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“Behavioural Disorders and Decision Taking.
Choosing the best facilities for Psychogeriatric
                 patients”.
             Assignment of Resources

                        Elena Lorente
            Teacher. University Complutense of Madrid (Spain).
 Psychologist and Staff Coordinator. Geriatel Nursing Home (Madrid, Spain).
                 Independent Consultant in Elderly Care.
                             Berlin 08.12.2010
Classifying global impairment in Elderly:
  Global Deterioration Scale (Reisberg).
GDS-1: Normal.
GDS-2: Subjective memory complaints.
GDS-3: Mild Cognitive Impairment (preclinical). Little evidences of
memory impairment, difficulties at workplace, mild executive deficits.
   Signs observed by relatives, coping with first symptoms, anxiety,
   dysphoria, the patients feel insecure.
   In a preclinical stage for Alzheimer’s it is frequently mistaken as a
   Depression (by relatives!!!).
GDS-4: Mild Dementia. First cognitive deficits in all areas.
   Disorganisation at IADL.
   Coping with situations: negation and blaming others.
   Emotional lability.
   Tend to social isolation: not feeling capable to initiate a conversation.
   A little portion of relatives still feel the patient is “good but a bit absent-
   minded and forgetful”.
Classifying global impairment in Elderly:
  Global Deterioration Scale (Reisberg).
GDS-5: Moderate Dementia. Important cognitive deficits.
   Behavioural disorders: delusions, hallucinations, wandering, irritability,
   opposition, aggressiveness.
       Wandering mostly associated to freedom wishes (“I feel like a caged bird”) or
       delusional content (“I’m leaving, I have to pick up my kids from school”).
       Still remain verbal capacity to explain what they want.
   Temporal and spatial disorientation.
   Dependence in IADL and many BADL.
GDS-6: Severe Dementia. Important behavioural disorders.
   Wide spectrum of behavioural disorders, with major trend to
   aggressiveness, agitation, inadequate motor behaviours, or even apathy.
       Wandering can be very difficult to handle (risk of falls).
   Totally dependent in ADL.
   Supervision needed.
GDS-7: Very Severe Dementia. Important health problems.
How to assess behavioural disorders:
        Neuropsychiatric Inventory (NPI)
Behavioural disorders in neurological patients assessed by frequency,
severity and distress.
Held as a clinical interview with external observer: caregiver, relative, etc.
Main disorders assessed:
    Delusions.
    Hallucinations.
    Agitation / aggression.
    Dysphoria.
    Anxiety.
    Euphoria.
    Apathy
    Disinhibition.
    Irritability / lability.
    Aberrant and motor behaviour.
    Sleep and nightime behaviour.
    Appetite and eating behaviour.
Something missing:
    Where can we classify “wandering”? Suggestion: both agitation and aberrant motor.
    And for “insulting”? Suggestion: aggression, disinhibition and irritability.
    For opposition, the suggestion is: irritability.
Reflection Exercise #1

  How can these disorders interfere
with daily functioning?
  Which disorders are more frequent
in early, middle or moderate stages
of Impairment or Dementia?
Behavioural disorders and
   stages of involution
    DISORDER              GDS-   GDS-   GDS-   GDS-7
                           4      5      6
Delusions                  +      ++     ++      ?
Hallucinations             +      ++     ++      ?
Agitation                  +      ++    +++      +
Dysphoria                 +++     ++     ++      ?
Anxiety                    ++     ++     ++      ?
Euphoria                   ++     ++     ++      ?
Apathy                    +++     +      +      +++
Disinhibition              +     +++    +++      +
Irritability / lability    +     +++    +++     ++
Aberrant motor behav.      +     +++    +++      +
Sleep and nighttime b.     ++    +++    +++      +
Appetite and eating        +     +++    +++     ++
Global Impairment
      and behavioural disorders
Disorders are linked to the stage of involution:
  GDS-4: coping with symptoms and signs of involution,
  depression, anxiety, apathy, etc.
  GDS-5: disorders related to altered thinking, distorted
  perception, frustration for miscomunication and
  misunderstanding, and even disorientation.
  GDS-6: in the same line but with less verbal abilities
  to explain what really happens.
  GDS-7: inactivity and severe global impairment make
  many disorders invisible, but still remains irritability
  and eating disorders are related to dysphagia.
Cue-recall: linking assessment of
 behavioural disorders to assessment of
                  ADL
NPI does not inform about:
  Family implications.
  Caregiver strain = Zarit.
  Real and factual difficulties to manage patients at home.
ADL + behavioural impairment:
  First: Need for trained professionals.
     Domiciliary Attention Services.
  Next: Need for controlled environments + trained professionals.
     Day Care Centers.
     Nursing Homes.
Reflection exercise #2
 •For how long can an elderly person live
 alone at home?
 •Can we choose the first resource we find
 for a patient?
 •Are behavioural disorders important for this
 decision?
Resources and candidates
A resource is assigned considering:
  Availability.
  Localisation / “sectorisation”.
  Legal requirements.
  “Punctuation” and baremation of disability level.
  Economical resources of the user.
  Spain: Law of Personal Autonomy (a.k.a. “Law of
  Dependence”) and its application in the 17
  autonomous communities.
  What about the candidates’ profile?
Candidates for Domiciliary
               Attention Service
Absence of cognitive impairment but light mobility
problems to go out of home.
Total absence of affective or behavioural disorders.
Able to live alone but with little help.
Little functional impairment.
Only need help for:
   IADL:
      Walking, accompanying to medical visits.
      Shopping.
      Home duties.
   BADL:
      Only for bath or shower.
Candidates for Day Care Centres
Mild cognitive impairment or mild Dementia.
Slightly compromised mobility.
Needed and benefits of cognitive and physical
rehabilitation.
Not recommended staying alone at home all day.
Behavioral disorders for a GDS-4 or GDS-5.
Highly strained relatives.
Forgetfulness affecting home and personal security.
   E.g.: leave the fridge open, switched on lights, taking double
   dose of medication, heating a metallic recipient in
   microwave, etc.
Lack of nighttime disorders, despite disorientation.
Candidates for Nursing Homes
From Mild cognitive impairment to very severe Dementia.
Inmovilism: space needed for wheelchairs, cranes, etc.
Benefits of integral attention and rehabilitation.
Evidence of health problems requiring careful treatment.
Behavioral disorders.
Highly strained relatives.
   Consider ambivalence in relatives: strain and stress perception, but
   also feeling guilty for “leaving” them in a nursing home.
       Common in Spain (cultural).
Nighttime disorders, eating disorders, dependence in ADL.
Social risk.
Mental health.
When we have a patient, we must take a decision


 Patient:
     Health
   Cognitive
   Functional
   Emotional
  Behavioural                          Choosing
     Social        DECISION           facilities or
                    TAKING             resources
 Environment
  and living
  conditions
                   FLOWCHART
Flowcharts
Diagrams representing algorithms and processes.
   Step by step solution to a problem.
   Symbols.                                                         Process
Helpful for taking decisions about a process or when
it is required considering many features.
   Multidimensional = patient.
   Mechanical?                                                                    yes
       In Health and Social Sciences 2+2 ≠ 4.                       conditional
       Quick tool, but not all patients fit the taken decision by
                                                                                        A
       algorithms.
       First approach to a patient.                                 no
Construction:
   Less than 7 conditional steps.                                     End
   7 or more: separate by topics.
Useful flowchart
 ¿Candidate
                                  I used this flowchart when I worked at the Alzheimer’s Association
for a Nursing                       to suggest which resource would be better for the patients when
    Home?                                                  involution started.




Functionally and             Functional
                   no                       no                  yes                     yes     Strict      yes
   cognitively            Dependence but          Cognitive           Behavioural                                 Nursing
                                                                                                medical
 Independent?                preserved           Impairment?          Disorders?                                   Home
                                                                                              treatment?
                         cognitive function?


          yes                       yes                                       no
                                                                                                       no

                         Physical impairment, needed              At home but with               Day
  Patient can                 physical attention. no            Domiciliary Attention,           Care
 stay at home           Suggestion: living in an adapted         caring for avoiding            Center
                            Home or Nursing Home                    social isolation.
                              with autonomy and
                          capability to take decisions.
Management of wandering: Brainstorm
 Features related to wandering:
   Getting rid of physical restraints.
      Crawling out of bed at night.
   Risk of falling and accidents.
   Patient elopes and gets lost.
   Verbalisation of freedom needs.
      Feeling like a “caged bird”.
   Patient becomes aggressive when it is not possible to get out.
   Delusional content attaining wandering:
      “I must go to Cordoba to visit my mother: she is dying”.
   Disorientation.
   Overlapped to aberrant motor behaviour:
      Walks and takes off clothes at the same time.
   Agitation.
Management of wandering: Weights
Features as light hazards.
  Minimum risk of falling.
  Verbalisation of freedom needs.
  Patient can be managed when it is not possible to get out.
  Disorientation.
Real hazards for wanderers.
  Getting rid of physical restraints.
  Risk of falling and accidents.
  Patient elopes and gets lost.
  Patient becomes aggressive when it is not possible to get out.
  Delusional content attaining wandering.
  Overlapped to aberrant motor behaviour.
  Agitation.
  Imantation (L’Hermitte Syndrome).
Wandering
                       Management of wandering
   at home
                                          yes                         Watch if the
                                                                    patient is capable
                        Risk of Falls?                               to ask for help
                                                                   when suffering a fall

                                      no

 Only verbalisations
  of freedom needs               Eloping +
                                                yes                yes                     yes
                       no                             Agitation?                                      Nursing Home
                            delusional content?                            Agressive?
                                                                                                   and Pharmacological
                                                                                                        treatment
                               no                     no
                                                                           no
             yes
                                                   Disoriented:
                                                    needs for             Gets rid of        yes
   Patient can                                    walking in wide          Physical
                                                  but controlled          Restraints?
  stay at home
                                                      spaces.
 and caregiver
should be trained                                                     no
                                                  Day Care
                            Supervision            Center
                              needed
Conclusions
We have different profiles in elderly,
requiring different resources.
We can make flowcharts for each area:
  Concrete behavioural disorders.
  Physical status.
  Suggesting an area of living in a Nursing
  Home.
  Assignment to programmes.
  Etc.
My suggestion:
constructing flowcharts to practise and test if they
  work out in daily practice of Social Workers.
                 Comments to:
            Elena.lorente@gmail.com
            Elena.lorente@trs.ucm.es

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Behavioural disorders and decision taking (Part II)

  • 1. “Behavioural Disorders and Decision Taking. Choosing the best facilities for Psychogeriatric patients”. Assignment of Resources Elena Lorente Teacher. University Complutense of Madrid (Spain). Psychologist and Staff Coordinator. Geriatel Nursing Home (Madrid, Spain). Independent Consultant in Elderly Care. Berlin 08.12.2010
  • 2. Classifying global impairment in Elderly: Global Deterioration Scale (Reisberg). GDS-1: Normal. GDS-2: Subjective memory complaints. GDS-3: Mild Cognitive Impairment (preclinical). Little evidences of memory impairment, difficulties at workplace, mild executive deficits. Signs observed by relatives, coping with first symptoms, anxiety, dysphoria, the patients feel insecure. In a preclinical stage for Alzheimer’s it is frequently mistaken as a Depression (by relatives!!!). GDS-4: Mild Dementia. First cognitive deficits in all areas. Disorganisation at IADL. Coping with situations: negation and blaming others. Emotional lability. Tend to social isolation: not feeling capable to initiate a conversation. A little portion of relatives still feel the patient is “good but a bit absent- minded and forgetful”.
  • 3. Classifying global impairment in Elderly: Global Deterioration Scale (Reisberg). GDS-5: Moderate Dementia. Important cognitive deficits. Behavioural disorders: delusions, hallucinations, wandering, irritability, opposition, aggressiveness. Wandering mostly associated to freedom wishes (“I feel like a caged bird”) or delusional content (“I’m leaving, I have to pick up my kids from school”). Still remain verbal capacity to explain what they want. Temporal and spatial disorientation. Dependence in IADL and many BADL. GDS-6: Severe Dementia. Important behavioural disorders. Wide spectrum of behavioural disorders, with major trend to aggressiveness, agitation, inadequate motor behaviours, or even apathy. Wandering can be very difficult to handle (risk of falls). Totally dependent in ADL. Supervision needed. GDS-7: Very Severe Dementia. Important health problems.
  • 4. How to assess behavioural disorders: Neuropsychiatric Inventory (NPI) Behavioural disorders in neurological patients assessed by frequency, severity and distress. Held as a clinical interview with external observer: caregiver, relative, etc. Main disorders assessed: Delusions. Hallucinations. Agitation / aggression. Dysphoria. Anxiety. Euphoria. Apathy Disinhibition. Irritability / lability. Aberrant and motor behaviour. Sleep and nightime behaviour. Appetite and eating behaviour. Something missing: Where can we classify “wandering”? Suggestion: both agitation and aberrant motor. And for “insulting”? Suggestion: aggression, disinhibition and irritability. For opposition, the suggestion is: irritability.
  • 5. Reflection Exercise #1 How can these disorders interfere with daily functioning? Which disorders are more frequent in early, middle or moderate stages of Impairment or Dementia?
  • 6. Behavioural disorders and stages of involution DISORDER GDS- GDS- GDS- GDS-7 4 5 6 Delusions + ++ ++ ? Hallucinations + ++ ++ ? Agitation + ++ +++ + Dysphoria +++ ++ ++ ? Anxiety ++ ++ ++ ? Euphoria ++ ++ ++ ? Apathy +++ + + +++ Disinhibition + +++ +++ + Irritability / lability + +++ +++ ++ Aberrant motor behav. + +++ +++ + Sleep and nighttime b. ++ +++ +++ + Appetite and eating + +++ +++ ++
  • 7. Global Impairment and behavioural disorders Disorders are linked to the stage of involution: GDS-4: coping with symptoms and signs of involution, depression, anxiety, apathy, etc. GDS-5: disorders related to altered thinking, distorted perception, frustration for miscomunication and misunderstanding, and even disorientation. GDS-6: in the same line but with less verbal abilities to explain what really happens. GDS-7: inactivity and severe global impairment make many disorders invisible, but still remains irritability and eating disorders are related to dysphagia.
  • 8. Cue-recall: linking assessment of behavioural disorders to assessment of ADL NPI does not inform about: Family implications. Caregiver strain = Zarit. Real and factual difficulties to manage patients at home. ADL + behavioural impairment: First: Need for trained professionals. Domiciliary Attention Services. Next: Need for controlled environments + trained professionals. Day Care Centers. Nursing Homes.
  • 9. Reflection exercise #2 •For how long can an elderly person live alone at home? •Can we choose the first resource we find for a patient? •Are behavioural disorders important for this decision?
  • 10. Resources and candidates A resource is assigned considering: Availability. Localisation / “sectorisation”. Legal requirements. “Punctuation” and baremation of disability level. Economical resources of the user. Spain: Law of Personal Autonomy (a.k.a. “Law of Dependence”) and its application in the 17 autonomous communities. What about the candidates’ profile?
  • 11. Candidates for Domiciliary Attention Service Absence of cognitive impairment but light mobility problems to go out of home. Total absence of affective or behavioural disorders. Able to live alone but with little help. Little functional impairment. Only need help for: IADL: Walking, accompanying to medical visits. Shopping. Home duties. BADL: Only for bath or shower.
  • 12. Candidates for Day Care Centres Mild cognitive impairment or mild Dementia. Slightly compromised mobility. Needed and benefits of cognitive and physical rehabilitation. Not recommended staying alone at home all day. Behavioral disorders for a GDS-4 or GDS-5. Highly strained relatives. Forgetfulness affecting home and personal security. E.g.: leave the fridge open, switched on lights, taking double dose of medication, heating a metallic recipient in microwave, etc. Lack of nighttime disorders, despite disorientation.
  • 13. Candidates for Nursing Homes From Mild cognitive impairment to very severe Dementia. Inmovilism: space needed for wheelchairs, cranes, etc. Benefits of integral attention and rehabilitation. Evidence of health problems requiring careful treatment. Behavioral disorders. Highly strained relatives. Consider ambivalence in relatives: strain and stress perception, but also feeling guilty for “leaving” them in a nursing home. Common in Spain (cultural). Nighttime disorders, eating disorders, dependence in ADL. Social risk. Mental health.
  • 14. When we have a patient, we must take a decision Patient: Health Cognitive Functional Emotional Behavioural Choosing Social DECISION facilities or TAKING resources Environment and living conditions FLOWCHART
  • 15. Flowcharts Diagrams representing algorithms and processes. Step by step solution to a problem. Symbols. Process Helpful for taking decisions about a process or when it is required considering many features. Multidimensional = patient. Mechanical? yes In Health and Social Sciences 2+2 ≠ 4. conditional Quick tool, but not all patients fit the taken decision by A algorithms. First approach to a patient. no Construction: Less than 7 conditional steps. End 7 or more: separate by topics.
  • 16. Useful flowchart ¿Candidate I used this flowchart when I worked at the Alzheimer’s Association for a Nursing to suggest which resource would be better for the patients when Home? involution started. Functionally and Functional no no yes yes Strict yes cognitively Dependence but Cognitive Behavioural Nursing medical Independent? preserved Impairment? Disorders? Home treatment? cognitive function? yes yes no no Physical impairment, needed At home but with Day Patient can physical attention. no Domiciliary Attention, Care stay at home Suggestion: living in an adapted caring for avoiding Center Home or Nursing Home social isolation. with autonomy and capability to take decisions.
  • 17. Management of wandering: Brainstorm Features related to wandering: Getting rid of physical restraints. Crawling out of bed at night. Risk of falling and accidents. Patient elopes and gets lost. Verbalisation of freedom needs. Feeling like a “caged bird”. Patient becomes aggressive when it is not possible to get out. Delusional content attaining wandering: “I must go to Cordoba to visit my mother: she is dying”. Disorientation. Overlapped to aberrant motor behaviour: Walks and takes off clothes at the same time. Agitation.
  • 18. Management of wandering: Weights Features as light hazards. Minimum risk of falling. Verbalisation of freedom needs. Patient can be managed when it is not possible to get out. Disorientation. Real hazards for wanderers. Getting rid of physical restraints. Risk of falling and accidents. Patient elopes and gets lost. Patient becomes aggressive when it is not possible to get out. Delusional content attaining wandering. Overlapped to aberrant motor behaviour. Agitation. Imantation (L’Hermitte Syndrome).
  • 19. Wandering Management of wandering at home yes Watch if the patient is capable Risk of Falls? to ask for help when suffering a fall no Only verbalisations of freedom needs Eloping + yes yes yes no Agitation? Nursing Home delusional content? Agressive? and Pharmacological treatment no no no yes Disoriented: needs for Gets rid of yes Patient can walking in wide Physical but controlled Restraints? stay at home spaces. and caregiver should be trained no Day Care Supervision Center needed
  • 20. Conclusions We have different profiles in elderly, requiring different resources. We can make flowcharts for each area: Concrete behavioural disorders. Physical status. Suggesting an area of living in a Nursing Home. Assignment to programmes. Etc.
  • 21. My suggestion: constructing flowcharts to practise and test if they work out in daily practice of Social Workers. Comments to: Elena.lorente@gmail.com Elena.lorente@trs.ucm.es