loss are not left behind in the digital revolution. The Get Connected project identified additional barriers blind and partially sighted people experience getting online. These need to be addressed in order to achieve the inclusion of people with sight loss in Wales in the digital agenda [21]: • Digital services provided in community locations across Wales do not have enough staff with the knowledge or experience to provide teaching support to people with sight loss. Independent Living 35 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 35 08/01/2016 12:38
  • 36. • Most community based provision does not have suitable hardware and software. • Lack of good, regular public transport system. • Many people who experience sight loss are not confident in using the public transport system to get to a community venue. • Broadband connectivity across Wales is not comprehensive, with some areas unable to access a mobile signal. • Many blind and partially sighted people live in poverty and are unable to purchase the technology which would enhance their independence. Poverty must therefore also be addressed in tackling the digital exclusion of blind and partially sighted people [22]. With so many services now delivered online, many people with sight loss are increasingly excluded and marginalised from the digital world and mainstream society. The next Welsh Government must ensure that the internet is truly for everyone, equipping the whole country with the skills, motivation and trust to go online and be capable of making the most of the internet. 36 Welsh National Assembly Manifesto 2016 COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 36 08/01/2016 12:38
  • 37. References [1] Population estimates based on: Access Economics 2009. Future Sight Loss UK: Economic Impact of Partial Sight and Blindness in the UK adult population. RNIB and Mid-2015 Population Estimates, Office for National Statistics (released 25/06/2015). [2] Economic Impact of an Eye Clinic Liaison Officer (ECLO) on Health, Social Care and Welfare budgets: A Case Study, RNIB, 2013. Using social return on investment (SROI) methodology, carried out at Singleton Hospital in Swansea. [3] Care and Repair Cymru, written evidence to Finance Committee, 2014. [4] The cost of poor housing in Wales, Davidson, Nicol, Roys and Beaumont, Shelter Cymru and the BRE, 2011. [5] Falls in older people with sight loss: a review of emerging research and key action points. [6] A postcode lottery? RNIB Cymru report, 2014. [7] Burden of illness and suicide in elderly people: case- control study, Margda Waern, E Rubenowitz, B Runeson, I Skoog, K Wilhelmson, and P Allebeck, BMJ, June 2002. [8] Burden of illness and suicide in elderly people: case- control study, Margda Waern, E Rubenowitz, B Runeson, I Skoog, K Wilhelmson, and P Allebeck, BMJ, June 2002. [9] Impairments in the UK, The Centre for Disability Research (CeDR) Pey, Nzegwu and Dooley, Functionality and the needs of blind and partially sighted adults in the UK: An interim report, Guide Dogs, 2006. [10] The incidence and cost of injurious falls associated with partial sight and blindness in the COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 37 08/01/2016 12:38
  • 38. UK. Visual Impairment Research 4 (1): 1-14, Scuffham PA, Legood R, Wilson ECF and Kennedy- Martin T, 2002. [11] Economic Impact of an Eye Clinic Liaison Officer (ECLO) on Health, Social Care and Welfare budgets: A Case Study, RNIB, 2013. [12] Get on Board, RNIB Cymru, Guide Dogs Cymru and Welsh Government, January 2015. [13] Disability Poverty in Wales, Leonard Cheshire, 2011. [14] Disability and minimum living standards, Centre for Research and Social Policy at Loughborough University, January 2015. [15] “What the people of Wales expect of advice and information services and how to ensure accessibility for all”, Independent Advice Providers Forum, October 2013. [16] Cap in Hand: The Impact of Welfare Reform on Disabled People in Wales, Bevan Foundation, April 2013. [17] Secondary analysis of understanding society and the Life Opportunities Survey, Sally McManus and Chris Lord, July 2012. [18] Secondary analysis of understanding society and the Life Opportunities Survey, Sally McManus and Chris Lord, July 2012. [19] Welsh Government Digital Inclusion Delivery Plan, update 2014, Welsh Government website. [20] Tackling digital exclusion. Older blind and partially sighted people and the internet, RNIB, 2012. [21] RNIB Cymru, “Get Connected” Final Report , 2014. [22] Out of sight. Visual impairment and poverty in Wales, Bevan Foundation, July 2012. COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 38 08/01/2016 12:38
  • 39. © 2016 Action for Blind People registered charity number 205913 RNIB registered charity number 226227 working together Cardiff Institute for the Blind Sefydliad y Deillion Caerdydd working with COU101502-ENG-v05-Wales National Assembly Manifesto 2016.indd 39 08/01/2016 12:38