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Clinical review


ABC of health informatics
How informatics tools help deal with patients’ problems
Frank Sullivan, Jeremy C Wyatt


During the everyday general practice consultation described in
                                                                    This is the sixth in a series of 12 articles
the box opposite, the common and rare collide. A problem that
                                                                    A glossary of terms is available at http://bmj.com/cgi/
may have been a routine matter becomes one of enormous              content/full/331/7516/566/DC1
importance to the doctor and the patient. At least seven
problems should be dealt with during the consultation. This
article, which follows on from the initial contact between Dr
McKay and Ms Smith described in the first article of the series     Ms Smith is a 58 year old florist with a 15 year history of
(BMJ 2005;331:566-8), explains how a range of solutions may         renal impairment caused by childhood pyelonephritis.
be presented to doctors during the consultation to augment          She has tiredness and muscle cramps. She consulted her
their decision making processes.                                    general practitioner (GP), Dr McKay, three days ago. Dr
                                                                    McKay noted Ms Smith’s blood pressure was 178/114 mm
                                                                    Hg, and she asked her to visit the practice nurse (who
                                                                    could repeat Ms Smith’s blood pressure test) to check her
Presenting problems                                                 urinalysis and send off blood for laboratory tests. The
                                                                    results of the blood tests show serum potassium
Ms Smith came to see her GP because of tiredness and muscle         5.2 mmol/l, serum calcium 2.8 mmol/l with albumin
cramps, and these problems need to be considered in detail.         38 g/l, and creatinine 567 mol/l
Potential solutions should be discussed with Ms Smith in a way
that she can understand.
    The patient’s history indicated that, among other things,
her pulse should be taken and her blood pressure measured.
The abnormal physical findings recorded in the electronic
notes were pallor and a blood pressure of 178/114 mm Hg.
The raised blood pressure was a potentially important new
finding, and the practice’s decision support software gave
advice on what to do next. Most of the advice on checking for
secondary causes of hypertension and end organ damage was
familiar to Dr McKay, as was the recommendation on
PRODIGY (Prescribing RatiOnally with Decision Support) to
repeat the examination on several occasions before starting
treatment.
    The rest of this article describes Ms Smith’s return visit,
when several blood pressure recordings and routine                 Decision support for hypertension
biochemistry test results were available to Dr McKay. Clinical
decision support tools are being refined to provide the
knowledge that doctors need without overloading them with
                                                                                                                                          SUPPORTIVE
unnecessary advice. This goal may be difficult to achieve
                                                                                                              Assistive and smart
because the amount of information needed varies between                                                       home technologies
health professionals and clinical situations.                                                              Smart                   Reminder unit
                                                                                                          wheelchair                (dementia)
                                                                                                  Pacemaker         Video "doorbell"        Dialysis
                                                                                                                                            machine
                                                                                              Therapy             Drug dispenser/
Investigation                                                                                  units
                                                                                                     Personal
                                                                                                                  compliance unit
                                                                                                                       Stairlift         "Keyless"
                                                                                                  heating systems                      entry systems
Four hours after the practice nurse had sent the patient’s blood
for testing, the results arrived by email. Ms Smith’s result had                     Alarm
been flagged red, and so Dr McKay opened up the details and                         systems                                                            Predictive/
saw that she had substantial renal impairment, hyperkalaemia,                            Gas                                                           deductive
                                                                                        monitor                                                         systems
and hypercalcaemia of sufficient severity to explain her                 (In)Activity              "Panic"
                                                                           monitor                pendant
presenting symptoms. Having laboratory test results available                                                                            "Transfer"        Activities of
                                                                                 Cardiotachometer                                        monitoring        daily living
on the same day the tests are done can reduce delays in starting
                                                                          Incontinence            Fall detector
treatment. An urgent phone call or email from the laboratory                monitor                                                         Event             Fall
may be preferred for extremely abnormal results, like a serum                                                                             monitoring       prediction
                                                                               Blood          Respiration
                                                                              pressure         monitor
potassium 6.7 mmol/l.                                                         monitor                                                 Gradual        Room
    Ambulatory blood pressure readings can be made                                       Smoke            Chair                       general      occupancy
                                                                                         detector       occupancy                     decline      monitoring
available through telemetry or at the patient’s next visit to                                            monitor
determine whether there is a sustained rise in blood pressure.
                                                                            RESPONSIVE                                                                  PREVENTIVE
An increasing number of biometric sensing devices can
provide information to help with the decision making               A wide range of sensing devices are available and can be broadly
process.                                                           categorised


BMJ VOLUME 331   22 OCTOBER 2005   bmj.com                                                                                                                                 955
Clinical review


Referral
At the next visit Dr McKay tells Ms Smith that she should start
treatment for hypertension and hypercalcaemia. Dr McKay also
says that Ms Smith should be referred to a renal physician, Dr
Jones, and a community dietitian for further assessment. Ms
Smith agrees, and Dr McKay telephones the hospital to discuss
these matters during the consultation. Dr McKay then uses an
electronic referral form on the hospital outpatient booking
website to provide the information required by colleagues at the
local hospital. In some contexts, this final task can be done
using an electronic booking programme. Health maintenance
organisations in the United States, which provide integrated
primary and secondary care, book appointments electronically,
and the ability to do this is a priority in the United Kingdom.
Booking appointments electronically in more complex referral
settings is difficult. The problem is not a technical one—rather,
political and workflow difficulties make transfer of meaningful
data between different parts of a health service hard to achieve.

                                                                       An electronic referral form can be filled in by GPs so that the hospital has
                                                                       all the necessary details of the patient
“Just in time” learning
Dr McKay had missed an issue of the BMJ in which it was
reported that blood pressures taken during consultations are
often inaccurate. However, the article in question had loaded          Reasons for using handheld computers at the point of care
automatically into the Clinical Evidence folders of the file storage   in the United States in 2003
on her Palmtop computer. Alternatively, the article could be
                                                                       x   To access drug information—67%
held on a laptop computer, mobile phone, or in a secure                x   To access clinical decision support—22%
personal web file to allow remote access.                              x   To prescribe drugs—13%
     This new knowledge was available to Dr McKay during the           x   To access medical records—4%
first consultation, and she asked the practice nurse to arrange        x   To view laboratory results—3%
ambulatory blood pressure testing. This is an example of a
“push technology,” which makes information available when
and where it is needed—just in time. When an interest is
registered in clinical topics relevant to a practice, selected and
relevant information can be sent to the practice by email, or
                                                                       High quality information portals for patients
mobile phone text messages or downloads, at daily or weekly
intervals, or less often. Most doctors, whether in hospital or the     x   www.nhsdirect.nhs.uk
                                                                       x   www.patient.co.uk
community, are rarely in one place for long. The information
                                                                       x   www.omni.ac.uk
systems they use to support their work need to be as mobile as         x   www.noah-health.org/en/rights
they are. Technological advances allow doctors to access data
                                                                       See also: Potts HWW; Wyatt JC. Survey of doctors’ experience of
and knowledge when connected to a fixed source like a                  patients using the internet. J Med Internet Res 2002.
CD Rom of their favourite book or by wireless connection to            www.jmir.org/2002/1/e5/
the internet.



Accessing information after the
consultation                                                                  Hospital
                                                                              referral
                                                                                                                                                         Internet:
                                                                                                                                                         mercury
                                                                              system                                                                    poisoning?
At the end of the consultation Dr McKay emails Ms Smith the
address of a good website containing information aimed at                                                Knowledge
                                                                                                                          Telephone
patients so that she can access it from home, a public library, or                                         of family
                                                                                                                                     Patient             Ms Smith
                                                                                               Practice electronic
an internet cafe. The availability of high quality resources for                                 patient record
                                                                                                                                   comments

patients mitigates potentially alarming messages on less                                         Prodigy
                                                                                                                                Hospital anxiety and
scrupulous websites that may, for example, say that high blood                                 Handheld         General          depression scale
                                                                                               computer       practitioner
pressure is often caused by mercury poisoning from dental                     Practice                                                Observed
                                                                                                   Email
fillings.                                                                      server                                                  pallor
     Most GPs accept that patient education is an important                                       Web browser
                                                                                                                               Blood pressure          Practice nurse
consultation task. They may be sceptical about whether patients                                       Hospital referral           readings
                                                                                                         protocol
take their advice on smoking and exercise, but doctors continue
to tailor advice to patients because specific information does                  Hospital         Internet: Bandolier,
improve knowledge and reduces any conflict that might arise                laboratory system     BMJ, GP notebook
during decision making. Educating patients need not be limited
by short consultation times.                                           Information used during and around the consultation


956                                                                                                        BMJ VOLUME 331             22 OCTOBER 2005         bmj.com
Clinical review


Summary
                                                                            Low
This episode of care illustrates many of the features of medicine                                                                            Chaos
                                                                                             1. Alcohol, drug, and
in the information age. People in industrial societies who are, or                              social problems
                                                                                             2. Smoker, poorly
believe themselves to be, ill can turn to a variety of sources of                               controlled diabetic
advice other than health professionals. In most cases these
resources, personal knowledge, and advice from family and                                                                         Most management of
                                                                         Professional     Zone of complexity                    acute and chronic disease
friends will be enough for people to resolve their health                 agreement                                                  in primary care
problems. In other cases, the information they obtain will be               about
insufficient or misleading. A primary care clinician is often             outcomes
needed to provide additional information, interpret it, and                                                           Service delivery -
individualise advice for each of the problems brought to the                                                          1. Immunisations, cervical cytology
                                                                                                                      2. Evidence based approach to
consultation by the patient. A few patients may seem reluctant                                                           chronic disease management
to seek information or participate in decisions about treatment
                                                                                           Plan and control
options. They prefer being told what to do, but even these                  High
patients usually appreciate a paper leaflet or website address
that they can give to family or friends who are more enquiring.                             High              Certainty about outcomes             Low
    In this example, some of the problems that had to be dealt
with included Ms Smith’s presenting problems (tiredness and
muscle cramps); opportunistic health promotion (screening for        Certainty and professional agreement on clinical decision making. Adapted
                                                                     from Hassey A. Complexity and the clinical encounter. In Sweeney K,
anxiety and depression), managing ongoing problems                   Griffiths F (eds). Complexity and healthcare: and introduction Oxford: Radcliffe
(metabolic upset and hypertension caused by chronic                  Medical Press, 2002
pyelonephritis), and modifying help seeking behaviours (easing
the patient’s uncertainty over electronic information sources).      Further reading
    Dr McKay had to decide on and undertake seven actions            x Poon EG, Wang SJ, Gandhi TK, Bates DW, Kuperman GJ. Design
during this consultation.                                              and implementation of a comprehensive outpatient Results
x Explaining the cause of the patient’s symptoms and available         Manager. J Biomed Inform 2003;36:80-91
treatments in a way that Ms Smith could understand                   x Choose and book website: www.chooseandbook.nhs.uk/ (accessed 6
                                                                       Oct 2005)
x Assuaging the patient’s anxiety that she may have mercury          x Little P, Barnett J, Barnsley L, Marjoram J, Fitzgerald-Barron A,
poisoning                                                              Mant D. Comparison of agreement between different measures of
x Starting treatment for hypertension with a thiazide                  blood pressure in primary care and daytime ambulatory blood
x Starting treatment for hypercalcaemia with bisphosphonates           pressure. BMJ 2002;325:254
x Referring Ms Smith to a consultant nephrologist                    x Smith R. The future of health care systems. BMJ 1997;314:1495-6
x Referring Ms Smith to a community dietitian                        x Wyatt JC. Clinical knowledge and practice in the information age: a
                                                                       handbook for health professionals. London: Royal Society of Medicine
x Advising the patient on use of internet resources to obtain
                                                                       Press, 2001
more information                                                     x Ely JW, Osheroff JA, Ebell MH, Chambliss ML, Vinson DC,
    Fortunately, clinicians in primary care teams no longer need       Stevermer JJ, Pifer EA. Obstacles to answering doctors’ questions
to rely on memories of lectures or their old medical textbooks.        about patient care with evidence: qualitative study. BMJ
Better informed patients, medical records that inform and              2002;324:71
teach, and electronic sources of reliable, well presented            x Peck C, McCall M, McLaren B, Rotem T. Continuing medical
                                                                       education and continuing professional development: international
information make it easier to make informed decisions on
                                                                       comparisons. BMJ 2000;320:432-5
problems presented in primary care. Informatics tools are
generally less helpful in more complex situations, in which
there may be uncertainty about the outcomes of interventions
or no professional consensus on the value of the outcomes that
are achievable.                                                      Frank Sullivan is NHS Tayside professor of research and development
    Better decisions in primary care should lead to more             in general practice and primary care, and Jeremy C Wyatt is professor
appropriate referrals to secondary care and a more efficient         of health informatics, University of Dundee.
health service. Research on the information needs of primary         The series will be published as a book by Blackwell Publishing in
care clinicians is informing the development of information          spring 2006.
services. Educational research is starting to show how to meet       Competing interests: None declared.
those educational needs most effectively and in a manner
congruent with professional revalidation.                            BMJ 2005;331:955–7




BMJ VOLUME 331   22 OCTOBER 2005   bmj.com                                                                                                                  957

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How informatics tools help deal with patients' problems

  • 1. Clinical review ABC of health informatics How informatics tools help deal with patients’ problems Frank Sullivan, Jeremy C Wyatt During the everyday general practice consultation described in This is the sixth in a series of 12 articles the box opposite, the common and rare collide. A problem that A glossary of terms is available at http://bmj.com/cgi/ may have been a routine matter becomes one of enormous content/full/331/7516/566/DC1 importance to the doctor and the patient. At least seven problems should be dealt with during the consultation. This article, which follows on from the initial contact between Dr McKay and Ms Smith described in the first article of the series Ms Smith is a 58 year old florist with a 15 year history of (BMJ 2005;331:566-8), explains how a range of solutions may renal impairment caused by childhood pyelonephritis. be presented to doctors during the consultation to augment She has tiredness and muscle cramps. She consulted her their decision making processes. general practitioner (GP), Dr McKay, three days ago. Dr McKay noted Ms Smith’s blood pressure was 178/114 mm Hg, and she asked her to visit the practice nurse (who could repeat Ms Smith’s blood pressure test) to check her Presenting problems urinalysis and send off blood for laboratory tests. The results of the blood tests show serum potassium Ms Smith came to see her GP because of tiredness and muscle 5.2 mmol/l, serum calcium 2.8 mmol/l with albumin cramps, and these problems need to be considered in detail. 38 g/l, and creatinine 567 mol/l Potential solutions should be discussed with Ms Smith in a way that she can understand. The patient’s history indicated that, among other things, her pulse should be taken and her blood pressure measured. The abnormal physical findings recorded in the electronic notes were pallor and a blood pressure of 178/114 mm Hg. The raised blood pressure was a potentially important new finding, and the practice’s decision support software gave advice on what to do next. Most of the advice on checking for secondary causes of hypertension and end organ damage was familiar to Dr McKay, as was the recommendation on PRODIGY (Prescribing RatiOnally with Decision Support) to repeat the examination on several occasions before starting treatment. The rest of this article describes Ms Smith’s return visit, when several blood pressure recordings and routine Decision support for hypertension biochemistry test results were available to Dr McKay. Clinical decision support tools are being refined to provide the knowledge that doctors need without overloading them with SUPPORTIVE unnecessary advice. This goal may be difficult to achieve Assistive and smart because the amount of information needed varies between home technologies health professionals and clinical situations. Smart Reminder unit wheelchair (dementia) Pacemaker Video "doorbell" Dialysis machine Therapy Drug dispenser/ Investigation units Personal compliance unit Stairlift "Keyless" heating systems entry systems Four hours after the practice nurse had sent the patient’s blood for testing, the results arrived by email. Ms Smith’s result had Alarm been flagged red, and so Dr McKay opened up the details and systems Predictive/ saw that she had substantial renal impairment, hyperkalaemia, Gas deductive monitor systems and hypercalcaemia of sufficient severity to explain her (In)Activity "Panic" monitor pendant presenting symptoms. Having laboratory test results available "Transfer" Activities of Cardiotachometer monitoring daily living on the same day the tests are done can reduce delays in starting Incontinence Fall detector treatment. An urgent phone call or email from the laboratory monitor Event Fall may be preferred for extremely abnormal results, like a serum monitoring prediction Blood Respiration pressure monitor potassium 6.7 mmol/l. monitor Gradual Room Ambulatory blood pressure readings can be made Smoke Chair general occupancy detector occupancy decline monitoring available through telemetry or at the patient’s next visit to monitor determine whether there is a sustained rise in blood pressure. RESPONSIVE PREVENTIVE An increasing number of biometric sensing devices can provide information to help with the decision making A wide range of sensing devices are available and can be broadly process. categorised BMJ VOLUME 331 22 OCTOBER 2005 bmj.com 955
  • 2. Clinical review Referral At the next visit Dr McKay tells Ms Smith that she should start treatment for hypertension and hypercalcaemia. Dr McKay also says that Ms Smith should be referred to a renal physician, Dr Jones, and a community dietitian for further assessment. Ms Smith agrees, and Dr McKay telephones the hospital to discuss these matters during the consultation. Dr McKay then uses an electronic referral form on the hospital outpatient booking website to provide the information required by colleagues at the local hospital. In some contexts, this final task can be done using an electronic booking programme. Health maintenance organisations in the United States, which provide integrated primary and secondary care, book appointments electronically, and the ability to do this is a priority in the United Kingdom. Booking appointments electronically in more complex referral settings is difficult. The problem is not a technical one—rather, political and workflow difficulties make transfer of meaningful data between different parts of a health service hard to achieve. An electronic referral form can be filled in by GPs so that the hospital has all the necessary details of the patient “Just in time” learning Dr McKay had missed an issue of the BMJ in which it was reported that blood pressures taken during consultations are often inaccurate. However, the article in question had loaded Reasons for using handheld computers at the point of care automatically into the Clinical Evidence folders of the file storage in the United States in 2003 on her Palmtop computer. Alternatively, the article could be x To access drug information—67% held on a laptop computer, mobile phone, or in a secure x To access clinical decision support—22% personal web file to allow remote access. x To prescribe drugs—13% This new knowledge was available to Dr McKay during the x To access medical records—4% first consultation, and she asked the practice nurse to arrange x To view laboratory results—3% ambulatory blood pressure testing. This is an example of a “push technology,” which makes information available when and where it is needed—just in time. When an interest is registered in clinical topics relevant to a practice, selected and relevant information can be sent to the practice by email, or High quality information portals for patients mobile phone text messages or downloads, at daily or weekly intervals, or less often. Most doctors, whether in hospital or the x www.nhsdirect.nhs.uk x www.patient.co.uk community, are rarely in one place for long. The information x www.omni.ac.uk systems they use to support their work need to be as mobile as x www.noah-health.org/en/rights they are. Technological advances allow doctors to access data See also: Potts HWW; Wyatt JC. Survey of doctors’ experience of and knowledge when connected to a fixed source like a patients using the internet. J Med Internet Res 2002. CD Rom of their favourite book or by wireless connection to www.jmir.org/2002/1/e5/ the internet. Accessing information after the consultation Hospital referral Internet: mercury system poisoning? At the end of the consultation Dr McKay emails Ms Smith the address of a good website containing information aimed at Knowledge Telephone patients so that she can access it from home, a public library, or of family Patient Ms Smith Practice electronic an internet cafe. The availability of high quality resources for patient record comments patients mitigates potentially alarming messages on less Prodigy Hospital anxiety and scrupulous websites that may, for example, say that high blood Handheld General depression scale computer practitioner pressure is often caused by mercury poisoning from dental Practice Observed Email fillings. server pallor Most GPs accept that patient education is an important Web browser Blood pressure Practice nurse consultation task. They may be sceptical about whether patients Hospital referral readings protocol take their advice on smoking and exercise, but doctors continue to tailor advice to patients because specific information does Hospital Internet: Bandolier, improve knowledge and reduces any conflict that might arise laboratory system BMJ, GP notebook during decision making. Educating patients need not be limited by short consultation times. Information used during and around the consultation 956 BMJ VOLUME 331 22 OCTOBER 2005 bmj.com
  • 3. Clinical review Summary Low This episode of care illustrates many of the features of medicine Chaos 1. Alcohol, drug, and in the information age. People in industrial societies who are, or social problems 2. Smoker, poorly believe themselves to be, ill can turn to a variety of sources of controlled diabetic advice other than health professionals. In most cases these resources, personal knowledge, and advice from family and Most management of Professional Zone of complexity acute and chronic disease friends will be enough for people to resolve their health agreement in primary care problems. In other cases, the information they obtain will be about insufficient or misleading. A primary care clinician is often outcomes needed to provide additional information, interpret it, and Service delivery - individualise advice for each of the problems brought to the 1. Immunisations, cervical cytology 2. Evidence based approach to consultation by the patient. A few patients may seem reluctant chronic disease management to seek information or participate in decisions about treatment Plan and control options. They prefer being told what to do, but even these High patients usually appreciate a paper leaflet or website address that they can give to family or friends who are more enquiring. High Certainty about outcomes Low In this example, some of the problems that had to be dealt with included Ms Smith’s presenting problems (tiredness and muscle cramps); opportunistic health promotion (screening for Certainty and professional agreement on clinical decision making. Adapted from Hassey A. Complexity and the clinical encounter. In Sweeney K, anxiety and depression), managing ongoing problems Griffiths F (eds). Complexity and healthcare: and introduction Oxford: Radcliffe (metabolic upset and hypertension caused by chronic Medical Press, 2002 pyelonephritis), and modifying help seeking behaviours (easing the patient’s uncertainty over electronic information sources). Further reading Dr McKay had to decide on and undertake seven actions x Poon EG, Wang SJ, Gandhi TK, Bates DW, Kuperman GJ. Design during this consultation. and implementation of a comprehensive outpatient Results x Explaining the cause of the patient’s symptoms and available Manager. J Biomed Inform 2003;36:80-91 treatments in a way that Ms Smith could understand x Choose and book website: www.chooseandbook.nhs.uk/ (accessed 6 Oct 2005) x Assuaging the patient’s anxiety that she may have mercury x Little P, Barnett J, Barnsley L, Marjoram J, Fitzgerald-Barron A, poisoning Mant D. Comparison of agreement between different measures of x Starting treatment for hypertension with a thiazide blood pressure in primary care and daytime ambulatory blood x Starting treatment for hypercalcaemia with bisphosphonates pressure. BMJ 2002;325:254 x Referring Ms Smith to a consultant nephrologist x Smith R. The future of health care systems. BMJ 1997;314:1495-6 x Referring Ms Smith to a community dietitian x Wyatt JC. Clinical knowledge and practice in the information age: a handbook for health professionals. London: Royal Society of Medicine x Advising the patient on use of internet resources to obtain Press, 2001 more information x Ely JW, Osheroff JA, Ebell MH, Chambliss ML, Vinson DC, Fortunately, clinicians in primary care teams no longer need Stevermer JJ, Pifer EA. Obstacles to answering doctors’ questions to rely on memories of lectures or their old medical textbooks. about patient care with evidence: qualitative study. BMJ Better informed patients, medical records that inform and 2002;324:71 teach, and electronic sources of reliable, well presented x Peck C, McCall M, McLaren B, Rotem T. Continuing medical education and continuing professional development: international information make it easier to make informed decisions on comparisons. BMJ 2000;320:432-5 problems presented in primary care. Informatics tools are generally less helpful in more complex situations, in which there may be uncertainty about the outcomes of interventions or no professional consensus on the value of the outcomes that are achievable. Frank Sullivan is NHS Tayside professor of research and development Better decisions in primary care should lead to more in general practice and primary care, and Jeremy C Wyatt is professor appropriate referrals to secondary care and a more efficient of health informatics, University of Dundee. health service. Research on the information needs of primary The series will be published as a book by Blackwell Publishing in care clinicians is informing the development of information spring 2006. services. Educational research is starting to show how to meet Competing interests: None declared. those educational needs most effectively and in a manner congruent with professional revalidation. BMJ 2005;331:955–7 BMJ VOLUME 331 22 OCTOBER 2005 bmj.com 957